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Ceftazidime intravenous infusion
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Painful Port?
So, when I began IVIG, I insisted on getting a port. My nutrition clinic wanted to put in a PICC, but my deep veins suck, too, and I didn’t love the idea of a PICC when I love baths and have dogs to care for. Anyhow, the thing was placed in the middle of April, and I still have itching. Now I have
So, when I began IVIG, I insisted on getting a port. My nutrition clinic wanted to put in a PICC, but my deep veins suck, too, and I didn’t love the idea of a PICC when I love baths and have dogs to care for. Anyhow, the thing was placed in the middle of April, and I still have itching. Now I have
NerdyChristina
in
Behçet's UK
6 years ago
I’m worried about my relapse for the second time
Hi all, I was diagnosed with ITP in 2007, as I was at the worst stage than with platelet count of 5, I was given both blood & platelet transfusion, IVIG for 10 days followed by course of prednisolone for a year. I then had a relapse in 2012, sudden heavy bleeding during my period and my platelet count
Hi all, I was diagnosed with ITP in 2007, as I was at the worst stage than with platelet count of 5, I was given both blood & platelet transfusion, IVIG for 10 days followed by course of prednisolone for a year. I then had a relapse in 2012, sudden heavy bleeding during my period and my platelet count
Shielz
in
ITP Support Association
6 years ago
Imbruvica and Sinus Issues
My husband has been on Imbruvica for 54 days and developed a Cold (Sinus Infection) two weeks ago and just can’t seem to shake it. Oncologist ordered Zpack and DayQuil/NyQuil it has helped some but certainly not well. Will see Oncologist on June 22. He has not had IVIG since April 3rd. Has anyone had
My husband has been on Imbruvica for 54 days and developed a Cold (Sinus Infection) two weeks ago and just can’t seem to shake it. Oncologist ordered Zpack and DayQuil/NyQuil it has helped some but certainly not well. Will see Oncologist on June 22. He has not had IVIG since April 3rd. Has anyone had
Sis1Ap3
in
CLL Support
6 years ago
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Need some feedback...
After my last visit with my onco it was decided that I still do not need IVIG and to take an antibiotic and viral medicine when needed - Visited a new dentist yesterday as old one retired and was put thru the paces with a myriad of X-rays and poking around my mouth. My rt eye and temple hurt and finally
After my last visit with my onco it was decided that I still do not need IVIG and to take an antibiotic and viral medicine when needed - Visited a new dentist yesterday as old one retired and was put thru the paces with a myriad of X-rays and poking around my mouth. My rt eye and temple hurt and finally
Stretch1
in
CLL Support
6 years ago
Does IVIG help fatigue?
So last week I was having the worst fatigue so far apart from when I had pneumonia. I’ve taken antibiotics for a few days now and the infection is clearing. I’m also less fatigued and more able to walk. Almost back to my new normal. This dramatic fatigue with a relatively minor infection (I also got
So last week I was having the worst fatigue so far apart from when I had pneumonia. I’ve taken antibiotics for a few days now and the infection is clearing. I’m also less fatigued and more able to walk. Almost back to my new normal. This dramatic fatigue with a relatively minor infection (I also got
AdrianUK
in
CLL Support
6 years ago
Surgery risk
Hi all, I have severe brittle asthma, and I recently saw neurosurgeon as I have severe lower back pain. I have been told I need a spinal fusion but because of the anaesthetic risk i am not a candidate for surgery. Has anyone else experienced this?
Hi all, I have severe brittle asthma, and I recently saw neurosurgeon as I have severe lower back pain. I have been told I need a spinal fusion but because of the anaesthetic risk i am not a candidate for surgery. Has anyone else experienced this?
Denae011
in
Asthma Community Forum
6 years ago
Intro
Hello, first time ever on a web site like this. I have had limited scleraderma symptoms since the 80's, with raynaulds first symptom, dry eyes for years as well, petechia on fingers, lips, face. Official scleraderma Dx In 2010, And sjogrens...along w fatigue that when it hits- I am exhausted! Raynaulds
Hello, first time ever on a web site like this. I have had limited scleraderma symptoms since the 80's, with raynaulds first symptom, dry eyes for years as well, petechia on fingers, lips, face. Official scleraderma Dx In 2010, And sjogrens...along w fatigue that when it hits- I am exhausted! Raynaulds
Shejustice
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Struggling this time
Hi 10 days post my fourth THR plus pelvic rebuild and am struggling to cope, last year's third seemed so much easier, o.k. am 10 months older (69) but just ache and unable to get comfortable and really don't want to take more than minimum pain relief! I have A.S. with total spinal fusion. Any ideas
Hi 10 days post my fourth THR plus pelvic rebuild and am struggling to cope, last year's third seemed so much easier, o.k. am 10 months older (69) but just ache and unable to get comfortable and really don't want to take more than minimum pain relief! I have A.S. with total spinal fusion. Any ideas
Bluebirdanthony
in
Arthritis Action
6 years ago
Scoliosis and Osteopathy
Has anyone had success in being “straightened up” by osteopathy? The scoliosis was caused by my third spinal fusion three years ago. After two treatments, am certainly straighter but the pain is really awful. Is it normal to feel great for two days after treatment, and the dreadful pain kicking in for
Has anyone had success in being “straightened up” by osteopathy? The scoliosis was caused by my third spinal fusion three years ago. After two treatments, am certainly straighter but the pain is really awful. Is it normal to feel great for two days after treatment, and the dreadful pain kicking in for
Fyllida
in
Pain Concern
6 years ago
Breathing after post op
Post op recovery at home after a Cervical Fusion operation. ADCF Hello! Ive had my spinal fusion which in itself went very well so far but early days. I went straight into Critical care in 1-1 nursing and they kept eye on my chest COPD. I had some sort of virus before surgery and took a low maintanace
Post op recovery at home after a Cervical Fusion operation. ADCF Hello! Ive had my spinal fusion which in itself went very well so far but early days. I went straight into Critical care in 1-1 nursing and they kept eye on my chest COPD. I had some sort of virus before surgery and took a low maintanace
Janzo54
in
Lung Conditions Community Forum
6 years ago
Endless battle to find meds I can cope with
Hi my lupy friends, I have SLE ITP sjorgens Raynards fibromyalgia and neuropathy, greedy I know 😊 since the beginning of the year I have been fighting a massive flare and being ignored really, then I decided to help my rheumy with some research to make gps more aware that when we say we have joint pain
Hi my lupy friends, I have SLE ITP sjorgens Raynards fibromyalgia and neuropathy, greedy I know 😊 since the beginning of the year I have been fighting a massive flare and being ignored really, then I decided to help my rheumy with some research to make gps more aware that when we say we have joint pain
Manclady61
in
LUPUS UK
6 years ago
Out of the woods with ITP (I think!)
I have been diagnosed with ITP nine years ago back in dec. 2009, I was on my way to CA and I was told my blood count went to 2,000 from my primary care so I had to see a specialist, I went in and they gave me prednisone, for two weeks, they advised me not to go but I had already got the ticket so I went
I have been diagnosed with ITP nine years ago back in dec. 2009, I was on my way to CA and I was told my blood count went to 2,000 from my primary care so I had to see a specialist, I went in and they gave me prednisone, for two weeks, they advised me not to go but I had already got the ticket so I went
Itpnotforme123
in
ITP Support Association
6 years ago
Was anyone else frightened to start Ivig treatments ?
I like to consider myself a pretty tough chick but for some reason I’m scared to start then for fear of long term side effects like the FCR did to me by giving me autoimmune neutropenia. In order to supposedly fix that I need these Ivig drips two days in a row for 5 hours every 3 weeks..... I worry
I like to consider myself a pretty tough chick but for some reason I’m scared to start then for fear of long term side effects like the FCR did to me by giving me autoimmune neutropenia. In order to supposedly fix that I need these Ivig drips two days in a row for 5 hours every 3 weeks..... I worry
Luckyliss
in
CLL Support
6 years ago
Unsolvable personality changes due to broken valve
Anyone experience lethargy, gagging, personality changes, confusion after a shunt revision or valve change? IVIG and steroids make my daughter normal again but they won’t replace her shunt and I know this is cause. Something about it is not right and it’s been a year since surgery. She fluctuates. One
Anyone experience lethargy, gagging, personality changes, confusion after a shunt revision or valve change? IVIG and steroids make my daughter normal again but they won’t replace her shunt and I know this is cause. Something about it is not right and it’s been a year since surgery. She fluctuates. One
Jillbrown123
in
Headway
6 years ago
W7R1 first five mins ?
Phew that was a hot one ! Not sure why but I am finding that in the first five minutes of my longer run I'm really struggling with my breathing, then it just seems to sort itself out. Can't believe that I am actually running for 25 mins non stop, 11 years ago I had a spinal fusion and never thought I'd
Phew that was a hot one ! Not sure why but I am finding that in the first five minutes of my longer run I'm really struggling with my breathing, then it just seems to sort itself out. Can't believe that I am actually running for 25 mins non stop, 11 years ago I had a spinal fusion and never thought I'd
Dawnie16
Graduate
in
Couch to 5K
6 years ago
Frustration
Dx 12 years ago with ITP. Had IVIG, steroids for 7 years with fluctuating numbers (from 7 to 120). Was on Promacta 75 mg for over a year with great results for about 4 months, then down in the tank again. Having my fourth Rituxan tomorrow; platelets at 20, down from 80. Still on steroids, also. Can
Dx 12 years ago with ITP. Had IVIG, steroids for 7 years with fluctuating numbers (from 7 to 120). Was on Promacta 75 mg for over a year with great results for about 4 months, then down in the tank again. Having my fourth Rituxan tomorrow; platelets at 20, down from 80. Still on steroids, also. Can
Shooshpsu
in
ITP Support Association
6 years ago
HAPPY (?) WORLD LUPUS DAY!! 🦋🦄♥️🤗
When I told Mum it was World Lupus Day today, she asked me what I was doing for it. I gave it a think, and responded, ‘Enjoying my life, enjoying being me today.’ Even though I spent the day at the hospital receiving my three weekly infusion of IVIg, I found my way to the hospital garden afterwards,
When I told Mum it was World Lupus Day today, she asked me what I was doing for it. I gave it a think, and responded, ‘Enjoying my life, enjoying being me today.’ Even though I spent the day at the hospital receiving my three weekly infusion of IVIg, I found my way to the hospital garden afterwards,
lupusinflight
in
LUPUS UK
6 years ago
Triple Arthrodesis !!
Hi, my name is Wanda , I live in Ontario Canada. i have had RA for 25 years, I am 55, I have two awesome daughters Jennifer & Meagan, and a beautiful Grandson Nathan, I had a Tripplel Arthrodesis on April 26 20/18 I have no pain, I have my first check up today ! I will post the results 😊
Hi, my name is Wanda , I live in Ontario Canada. i have had RA for 25 years, I am 55, I have two awesome daughters Jennifer & Meagan, and a beautiful Grandson Nathan, I had a Tripplel Arthrodesis on April 26 20/18 I have no pain, I have my first check up today ! I will post the results 😊
Wandamcneil
in
NRAS
6 years ago
Update
Husbands started on medication had one IVIG infusion so far, spent a week in the hospital last month for an infection that got out of hand very quickly, home from work for 6 weeks this is his second week back to work , he is a little sore he's a mechanic, he's finding that he is more tired not sure if
Husbands started on medication had one IVIG infusion so far, spent a week in the hospital last month for an infection that got out of hand very quickly, home from work for 6 weeks this is his second week back to work , he is a little sore he's a mechanic, he's finding that he is more tired not sure if
Hidden
in
CLL Support
6 years ago
ITP diagnosed in Pregnancy
Somewhere in depression looking at my wife in this situation what we have never imagined at this stage of life at least but looking at you guys I feel a support. She has been diagnosed with ITP. Before pregnancy she was holding a count of 120 & was fit & fine. During her pregnancy in the first trimester
Somewhere in depression looking at my wife in this situation what we have never imagined at this stage of life at least but looking at you guys I feel a support. She has been diagnosed with ITP. Before pregnancy she was holding a count of 120 & was fit & fine. During her pregnancy in the first trimester
nitindhureja
in
ITP Support Association
6 years ago
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