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Carbidopa / Levodopa
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Mucuna pruriens
I have been enjoying several posts on this site and have followed links and trails leading to complementary therapies and dietary supplements. These have given me plenty of ‘food for thought.’ However, at a recent meeting of a support group here in Plymouth UK, a neurologist and research scientist
I have been enjoying several posts on this site and have followed links and trails leading to complementary therapies and dietary supplements. These have given me plenty of ‘food for thought.’ However, at a recent meeting of a support group here in Plymouth UK, a neurologist and research scientist
soup
in
Cure Parkinson's
12 years ago
Let me share my essay on Living with Parkinson's
I remember the day I was diagnosed with Parkinson's disease. My reaction was not one of resignation, nor did I come to the knowledge I had this incurable disease with fear or trepidation. The very first, initial reaction I had was relief. Yes, relief. "That's it? That's all I have, Parkinson's disease
I remember the day I was diagnosed with Parkinson's disease. My reaction was not one of resignation, nor did I come to the knowledge I had this incurable disease with fear or trepidation. The very first, initial reaction I had was relief. Yes, relief. "That's it? That's all I have, Parkinson's disease
wordworks2001
in
Cure Parkinson's
12 years ago
Bicycling Ability May be Unaffected by Freezing of Gait in Parkinson’s
Bicycling Ability May be Unaffected by Freezing of Gait in Parkinson’s - May 03 2012 People with Parkinson’s disease (PD) who have trouble walking due to freezing of their gait — the sudden inability to move while walking — may retain the ability to ride a bicycle. The new research, published
Bicycling Ability May be Unaffected by Freezing of Gait in Parkinson’s - May 03 2012 People with Parkinson’s disease (PD) who have trouble walking due to freezing of their gait — the sudden inability to move while walking — may retain the ability to ride a bicycle. The new research, published
WayneP
in
Cure Parkinson's
12 years ago
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Low carb diets and PD?
Like Court - see erlier question - I'm fed up reading that PD causes people to lose weight! Mine has steadily gone up since I started on medication and in the last month, since adding an anti depressant, I have just ballooned. None of my clothes fit. In a few months I seem to have gone from slim and
Like Court - see erlier question - I'm fed up reading that PD causes people to lose weight! Mine has steadily gone up since I started on medication and in the last month, since adding an anti depressant, I have just ballooned. None of my clothes fit. In a few months I seem to have gone from slim and
pen1
in
Cure Parkinson's
12 years ago
DBS??
I was diagnosed in 2004 when I was 36...will turn 44 at the end of this month... was on requip, withdrew from that and went thru hell, right now on
carbidopa
/
levodopa
, comtan, gabapentin n cymbalta thank u
I was diagnosed in 2004 when I was 36...will turn 44 at the end of this month... was on requip, withdrew from that and went thru hell, right now on
carbidopa
/
levodopa
, comtan, gabapentin n cymbalta thank u
SuKas
in
Cure Parkinson's
12 years ago
Do you experience "wearing off"?
If you are taking
carbidopa
/
levodopa
you most likely have experience "wearing off". Have you ever experienced a time when you felt a "wearing off" at an unpredictable time and if so did you panic or suddenly "freeze"? Was there a reason why you felt that "wearing off" feeling? Jupiterjane
If you are taking
carbidopa
/
levodopa
you most likely have experience "wearing off". Have you ever experienced a time when you felt a "wearing off" at an unpredictable time and if so did you panic or suddenly "freeze"? Was there a reason why you felt that "wearing off" feeling? Jupiterjane
jupiterjane
in
Cure Parkinson's
12 years ago
Help! Please!
I am begging for help. My father is 89 and was diagnosed with Parkinsons last summer. Since going on carbo levodopa he has gotten worse. The first neurologist upped his dose quickly. The second lowered it. The third, a movement disorder specialist said she would very slowly raise it. He has been
I am begging for help. My father is 89 and was diagnosed with Parkinsons last summer. Since going on carbo levodopa he has gotten worse. The first neurologist upped his dose quickly. The second lowered it. The third, a movement disorder specialist said she would very slowly raise it. He has been
lady54
in
Cure Parkinson's
12 years ago
Can Our Meds Give Us The Shakes?
Sometimes it seems like I get tremors 'n shakes after I take my
carbidopa
/
levodopa
. Anyone else have this problem?
Sometimes it seems like I get tremors 'n shakes after I take my
carbidopa
/
levodopa
. Anyone else have this problem?
Joealt
in
Cure Parkinson's
12 years ago
Sinemet best practice - take a tablet when you feel you need it or stick to 3 times a day and be uncomfortable.
I cannot stick to 1 tablet of Sinemet, 62.5mg 3 times a day as directed by my PD Nurse as I definitely need one every 4 hours or I wear off and have very uncomfortable, painful restless leg syndrome. I have started taking 5 a day and then add in Sinemet CR 25mg Levodopa at night to try and get some
I cannot stick to 1 tablet of Sinemet, 62.5mg 3 times a day as directed by my PD Nurse as I definitely need one every 4 hours or I wear off and have very uncomfortable, painful restless leg syndrome. I have started taking 5 a day and then add in Sinemet CR 25mg Levodopa at night to try and get some
Yogibear
in
Cure Parkinson's
12 years ago
I am taking (Carbidopa-Levodopa and my skin is really gritty feeling. Has anyone else had this?
Estelle
in
Cure Parkinson's
12 years ago
Interesting response to my PD symptoms
In my profile pic I'm playing with my parrot, Lily. She's just about 2 years old-a baby in the parrot world. I got her when she was not quite 5 months old. She was (and is) sweet sweet sweet. However there was a notable pattern to her interactions with me. I started levodopa shortly after she
In my profile pic I'm playing with my parrot, Lily. She's just about 2 years old-a baby in the parrot world. I got her when she was not quite 5 months old. She was (and is) sweet sweet sweet. However there was a notable pattern to her interactions with me. I started levodopa shortly after she
chrismw
in
Cure Parkinson's
12 years ago
Dopamine Disregultion Syndrome .
HI I haven't been told i have read it on a letter sent to my GP and a cope has been sent to me which says i have DDP . In the letter she uses words l like He denies any elation from l-dopa. AND denies any mood swings . My question is this. IF any body think,s I have DDP. How can i prove I don't
HI I haven't been told i have read it on a letter sent to my GP and a cope has been sent to me which says i have DDP . In the letter she uses words l like He denies any elation from l-dopa. AND denies any mood swings . My question is this. IF any body think,s I have DDP. How can i prove I don't
export
in
Cure Parkinson's
12 years ago
I am 39 and taking 2 to 4 Madopar tablets a day do you think I will end up with dyskinesia?
I am starting Pramipexole .52mg per day prolonged release in the morning as Requip XL 6mg is not working out. The idea is that I take the lower dosage of dopamine agonist and top it up with Madopar. I am worried that I will end up with dyskinesia due to my age and how early I am taking Levodopa.
I am starting Pramipexole .52mg per day prolonged release in the morning as Requip XL 6mg is not working out. The idea is that I take the lower dosage of dopamine agonist and top it up with Madopar. I am worried that I will end up with dyskinesia due to my age and how early I am taking Levodopa.
Yogibear
in
Cure Parkinson's
12 years ago
Is it me or is it my meds?
He increased my Requip XL to 8 mg daily from 6, and I take 4
Carbidopa
/
Levodopa
25/100 tablets daily. He wants me to try the increase in Requip XL for 2 weeks, then check back in with him. He may, at that time change the
Carbidopa
/
Levodopa
to Stalevo. I feel like I'm going crazy.
He increased my Requip XL to 8 mg daily from 6, and I take 4
Carbidopa
/
Levodopa
25/100 tablets daily. He wants me to try the increase in Requip XL for 2 weeks, then check back in with him. He may, at that time change the
Carbidopa
/
Levodopa
to Stalevo. I feel like I'm going crazy.
CheriH
in
Cure Parkinson's
12 years ago
Just another day without Grace
Ha--not feeling so syrupy and dramatic today--fooled ya. I shook the pity party hangover blues and learned a good lesson. . .when my 6 year old daughter said "Mommy why are you crying? And why are you sitting on the floor?" I thought "why the heck am I crying???" (I was on the floor for very legitimate
Ha--not feeling so syrupy and dramatic today--fooled ya. I shook the pity party hangover blues and learned a good lesson. . .when my 6 year old daughter said "Mommy why are you crying? And why are you sitting on the floor?" I thought "why the heck am I crying???" (I was on the floor for very legitimate
chrismw
in
Cure Parkinson's
12 years ago
Are Sinemet and Madopar the same thing - L-Dopa ?
Currently taking Requip XL but they're starting to wear off . Have tried Sinemet but they made my tremour worse !! Doc has recommended trying Madopar (dissolvable ones) but a low dose once a day to start with as i struggle with mornings (don't we all?) Anyone have experience of this drug "cocktail" (
Currently taking Requip XL but they're starting to wear off . Have tried Sinemet but they made my tremour worse !! Doc has recommended trying Madopar (dissolvable ones) but a low dose once a day to start with as i struggle with mornings (don't we all?) Anyone have experience of this drug "cocktail" (
Helshubby
in
Cure Parkinson's
12 years ago
New therapies
These include adenosine 2a (A2a) antagonists (istradefylline, preladenant, and SYN115),
levodopa
/
carbidopa
intestinal gel (LCIG), IPX066-an extended-release formulation of
carbidopa
/
levodopa
, XP21279-a sustained-release
levodopa
prodrug, ND0611-a
carbidopa
subcutaneous patch, safinamide-a
These include adenosine 2a (A2a) antagonists (istradefylline, preladenant, and SYN115),
levodopa
/
carbidopa
intestinal gel (LCIG), IPX066-an extended-release formulation of
carbidopa
/
levodopa
, XP21279-a sustained-release
levodopa
prodrug, ND0611-a
carbidopa
subcutaneous patch, safinamide-a
Hidden
in
Cure Parkinson's
12 years ago
Bach's Rescue Remedy spray seems to help
I have been trying the Bach's rescue spray for several days and I think it helps. I have been experiencing anxiety then depression as my levodopa wears off. Sometimes this is much more disconcerting than the physical symptoms. Occasionally I don't seem to recover the rest of the day. I have tried
I have been trying the Bach's rescue spray for several days and I think it helps. I have been experiencing anxiety then depression as my levodopa wears off. Sometimes this is much more disconcerting than the physical symptoms. Occasionally I don't seem to recover the rest of the day. I have tried
etterus
in
Cure Parkinson's
12 years ago
Protein found in Parkisons
Protein Identified That Contributes To Symptoms Of Parkinson's Disease Scientists at the Gladstone Institutes, an independent and nonprofit biomedical-research organization, have identified a protein that exacerbates symptoms of Parkinson's disease - a discovery that could one day lead
Protein Identified That Contributes To Symptoms Of Parkinson's Disease Scientists at the Gladstone Institutes, an independent and nonprofit biomedical-research organization, have identified a protein that exacerbates symptoms of Parkinson's disease - a discovery that could one day lead
Hidden
in
Cure Parkinson's
12 years ago
Drugs not toxic
Important News for the Parkinson’s Disease Community: More Evidence that Sinemet and Madopar are Not Toxic and do Not Accelerate Disease Progression You can find out more about NPF's National Medical Director, Dr. Michael S. Okun, by also visiting the NPF Center of Excellence, University of Florida
Important News for the Parkinson’s Disease Community: More Evidence that Sinemet and Madopar are Not Toxic and do Not Accelerate Disease Progression You can find out more about NPF's National Medical Director, Dr. Michael S. Okun, by also visiting the NPF Center of Excellence, University of Florida
Hidden
in
Cure Parkinson's
12 years ago
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