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Calcium phosphate
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Mrs d
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urso my Alkaline Phosphate is now 130 initially 400. I have very dry eyes get the itch off and on for a few days at a time i do get very fatigued and call myself a half a day person, I also have asthma that is well controlled
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urso my Alkaline Phosphate is now 130 initially 400. I have very dry eyes get the itch off and on for a few days at a time i do get very fatigued and call myself a half a day person, I also have asthma that is well controlled
coronavirus19
in
PBC Foundation
3 months ago
Further Update & Upcoming Rheumatology Appt Advice
Hello all! Back again with my periodic update on my ongoing PMR diagnosis! So.....after struggling when tapering from 12.5mg to 10mg of Prednisolone I finally heeded the advice of the vetrans of this thing and bit the bullet on upping my dose back to 15mg......I had been doing well on 12.5mg but the
Hello all! Back again with my periodic update on my ongoing PMR diagnosis! So.....after struggling when tapering from 12.5mg to 10mg of Prednisolone I finally heeded the advice of the vetrans of this thing and bit the bullet on upping my dose back to 15mg......I had been doing well on 12.5mg but the
Paulx222
in
PMRGCAuk
3 months ago
Low phosphate again
Hi everyone, I'll try and keep this as short as I can!So I keep having episodes of upper back & chest pain. Then get random feelings like my heart stops, then it beats super fast then slows again. This happens multiple times in a row which I then go to a&e to get checked out. Every time it comes back
Hi everyone, I'll try and keep this as short as I can!So I keep having episodes of upper back & chest pain. Then get random feelings like my heart stops, then it beats super fast then slows again. This happens multiple times in a row which I then go to a&e to get checked out. Every time it comes back
PoTs_lass
in
British Heart Foundation
4 months ago
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Low Potassium/High Calcium Caution
Hi Guys I had a mineral check via a hair test and a DNA Methylation report via a mouth swab (corrected 16 June as I had them the wrong way round) as suggested by a nutritionist who has been helping me sort my gut and auto-immune issues. I wasn't expecting much ... but how lovely to be pleasantly surprised
Hi Guys I had a mineral check via a hair test and a DNA Methylation report via a mouth swab (corrected 16 June as I had them the wrong way round) as suggested by a nutritionist who has been helping me sort my gut and auto-immune issues. I wasn't expecting much ... but how lovely to be pleasantly surprised
Wwwdot
in
Pernicious Anaemia Society
3 days ago
Dexa Scan
Hello Everyone, I am currently on the waiting list to see another endocrinologist as I have hypocalemia and PTH insufficiency (hypoPARAthyroidism non surgical).. My urine calcium is also low. I keep getting intermittent joint paint mostly in my wrists and wondered if I need a dexa scan and if GPs
Hello Everyone, I am currently on the waiting list to see another endocrinologist as I have hypocalemia and PTH insufficiency (hypoPARAthyroidism non surgical).. My urine calcium is also low. I keep getting intermittent joint paint mostly in my wrists and wondered if I need a dexa scan and if GPs
Owl84
in
Bone Health and Osteoporosis UK
3 days ago
Hike in T-Score due to steroid use. Worrying.
Hi All, just yesterday I finally got results from my DEXA .scan which I had done on 3rd of April. My T Score was T-2.3 (osteopina). My last DEXA scan showed my T-Score as -1.7 and deemed to be ok. This is quite a hike and I'm quite upset by i seeing that T-2.5 is Osteoporosis. I am Prednisolone
Hi All, just yesterday I finally got results from my DEXA .scan which I had done on 3rd of April. My T Score was T-2.3 (osteopina). My last DEXA scan showed my T-Score as -1.7 and deemed to be ok. This is quite a hike and I'm quite upset by i seeing that T-2.5 is Osteoporosis. I am Prednisolone
lkcreedon
in
PMRGCAuk
4 days ago
Please share any experience of meds to try and prevent osteoporosis especially Zoledronic acid and Romosozumab
I've recently had spinal or vertebral compression fractures and am now talking to various health care professionals and researching my options to try and prevent further fractures in the future. Because the risk is so high given my age (young at 63 but post-menopause) and long-term steroids I may
I've recently had spinal or vertebral compression fractures and am now talking to various health care professionals and researching my options to try and prevent further fractures in the future. Because the risk is so high given my age (young at 63 but post-menopause) and long-term steroids I may
tangocharlie
in
PMRGCAuk
5 days ago
Hyperparathyroidism and Bones
I had primary hyperthyroidism in 2014 with two adenomas removed. It's been a long time since I've had my PTH level checked. I was reading that you should have ongoing annual check-ups of calcium and PTH levels to detect any long-term changes or recurrence of hyperparathyroidism. I feel fine and don't
I had primary hyperthyroidism in 2014 with two adenomas removed. It's been a long time since I've had my PTH level checked. I was reading that you should have ongoing annual check-ups of calcium and PTH levels to detect any long-term changes or recurrence of hyperparathyroidism. I feel fine and don't
Capan24
in
Bone Health and Osteoporosis UK
6 days ago
Newly diagnosed with PMR and thank you for all the info here
Hi everyone, I received a firm-ish diagnosis of PMR this morning, after a 1-week trial on prednisone that greatly reduced my symptoms. I’d say I’m about 60 to 70% better compared to a week ago, if one can really assign numbers to such things. I still have a slight burning in my arms but not painful
Hi everyone, I received a firm-ish diagnosis of PMR this morning, after a 1-week trial on prednisone that greatly reduced my symptoms. I’d say I’m about 60 to 70% better compared to a week ago, if one can really assign numbers to such things. I still have a slight burning in my arms but not painful
Bunchberry
in
PMRGCAuk
7 days ago
Anyone have an opinion on this issue as I prepare to see a MO?
Could the PET/CT SCAN have read the high glucose in my system as met pelvic lymph nodes and met bone? Just asking since I was looking over my medical records for the last 10 years and the calcium number has always been in the mid-range, but the glucose has always been very high. (I am a type 2 diabetic
Could the PET/CT SCAN have read the high glucose in my system as met pelvic lymph nodes and met bone? Just asking since I was looking over my medical records for the last 10 years and the calcium number has always been in the mid-range, but the glucose has always been very high. (I am a type 2 diabetic
PARKER3237
in
Advanced Prostate Cancer
7 days ago
Could MCAS a possibility?
Hello everyone, I have been wondering for a while if I could have MACS. Last year I was diagnosed with a Raw Pecan allergy, borderline brazil and salami allergy through raw food skin to skin prick testing and given epi pens. My immunologist at the time did not want to risk it as I have asthma and
Hello everyone, I have been wondering for a while if I could have MACS. Last year I was diagnosed with a Raw Pecan allergy, borderline brazil and salami allergy through raw food skin to skin prick testing and given epi pens. My immunologist at the time did not want to risk it as I have asthma and
Owl84
in
The UK Mastocytosis Support Group
7 days ago
Which medicine is messing with my thyroid med uptake
Might anyone be able to suggest which of my other meds has affected my thyroid med uptake (100mcg thyroxine and 2x5mcg t3)? I was prescribed digoxin, furosemide and bisoprolol after having open heart surgery 3 mths ago to resolve some anatomical defects. Uptil that point thyroid levels were stable
Might anyone be able to suggest which of my other meds has affected my thyroid med uptake (100mcg thyroxine and 2x5mcg t3)? I was prescribed digoxin, furosemide and bisoprolol after having open heart surgery 3 mths ago to resolve some anatomical defects. Uptil that point thyroid levels were stable
bikebabe
in
Thyroid UK
8 days ago
Vibrations and low thyroid??
Hi my name is Babs! im still figuring out how to use this site but I can’t say enough how unfortunately happy I was to find other ppl who are dealing with this also! Mine started about six months ago when I started weaning down on my gabapentin. Then my thyroid started acting up, and it seemed like
Hi my name is Babs! im still figuring out how to use this site but I can’t say enough how unfortunately happy I was to find other ppl who are dealing with this also! Mine started about six months ago when I started weaning down on my gabapentin. Then my thyroid started acting up, and it seemed like
Babs4of5
in
Thyroid UK
8 days ago
Update
Good morning everyone. Still warm and breathing, was locked out of my account and only just got back in. When I was first diagnosed with GCA I was on HRT I was told by the Rheumatologist that I should stay on it to protect my bones from the Prednisolone. My DEXA showed normal density probably due
Good morning everyone. Still warm and breathing, was locked out of my account and only just got back in. When I was first diagnosed with GCA I was on HRT I was told by the Rheumatologist that I should stay on it to protect my bones from the Prednisolone. My DEXA showed normal density probably due
EdithWales
in
PMRGCAuk
10 days ago
What are the better treatments for metastasis of the bone and pelvic lymph nodes?
Just found out the past few weeks from a biopsy and a PET/CT scan that the cancer was not contained in the prostate but metastasized to the pelvic lymph nodes and the bones. Was a surprise to me and to the urologist as well. He is recommending no surgery but a multimodal therapy with androgen deprivation
Just found out the past few weeks from a biopsy and a PET/CT scan that the cancer was not contained in the prostate but metastasized to the pelvic lymph nodes and the bones. Was a surprise to me and to the urologist as well. He is recommending no surgery but a multimodal therapy with androgen deprivation
PARKER3237
in
Advanced Prostate Cancer
11 days ago
Anyone diagnosed with Esophageal Spasms?
My GERD has taken a change for the worse and now experiencing what the gastro thinks are esophageal spasms, probably triggered by GERD. Very painful and they come and go in waves. Currently keeping them somewhat in check with the calcium channel blocker Diltiazem. Wondering if anyone else has this
My GERD has taken a change for the worse and now experiencing what the gastro thinks are esophageal spasms, probably triggered by GERD. Very painful and they come and go in waves. Currently keeping them somewhat in check with the calcium channel blocker Diltiazem. Wondering if anyone else has this
mjames1
in
Acid Reflux Support
14 days ago
Verapamil
Hello there. Quick question, I have read the literature on the tablet and posts, but can anyone tell me if Verapamil is categorised as a blood thinner. Sorry I know it’s a beta blocker but that’s calcium. I’m currently on other medication and I’m checking if they are working against each other
Hello there. Quick question, I have read the literature on the tablet and posts, but can anyone tell me if Verapamil is categorised as a blood thinner. Sorry I know it’s a beta blocker but that’s calcium. I’m currently on other medication and I’m checking if they are working against each other
JenWro
in
British Heart Foundation
15 days ago
Calcium and Levothyroxine
I've heard that I must not have any Calcium intake four hours before and after taking Levothyroxine, as the calcium absorbs the drug, lessening its effectiveness. Has anybody else heard of this?
I've heard that I must not have any Calcium intake four hours before and after taking Levothyroxine, as the calcium absorbs the drug, lessening its effectiveness. Has anybody else heard of this?
PillJunkie
in
Thyroid UK
15 days ago
are CTx numbers supposed to be extremely under range while on prolia?
is that the point of anti resorptive? is P1NP supposed to be upper range on prolia, or lower range on prolia? my Mum's numbers are low. but the tests haven't been done for years, i don't think, and they were run within 3 months of prolia doses, so the ctx would be expected to be low? and Mum's
is that the point of anti resorptive? is P1NP supposed to be upper range on prolia, or lower range on prolia? my Mum's numbers are low. but the tests haven't been done for years, i don't think, and they were run within 3 months of prolia doses, so the ctx would be expected to be low? and Mum's
MayGodBlessYou
in
Bone Health and Osteoporosis UK
17 days ago
Flares trying to get from 9 mg to 8 mg
I got PMR in May 2023 and I was diagnosed in Sept 2023. I started on 20 mg and have tapered down to 9 with just one flare. I did a 5 week taper March 1st, trying to get from 9 to 8 mg, but at the end of the 5 week plan on an 8 mg dose, I started getting groin and hip pain and morning stiffness. I tried
I got PMR in May 2023 and I was diagnosed in Sept 2023. I started on 20 mg and have tapered down to 9 with just one flare. I did a 5 week taper March 1st, trying to get from 9 to 8 mg, but at the end of the 5 week plan on an 8 mg dose, I started getting groin and hip pain and morning stiffness. I tried
proactive
in
PMRGCAuk
20 days ago
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