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Just diagnosed, need recommendations
Hi all! I just learned this morning that I have BC. Biopsy diagnosis DCIS in situ. Now I must find a breast oncology surgery practice. I live in Central Florida (Orlando) and am hoping I can get some recommendations of where to consider going for treatment. Thank you!
Hi all! I just learned this morning that I have BC. Biopsy diagnosis DCIS in situ. Now I must find a breast oncology surgery practice. I live in Central Florida (Orlando) and am hoping I can get some recommendations of where to consider going for treatment. Thank you!
MidModer
in
SHARE Breast Cancer Support
7 months ago
Varying side effects or formulations?
I started on exemestane in September. Since then, the side effects keep morphing. The first month it was pretty good. My mouth was really dry, odd. I had some fatigue. (I wasn't taking anything else.) The sore joints I had on anastrazole weren't gone, but much improved. I thought this was going to be
I started on exemestane in September. Since then, the side effects keep morphing. The first month it was pretty good. My mouth was really dry, odd. I had some fatigue. (I wasn't taking anything else.) The sore joints I had on anastrazole weren't gone, but much improved. I thought this was going to be
TammyCross
in
SHARE Metastatic Breast Cancer
7 months ago
May be deciding between Afinitor and Enhertu. Thoughts?
Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.) so thought I would try one last
Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.) so thought I would try one last
Pbsoup
in
SHARE Metastatic Breast Cancer
7 months ago
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PSMA RESULTS
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
Bcgkelly
in
Advanced Prostate Cancer
7 months ago
Metastasis Pain
Hello Brothers and Sisters , as I will be having a PSMA-Pet , Pyl coming up at my 2 yr mark soon I was wondering at what size a metastasis starts to cause pain . I had a pain under my my left rib cage at about 7 o'clock off and on for 14 months . I had a X-ray , ct-scan and a MRI all negative . The
Hello Brothers and Sisters , as I will be having a PSMA-Pet , Pyl coming up at my 2 yr mark soon I was wondering at what size a metastasis starts to cause pain . I had a pain under my my left rib cage at about 7 o'clock off and on for 14 months . I had a X-ray , ct-scan and a MRI all negative . The
reconjj
in
Advanced Prostate Cancer
7 months ago
Advice
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
PaumicB123
in
My Ovacome
7 months ago
Here we go.......
FULL DISCLOSURE, LONG POST Had a TRUS biopsy end of September after AS of a rising PSA. Had a 3T MRI in November 2021 which showed a PIRADS 3 left base and PIRADS 2 right mid, prostate volume 40mL. 4K in August of this year was 57.1 with PSA of 7.8. DICIPHER from biopsy was .84. Clinical stage
FULL DISCLOSURE, LONG POST Had a TRUS biopsy end of September after AS of a rising PSA. Had a 3T MRI in November 2021 which showed a PIRADS 3 left base and PIRADS 2 right mid, prostate volume 40mL. 4K in August of this year was 57.1 with PSA of 7.8. DICIPHER from biopsy was .84. Clinical stage
ToolBeltZia
in
Prostate Cancer Network
7 months ago
If you have a Chat GPT 4 account, please read
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
Darryl
Partner
in
Advanced Prostate Cancer
7 months ago
reassurance needed please
I’m a 33 year old female, went recently for ct scan on kidney as was having a bit of pain. Came back all clear for kidneys and other organs but a large low density area measuring 5x7 cm was found on liver, radiologists suggested : could be focal fat, cyst or other lesion. I am terrified and haven’t eaten
I’m a 33 year old female, went recently for ct scan on kidney as was having a bit of pain. Came back all clear for kidneys and other organs but a large low density area measuring 5x7 cm was found on liver, radiologists suggested : could be focal fat, cyst or other lesion. I am terrified and haven’t eaten
Hannahthom
in
British Liver Trust
7 months ago
Fine needle aspiration 🤔
Hi everyone ❤️ As some will know through my posts, I recently had a diagnosis of primary hyperparathyroidism by a lovely endocrinologist in Liverpool who I'm at present under for this condition. However to get to see this endo I had to go private to see a parathyroid specialist in bambary, he did a
Hi everyone ❤️ As some will know through my posts, I recently had a diagnosis of primary hyperparathyroidism by a lovely endocrinologist in Liverpool who I'm at present under for this condition. However to get to see this endo I had to go private to see a parathyroid specialist in bambary, he did a
birkie
in
Thyroid UK
7 months ago
Unable to do transvaginal scan
Hello, I'm new here and will try to be brief but wonder if anyone can advise me. I had a US scan last week as my ca125 result was 91. The radiographer was unable to perform a transvaginal scan though as trying to insert the probe was so very very painful for me. She attempted several times and I even
Hello, I'm new here and will try to be brief but wonder if anyone can advise me. I had a US scan last week as my ca125 result was 91. The radiographer was unable to perform a transvaginal scan though as trying to insert the probe was so very very painful for me. She attempted several times and I even
jib70
in
My Ovacome
7 months ago
Berberine and Levothyroxine
Hi This is my first post. I was wondering if anyone could give me advice about taking berberine with levothyroxine. I am currently taking 100mcg of levo daily. About 2 years ago I was diagnosed with Type 2 diabetes which I try and control with a low carb diet. However my blood sugar seems to be rising
Hi This is my first post. I was wondering if anyone could give me advice about taking berberine with levothyroxine. I am currently taking 100mcg of levo daily. About 2 years ago I was diagnosed with Type 2 diabetes which I try and control with a low carb diet. However my blood sugar seems to be rising
treeflower1954
in
Thyroid UK
7 months ago
CA 27.29 Blood Testl
My CA 27.29 has continued to rise. PET Scan showed nothing abnormal. I've been referred to Stanford Hospital and they will explore with more imagery. I am frightened but want to get to the truth.
My CA 27.29 has continued to rise. PET Scan showed nothing abnormal. I've been referred to Stanford Hospital and they will explore with more imagery. I am frightened but want to get to the truth.
RedwoodLady
in
SHARE Metastatic Breast Cancer
7 months ago
FDA Bans NMN as a Dietary Supplement: Why and What Happened?, By Kimberly Drake, Healthnews, Published on February 13, 2024
"Healthnews has compiled the timeline of events leading up to and after the FDA banned NMN. We detailed the twists, turns, and unexpected roadblocks for consumers and companies hoping to market the anti-aging compound." See this link for the full story: https://healthnews.com/longevity/longevity-supplements
"Healthnews has compiled the timeline of events leading up to and after the FDA banned NMN. We detailed the twists, turns, and unexpected roadblocks for consumers and companies hoping to market the anti-aging compound." See this link for the full story: https://healthnews.com/longevity/longevity-supplements
cujoe
in
Fight Prostate Cancer
4 months ago
2020 pilot study on benefit of alpha blockers which I wish I had known about when I had local radiotherapy
A Pilot retrospective analysis of alpha-blockers on recurrence in men with localised prostate cancer treated with radiotherapy Open access Published: 18 May 2020 volume 10, Article number: 8191 (2020) Scientific Reports Jordan Hart, Briohny Spencer, Catherine M McDermott, Russ Chess-Williams, Donna
A Pilot retrospective analysis of alpha-blockers on recurrence in men with localised prostate cancer treated with radiotherapy Open access Published: 18 May 2020 volume 10, Article number: 8191 (2020) Scientific Reports Jordan Hart, Briohny Spencer, Catherine M McDermott, Russ Chess-Williams, Donna
Graham49
in
Advanced Prostate Cancer
7 months ago
RT without HT
I am approaching 78. My last PSA is 13,37. It was 1.4 in 2018 ie the last time I had a test. Prostate size 36 cc, prostate density 0.39. The MRI indicated a 14mm tumour fully contained within the prostate in the lower left quadrant, with ‘something on the right that I have been informed is possibly
I am approaching 78. My last PSA is 13,37. It was 1.4 in 2018 ie the last time I had a test. Prostate size 36 cc, prostate density 0.39. The MRI indicated a 14mm tumour fully contained within the prostate in the lower left quadrant, with ‘something on the right that I have been informed is possibly
Nordman
in
Prostate Cancer Network
7 months ago
"Run, definitely run"
Any Avatar fans out there might remember Sigourney Weaver saying this.More recently, the cancer nurse at my cli7nic appointment before my surgery used exactly the same words in the same tone of voice when I asked if I should continue to run or rest between then and the operation. She and the surgeon
Any Avatar fans out there might remember Sigourney Weaver saying this.More recently, the cancer nurse at my cli7nic appointment before my surgery used exactly the same words in the same tone of voice when I asked if I should continue to run or rest between then and the operation. She and the surgeon
Runningphobe
Graduate
in
Couch to 5K
7 months ago
CA 27-29 has your tumor marker test ever gone into normal range
Update to my last update: the people who ran my blood said they mixed up the vials of blood with another patient. They offered to retest me at no expense. I go in tomorrow for my bloodwork retest. I can’t imagine how often stuff like this happens and how often it goes unnoticed. It says Mayo Clinic
Update to my last update: the people who ran my blood said they mixed up the vials of blood with another patient. They offered to retest me at no expense. I go in tomorrow for my bloodwork retest. I can’t imagine how often stuff like this happens and how often it goes unnoticed. It says Mayo Clinic
CatLady2022
in
SHARE Metastatic Breast Cancer
1 year ago
Severe coronary atherosclerosis and ADT
My recent PET / CT scan mentions severe coronary atherosclerosis. Previous one only said The heart is normal in size with scattered coronary artery calcifications. Also the new PET ? CT said something about heart enlargement but the last one said size normal. Previous scans also said there was an enlarged
My recent PET / CT scan mentions severe coronary atherosclerosis. Previous one only said The heart is normal in size with scattered coronary artery calcifications. Also the new PET ? CT said something about heart enlargement but the last one said size normal. Previous scans also said there was an enlarged
spencoid2
in
Advanced Prostate Cancer
7 months ago
A new kid on the block? Nemtabrutinib
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Varney
in
CLL Support
7 months ago
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