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Cerebral vasculitis
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Hello
Hello fellow Lupies, i've just joined this site, found it through FB, I'm 48 years old & was diagnosed six & a half years ago, I have APS & SLE, I was ok ish for the first three & a half years but the last two & a half have been difficult, I've had varoius chest infections, Vasculitis, Pneumonia for
Hello fellow Lupies, i've just joined this site, found it through FB, I'm 48 years old & was diagnosed six & a half years ago, I have APS & SLE, I was ok ish for the first three & a half years but the last two & a half have been difficult, I've had varoius chest infections, Vasculitis, Pneumonia for
Trace
in
LUPUS UK
13 years ago
neurologist's letter
Sorry in advance if this is long winded he has listed the following as diagnoses:- SLE Anti beta 2 glycoprotein antibodies
Cerebral
vasculopathy (probably not
vasculitis
) Muscle contraction headache Diabetes Hypertension Patent foramen ovale (small) In
Sorry in advance if this is long winded he has listed the following as diagnoses:- SLE Anti beta 2 glycoprotein antibodies
Cerebral
vasculopathy (probably not
vasculitis
) Muscle contraction headache Diabetes Hypertension Patent foramen ovale (small) In
annie330
in
LUPUS UK
12 years ago
Has anyone taking cyclophosphamide suffered from tinnitus as a result?
I have CNS vasculitis and shortly after starting cyclophosphamide I developed tinnitus. I have had it for nearly 3 years now and I just wonder if it is a side effect of this particular drug?
I have CNS vasculitis and shortly after starting cyclophosphamide I developed tinnitus. I have had it for nearly 3 years now and I just wonder if it is a side effect of this particular drug?
LyndaGould
in
Vasculitis UK
13 years ago
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Thoughts on neurologists letter
Sorry in advance if this is long winded he has listed the following as diagnoses:- SLE Anti beta 2 glycoprotein antibodies
Cerebral
vasculopathy (probably not
vasculitis
) Muscle cibtraction headache Diabetes Hypertension Patent foramen ovale (small) In the body of his letter he has put that
Sorry in advance if this is long winded he has listed the following as diagnoses:- SLE Anti beta 2 glycoprotein antibodies
Cerebral
vasculopathy (probably not
vasculitis
) Muscle cibtraction headache Diabetes Hypertension Patent foramen ovale (small) In the body of his letter he has put that
annie330
in
Vasculitis UK
12 years ago
Does anybody know why my newly diagnosed son would have severe shooting pains on the right side of his head? Elaine
He has been getting large lumps coming up and then quickly going on his head too. He is still having tests as the Vasculitis was discovered on a skin biopsy for the whole body rash he had. Thanks Elaine
He has been getting large lumps coming up and then quickly going on his head too. He is still having tests as the Vasculitis was discovered on a skin biopsy for the whole body rash he had. Thanks Elaine
Elainekay42
in
Vasculitis UK
13 years ago
To what extent does Vasculitis complicate invasive surgery?
Sorry if this has come up before, I have been looking everywhere but I can't find much, certainly nothing relevant to the NHS. I am just wondering to what extent pre-exisiting Wegener's would affect a person's suitability for ( for instance) hip replacement or other invasive surgery of this type.
Sorry if this has come up before, I have been looking everywhere but I can't find much, certainly nothing relevant to the NHS. I am just wondering to what extent pre-exisiting Wegener's would affect a person's suitability for ( for instance) hip replacement or other invasive surgery of this type.
Hidden
in
Vasculitis UK
12 years ago
Losing driving licence due to cerebral vasculitis
I don't know if people with other forms of vasculitis ever lose their driving licences due to their
vasculitis
, but this happened to me, with
cerebral
vasculitis
.
I don't know if people with other forms of vasculitis ever lose their driving licences due to their
vasculitis
, but this happened to me, with
cerebral
vasculitis
.
vivdunstan
Volunteer
in
Vasculitis UK
13 years ago
Trying Thalidomide for cerebral vasculitis
I already sleep for up to 17 hours every single day because of my brain damage from the
cerebral
vasculitis
. But this was that plus being even more of a zombie, as I staggered to the bathroom each time, before heading back to bed and more sleep. But the sedative effect has now eased.
I already sleep for up to 17 hours every single day because of my brain damage from the
cerebral
vasculitis
. But this was that plus being even more of a zombie, as I staggered to the bathroom each time, before heading back to bed and more sleep. But the sedative effect has now eased.
vivdunstan
Volunteer
in
Vasculitis UK
13 years ago
Do other vasculitis patients check their own blood pressure?
Because of my
cerebral
vasculitis
the consultant and GP want to keep an eye on my blood pressure. It's usually checked by nurses at the hospital when I'm there each month. But I have white coat syndrome, so don't get a reliable reading when it's taken in such a setting, or in the GP's surgery.
Because of my
cerebral
vasculitis
the consultant and GP want to keep an eye on my blood pressure. It's usually checked by nurses at the hospital when I'm there each month. But I have white coat syndrome, so don't get a reliable reading when it's taken in such a setting, or in the GP's surgery.
vivdunstan
Volunteer
in
Vasculitis UK
13 years ago
My experience with cerebral (CNS) vasculitis
I have
cerebral
vasculitis
, in a somewhat progressive form, similar in day-to-day symptoms to multiple sclerosis. I have been ill since 1994, when I was just 22. I was initially misdiagnosed with ME. I was finally diagnosed with
cerebral
vasculitis
in 1997.
I have
cerebral
vasculitis
, in a somewhat progressive form, similar in day-to-day symptoms to multiple sclerosis. I have been ill since 1994, when I was just 22. I was initially misdiagnosed with ME. I was finally diagnosed with
cerebral
vasculitis
in 1997.
vivdunstan
Volunteer
in
Vasculitis UK
13 years ago
Flu vaccines and whether to get them
But it's also because a few years ago the flu vaccine seems to have exacerbated my very aggressive
cerebral
vasculitis
.
But it's also because a few years ago the flu vaccine seems to have exacerbated my very aggressive
cerebral
vasculitis
.
vivdunstan
Volunteer
in
Vasculitis UK
13 years ago
Do other vasculitis people get nausea, not from the meds?
That led, eventually, to a
cerebral
vasculitis
diagnosis in 1997. Now of course I get nausea from the cytotoxic meds. When I started on Azathioprine in 1998 I got day-long nausea, every single day.
That led, eventually, to a
cerebral
vasculitis
diagnosis in 1997. Now of course I get nausea from the cytotoxic meds. When I started on Azathioprine in 1998 I got day-long nausea, every single day.
vivdunstan
Volunteer
in
Vasculitis UK
12 years ago
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