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Ceftazidime intravenous infusion
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Covid antibodies
I have great antibodies from my Covid vaccine. I am very immunosuppressed, getting IVIG infusions every 6 weeks. I had the finger prick test which showe no antibodies then I had the blood draw test Covid IGg spike protein test and I had 4 times the positive rate for the test. Please don’t let someone
I have great antibodies from my Covid vaccine. I am very immunosuppressed, getting IVIG infusions every 6 weeks. I had the finger prick test which showe no antibodies then I had the blood draw test Covid IGg spike protein test and I had 4 times the positive rate for the test. Please don’t let someone
LDPCLL
in
Vasculitis UK
3 years ago
Help with newly diagnosed ITP husband
Where do I start? 11 days ago my husband woke up feeling unwell with a rash over his body and having nosebleeds. He was rushed to hospital and said his platelets were at 1. This was new to us. And they said it was probably ITP. He was also feeling unwell with fevers. They started him on steroids and
Where do I start? 11 days ago my husband woke up feeling unwell with a rash over his body and having nosebleeds. He was rushed to hospital and said his platelets were at 1. This was new to us. And they said it was probably ITP. He was also feeling unwell with fevers. They started him on steroids and
Dominiquegriff
in
ITP Support Association
3 years ago
Back Pain after 5 operations
I am living with server back pain after a botched spinal fusion in the lumbar region which fell apart inside me five operations later the pain is worse than my presenting problem, I cope on pain killers. Here in Devon the health service is still hiding behind Covid I have waited over 12 months for a
I am living with server back pain after a botched spinal fusion in the lumbar region which fell apart inside me five operations later the pain is worse than my presenting problem, I cope on pain killers. Here in Devon the health service is still hiding behind Covid I have waited over 12 months for a
mikecom1
in
Lung Conditions Community Forum
3 years ago
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Failed Right Wrist Ulna Resection Surgery,Fusion w/ Tendon transfer at 32
I'm new here and I would like to share about my severely eroded & fused right wrist. It took almost 8 years before I was diagnosed with R.A and it all started with a right wrist pain that got worse over the years. Finally got great health insurance and a great Orthopaedic surgeon that tried his best
I'm new here and I would like to share about my severely eroded & fused right wrist. It took almost 8 years before I was diagnosed with R.A and it all started with a right wrist pain that got worse over the years. Finally got great health insurance and a great Orthopaedic surgeon that tried his best
Hannahdeezy
in
NRAS
3 years ago
Would you go for Intralipid or IVIg?
Hi lovely people, I have elevated NK cell level (29.7) and my consultant recommends immunotherapy either with Intralipids (would bring my NK level to 18-21) or IVIg (bring level to 14.9) he said steroids were not being offered during the pandemic. I want the best chances for my next transfer which means
Hi lovely people, I have elevated NK cell level (29.7) and my consultant recommends immunotherapy either with Intralipids (would bring my NK level to 18-21) or IVIg (bring level to 14.9) he said steroids were not being offered during the pandemic. I want the best chances for my next transfer which means
Clar-bear
in
Fertility Network UK
3 years ago
IVIG
Dr said there is a still a cancer risk with kesimpta as it is essentially the same thing as ocrevas. She suggested IVIG. Does anyone have any experience with it?
Dr said there is a still a cancer risk with kesimpta as it is essentially the same thing as ocrevas. She suggested IVIG. Does anyone have any experience with it?
Tulip77
in
My MSAA Community
3 years ago
Where to get IVIG drip
Hi Can someone please recommend where I can get IVIG admistered in the UK or abroad at a reasonable price. The fertility clinic I'm with at the moment are charging £2000 for this! I would greatly appreciate any advice and suggestions. Thank you in advance.
Hi Can someone please recommend where I can get IVIG admistered in the UK or abroad at a reasonable price. The fertility clinic I'm with at the moment are charging £2000 for this! I would greatly appreciate any advice and suggestions. Thank you in advance.
weekitty
in
Fertility Network UK
3 years ago
I have had ITP for 5 months and no medications have helped....Prednisone, Dexamethasone (very temporary) Revolade and Rituximab. IVIG ???
Has anyone here been having IVIG infusions on a regular basis (perhaps every three weeks) rather than having a splenectomy?
Has anyone here been having IVIG infusions on a regular basis (perhaps every three weeks) rather than having a splenectomy?
Bradyella
in
ITP Support Association
3 years ago
What next?
Hi all, I’ve just found out my 2nd FET has failed and looking for any advice what to do next. We had 3 PGS normal embryos, 2 out of 3 have now failed to implant. I’ve had ERA, EMMA, Alice tests, a Hysteroscopy abs HyCoSy and everything was normal. I’ve got high NKC but had treatment with an IVIG drip
Hi all, I’ve just found out my 2nd FET has failed and looking for any advice what to do next. We had 3 PGS normal embryos, 2 out of 3 have now failed to implant. I’ve had ERA, EMMA, Alice tests, a Hysteroscopy abs HyCoSy and everything was normal. I’ve got high NKC but had treatment with an IVIG drip
Gabriella89
in
Fertility Network UK
3 years ago
Anterior Spinal Fusion means I can no longer sit upright due to severe pain in my SI Joints/Sit bones. Anyone else had the same happen?
I had a 2 level (L4 /L5 & L5/S1) Posterior Fusion revised in 2017. Plus an additional Anterior Fusion at the same level. Now, 4 years later I am unable to sit upright. Not even in bed. Eating or movement in my lower abdomen also causes a great deal of pain in my SI Joints, groin, and thighs. I'd be
I had a 2 level (L4 /L5 & L5/S1) Posterior Fusion revised in 2017. Plus an additional Anterior Fusion at the same level. Now, 4 years later I am unable to sit upright. Not even in bed. Eating or movement in my lower abdomen also causes a great deal of pain in my SI Joints, groin, and thighs. I'd be
emmy-loue
in
Pain Concern
3 years ago
Covid antibodies
I got back my test result with 1036 AU/ml. Cut-off is 50, so this is clear positiv. Test was done by CMIA Abott SARS-Covid-2 IgG II Quant Assay and it was mentioned that there are nutralising antibodies in the neutralisation test. I am extremly surprised and happy as needing IVIG and having had O+V
I got back my test result with 1036 AU/ml. Cut-off is 50, so this is clear positiv. Test was done by CMIA Abott SARS-Covid-2 IgG II Quant Assay and it was mentioned that there are nutralising antibodies in the neutralisation test. I am extremly surprised and happy as needing IVIG and having had O+V
Reinhard
in
CLL Support
3 years ago
Need a medical researcher by 5/31 for the ITP study I want done - Eradication of Unidentified Organisms Can Cure Some ITP
Hi, I am looking for a researcher to lead the study "Eradication of Unidentified Organisms through Rife Ultrasonic Therapy and Homeopathics Can Cure Some Idiopathic Thrombocytopenic Purpura (ITP)". Once I have a researcher, I will submit a RFP due by June 1, 2021, to the Platelet Disorder Support Association
Hi, I am looking for a researcher to lead the study "Eradication of Unidentified Organisms through Rife Ultrasonic Therapy and Homeopathics Can Cure Some Idiopathic Thrombocytopenic Purpura (ITP)". Once I have a researcher, I will submit a RFP due by June 1, 2021, to the Platelet Disorder Support Association
CDmom
in
ITP Support Association
3 years ago
Please help........new patient
Diagnosed Dec 2021 with ITP. Have tried Prednisone, IVIG, Dexamethasone Revolade and now Rituximab. My platelets have always been 100-137 prior to Dec. I had a very bad bladder infection and platelets dropped to 1 and have not recovered. I have had no episodes of bleeding. Could I have been misdiagnosed
Diagnosed Dec 2021 with ITP. Have tried Prednisone, IVIG, Dexamethasone Revolade and now Rituximab. My platelets have always been 100-137 prior to Dec. I had a very bad bladder infection and platelets dropped to 1 and have not recovered. I have had no episodes of bleeding. Could I have been misdiagnosed
Bradyella
in
ITP Support Association
3 years ago
Next steps after failed IVF with NK cell protocol
UPDATE Hi everyone, I’ve had a couple of messages recently about immune treatment after this post and thought it might be helpful to update. After finding out about various immune problems and undergoing LIT, IVIG and taking an assortment of medication we finally got our little miracle. Our little
UPDATE Hi everyone, I’ve had a couple of messages recently about immune treatment after this post and thought it might be helpful to update. After finding out about various immune problems and undergoing LIT, IVIG and taking an assortment of medication we finally got our little miracle. Our little
Poppyhb
in
Fertility, Miscarriage & IVF Support
3 years ago
IVIG for polymyositis, side effects?
Hello? Has anyone suffered scary IVIG side effects? I've been having IVIG for about 18 months and it was going great, with some side effects but nothing too bad. Recently I had really bad chest pain for 3 days after my treatment, starting the afternoon of my last day of treatment, and also my knees
Hello? Has anyone suffered scary IVIG side effects? I've been having IVIG for about 18 months and it was going great, with some side effects but nothing too bad. Recently I had really bad chest pain for 3 days after my treatment, starting the afternoon of my last day of treatment, and also my knees
ClareR12345
in
Myositis UK
3 years ago
Large complex ovarian cyst
If anyone can give me some advice I'd be very grateful! I was recently diagnosed with a complex ovarian cyst measuring 5.5x4x5cm. With an endometrium of 1mm. In the left adnexa there is a multiloculated cyst with thickened septations calcification largest 5mm. Also some small calcifications visible
If anyone can give me some advice I'd be very grateful! I was recently diagnosed with a complex ovarian cyst measuring 5.5x4x5cm. With an endometrium of 1mm. In the left adnexa there is a multiloculated cyst with thickened septations calcification largest 5mm. Also some small calcifications visible
kym46
in
My Ovacome
3 years ago
Covid and kiddos-what's your strategy?
All through quarantine we have been telling our 12 year old that she will be able to visit and sleepover at friends once my husband and I ( me with CLL and he in his 60s) were vaccinated and barring no big Covid surprises. Here we are, both fully vaccinated, and not sure we are ready to deliver on that
All through quarantine we have been telling our 12 year old that she will be able to visit and sleepover at friends once my husband and I ( me with CLL and he in his 60s) were vaccinated and barring no big Covid surprises. Here we are, both fully vaccinated, and not sure we are ready to deliver on that
CoCoLuna11
in
CLL Support
3 years ago
Retinal thinning anyone? A sign of NPSLE?
Something funny to start the day! ☺️ A sign from an actual Texas restaurant that always has hilarious postings. Don’t you love when you have something wrong and no one tells you? Saw neuro-optho for follow up yesterday and apparently I have retinal thinning in upper, outer portion of my retina. I saw
Something funny to start the day! ☺️ A sign from an actual Texas restaurant that always has hilarious postings. Don’t you love when you have something wrong and no one tells you? Saw neuro-optho for follow up yesterday and apparently I have retinal thinning in upper, outer portion of my retina. I saw
Jmiller623
in
LUPUS UK
3 years ago
IVIG - Joint Pain - Hydrocortisone
I have written before that IVIG seems to reduce the join pain that I experience. I have been off IVIG for the last 4 months due to the pandemic and have notice an increase in the last months in the pain I experience in the shoulders, arms and legs. I restarted my 1st IVIG infusion on Saturday, by
I have written before that IVIG seems to reduce the join pain that I experience. I have been off IVIG for the last 4 months due to the pandemic and have notice an increase in the last months in the pain I experience in the shoulders, arms and legs. I restarted my 1st IVIG infusion on Saturday, by
RobertCLL
in
CLL Support
3 years ago
Covid Vaccination and IVIG
I just wanted to check my memory. I believe the medical recommendation is to leave 2 weeks between the COVID vaccination and IVIG infusion. Is that correct?
I just wanted to check my memory. I believe the medical recommendation is to leave 2 weeks between the COVID vaccination and IVIG infusion. Is that correct?
RobertCLL
in
CLL Support
3 years ago
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