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Really struggling
I have not been able to take thyroxine when I was diagnosed in March 2021, ended up on low FODMAP and with a homeopath and naturopath but went from 9 st 5 to 7 stone 11 when doctors got concerned. Every time I tried to include a food back in diet I was worse. Started thyroxine liquid in September 2023
I have not been able to take thyroxine when I was diagnosed in March 2021, ended up on low FODMAP and with a homeopath and naturopath but went from 9 st 5 to 7 stone 11 when doctors got concerned. Every time I tried to include a food back in diet I was worse. Started thyroxine liquid in September 2023
Da52
in
Thyroid UK
4 months ago
Chronic Hashimotos and long term side effects
Hi, I was diagnosed with Hashimotos 41 years ago after 6 years of feeling awful. A locum GP spotted a goitre in my throat as I was talking to him. I have been on 100 mcg of Thyroxine ever since. Now I am 66 . I have always suffered from hypoglycaemia-type symptoms after any type of exercise (even
Hi, I was diagnosed with Hashimotos 41 years ago after 6 years of feeling awful. A locum GP spotted a goitre in my throat as I was talking to him. I have been on 100 mcg of Thyroxine ever since. Now I am 66 . I have always suffered from hypoglycaemia-type symptoms after any type of exercise (even
HeartofApple
in
Thyroid UK
4 months ago
phosphate
Good Evening, a little question. I was reading an article about white and whole grain bread. I believe with CKD it is advised to eat white bread due to lower phosphates. The article said that this is not always the case, as although whole grain has more phosphates we only absorb 20-50% of the phosphates
Good Evening, a little question. I was reading an article about white and whole grain bread. I believe with CKD it is advised to eat white bread due to lower phosphates. The article said that this is not always the case, as although whole grain has more phosphates we only absorb 20-50% of the phosphates
Miss-guineapig
in
Kidney Disease
4 months ago
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Levo increase needed
How can doctors expect hypothyroid patients to feel good with a free t4 at only 50 percent? Doesn't even make sense.
How can doctors expect hypothyroid patients to feel good with a free t4 at only 50 percent? Doesn't even make sense.
Dryski
in
Thyroid UK
4 months ago
Update on Head/neck pressure post from a few days ago
I have a previous post discussing this but as a quick recap - for some reason, after about 2.5 years of being on a steady dose, I suddenly felt unwell and v overmedicated on holiday about 8 weeks ago. I dropped my dose by 5, then another 5mcg and felt fine about from about two weeks afterwards until
I have a previous post discussing this but as a quick recap - for some reason, after about 2.5 years of being on a steady dose, I suddenly felt unwell and v overmedicated on holiday about 8 weeks ago. I dropped my dose by 5, then another 5mcg and felt fine about from about two weeks afterwards until
Murphysmum
in
Thyroid UK
4 months ago
Genetic Testing?
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
janebob99
in
Prostate Cancer Network
4 months ago
accidental overdose of thyroxine
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
Tjqui00
in
Thyroid UK
4 months ago
recommend T3supplier online (private message only please)
I haven’t posted on here for quite some time now. For the last few years I have being buying my t3 over the counter either myself when on holiday or when friends or family are on holiday in Greece. I only have enough for a couple of months left so I need to buy online again but I don’t know who is
I haven’t posted on here for quite some time now. For the last few years I have being buying my t3 over the counter either myself when on holiday or when friends or family are on holiday in Greece. I only have enough for a couple of months left so I need to buy online again but I don’t know who is
Shazamm
in
Thyroid UK
4 months ago
Ferritin test results
Ferritin test results serum ferritin level 7 ug/L (12.0 - 233.0) what does it mean?
Ferritin test results serum ferritin level 7 ug/L (12.0 - 233.0) what does it mean?
Poppy_cat
in
Thyroid UK
14 days ago
Roseway labs
Do Roseway Labs request GP details and ask to write to them? Also, if I request T3, will they need proof that I am taking T4? If so, what proof do they require and how do I submit it? My last blood test was 7 weeks ago, is this too far away if this is what is required? I would be grateful for information
Do Roseway Labs request GP details and ask to write to them? Also, if I request T3, will they need proof that I am taking T4? If so, what proof do they require and how do I submit it? My last blood test was 7 weeks ago, is this too far away if this is what is required? I would be grateful for information
Sailing14
in
Thyroid UK
1 month ago
BBC Article : Prescription drugs sold online without robust checks
Whenever I see this type of article - the BBC and others produce these things every couple of years, I think - I start worrying that I'm going to lose access to thyroid hormones on the web. I know this subject came up with the MHRA last year or the year before, but I don't have a link. Link : https:
Whenever I see this type of article - the BBC and others produce these things every couple of years, I think - I start worrying that I'm going to lose access to thyroid hormones on the web. I know this subject came up with the MHRA last year or the year before, but I don't have a link. Link : https:
humanbean
in
Thyroid UK
4 months ago
checking out a T3 supply source
had a message about a thyroid supply company for T3 in America. Called [ redacted source ] is this a scam company or a proper legit company trying to check it out. Please private message me any thoughts. Thanks
had a message about a thyroid supply company for T3 in America. Called [ redacted source ] is this a scam company or a proper legit company trying to check it out. Please private message me any thoughts. Thanks
elwins
in
Thyroid UK
4 months ago
Update following meeting with MO
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
Benkaymel
in
Advanced Prostate Cancer
4 months ago
Considerations when starting out with private endo
I’m thinking of going to a private Endo. Looking at the list, there’s none in my county. I can travel half hour to one that’s just private and he sounds good but that means if I do get T3 and it does work, I’ll be forever paying for it (I don’t know costs yet). There’s one that’s NHS and private
I’m thinking of going to a private Endo. Looking at the list, there’s none in my county. I can travel half hour to one that’s just private and he sounds good but that means if I do get T3 and it does work, I’ll be forever paying for it (I don’t know costs yet). There’s one that’s NHS and private
Loopnova
in
Thyroid UK
4 months ago
T3 stopped 😡
Hi everyone ❤️ As some of you may know my gp stopped my T3 until I saw the endo on Dec 27th which didn't go well😠.. My gp said I would see the endo before my T3 ran out😂 this of course never happened so she gave me one months supply to tide me over. The appointment with the endo was for thyroid medication
Hi everyone ❤️ As some of you may know my gp stopped my T3 until I saw the endo on Dec 27th which didn't go well😠.. My gp said I would see the endo before my T3 ran out😂 this of course never happened so she gave me one months supply to tide me over. The appointment with the endo was for thyroid medication
birkie
in
Thyroid UK
4 months ago
GP advice needed please!
Hello, I was (eventually) diagnosed with Hashimoto's 25 years ago (the misdiagnosis nearly killed me, I was literally a week away from a coma, the consultant said.) I've been on 150mcg on day one and 175mcg day two, for 25 years. Every time I move house, the gp decides to reduce it, then puts it back
Hello, I was (eventually) diagnosed with Hashimoto's 25 years ago (the misdiagnosis nearly killed me, I was literally a week away from a coma, the consultant said.) I've been on 150mcg on day one and 175mcg day two, for 25 years. Every time I move house, the gp decides to reduce it, then puts it back
hcmoss68
in
Thyroid UK
4 months ago
Choices
Apologies for this seemingly random question but which do members think has the ‘least worst’ effect on T4 - pain or analgesics?
Apologies for this seemingly random question but which do members think has the ‘least worst’ effect on T4 - pain or analgesics?
Calceolaria
in
Thyroid UK
4 months ago
Cholesterol - again
The pharmacist just today told me my next, annual
test
will be next December,
cholesterol
monitoring is annual, ezetimebe doesn't make much difference and I should have injections anyway.
The pharmacist just today told me my next, annual
test
will be next December,
cholesterol
monitoring is annual, ezetimebe doesn't make much difference and I should have injections anyway.
DasyB
in
British Heart Foundation
8 months ago
What should my optimal vitamin levels be please?
Hi there, I’m trying to get vitamin levels up to hopefully help with poor conversion. Iron was low and I’ve recently retested for that after supplementing for about 3 months. Ferritin is now at 65 ug/L Folate has dropped from >45 a year ago to 8.5ug/L My question is what should they ideally be?
Hi there, I’m trying to get vitamin levels up to hopefully help with poor conversion. Iron was low and I’ve recently retested for that after supplementing for about 3 months. Ferritin is now at 65 ug/L Folate has dropped from >45 a year ago to 8.5ug/L My question is what should they ideally be?
Thywotsit
in
Thyroid UK
4 months ago
Trusted T3 sources
I’d like to buy T3 privately. If you have a trusted supplier can you please send me a link via private message? Many thanks
I’d like to buy T3 privately. If you have a trusted supplier can you please send me a link via private message? Many thanks
Bagster2
in
Thyroid UK
4 months ago
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