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Richter's Transformation - Update 11-05-2022
Richter's Transformation Hello partners. I want to update the status of the Richter transform group. Three weeks ago my hematologist told me that after insisting so much that all Richter's cases be shared between doctors, it has finally been achieved. He told me that they had managed to collect 52 cases
Richter's Transformation Hello partners. I want to update the status of the Richter transform group. Three weeks ago my hematologist told me that after insisting so much that all Richter's cases be shared between doctors, it has finally been achieved. He told me that they had managed to collect 52 cases
Priss69
in
CLL Support
2 years ago
Dr Mesa on MF prognostics, Rux and SCT
Some detailed info in Dr Mesa's thoughts in a 2020 interview I came across: -For some MF patients Rux is working well and long term: <<There are patients from the phase 1 study of ruxolitinib [i](this dates to early as 2007) [/i]at our centers that are still on the therapy. These are individuals that
Some detailed info in Dr Mesa's thoughts in a 2020 interview I came across: -For some MF patients Rux is working well and long term: <<There are patients from the phase 1 study of ruxolitinib [i](this dates to early as 2007) [/i]at our centers that are still on the therapy. These are individuals that
EPguy
in
MPN Voice
2 years ago
Cramping and bleeding 5 weeks
I am losing it and need some reassurance. We had our first FET on 1 November, BFP on 12 November and HCG 1900 on 15 November. I have been having some cramping on and off. On Friday (18 November) I had some cramping and when I went to do my pessary in the evening I had some watery pink bleeding. Enough
I am losing it and need some reassurance. We had our first FET on 1 November, BFP on 12 November and HCG 1900 on 15 November. I have been having some cramping on and off. On Friday (18 November) I had some cramping and when I went to do my pessary in the evening I had some watery pink bleeding. Enough
Ltry
in
Fertility Network UK
1 year ago
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has anybody had blood test results with 35% elevated urea level?
has anybody had blood test results with 35% elevated urea level and the doctors said to ignore it. The Creatinine & EGFR that matters. thank you for sharing your thoughts. Kind regards.
has anybody had blood test results with 35% elevated urea level and the doctors said to ignore it. The Creatinine & EGFR that matters. thank you for sharing your thoughts. Kind regards.
catherine1712
in
LUPUS UK
2 years ago
Clinical Pharmacist - I'm quite cross!
I received a letter from the Doctors asking me to make a telephone appointment on certain dates to speak to a clinical pharmacist regarding treatment for COPD. I telephoned the doctors, yesterday and after a long hold spoke to the receptionist who gave me an appointment for today for 11:30. I had one
I received a letter from the Doctors asking me to make a telephone appointment on certain dates to speak to a clinical pharmacist regarding treatment for COPD. I telephoned the doctors, yesterday and after a long hold spoke to the receptionist who gave me an appointment for today for 11:30. I had one
anng18
in
Lung Conditions Community Forum
2 years ago
preparing for FET
Hi I’ve started my DR injections and booked in for my first scan on the 28th. This is my first FET. I’ve had three rounds of ivf, getting around 3 eggs at a time. The first round all 3 made it to blastocyst, one fresh transfer ended in a blighted ovum, others not good enough to freeze. Second
Hi I’ve started my DR injections and booked in for my first scan on the 28th. This is my first FET. I’ve had three rounds of ivf, getting around 3 eggs at a time. The first round all 3 made it to blastocyst, one fresh transfer ended in a blighted ovum, others not good enough to freeze. Second
Jokiekin11
in
Fertility Network UK
2 years ago
A randomized phase 3 trial of interferon-α vs hydroxyurea in polycythemia vera and essential thrombocythemia
Hello The paper below recently came out in May. I thought member would be interested. Apologies if this is old news. “A randomized phase 3 trial of interferon-α vs hydroxyurea in polycythemia vera and essential thrombocythemia” It is freely downloadable from PubMed at https://pubmed.ncbi.nlm.nih.gov
Hello The paper below recently came out in May. I thought member would be interested. Apologies if this is old news. “A randomized phase 3 trial of interferon-α vs hydroxyurea in polycythemia vera and essential thrombocythemia” It is freely downloadable from PubMed at https://pubmed.ncbi.nlm.nih.gov
LongETinUS
in
MPN Voice
2 years ago
Ectopic pregnancy help please - super freaking out! 😞
I’m (at the moment) experiencing a PUL as too early/hcg too low to pick up on ultrasound. Dr advised that I “wait to see what happens” … I go back tomorrow for another US (though they still aren’t confident they’ll see anything as hcg hardly risen) She then talked about non intervention management
I’m (at the moment) experiencing a PUL as too early/hcg too low to pick up on ultrasound. Dr advised that I “wait to see what happens” … I go back tomorrow for another US (though they still aren’t confident they’ll see anything as hcg hardly risen) She then talked about non intervention management
Hidden
in
Fertility Network UK
2 years ago
CLL Society This Week (USA Support Organization) - With Online Resources Available to All CLL Patients Worldwide
Sign Up to have CLL Society’s newsletter: This Week! delivered to your email inbox every Tuesday!: https://cllsociety.org/newsletter-sign-up/
SPECIAL FEATURE: CLL Resources
CLL Society aims to provide all those living with CLL/SLL the resources they need to conquer their diagnosis
Sign Up to have CLL Society’s newsletter: This Week! delivered to your email inbox every Tuesday!: https://cllsociety.org/newsletter-sign-up/
SPECIAL FEATURE: CLL Resources
CLL Society aims to provide all those living with CLL/SLL the resources they need to conquer their diagnosis
lankisterguy
Volunteer
in
CLL Support
2 years ago
Surprise with obinutuzumab + venetoclax treatment
Hi all. I would like to briefly tell my story of HLL and ask for advice from the participants of this wonderful forum. The disease was diagnosed in 2008. I was under observation for 12 years. In addition, maybe because of CLL, I developed kidney failure. In 2020, the decision was made to start treatment
Hi all. I would like to briefly tell my story of HLL and ask for advice from the participants of this wonderful forum. The disease was diagnosed in 2008. I was under observation for 12 years. In addition, maybe because of CLL, I developed kidney failure. In 2020, the decision was made to start treatment
simsorok
in
CLL Support
2 years ago
Newly diagnosed Et Edinburgh
Hi is anyone from Edinburgh that has been diagnosed with Essential Thrombocythaemia Calr mutation?
Hi is anyone from Edinburgh that has been diagnosed with Essential Thrombocythaemia Calr mutation?
Green1988
in
MPN Voice
2 years ago
HCG only went up by 24 in 72hrs. Now a wait for the inevitable…
Not looking for any glimmer of hope, just wanted to write down my frustrations to an audience that can sympathise. This ivf journey is just awful. We have to go through so much and most of the time just carry on as normal to those around us. Round (4 and our last attempt) and I finally got a bfp
Not looking for any glimmer of hope, just wanted to write down my frustrations to an audience that can sympathise. This ivf journey is just awful. We have to go through so much and most of the time just carry on as normal to those around us. Round (4 and our last attempt) and I finally got a bfp
Hidden
in
Fertility Network UK
2 years ago
Jakafi
Hi all, I was diagnosed in jan 22. My platelets were over 1100. I was immediately put on hydroxyurea and phlebotomy’s every 2weeks. Levels started to improve and then Started having an intolerance to the hydroxyurea. Continued with phlebotomy’s only as I can’t take aspirin. Platlets back up to 1100
Hi all, I was diagnosed in jan 22. My platelets were over 1100. I was immediately put on hydroxyurea and phlebotomy’s every 2weeks. Levels started to improve and then Started having an intolerance to the hydroxyurea. Continued with phlebotomy’s only as I can’t take aspirin. Platlets back up to 1100
Mich1234567
in
MPN Voice
2 years ago
*Sensitive* OTD and it's a BFP.
Cant quite believe it. I'm 14dp6dt and we got our very first BFP. It felt like a particularly difficult build up this time as it took us a year to even get to point of a transfer (I suddenly developed thyroiditis last year then I had covid etc). It was PGTA tested embryo and this time I was on 10mg
Cant quite believe it. I'm 14dp6dt and we got our very first BFP. It felt like a particularly difficult build up this time as it took us a year to even get to point of a transfer (I suddenly developed thyroiditis last year then I had covid etc). It was PGTA tested embryo and this time I was on 10mg
Haf05
in
Fertility Network UK
2 years ago
Night cramps
I have been having horrendous leg cramps every night - they move around from ankle to leg front or back of leg. My feet go into spasm. I have Myelofibrosis and am on Ruxolitinib. I am not getting much sleep. Can anyone help? SkipperL
I have been having horrendous leg cramps every night - they move around from ankle to leg front or back of leg. My feet go into spasm. I have Myelofibrosis and am on Ruxolitinib. I am not getting much sleep. Can anyone help? SkipperL
skipperL
in
MPN Voice
2 years ago
Could you share your leukaemia diagnosis story?
Hi everyone, Alex here from Leukaemia Care. 👋 September is Blood Cancer Awareness Month and we will be running our Spot Leukaemia campaign, which aims to raise awareness of the signs and symptoms of leukaemia. In order to raise awareness, we are looking for leukaemia stories to share throughout
Hi everyone, Alex here from Leukaemia Care. 👋 September is Blood Cancer Awareness Month and we will be running our Spot Leukaemia campaign, which aims to raise awareness of the signs and symptoms of leukaemia. In order to raise awareness, we are looking for leukaemia stories to share throughout
LCAlex
Administrator
in
Leukaemia CARE
2 years ago
PIPS and COPD
Hi everyone. Will my PIPS be affected if I still smoke? I’m trying so hard to give up by slowly tapering off and have reduced my smoking by two thirds with the method I came up with after numerous attempts over 20 years to stop. My cravings for nicotine were just as bad every day even after two years
Hi everyone. Will my PIPS be affected if I still smoke? I’m trying so hard to give up by slowly tapering off and have reduced my smoking by two thirds with the method I came up with after numerous attempts over 20 years to stop. My cravings for nicotine were just as bad every day even after two years
eisie72
in
COPD Friends
2 years ago
Can you manage the psychological impact of treatment relapse?
We will be Joined on the panel by:
Anne Crook, Counsellor / Psychotherapist, Psycho-oncology, The Christie NHS Foundation Trust Patient in treatment remission - TBC Patient with experience of
chronic
leukaemia
treatment relapse - TBC Patient with experience of acute leukaemia treatment relapse
We will be Joined on the panel by:
Anne Crook, Counsellor / Psychotherapist, Psycho-oncology, The Christie NHS Foundation Trust Patient in treatment remission - TBC Patient with experience of
chronic
leukaemia
treatment relapse - TBC Patient with experience of acute leukaemia treatment relapse
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
2 years ago
Anxious about the next transfer - trigger warning MC
Hi everyone, I'm new to posting on the forum but I have been lurking for a while. A bit of back story - we are having IVF due to male factor and there are no known issues with me. We started IVF last November and ended up with 3 blastocysts graded 5BB, 5AA and 5BB. We had a fresh 5BB transferred which
Hi everyone, I'm new to posting on the forum but I have been lurking for a while. A bit of back story - we are having IVF due to male factor and there are no known issues with me. We started IVF last November and ended up with 3 blastocysts graded 5BB, 5AA and 5BB. We had a fresh 5BB transferred which
Lovemusic1
in
Fertility Network UK
2 years ago
ULTRA-V trial discontinuing
My second post in a day. I wanted to share how my doctor approached TG Therapeutics pulling the trial as well as not seeking umbralisib FDA approval. I was in phase two and finished venetoclax and ublituximab a year ago. Because I didn't quite reach MRD negative (blood did; bone marrow did not), we
My second post in a day. I wanted to share how my doctor approached TG Therapeutics pulling the trial as well as not seeking umbralisib FDA approval. I was in phase two and finished venetoclax and ublituximab a year ago. Because I didn't quite reach MRD negative (blood did; bone marrow did not), we
beanlake14
in
CLL Support
2 years ago
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