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Carbidopa / Levodopa
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Severe RLS for 40 years
I am a 75 year old woman who has experienced RLS since the late 1970's. I have been prescribed Requip until it didnt work, Pramipexole (Mirapex) up to 4 mg daily and worked great until augmentation. Since then I have been on Klonopin, Pregablin (Lyrica) Carbidopa/Levidopa, medicinal Marijuana vape pen
I am a 75 year old woman who has experienced RLS since the late 1970's. I have been prescribed Requip until it didnt work, Pramipexole (Mirapex) up to 4 mg daily and worked great until augmentation. Since then I have been on Klonopin, Pregablin (Lyrica) Carbidopa/Levidopa, medicinal Marijuana vape pen
Happygrandmother
in
Restless Legs Syndrome
1 year ago
Levodopa Phobia
https://youtu.be/FMIwfhFXOZM
https://youtu.be/FMIwfhFXOZM
Thal
in
Cure Parkinson's
10 months ago
update on hubby
Hubby was feeling very bad earlier in the year from what turned out to be overdosing of levodopa when they changed him to the ER madopar. This caused severe rigidity even in his throat, agitation and sundowning in the evening, and eventually he kept trying to escape in the night to try and kill himself
Hubby was feeling very bad earlier in the year from what turned out to be overdosing of levodopa when they changed him to the ER madopar. This caused severe rigidity even in his throat, agitation and sundowning in the evening, and eventually he kept trying to escape in the night to try and kill himself
LAJ12345
in
Cure Parkinson's
10 months ago
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advice please
Going round in circles for last 4 years ( neurologists not giving diagnosis) seen one this past month who says he thinks it’s dystonia, so has put me on
levodopa
/
carbidopa
which I’ve taken for three weeks with no improvement in me at all .
Going round in circles for last 4 years ( neurologists not giving diagnosis) seen one this past month who says he thinks it’s dystonia, so has put me on
levodopa
/
carbidopa
which I’ve taken for three weeks with no improvement in me at all .
Judiy
in
Functional Neurological Disorder - FND Hope
1 year ago
nerve damage affecting PD?
Bad SI joint seems more of a PD trigger than levodopa at the moment. Any comments?
Bad SI joint seems more of a PD trigger than levodopa at the moment. Any comments?
dkdc
in
Cure Parkinson's
11 months ago
High Dose Thiamine (HDT)—How critical is the sweet spot?
“or” I have gotten sloppy in my C/L routine: https://healthunlocked.com/cure-parkinsons/posts/147541603/how-i-went-from-13-to-4-a-day-
carbidopa
-25-
levodopa
-100 I wasn’t taking my L-dopa on an empty stomach (no eating 30 minutes before or 1 hour after).
“or” I have gotten sloppy in my C/L routine: https://healthunlocked.com/cure-parkinsons/posts/147541603/how-i-went-from-13-to-4-a-day-
carbidopa
-25-
levodopa
-100 I wasn’t taking my L-dopa on an empty stomach (no eating 30 minutes before or 1 hour after).
Gcf51
in
Cure Parkinson's
1 year ago
Phase 3 results, AbbVie, foslevodopa-foscarbidopa, Improves motor fluctuations
Adverse events led to premature discontinuation of study drug in 16 (22%) of 74 participants in the foslevodopa-foscarbidopa group versus one (1%) of 67 participants in the oral
levodopa
-
carbidopa
group.
Adverse events led to premature discontinuation of study drug in 16 (22%) of 74 participants in the foslevodopa-foscarbidopa group versus one (1%) of 67 participants in the oral
levodopa
-
carbidopa
group.
Hidden
in
Cure Parkinson's
1 year ago
Excel spreadsheet that tracks a levodopa dose?
Someone had shared an interactive spreadsheet they created that allowed a user to input doses of levodopa to see peak dose, wearing off, etc. I've been searching with keywords but can't find it. Can anyone give me a link? It was posted last year, I believe.
Someone had shared an interactive spreadsheet they created that allowed a user to input doses of levodopa to see peak dose, wearing off, etc. I've been searching with keywords but can't find it. Can anyone give me a link? It was posted last year, I believe.
1LittleWillow
in
Cure Parkinson's
11 months ago
Anxiety Strategies
Hi folks, After reading the excellent article posted four months ago by Sydney75 (link below), it got me thinking about a few things... https://www.sciencedirect.com/science/article/pii/S0753332220309690 2 years post-diagnosis I'd still say anxiety is my main issue. Motor stuff not giving me too
Hi folks, After reading the excellent article posted four months ago by Sydney75 (link below), it got me thinking about a few things... https://www.sciencedirect.com/science/article/pii/S0753332220309690 2 years post-diagnosis I'd still say anxiety is my main issue. Motor stuff not giving me too
AndyMu72
in
Cure Parkinson's
11 months ago
Mum newly diagnosed with MSA-P and we are all struggling
Hello everyone I hope you don’t mind me starting a post, I’ve never really used a forum before so I am very unsure if this is the correct place to post. My Mum (69) developed a twitch in her finger many years ago which went away. She was a very slow walker but apart from that we didn’t think anything
Hello everyone I hope you don’t mind me starting a post, I’ve never really used a forum before so I am very unsure if this is the correct place to post. My Mum (69) developed a twitch in her finger many years ago which went away. She was a very slow walker but apart from that we didn’t think anything
Purplestar2
in
Multiple System Atrophy Trust
11 months ago
How to reduce prolactin and increase AR success/longevity? L-Dopa and Vitex Berry?
Cabergoline reduces prolactin, which promotes prostate cancer mutation and growth. If a doctor will not prescribe Cabergoline, then would Mucuna (natural L-Dopa) extract and Vitex Berry extract have the same effectiveness as the cabergoline, in targeting and reducing prolactin? I recall someone on
Cabergoline reduces prolactin, which promotes prostate cancer mutation and growth. If a doctor will not prescribe Cabergoline, then would Mucuna (natural L-Dopa) extract and Vitex Berry extract have the same effectiveness as the cabergoline, in targeting and reducing prolactin? I recall someone on
GeorgeGlass
in
Advanced Prostate Cancer
11 months ago
COMT inhibitors
Hubby is doing really well at the moment and I think one of the things that has helped has been the introduction of 1/2 a entacapone tablet taken at the same time as his madopar/ mucuna doses. According to his genetic report his COMT appeared to be one thing that was functioning normally so I was a
Hubby is doing really well at the moment and I think one of the things that has helped has been the introduction of 1/2 a entacapone tablet taken at the same time as his madopar/ mucuna doses. According to his genetic report his COMT appeared to be one thing that was functioning normally so I was a
LAJ12345
in
Cure Parkinson's
11 months ago
Tasigna off label for parkinson's disease. What happens when the smallest kid on the block gets run out of town. Time for a vote.
Hello People With Parkinson's (PWP). I started this post two weeks ago. It wasn't worth the effort so I deleted it. I was hurting at the tim, my levodopa tank was running on fumes. I reminded myself that if I couldn't be cured I would try to make it easier for the next person. I am in my
Hello People With Parkinson's (PWP). I started this post two weeks ago. It wasn't worth the effort so I deleted it. I was hurting at the tim, my levodopa tank was running on fumes. I reminded myself that if I couldn't be cured I would try to make it easier for the next person. I am in my
Isthistheone
in
Cure Parkinson's
1 year ago
choline/citicoline
https://www.naturalmedicinejournal.com/journal/citicoline-novel-therapeutic-agent-neuroprotective-neuromodulatory-and-neuroregenerative-properties I take a smallish dose but I suspect I need more- anyone using it successfully to make there L-dopa work better/last longer?
https://www.naturalmedicinejournal.com/journal/citicoline-novel-therapeutic-agent-neuroprotective-neuromodulatory-and-neuroregenerative-properties I take a smallish dose but I suspect I need more- anyone using it successfully to make there L-dopa work better/last longer?
Annieartist
in
Cure Parkinson's
1 year ago
I have been offered Entacapone. I would appreciate hearing your own thoughts and experiences.
I am doing pretty well 7 years post dx, but my neurologist wants to add Entacapone to my 4x Levodopa per day regime to shorten my downtime, and I am uncertain whether it’s the way I want to go. Probably my own prejudice against taking too much and my probably mistaken belief that this drug is more for
I am doing pretty well 7 years post dx, but my neurologist wants to add Entacapone to my 4x Levodopa per day regime to shorten my downtime, and I am uncertain whether it’s the way I want to go. Probably my own prejudice against taking too much and my probably mistaken belief that this drug is more for
Buckholt
in
Cure Parkinson's
1 year ago
Experiences with bHaptics TactGloves for Tass vCR stimulation paradigm?
Hi, I am wondering what experiences people have with the bHaptics TactGloves in trying out the vibrotactile Coordinated Reset (vCR) paradigm by Peter Tass and colleagues? These gloves (https://www.bhaptics.com/shop/tactglove) are an affordable ready-made solution for vibration stimulation so I would
Hi, I am wondering what experiences people have with the bHaptics TactGloves in trying out the vibrotactile Coordinated Reset (vCR) paradigm by Peter Tass and colleagues? These gloves (https://www.bhaptics.com/shop/tactglove) are an affordable ready-made solution for vibration stimulation so I would
Ethin
in
Cure Parkinson's
1 year ago
How to decrease levodopa to half pills per dose
Just recently increased to 4 x a day 100/25 vs 3 x a day.per neurologist advice because of rigidity stiffness in my legs. By the second day of 4 x day having horrible knee and leg pain. Couldn’t hardly walk for a week. Just decreased to half a pill to 3 times Day but kept the full pill in the morning
Just recently increased to 4 x a day 100/25 vs 3 x a day.per neurologist advice because of rigidity stiffness in my legs. By the second day of 4 x day having horrible knee and leg pain. Couldn’t hardly walk for a week. Just decreased to half a pill to 3 times Day but kept the full pill in the morning
Nonni1958
in
Cure Parkinson's
1 year ago
Levodopa absorption
having a third trial with Sinemet. It worked well for right leg tremor for three years since diagnosis. Neuro said my brain changed and it stopped working. Tremor came back with depression and anxiety. Mood is much better since Vilazadone added. I’ve been on Neupro patch for 8 months and my motor symptoms
having a third trial with Sinemet. It worked well for right leg tremor for three years since diagnosis. Neuro said my brain changed and it stopped working. Tremor came back with depression and anxiety. Mood is much better since Vilazadone added. I’ve been on Neupro patch for 8 months and my motor symptoms
Hidden
in
Cure Parkinson's
1 year ago
Hallucination side effect & Medication Management
The doc started my dad with
Carbidopa
/
levodopa
(Sinemet) 25/100mg, 2x a day & Mirapex 0.125mg 2x a day.
The doc started my dad with
Carbidopa
/
levodopa
(Sinemet) 25/100mg, 2x a day & Mirapex 0.125mg 2x a day.
daughter-Advocate
in
Cure Parkinson's
10 months ago
B1 without Levidopa
Has anyone good results from B1 without Levodopa?
Has anyone good results from B1 without Levodopa?
Quesnel
in
Cure Parkinson's
1 year ago
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