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Reduced transfer factor (KCo 53%, TLCo 54%)
Hi, Just a quick question, if anyone can help please. Letter from rheum says "recent lung function tests showed KCo of 53% and TLCo of 54%, with normal lung volumes" Had CTPA and email stating no PEs. Also had echo which I assume all was alright as nothing back from consultant. I'm 52, have had SLE,
Hi, Just a quick question, if anyone can help please. Letter from rheum says "recent lung function tests showed KCo of 53% and TLCo of 54%, with normal lung volumes" Had CTPA and email stating no PEs. Also had echo which I assume all was alright as nothing back from consultant. I'm 52, have had SLE,
Dragonfly4
in
Lung Conditions Community Forum
7 years ago
Latest update....
Wow where do I start, so much seems to have happened in the last couple of weeks. Whilst hubby was having transfusions his HB markers were climbing....100 two weeks ago....went back for blood tests on Wednesday.....HB dropped to 96 (no transfusion for 2 weeks) and Platelets have climbed from 76 to 276
Wow where do I start, so much seems to have happened in the last couple of weeks. Whilst hubby was having transfusions his HB markers were climbing....100 two weeks ago....went back for blood tests on Wednesday.....HB dropped to 96 (no transfusion for 2 weeks) and Platelets have climbed from 76 to 276
Susiecarer
in
CLL Support
7 years ago
Rituximab infusion and bad news about back☹️☹️☹️
In ward for 3 course of rituximab infusion . Just had consult with doctor and been told that mri of back shows 4 bulging discs with nerve impingement 😮☹️. She is referring me for spinal nerve injections but that might take 6 mths . Feeling bit low after that news but what can you do , you have to get
In ward for 3 course of rituximab infusion . Just had consult with doctor and been told that mri of back shows 4 bulging discs with nerve impingement 😮☹️. She is referring me for spinal nerve injections but that might take 6 mths . Feeling bit low after that news but what can you do , you have to get
weathervane
in
LUPUS UK
7 years ago
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Life or death... Or IVIG.
Thanks to you lovely people and great support group advice, I have my first IVIG INFUSION in two days in Portland, Oregon. I had FCR six years ago.... Cll/SLL Stage 4, Rai II. My FCR was stopped by the 5th month because I was so very toxic. Very aggressive FCR and I just never recovered. Always had
Thanks to you lovely people and great support group advice, I have my first IVIG INFUSION in two days in Portland, Oregon. I had FCR six years ago.... Cll/SLL Stage 4, Rai II. My FCR was stopped by the 5th month because I was so very toxic. Very aggressive FCR and I just never recovered. Always had
Kimsome
in
CLL Support
7 years ago
Just putting a tentative toe in the on line world!
Although I am new to the on line community I was diagnosed as having CLL a bit over nine years ago now, was treated was chlorambucil and then with FCR the following year. I guess I was lucky in that I only needed three courses rather than the usual six for my white cell count to come right down. And
Although I am new to the on line community I was diagnosed as having CLL a bit over nine years ago now, was treated was chlorambucil and then with FCR the following year. I guess I was lucky in that I only needed three courses rather than the usual six for my white cell count to come right down. And
Patientgill
in
CLL Support
7 years ago
Flu vaccine
Hello friends, I finished 6 rounds of FCR in March. I was so disappointed to discover last month that my white cell count and neuts were lower than when I was going through chemo. Had bloods checked last week and still the same. I've just returned to work at a school but am nervous now I've heard all
Hello friends, I finished 6 rounds of FCR in March. I was so disappointed to discover last month that my white cell count and neuts were lower than when I was going through chemo. Had bloods checked last week and still the same. I've just returned to work at a school but am nervous now I've heard all
Kenn123
in
CLL Support
7 years ago
nausea returned 4 months post FCR
Hi everyone. I am new to this community and so glad to be able to connect with you all. I had 4 series of FCR treatment and am 4 months out since the last one. After each series (3 days each) I experienced about 3-4 days of nausea. After that my only symptom was fatigue. Surprisingly, about 3 weeks
Hi everyone. I am new to this community and so glad to be able to connect with you all. I had 4 series of FCR treatment and am 4 months out since the last one. After each series (3 days each) I experienced about 3-4 days of nausea. After that my only symptom was fatigue. Surprisingly, about 3 weeks
Hidden
in
CLL Support
7 years ago
Cheap alternative to rituximab
Just answered a post on the new cheaper alternative to rituximab, I was given it , major reaction, see photos This was all Over my body, arms legs feet torso back and front hands toes, everywhere stopped at my neck was frightened it would continue to My Face Blood pressure dropped from average 125
Just answered a post on the new cheaper alternative to rituximab, I was given it , major reaction, see photos This was all Over my body, arms legs feet torso back and front hands toes, everywhere stopped at my neck was frightened it would continue to My Face Blood pressure dropped from average 125
dobsey
in
NRAS
7 years ago
Rituximab replacement
Has anyone on ritux been asked to go over to another drug which I am told is same but I guess cheaper? Need to check it out but maybe someone can tell me about it? Thanks
Has anyone on ritux been asked to go over to another drug which I am told is same but I guess cheaper? Need to check it out but maybe someone can tell me about it? Thanks
Cathy777
in
NRAS
7 years ago
Rituximab ....
Hi all, I've been having a Rituximab infusion every three months (used to be two every six months) and went today for the latest one. Am feeling really disheartened as my blood pressure went so high they had to stop the infusion. I am so gutted as I have been doing really well on it and this has actually
Hi all, I've been having a Rituximab infusion every three months (used to be two every six months) and went today for the latest one. Am feeling really disheartened as my blood pressure went so high they had to stop the infusion. I am so gutted as I have been doing really well on it and this has actually
CHARLIE49
in
Vasculitis UK
7 years ago
UPDATE-Just finished a 5 week round of Chemo
I wrote on here 2 months ago to get an uplift..well things changes for the worst since then. I have had to be on multiple rounds of antibiotics for UTI and Yeast infections which cause a lupus flare, which then caused my ITP to flare its ugly head. I went in for brusing as I always do. I knew my count
I wrote on here 2 months ago to get an uplift..well things changes for the worst since then. I have had to be on multiple rounds of antibiotics for UTI and Yeast infections which cause a lupus flare, which then caused my ITP to flare its ugly head. I went in for brusing as I always do. I knew my count
JBUGGIE210
in
ITP Support Association
7 years ago
Neutrophils staying low
My OH has just completed a 4th cycle of FCR - however each cycle has been reduced from the previous one, initially due to low platelet figures, now it's low neutrophils. Full set of blood tests today, so waiting to hear what happens next. Only symptom is fatigue, but this is debilitating and depressing
My OH has just completed a 4th cycle of FCR - however each cycle has been reduced from the previous one, initially due to low platelet figures, now it's low neutrophils. Full set of blood tests today, so waiting to hear what happens next. Only symptom is fatigue, but this is debilitating and depressing
shoppingtrolley
in
CLL Support
7 years ago
Rituximab versus Etanercept
Regular dmards have not worked for me and my Rheumatologist has asked that I decide between Rutuximab and Etanercept. Both seem quite frightening. Would like to know your experiences of these medications as it is a difficult decision to make. Look forward to your responses.
Regular dmards have not worked for me and my Rheumatologist has asked that I decide between Rutuximab and Etanercept. Both seem quite frightening. Would like to know your experiences of these medications as it is a difficult decision to make. Look forward to your responses.
Peterborough67
in
NRAS
7 years ago
Starting Rituximab in the morning
Hello Folks I am following on from my 'mycophenolate begone" post after being informed about biologics. Tomorrow I commence with rituximab. I have written a blog but don't know if I am allowed to post it - if it's not permitted, please can admin delete the url. https://unleashingthewolfwithin.blogspot.co.uk
Hello Folks I am following on from my 'mycophenolate begone" post after being informed about biologics. Tomorrow I commence with rituximab. I have written a blog but don't know if I am allowed to post it - if it's not permitted, please can admin delete the url. https://unleashingthewolfwithin.blogspot.co.uk
Dragonfly4
in
LUPUS UK
7 years ago
Insomnia
Hello All, Does anyone else have problems with insomnia. I had my 3rd round of Rituximab in May, and have been having major sleep problems every since. I average 3-4 hrs a night, getting up between 2 and 4 am each morning and am beginning to feel a little like a zombie. I try not to sleep in the
Hello All, Does anyone else have problems with insomnia. I had my 3rd round of Rituximab in May, and have been having major sleep problems every since. I average 3-4 hrs a night, getting up between 2 and 4 am each morning and am beginning to feel a little like a zombie. I try not to sleep in the
KayEP
in
NRAS
7 years ago
Ibrutinib as frontline??
Hello everyone! Does anyone know why Ibrutinib is only available to CLL patients whose previous treatments have been unsuccessful? It was first made routinely available to leukaemia patients through the NHS in 2016, apparently after years of campaigning by Bloodwise, the cancer research charity. I've
Hello everyone! Does anyone know why Ibrutinib is only available to CLL patients whose previous treatments have been unsuccessful? It was first made routinely available to leukaemia patients through the NHS in 2016, apparently after years of campaigning by Bloodwise, the cancer research charity. I've
bendintheroad1
in
CLL Support
7 years ago
Rituximab side effects
Hi all, I have been on rituximab nearly a year and it has given me my life back to some extent, but since I have started it I have had rosacea on my face, scalp, back and part of my legs. My doctor wants me off it but I cant find this as a side effect for rituximab, I would like to know if anyone else
Hi all, I have been on rituximab nearly a year and it has given me my life back to some extent, but since I have started it I have had rosacea on my face, scalp, back and part of my legs. My doctor wants me off it but I cant find this as a side effect for rituximab, I would like to know if anyone else
Sunny99
in
NRAS
7 years ago
FCR after four years
When I was taken to the hospital with HB of 5.4 and Leukos 20.0 and lots of wrong b Cells, this was 9/2013, I had only little hope to recover again, as I was tested unmutated, CD 38 neg and ZAP 70 of 50% and Trisomie 12. I received 13 packs of Erytrocyt/Concentrate and 6 rounds of FCR. Only minor sideeffects
When I was taken to the hospital with HB of 5.4 and Leukos 20.0 and lots of wrong b Cells, this was 9/2013, I had only little hope to recover again, as I was tested unmutated, CD 38 neg and ZAP 70 of 50% and Trisomie 12. I received 13 packs of Erytrocyt/Concentrate and 6 rounds of FCR. Only minor sideeffects
seoul
in
CLL Support
7 years ago
To have or not to have....
Hi all I've got my appointment this morning to see if I need my 5th FCR. I must admit to feeling nervous and anxious because why shouldn't I have my 5th and 6th sessions, it's what I signed up for on the trial, it might make the difference between a long and a short remission! Then I tell myself to
Hi all I've got my appointment this morning to see if I need my 5th FCR. I must admit to feeling nervous and anxious because why shouldn't I have my 5th and 6th sessions, it's what I signed up for on the trial, it might make the difference between a long and a short remission! Then I tell myself to
sallyplest
in
CLL Support
7 years ago
New MS biomarker
See article --basically a new blood test that can determine disease activity and monitor DMT response that may replace spinal taps SUMMARY AND COMMENT Multiple Sclerosis Serum Biomarker Predictive of Disability and Disease Activity Robert T. Naismith, MD Reviewing Disanto G et al., Ann Neurol 2017 Jun
See article --basically a new blood test that can determine disease activity and monitor DMT response that may replace spinal taps SUMMARY AND COMMENT Multiple Sclerosis Serum Biomarker Predictive of Disability and Disease Activity Robert T. Naismith, MD Reviewing Disanto G et al., Ann Neurol 2017 Jun
erash
in
My MSAA Community
7 years ago
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