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Another possible chemical :(
Hi guys, Apologies in advance for the long post… I think I'm having my 4th chemical pregnancy (1st with IVF after 3 natural chemicals). Had my FET on 19th Dec and OTD was yesterday at 11dp5dt. Got a few positive tests and a 1-2 weeks CB yesterday. Really tried to feel positive about the tests but
Hi guys, Apologies in advance for the long post… I think I'm having my 4th chemical pregnancy (1st with IVF after 3 natural chemicals). Had my FET on 19th Dec and OTD was yesterday at 11dp5dt. Got a few positive tests and a 1-2 weeks CB yesterday. Really tried to feel positive about the tests but
Esb27
in
Fertility Network UK
1 year ago
Update: it’s all over
Update: third hcg levels on 190, so not doubling in 72 hours. Devastated. That’s the end for us. No more attempts Tomorrow I have my second BT to see if the very low initial hcg has doubled. If not, that’s it for us - this was our last attempt before we move away from it all. I was so hoping
Update: third hcg levels on 190, so not doubling in 72 hours. Devastated. That’s the end for us. No more attempts Tomorrow I have my second BT to see if the very low initial hcg has doubled. If not, that’s it for us - this was our last attempt before we move away from it all. I was so hoping
Hidden
in
Fertility Network UK
1 year ago
what provoked my CLL?
Educating myself about CLL, I read that prolonged stimulation of the immune system in combination with genetic mutations and / or predisposition leads to CLL. I see myself as the ideal candidate for this disease. In a study about 10 years ago, it was found that one of the little proven risk factors
Educating myself about CLL, I read that prolonged stimulation of the immune system in combination with genetic mutations and / or predisposition leads to CLL. I see myself as the ideal candidate for this disease. In a study about 10 years ago, it was found that one of the little proven risk factors
Yalokin
in
CLL Support
2 years ago
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Painful cutaneous nodules (neutrophilic dermatosis of the dorsal hands) in chronic neutrophilic leukaemia
B114: Painful cutaneous nodules in
chronic
neutrophilic
leukaemia
, JULY 2022. "
Chronic
neutrophilic
leukaemia
(CNL) is a very rare, often clinically aggressive myeloid malignancy with few effective treatment options.
B114: Painful cutaneous nodules in
chronic
neutrophilic
leukaemia
, JULY 2022. "
Chronic
neutrophilic
leukaemia
(CNL) is a very rare, often clinically aggressive myeloid malignancy with few effective treatment options.
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
2 years ago
Study shows that over half of known human pathogenic diseases can be aggravated by climate change
Recently published in Nature https://www.nature.com/articles/s41558-022-01426-1 [i]"Here we carried out a systematic search for empirical examples about the impacts of ten climatic hazards sensitive to greenhouse gas (GHG) emissions on each known human pathogenic disease. We found that 58% (that is,
Recently published in Nature https://www.nature.com/articles/s41558-022-01426-1 [i]"Here we carried out a systematic search for empirical examples about the impacts of ten climatic hazards sensitive to greenhouse gas (GHG) emissions on each known human pathogenic disease. We found that 58% (that is,
bennevisplace
in
CLL Support
2 years ago
Need Urgent help for CAR-T therapy
Hello! My friend, a 57 year old male, who resides in India, has been suggested CAR-T therapy as a last resort. Here’s his cancer chronology 9/2009 - DX - Grade 2 Follicular Lymphoma. 9/09 to 11/2016 - W&W 11/2016 - NHL - infiltrating liver 11/2016 to 3/17 - 6 rounds of R-CHOP 4-17 to 11
Hello! My friend, a 57 year old male, who resides in India, has been suggested CAR-T therapy as a last resort. Here’s his cancer chronology 9/2009 - DX - Grade 2 Follicular Lymphoma. 9/09 to 11/2016 - W&W 11/2016 - NHL - infiltrating liver 11/2016 to 3/17 - 6 rounds of R-CHOP 4-17 to 11
nuji
in
CLL Support
2 years ago
Monoclonal gammopathy and serum immunoglobulin levels as prognostic factors in chronic lymphocytic leukaemia
"Immune dysregulation represents a dynamic process evolving during time, often towards hypogammaglobulineamia, especially therapy-related or during disease progression,8-11 and thus with a different subdivision over time. Nevertheless our study constitutes a ‘photograph’ at diagnosis of CLL patients
"Immune dysregulation represents a dynamic process evolving during time, often towards hypogammaglobulineamia, especially therapy-related or during disease progression,8-11 and thus with a different subdivision over time. Nevertheless our study constitutes a ‘photograph’ at diagnosis of CLL patients
Yalokin
in
CLL Support
2 years ago
mental health in first trimester
I’m wondering what anyone else has done to deal with first trimester stress. And in particular if anyone has any experience with contacting GP etc for support and whether it’s actually helped/ any other things tried? I’m 6w. I’m convinced that it’s a blighted ovum or otherwise already lost/ going
I’m wondering what anyone else has done to deal with first trimester stress. And in particular if anyone has any experience with contacting GP etc for support and whether it’s actually helped/ any other things tried? I’m 6w. I’m convinced that it’s a blighted ovum or otherwise already lost/ going
Hidden
in
Fertility Network UK - Pregnancy Support
1 year ago
Stem Cell Transplant-update
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
ConniesDad
in
MPN Voice
2 years ago
ET and PV Treatments Are Moving Toward Disease Modification
« An improved understanding of these myeloproliferative neoplasms, including the identification of driver mutations in JAK2, CALR, and MPL, has opened the door to treatments that enable the natural history of these diseases to be altered » « There are preclinical data suggesting [that interferons suppress
« An improved understanding of these myeloproliferative neoplasms, including the identification of driver mutations in JAK2, CALR, and MPL, has opened the door to treatments that enable the natural history of these diseases to be altered » « There are preclinical data suggesting [that interferons suppress
Manouche
in
MPN Voice
2 years ago
Treatment characteristics desired by renal cell carcinoma patients.
I am trying to learn more about health issues that are priority for the patients and their expectations for possible treatments.
I am conducting series of preference studies around the APAC region to understand patient preference and satisfaction with the patient care.
Such preference studies
I am trying to learn more about health issues that are priority for the patients and their expectations for possible treatments.
I am conducting series of preference studies around the APAC region to understand patient preference and satisfaction with the patient care.
Such preference studies
stage4RCCpatient
in
My Cancer Community
2 years ago
Jak2 targeting for therapies
We've had posts on promising immune therapies for CALR. These take advantage of the fact that CALR is findable in the body. A related item is the resistance of Jak2 being discovered and thus a barrier to immune therapies for Jak2. Here is a very technical report I don't understand, but I believe
We've had posts on promising immune therapies for CALR. These take advantage of the fact that CALR is findable in the body. A related item is the resistance of Jak2 being discovered and thus a barrier to immune therapies for Jak2. Here is a very technical report I don't understand, but I believe
EPguy
in
MPN Voice
2 years ago
combo Jakafi and Pegasys
i am just stated the combo treatment of Jakafi 20mg twice perday + Pegasys 135mcg weekly for PV and it success to reduce my PLT from 1.2mi to 300k; HCT from 47 to 41,3; WBC from 27 to 16 and HGB from 18 to 14. does anyone with same treatment can share their experience with this combo...? thanks
i am just stated the combo treatment of Jakafi 20mg twice perday + Pegasys 135mcg weekly for PV and it success to reduce my PLT from 1.2mi to 300k; HCT from 47 to 41,3; WBC from 27 to 16 and HGB from 18 to 14. does anyone with same treatment can share their experience with this combo...? thanks
william-Indo
in
MPN Voice
2 years ago
stinging itch
I have been free of the stinging itch for nearly 4 years thanks to ruxolitinib but has all of a sudden returned and I wondered if the same has happened anyone else?
I have been free of the stinging itch for nearly 4 years thanks to ruxolitinib but has all of a sudden returned and I wondered if the same has happened anyone else?
S031251
in
MPN Voice
2 years ago
MF high risk Mutations
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
EPguy
in
MPN Voice
2 years ago
CLL & Mastectomy / Implants
I'm wondering if anyone here with CLL/SLL has undergone a breast reduction or mastectomy since diagnosis. If so, were you on treatment or WW at time of surgery? If you were on treatment, did you have to stop for surgery? How was your healing? If you had a mastectomy, did you get implants after
I'm wondering if anyone here with CLL/SLL has undergone a breast reduction or mastectomy since diagnosis. If so, were you on treatment or WW at time of surgery? If you were on treatment, did you have to stop for surgery? How was your healing? If you had a mastectomy, did you get implants after
Amberesque
in
CLL Support
2 years ago
BFN 9dp5dt- worth testing again?
I had my 8th and final embryo transferred on 2 December. I did my beta yesterday (9dp5dt) - it was negative. They don’t give the exact value just <2.4. Has anyone had a negative or super low HCG on day 9 and gone on to have a positive? I’ve messaged my doctor, but behind it’s the weekend, I may not get
I had my 8th and final embryo transferred on 2 December. I did my beta yesterday (9dp5dt) - it was negative. They don’t give the exact value just <2.4. Has anyone had a negative or super low HCG on day 9 and gone on to have a positive? I’ve messaged my doctor, but behind it’s the weekend, I may not get
Mdms
in
Fertility Network UK
1 year ago
An antibody for myelofibrosis – “that’s a true discovery”
Recently, one of our MATES members showed me this (extract) article (MiaGrace), & I believe that many others might wish to see it too... A new monoclonal antibody, discovered by accident by Adelaide researchers, could become the world’s first effective treatment for primary myelofibrosis (MF).
Recently, one of our MATES members showed me this (extract) article (MiaGrace), & I believe that many others might wish to see it too... A new monoclonal antibody, discovered by accident by Adelaide researchers, could become the world’s first effective treatment for primary myelofibrosis (MF).
socrates_8
in
MPN Voice
2 years ago
Update
just got a call to say that my husband's JAK2 results are back. They wanted to discuss it with him over the phone but I pointed out he has major brain injuries as a result of brain haemorrhage and strokes and he won't cope on the phone. We have an appointment for Friday 5th August late morning.
just got a call to say that my husband's JAK2 results are back. They wanted to discuss it with him over the phone but I pointed out he has major brain injuries as a result of brain haemorrhage and strokes and he won't cope on the phone. We have an appointment for Friday 5th August late morning.
CelticCrow68
in
MPN Voice
2 years ago
Pregnancy disrupts the accuracy of automated fT4 immunoassays
This paper includes: [i]Indeed the International Federation of Clinical Chemistry working group for Standardization of Thyroid Function Tests acknowledged the need for standardization of the fT4 assay.[/i] Have to say, in my facetious moments, I have wonder what the IFCCSTFT group do when they are
This paper includes: [i]Indeed the International Federation of Clinical Chemistry working group for Standardization of Thyroid Function Tests acknowledged the need for standardization of the fT4 assay.[/i] Have to say, in my facetious moments, I have wonder what the IFCCSTFT group do when they are
helvella
Thyroid UK
in
Thyroid UK
1 year ago
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