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Strange case of CLL remission
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
mkawass
in
CLL Support
3 years ago
blood results after 9 week fcr finished
hi all,,, went for my blood review today 9 week after cycle 6 fcr finished ,,wbc.106....plts 34.....HB.108.....neuts.0.5........ not to happy with these results can anyone help me with these as iam thinking does the body take time to recover after 6 months of FCR,,,,got a couple of mouth ulcers and feeling
hi all,,, went for my blood review today 9 week after cycle 6 fcr finished ,,wbc.106....plts 34.....HB.108.....neuts.0.5........ not to happy with these results can anyone help me with these as iam thinking does the body take time to recover after 6 months of FCR,,,,got a couple of mouth ulcers and feeling
kel555
in
CLL Support
3 years ago
Saw rheumy
So I asked him about vaccines etc, I see NRAS have been kind enough to reply and are looking into the remarks on tv recently. I asked if I should have my TCZ infusion next week and he said yes, I'm advising all my patients to have the vaccination whatever one is offered as far as RA advice goes but
So I asked him about vaccines etc, I see NRAS have been kind enough to reply and are looking into the remarks on tv recently. I asked if I should have my TCZ infusion next week and he said yes, I'm advising all my patients to have the vaccination whatever one is offered as far as RA advice goes but
allanah
in
NRAS
3 years ago
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COVID-19 Vaccine and Behçet’s - updated 27/01/21
Please see the definitive Behçet’s Centres of Excellence position statement (December 2020) on COVID-19 vaccine via the attached link. It states "The three centres of excellence recommend the Pfizer/BioNTech Covid-19 Vaccine for patients with Behçets." and then gives the justification why. This includes
Please see the definitive Behçet’s Centres of Excellence position statement (December 2020) on COVID-19 vaccine via the attached link. It states "The three centres of excellence recommend the Pfizer/BioNTech Covid-19 Vaccine for patients with Behçets." and then gives the justification why. This includes
TonyWT
Partner
in
Behçet's UK
3 years ago
Health Canada approves Ibrutinib plus Rituximab for First Line Treatment of Patients with Chronic Lymphocytic Leukemia (CLL)
Good News for our untreated Canadian members![i] [/i] [i] [/i] [i]This latest approval is based on the Phase 3 ECOG1912 study (also referred to as E1912) that demonstrated newly diagnosed patients age 70 or younger (median age of 58) treated with IMBRUVICA® plus rituximab had significantly improved progression-free
Good News for our untreated Canadian members![i] [/i] [i] [/i] [i]This latest approval is based on the Phase 3 ECOG1912 study (also referred to as E1912) that demonstrated newly diagnosed patients age 70 or younger (median age of 58) treated with IMBRUVICA® plus rituximab had significantly improved progression-free
AussieNeil
Partner
in
CLL Support
3 years ago
Wish the doctors would listen
So a month ago I started limping, pain in my right lower leg. A few days later pain in my right hip, due to walking badly due to pain in lower leg I thought. Straight away I suspected a stress fracture of my fibula as the pain was identical to that I had experienced in 2008. Back on crutches and using
So a month ago I started limping, pain in my right lower leg. A few days later pain in my right hip, due to walking badly due to pain in lower leg I thought. Straight away I suspected a stress fracture of my fibula as the pain was identical to that I had experienced in 2008. Back on crutches and using
Pam-51
in
NRAS
3 years ago
Chest pain in CLL
Hi all am waiting to start fcr treatment for my cll quite soon, but for the past 3 week's I've been suffering from tightness and slight pain in the middle and right side of my chest. Had my heart checked and all ok. Just wondering if anyone has had this problem Thank you
Hi all am waiting to start fcr treatment for my cll quite soon, but for the past 3 week's I've been suffering from tightness and slight pain in the middle and right side of my chest. Had my heart checked and all ok. Just wondering if anyone has had this problem Thank you
Daisy1993
in
CLL Support
3 years ago
Nras web Facebook session about vaccines
It's very very In depth. Goes into huge detail about when it's best to have vaccine but the main messages I got was: Have the vaccine ! the ones passed are safe for RA patients . The oxford vaccine was a live vaccine that he have attenuated so we can have it therefore not a " live" vaccine when given
It's very very In depth. Goes into huge detail about when it's best to have vaccine but the main messages I got was: Have the vaccine ! the ones passed are safe for RA patients . The oxford vaccine was a live vaccine that he have attenuated so we can have it therefore not a " live" vaccine when given
allanah
in
NRAS
3 years ago
Facebook 7pm nras online webinar. Vaccines and rheumatoid arthritis
Should be a good watch. Maybe they will answer the topics worrying us about rituximab, etc. Etc
Should be a good watch. Maybe they will answer the topics worrying us about rituximab, etc. Etc
allanah
in
NRAS
3 years ago
not sure
I all ,i started treatment august 2020 FCR, i was doing fine no problems until my 3 cycle October i seem to have a slight cough which would did not go away as time went on it got worse ,i was due to start my 4 cycle so i went to my doctors for a review before treatment i told him about the cough and
I all ,i started treatment august 2020 FCR, i was doing fine no problems until my 3 cycle October i seem to have a slight cough which would did not go away as time went on it got worse ,i was due to start my 4 cycle so i went to my doctors for a review before treatment i told him about the cough and
kel555
in
CLL Support
3 years ago
Astra Zeneca - any reactions?
Or is it just me? Had it yesterday, aged 61. Within minutes I felt peculiar, also throat and eyes aching. Perked up in the evening, though tired. Very tired and headachy today. Hopefully it just means it’s just doing it’s job. I am so much more sensitive to all kinds of things since FCR two and a
Or is it just me? Had it yesterday, aged 61. Within minutes I felt peculiar, also throat and eyes aching. Perked up in the evening, though tired. Very tired and headachy today. Hopefully it just means it’s just doing it’s job. I am so much more sensitive to all kinds of things since FCR two and a
Mandy56
in
CLL Support
3 years ago
Wegners disease and kidney function
Anyone out there with an auto immune disease that resulted in acute renal failure had any renewal or seen an increased kidney function over recovery time. If so , how many months after diagnosis. I have had another vasculitis flare up and back on a shed load of steroids. I'm now having a 2nd session
Anyone out there with an auto immune disease that resulted in acute renal failure had any renewal or seen an increased kidney function over recovery time. If so , how many months after diagnosis. I have had another vasculitis flare up and back on a shed load of steroids. I'm now having a 2nd session
Norfickgal
in
Kidney Disease
3 years ago
Covid vaccine effectiveness and rituximab
I just came across this MS-related blog: https://multiple-sclerosis-research.org/2020/06/the-mscovid-19-vacccination-window-of-ocrelizumab-rituximab-and-more-evidence-for-the-importance-of-memory-b-cells/ It's quite technical and contains links to related papers. It is very informative about vaccination
I just came across this MS-related blog: https://multiple-sclerosis-research.org/2020/06/the-mscovid-19-vacccination-window-of-ocrelizumab-rituximab-and-more-evidence-for-the-importance-of-memory-b-cells/ It's quite technical and contains links to related papers. It is very informative about vaccination
gooseflight
in
Vasculitis UK
3 years ago
Pfizer vaccine
I had my 6 monthly phone call with Rheumatologist cancelled this week. I was hoping to ask if it was ok to have the vaccine if offered. I am on Rituximab so immunosuppressed. Has anyone else gained an answer to this question pls?
I had my 6 monthly phone call with Rheumatologist cancelled this week. I was hoping to ask if it was ok to have the vaccine if offered. I am on Rituximab so immunosuppressed. Has anyone else gained an answer to this question pls?
Evie3
in
NRAS
3 years ago
COVID19 Vaccination Information for Vasculitis Patients
https://www.vasculitis.org.uk/news/covid-vaccination-and-vasculitis COVID 19 VACCINATION IMPORTANT INFORMATION FOR VASCULITIS PATIENTSWith the imminent arrival of two or more covid vaccines, many people with vasculitis are understandably confused and worried about safety and suitability of the new vaccines
https://www.vasculitis.org.uk/news/covid-vaccination-and-vasculitis COVID 19 VACCINATION IMPORTANT INFORMATION FOR VASCULITIS PATIENTSWith the imminent arrival of two or more covid vaccines, many people with vasculitis are understandably confused and worried about safety and suitability of the new vaccines
John_Mills
Vasculitis UK
in
Vasculitis UK
3 years ago
Confused about COVID vaccines and Immune Suppressed? I am!
I was feeling upbeat about the prospect of vaccines I probably was wrong thinking we could take them because they were not live, that’s my fault I guess, blind optimism maybe. Yesterday I went to see my specialist to check on progress of my transfer from Azathioprine to Rituximab, all seemed good until
I was feeling upbeat about the prospect of vaccines I probably was wrong thinking we could take them because they were not live, that’s my fault I guess, blind optimism maybe. Yesterday I went to see my specialist to check on progress of my transfer from Azathioprine to Rituximab, all seemed good until
Investigator1
in
Vasculitis UK
4 years ago
How things have changed
Admiral of the Fleet Sir Michael Le Fanu GCB DSC, First Sea Lord and (briefly) Chief of the Defence Staff was diagnosed in May 1970 with CLL. He was treated at the King Edward VII Hospital in London under Sir Ronald Bodley-Scott with cortisone and blood transfusions (Cortisone and Soda as he described
Admiral of the Fleet Sir Michael Le Fanu GCB DSC, First Sea Lord and (briefly) Chief of the Defence Staff was diagnosed in May 1970 with CLL. He was treated at the King Edward VII Hospital in London under Sir Ronald Bodley-Scott with cortisone and blood transfusions (Cortisone and Soda as he described
SERVrider
in
CLL Support
3 years ago
Lupus and Bowel Bleeding
Hi all, my daughter was diagnosed with Lupus last December and it has been a rollercoaster journey. She has had Rituximab and cyclophosphamide infusions been on steroids, the lot. She is now taking the following medication: Fluconazole, Omeprazole, Aspirin, Mycophenolate, Hydroxychloroquine. Because
Hi all, my daughter was diagnosed with Lupus last December and it has been a rollercoaster journey. She has had Rituximab and cyclophosphamide infusions been on steroids, the lot. She is now taking the following medication: Fluconazole, Omeprazole, Aspirin, Mycophenolate, Hydroxychloroquine. Because
chezevo
in
LUPUS UK
4 years ago
Rituximab and pregnancy
Has anyone had rituximab and tried for a baby? I’m roughly 7 years diagnosed and had only 1 relapse in between. GPA vasculitis
Has anyone had rituximab and tried for a baby? I’m roughly 7 years diagnosed and had only 1 relapse in between. GPA vasculitis
rrahman
in
Vasculitis UK
4 years ago
Rituximab and covid vaccination
Hi All I have a dilemma and would be interested if anyone can help with information. I am due to have rituximab infusions starting next week which are overdue and I haven't had any infusions since January. It was suggested earlier in the year that I delay the infusions for as long as possible unless
Hi All I have a dilemma and would be interested if anyone can help with information. I am due to have rituximab infusions starting next week which are overdue and I haven't had any infusions since January. It was suggested earlier in the year that I delay the infusions for as long as possible unless
Galaxy2
in
Vasculitis UK
4 years ago
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