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Post Xofigo, where do we go from here?
I've finished all 6 rounds of Xofigo in December. My ALP dropped to the lowest in 2 years, bone scans have shown stable but active disease, MRI the same. However my PSA has bounced around from the mid 40"s to 70 and the last 2 jumping to 124 and 144 respectively.I've been told that the PSA jump following
I've finished all 6 rounds of Xofigo in December. My ALP dropped to the lowest in 2 years, bone scans have shown stable but active disease, MRI the same. However my PSA has bounced around from the mid 40"s to 70 and the last 2 jumping to 124 and 144 respectively.I've been told that the PSA jump following
Kentucky1
in
Advanced Prostate Cancer
1 year ago
monitoring
ls it okay to have chest X-ray instead of thoracic scan when in the monitoring stage. I am only 1yr post op with N2 M0, l refused ?? or should l say was sort of advised chemo would not really give much more than 5% to the 5yr survival. I have had scans for a year, now they are just doing X-rays, they
ls it okay to have chest X-ray instead of thoracic scan when in the monitoring stage. I am only 1yr post op with N2 M0, l refused ?? or should l say was sort of advised chemo would not really give much more than 5% to the 5yr survival. I have had scans for a year, now they are just doing X-rays, they
Zac2018
in
Lung Cancer Support
1 year ago
Has anyone been on Niraparib twice?
I have just finished my third line of chemo and CT was very good. CA125 is 8. My consultant has said I can go back on Niraparib as maintenance if I want to. I was on Niraparib for fifteen months between first and second recurrence. I’d like to know if anyone else has been given the same PARP twice ?
I have just finished my third line of chemo and CT was very good. CA125 is 8. My consultant has said I can go back on Niraparib as maintenance if I want to. I was on Niraparib for fifteen months between first and second recurrence. I’d like to know if anyone else has been given the same PARP twice ?
Seedlings
in
My Ovacome
1 year ago
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New liver Mets😢
Diagnosed 2014 ER positive breast cancer, mastectomy RHS chemo and 5 years on aromasin. 2020 diagnosed Mets in sternum, ribs and spine 10 rounds of radiation and faslodex, ibrance and xgeva with fantastic results. So new liver Mets have appeared after my tumours in my bones are stable. Shocked and
Diagnosed 2014 ER positive breast cancer, mastectomy RHS chemo and 5 years on aromasin. 2020 diagnosed Mets in sternum, ribs and spine 10 rounds of radiation and faslodex, ibrance and xgeva with fantastic results. So new liver Mets have appeared after my tumours in my bones are stable. Shocked and
Julesdubai
in
SHARE Metastatic Breast Cancer
1 year ago
Travel Insurance for Kiwis (NZers)
Hi I have an update on my post below from a few weeks ago Much to my surprise I have been successful in being offered travel insurance to cover my existing medical conditions (below) with Cover-more or Allianz for our intended travel to Europe and North America Cover-more initially refused cover
Hi I have an update on my post below from a few weeks ago Much to my surprise I have been successful in being offered travel insurance to cover my existing medical conditions (below) with Cover-more or Allianz for our intended travel to Europe and North America Cover-more initially refused cover
Moorsa
in
CLL Support
1 year ago
Questions about genetic testing
I’ve got mixed ductal PC. I’m post RALP, post-rad, 6 months into ADT. Setting research about the increased likelihood of metastasis with ductal, and the unreliability of PSA in indicating ductal, I’m anxious to touch all bases before it goes to lungs bones brain or liver. I’m already scheduled for
I’ve got mixed ductal PC. I’m post RALP, post-rad, 6 months into ADT. Setting research about the increased likelihood of metastasis with ductal, and the unreliability of PSA in indicating ductal, I’m anxious to touch all bases before it goes to lungs bones brain or liver. I’m already scheduled for
Caldonia
in
Advanced Prostate Cancer
1 year ago
Hello eyebrows, my old friend
I don’t quite know how to put this, or where this post will end up. I have had super thin/missing eyebrows since iv chemo in 2016. Was on Arimidex follow up for 5 years and noticed that they never returned. Fast forward to my current ibrance/faslodex and xgeva protocol and more of the same. Unit
I don’t quite know how to put this, or where this post will end up. I have had super thin/missing eyebrows since iv chemo in 2016. Was on Arimidex follow up for 5 years and noticed that they never returned. Fast forward to my current ibrance/faslodex and xgeva protocol and more of the same. Unit
Aquamoron
in
SHARE Metastatic Breast Cancer
1 year ago
PSA after SBRT for Oligometastatic
I recently had SBRT (5x9gray radiation treatments) for a single spot on L7. The spot was found by a PET/PSMA scan. PSA at the time of the scan was 1.1. (Dec 2022) Originally treated for High risk PC with 5x9 and 1x10 Gleason with 2yr Lupron, Radiation and Chemo (Docetaxel). Treatment ran from Dec 2015
I recently had SBRT (5x9gray radiation treatments) for a single spot on L7. The spot was found by a PET/PSMA scan. PSA at the time of the scan was 1.1. (Dec 2022) Originally treated for High risk PC with 5x9 and 1x10 Gleason with 2yr Lupron, Radiation and Chemo (Docetaxel). Treatment ran from Dec 2015
billd50
in
Prostate Cancer Network
1 year ago
Latest Update to Here We Go Again
I hope to be able to take an oral
chemotherapy
to prevent recurrence. I had liver cancer as my first cancer, and could not take tamoxifin because my liver wouldn't tolerate it. All in all, I am okay! Thank you for your responses that helped a great deal, and for the prayers!!
I hope to be able to take an oral
chemotherapy
to prevent recurrence. I had liver cancer as my first cancer, and could not take tamoxifin because my liver wouldn't tolerate it. All in all, I am okay! Thank you for your responses that helped a great deal, and for the prayers!!
anrean
in
SHARE Breast Cancer Support
2 years ago
Constipation after chemo
Can anyone please advise how they dealt with the constipation. My first chemo last week and I can honestly say I have never experienced anything like it! I ended up in hospital with faecal impaction. Ended up having an enema! Nurse called it a poobabie! Any advice would be very much appreciated xxx
Can anyone please advise how they dealt with the constipation. My first chemo last week and I can honestly say I have never experienced anything like it! I ended up in hospital with faecal impaction. Ended up having an enema! Nurse called it a poobabie! Any advice would be very much appreciated xxx
Hidden
in
My Ovacome
1 year ago
Opinions on Lu-PSMA-617 Clinical Trial
Dad has never had
chemotherapy
before (only anti-androgen medicines like Zytiga and Xtandi in addition to Zoladex injections and the works).
Dad has never had
chemotherapy
before (only anti-androgen medicines like Zytiga and Xtandi in addition to Zoladex injections and the works).
PHnerd
in
Advanced Prostate Cancer
2 years ago
Ano regrets?
Has anyone on here regretted having treatment , several friends of mine regretted having
chemotherapy
in the past as it made the last years of their lives. miserable, and didn't extend their life.
Has anyone on here regretted having treatment , several friends of mine regretted having
chemotherapy
in the past as it made the last years of their lives. miserable, and didn't extend their life.
PACWOMAN
in
CLL Support
2 years ago
Any suggestions for headache?
After initial diagnosis in 2015, I've had EBRT; brachytherapy; chemo in 2019; ADT since 2019 chemo; two bone Mets on spine since 2019, but no detectable PSA. Have been on Orgovyx since December, 2020. Still have everyday, lowgrade --- not migraine --- headaches, for which I take Excedrin. In talking
After initial diagnosis in 2015, I've had EBRT; brachytherapy; chemo in 2019; ADT since 2019 chemo; two bone Mets on spine since 2019, but no detectable PSA. Have been on Orgovyx since December, 2020. Still have everyday, lowgrade --- not migraine --- headaches, for which I take Excedrin. In talking
fmh1
in
Advanced Prostate Cancer
1 year ago
Xeloda causing hand redness and extreme tenderness ... playing phone tag with onc's nurse
I am frustrated and feeling more vulnerable and overwhelmed than I've felt during most of my 19 year journey with MBC. On day 5 of 7 days off Xeloda, second round of two weeks on, one week off. I phoned the cancer center either two or three times yesterday and twice so far today. On top of that, I
I am frustrated and feeling more vulnerable and overwhelmed than I've felt during most of my 19 year journey with MBC. On day 5 of 7 days off Xeloda, second round of two weeks on, one week off. I phoned the cancer center either two or three times yesterday and twice so far today. On top of that, I
PJBinMI
in
SHARE Metastatic Breast Cancer
1 year ago
new diagnosis: ovarian serous borderline tumour
Hi everyone I w/o dear if anyone can give some advice please? Some background: It began May 2021, rushed in to hospital with severe pain. Diagnosed with a simple (benign) cyst on left ovary , put on emergency waiting list for operation for keyhole surgery of both ovaries to cut risk of further
Hi everyone I w/o dear if anyone can give some advice please? Some background: It began May 2021, rushed in to hospital with severe pain. Diagnosed with a simple (benign) cyst on left ovary , put on emergency waiting list for operation for keyhole surgery of both ovaries to cut risk of further
Atai
in
My Ovacome
1 year ago
Radium 223 before Cabazitaxel?
This was prescribed today to manage bone pain and also because my PSA has not particularly responded to Docetaxel and the bone scan shows further cancer growth. There is some doubt as to whether more chemo will do any good. Has anyone had experience of doing things this way round? I assume I could
This was prescribed today to manage bone pain and also because my PSA has not particularly responded to Docetaxel and the bone scan shows further cancer growth. There is some doubt as to whether more chemo will do any good. Has anyone had experience of doing things this way round? I assume I could
Finlay66
in
Advanced Prostate Cancer
1 year ago
Is it possible for a stage of cancer to lower
Hi all, this may be a silly question but is it possible for the stage of cancer to change to a lower stage if treatment has been really successful? my husband is stage 4, Gleason 9 and has had hormones, chemo and radiotherapy. His oncologist is really happy with how he has responded and all sites
Hi all, this may be a silly question but is it possible for the stage of cancer to change to a lower stage if treatment has been really successful? my husband is stage 4, Gleason 9 and has had hormones, chemo and radiotherapy. His oncologist is really happy with how he has responded and all sites
Ktm990jan
in
Advanced Prostate Cancer
1 year ago
I have prostate cancer [adenocarcinoma grade 7] and also Schwannomatosis NF3, I am up for radiology, possible chemotherapy?
I had two schwannomas on my prostate from 2019-20 would they be aggravated by the radiology?
I had two schwannomas on my prostate from 2019-20 would they be aggravated by the radiology?
Adlon57
in
Advanced Prostate Cancer
1 year ago
breath shortness
ladies, who have breath shortness is that always fluid in lungs? My mom have shortness, before it was little but last 2 month she dont have it only when she lie in bed:( she had ct scan which show 1.5cm fluid , but doctor said it is very small amount… she has this breathless from stomach more in that
ladies, who have breath shortness is that always fluid in lungs? My mom have shortness, before it was little but last 2 month she dont have it only when she lie in bed:( she had ct scan which show 1.5cm fluid , but doctor said it is very small amount… she has this breathless from stomach more in that
Inguc_is
in
My Ovacome
1 year ago
Carboplatin
Had a good year on Taxol and it knocked my CA15 down to almost normal but its creeping back up and my PET shows new activity. We discussed a ton of options and I am grateful there are so many. We also re-ran my original tumors through some more advanced genetic testing. The bottom line next drug is
Had a good year on Taxol and it knocked my CA15 down to almost normal but its creeping back up and my PET shows new activity. We discussed a ton of options and I am grateful there are so many. We also re-ran my original tumors through some more advanced genetic testing. The bottom line next drug is
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
1 year ago
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