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Open heart surgery
I had my first meeting with the surgical team at Papworth yesterday . I’m now pencilled in for an aortic valve replacement in June. We discussed my AF , the effects of surgery on episodes after and anticoagulants . Interestingly they stated that oral anticoagulants reduce the risk of stroke by 60/70%
I had my first meeting with the surgical team at Papworth yesterday . I’m now pencilled in for an aortic valve replacement in June. We discussed my AF , the effects of surgery on episodes after and anticoagulants . Interestingly they stated that oral anticoagulants reduce the risk of stroke by 60/70%
Hammerboy
in
Atrial Fibrillation Support
3 months ago
Hello again. Questions with AF medications
Hi. Need to ask this question on current medications. Furosemide (water pill) 40 mg. once per day. Metoprolol (heart pill) 75 mg. twice a day. And Xarelto (blood thinner) 20 mg. once per day. Has anyone experienced any type of anxiety while on these types of AF medications? I occasionally suffer
Hi. Need to ask this question on current medications. Furosemide (water pill) 40 mg. once per day. Metoprolol (heart pill) 75 mg. twice a day. And Xarelto (blood thinner) 20 mg. once per day. Has anyone experienced any type of anxiety while on these types of AF medications? I occasionally suffer
gbn_
in
Atrial Fibrillation Support
6 months ago
AF is back after lung cancer operation
I had a successful ablation over 4 years ago and stayed in sinus rhythm until this week. I had an operation 2 weeks ago and this week my Apple Watch detected AF. This has been confirmed by GP. Bisoprolol is increased from 5mg to 7.5 to try to reduce the heart rate. Starting that today. I was warned
I had a successful ablation over 4 years ago and stayed in sinus rhythm until this week. I had an operation 2 weeks ago and this week my Apple Watch detected AF. This has been confirmed by GP. Bisoprolol is increased from 5mg to 7.5 to try to reduce the heart rate. Starting that today. I was warned
Gincalpe
in
AF Association
6 months ago
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Home testing machines
I am new to this group and I have family with afib, I have panic and anxiety with rapid heartbeat but was trying to rule out heart issues. I bought a kardiamobile ekg machine and tried it about 10 times and always got unclassified. My husband tried it and he got normal so it didnt appear to be interference
I am new to this group and I have family with afib, I have panic and anxiety with rapid heartbeat but was trying to rule out heart issues. I bought a kardiamobile ekg machine and tried it about 10 times and always got unclassified. My husband tried it and he got normal so it didnt appear to be interference
Shell2023
in
AF Association
6 months ago
Help Develop a Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Darryl
Partner
in
Advanced Prostate Cancer
9 months ago
Abaris
Hello everyone, I'm still on the quest for wellness. I was wondering if anyone had tried Abaris which is a TRH . Quite new on the market I think. I'm piling the weight on as I can't treat my thyroid without reacting to the meds. I was looking further upstream at TRH. I live in the UK so probably wouldn't
Hello everyone, I'm still on the quest for wellness. I was wondering if anyone had tried Abaris which is a TRH . Quite new on the market I think. I'm piling the weight on as I can't treat my thyroid without reacting to the meds. I was looking further upstream at TRH. I live in the UK so probably wouldn't
Sooty101
in
Thyroid UK
9 months ago
Flu and Covid vaccine
I was diagnosed with lupus in March this year. I dont know if I should take the flu and covid vaccine. I am scared it will make my lupus worse. Has anyone here take the vaccine?
I was diagnosed with lupus in March this year. I dont know if I should take the flu and covid vaccine. I am scared it will make my lupus worse. Has anyone here take the vaccine?
kali9
in
LUPUS UK
7 months ago
change of meds
Been having a bad year. Ive been unwell since July and was eventually hospitalised with double pneumonia in September. My rheumatologist treated me for a lupus flare as I had been in a similar situation years previous when first diagnosed with lupus. The dose of steroids did the trick and I was sent
Been having a bad year. Ive been unwell since July and was eventually hospitalised with double pneumonia in September. My rheumatologist treated me for a lupus flare as I had been in a similar situation years previous when first diagnosed with lupus. The dose of steroids did the trick and I was sent
mitty
in
LUPUS UK
7 months ago
Whole pelvic radiation after testicular cancer?
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
Adendino
in
Advanced Prostate Cancer
9 months ago
PIP when on oxygen 24/7
What a shocking past week! I've had COPD ( emphysema ) for several years but over the course of the last few weeks I've experienced a rapid decline in my breathing to the degree I could only walk a few metres before being totally out of breath. On Wednesday I attended a routine appointment at Sevenoaks
What a shocking past week! I've had COPD ( emphysema ) for several years but over the course of the last few weeks I've experienced a rapid decline in my breathing to the degree I could only walk a few metres before being totally out of breath. On Wednesday I attended a routine appointment at Sevenoaks
Nickcv
in
Lung Conditions Community Forum
6 months ago
Auto Immune Hepatitis
hi I am new here diagnosis in July Would love to connect with people with this disease Hear stories of ups & downs I need so much information and have lots of questions Thank you
hi I am new here diagnosis in July Would love to connect with people with this disease Hear stories of ups & downs I need so much information and have lots of questions Thank you
DebbyJ1
in
British Liver Trust
9 months ago
UKIVAS Vasculitis Educational Course - Manchester November 2023
The course was attended by around 70 attendees including junior doctors, registrars and specialist nurses. All thanks to Dr Nina Brown and her team in organising the delivery of this highly regarded annual event which included expert presentations and intensive interactive sessions. Programme was extensive
The course was attended by around 70 attendees including junior doctors, registrars and specialist nurses. All thanks to Dr Nina Brown and her team in organising the delivery of this highly regarded annual event which included expert presentations and intensive interactive sessions. Programme was extensive
Suzi70
Administrator
in
Vasculitis UK
6 months ago
Ferritin levels
I have collected my blood test results and am looking for information before my g.p. follow up appointment tomorrow.I am under the impression that ferritin levels should be "optimum" in order for my B12 injections to work for pernicious anaemia. Although I've been told all of my blood results are "normal
I have collected my blood test results and am looking for information before my g.p. follow up appointment tomorrow.I am under the impression that ferritin levels should be "optimum" in order for my B12 injections to work for pernicious anaemia. Although I've been told all of my blood results are "normal
Suesue246
in
Pernicious Anaemia Society
7 months ago
New PAS blog posts
Hi, I noticed that there were recent blog posts on PAS (Pernicious Anaemia Society) website. From 8th Nov 2023 is "The Patient Experience in Diagnosis and Treatment of Autoimmune Gastritis and Pernicious Anaemia" https://pernicious-anaemia-society.org/blog/the-patient-experience-in-diagnosis-and-treatment-of-autoimmune-gastritis-and-pernicious-anaemia
Hi, I noticed that there were recent blog posts on PAS (Pernicious Anaemia Society) website. From 8th Nov 2023 is "The Patient Experience in Diagnosis and Treatment of Autoimmune Gastritis and Pernicious Anaemia" https://pernicious-anaemia-society.org/blog/the-patient-experience-in-diagnosis-and-treatment-of-autoimmune-gastritis-and-pernicious-anaemia
Sleepybunny
in
Pernicious Anaemia Society
7 months ago
Sources and experiences of LDN
Hi again, Just one more sourcing question - does anyone have any recommendations of UK sources of low dose naltrexone? I would also love to hear of anyone's experiences of taking LDN. I have hashimoto's underactive thyroid and am also trying to conceive and have read that it could be v beneficial
Hi again, Just one more sourcing question - does anyone have any recommendations of UK sources of low dose naltrexone? I would also love to hear of anyone's experiences of taking LDN. I have hashimoto's underactive thyroid and am also trying to conceive and have read that it could be v beneficial
Becsf
in
Thyroid UK
7 months ago
Could I have portal hypertension
Looking for any advice please. Not sure if I need to seek a second opinion from another Gastroenterologist. I had symptoms that could point to Cirrhosis or stages leading up to that. URQ pain, fatigue, malaise, GI issues with poor absorption (streatosis looking stools) and bloating, weight loss, shortness
Looking for any advice please. Not sure if I need to seek a second opinion from another Gastroenterologist. I had symptoms that could point to Cirrhosis or stages leading up to that. URQ pain, fatigue, malaise, GI issues with poor absorption (streatosis looking stools) and bloating, weight loss, shortness
Shoe2
in
British Liver Trust
9 months ago
Post ablation (1 week) and back in AFib. How often is this likely to happen over next few weeks?
Have had PAF for a few years and this year episodes became lengthier and more frequent, the latest lasting 4 weeks. Had a Cryo-ablation last Tuesday at Lancashire Cardiac Centre and was ok for a week, albeit with a few spells of ectopic beats and a very short run of AF (30-40 seconds only). Went on
Have had PAF for a few years and this year episodes became lengthier and more frequent, the latest lasting 4 weeks. Had a Cryo-ablation last Tuesday at Lancashire Cardiac Centre and was ok for a week, albeit with a few spells of ectopic beats and a very short run of AF (30-40 seconds only). Went on
Sorre1
in
AF Association
7 months ago
Newly diagnosed PAF by GP
Hi everyone, i was diagnosed with PAF by GP after 24hr holter monitor and referred to cardiology in July. Still waiting for cardio appt but have had s 72hr monitor in the meantime. No idea about results of that yet. My question is how do you all tell what is an Afib episode and what is eptopics or other
Hi everyone, i was diagnosed with PAF by GP after 24hr holter monitor and referred to cardiology in July. Still waiting for cardio appt but have had s 72hr monitor in the meantime. No idea about results of that yet. My question is how do you all tell what is an Afib episode and what is eptopics or other
Tropicaltaurus
in
AF Association
7 months ago
Swollen knees
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
Bailybiscuit
in
NRAS
7 months ago
York Lupus Group Coffee and Chat meeting - 9th December at 11.30
Come join the York Lupus Group for our next Coffee and Chat meeting on the 9th December, 11.30 until 1.30 at Sledmere House Cafe, Sledmere, Driffield, Yorkshire, YO25 3XG. This is a great opportunity to meet others with lupus or associated conditions, friends and family also welcome! For more information
Come join the York Lupus Group for our next Coffee and Chat meeting on the 9th December, 11.30 until 1.30 at Sledmere House Cafe, Sledmere, Driffield, Yorkshire, YO25 3XG. This is a great opportunity to meet others with lupus or associated conditions, friends and family also welcome! For more information
michaellasmith
Administrator
in
LUPUS UK
7 months ago
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