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Recurrence update
Hi lovely ladies I saw my oncologist on Friday to get results of PET scan and update of first recurrence. The scan showed another area of growth this time near my liver. Measuring 14mm same as those in diaphragm and cardio although these haven’t grown much since last scan. Extremely bright in velocity
Hi lovely ladies I saw my oncologist on Friday to get results of PET scan and update of first recurrence. The scan showed another area of growth this time near my liver. Measuring 14mm same as those in diaphragm and cardio although these haven’t grown much since last scan. Extremely bright in velocity
Barmycharm
in
My Ovacome
1 year ago
Blessings
Good morning newly diagnosed Breast Cancer Stage3 I was told it was caught early but because lymph nodes were affected I was Stafe 3. I had a lympectomy and lymph nodes removed. Sucessful now started Chemo once every two weeks 4 rounds. Radiation after chemo. Anyone else with a similar story just want
Good morning newly diagnosed Breast Cancer Stage3 I was told it was caught early but because lymph nodes were affected I was Stafe 3. I had a lympectomy and lymph nodes removed. Sucessful now started Chemo once every two weeks 4 rounds. Radiation after chemo. Anyone else with a similar story just want
Blessedup
in
My Breast Cancer Community
2 years ago
Question to my NJ sisters
I got to the point that I can’t stay with my oncologist any more for many reasons. One of them is that she doesn’t see me as a patient, but just as cancer. No symptoms that could be seen as a sign of cancer or side effect of the therapy are of interest. After I was hospitalized for urosepsis and anemia
I got to the point that I can’t stay with my oncologist any more for many reasons. One of them is that she doesn’t see me as a patient, but just as cancer. No symptoms that could be seen as a sign of cancer or side effect of the therapy are of interest. After I was hospitalized for urosepsis and anemia
Tolife_18
in
SHARE Metastatic Breast Cancer
1 year ago
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confused
I am so confused, my Pulmanary dr. Taking care of lung pleural effusion, and Oncologist taking care of meds, but no one has said any thing about the mass on my liver. I am stage 4 and things seem to go so slow.
I am so confused, my Pulmanary dr. Taking care of lung pleural effusion, and Oncologist taking care of meds, but no one has said any thing about the mass on my liver. I am stage 4 and things seem to go so slow.
Granny333
in
SHARE Metastatic Breast Cancer
2 years ago
Gemzar not working
Sadly, I couldn’t tolerate more Carbo, and the Gemzar/Avastin infusions have not helped. My CA125 is rising. Has anyone has this happen? Any suggestions? Thank you.
Sadly, I couldn’t tolerate more Carbo, and the Gemzar/Avastin infusions have not helped. My CA125 is rising. Has anyone has this happen? Any suggestions? Thank you.
Leniko
in
My Ovacome
1 year ago
CA 125… waitting CT
the story, my mom has 2nd recurrance may-sept she get carbo+taxol 8 treatments ca 125 was down from 350 to 40, some lymph was "suriver"after that but doctor sent her for watch and wait. after 2 month her ca was up to 95, after 3 month from last chemo 230 and now 5 month after chemo it is 370. if i count
the story, my mom has 2nd recurrance may-sept she get carbo+taxol 8 treatments ca 125 was down from 350 to 40, some lymph was "suriver"after that but doctor sent her for watch and wait. after 2 month her ca was up to 95, after 3 month from last chemo 230 and now 5 month after chemo it is 370. if i count
Inguc_is
in
My Ovacome
1 year ago
Anyone on interferon who has retinoschisis?
Hello I have ET and am getting more and more interested in changing from hydroxycarbemide to interferon Pegasus. I did note that a rare side effect is to cause problems with the retina. Does anyone have retinoschisis or cysts on the retina which so far have not caused any problem and are allowed to take
Hello I have ET and am getting more and more interested in changing from hydroxycarbemide to interferon Pegasus. I did note that a rare side effect is to cause problems with the retina. Does anyone have retinoschisis or cysts on the retina which so far have not caused any problem and are allowed to take
Na56
in
MPN Voice
1 year ago
Rise in CA125
Hi ladies, Hope you're all well! My Mum has really had a bit of a knock back after being told of a rise in her CA125 levels. It was 16, then 22, and now shot up to 92. She's stage 4 borderline, had 6x chemo, optimal debulking surgery, and was declared NED August last year — she's also completing a year
Hi ladies, Hope you're all well! My Mum has really had a bit of a knock back after being told of a rise in her CA125 levels. It was 16, then 22, and now shot up to 92. She's stage 4 borderline, had 6x chemo, optimal debulking surgery, and was declared NED August last year — she's also completing a year
georgialocksss
in
My Ovacome
1 year ago
PSMA pet scan whole body results show spread
ABDOMEN/PELVIS LYMPH NODES: There is an interval increase of the abnormal radiotracer involving the left-sided internal iliac lymph node at CT image 239 and previously visualized at CT image 245 (current SUVmax 10.6). There is also new mild abnormal radiotracer involving the left-sided external iliac
ABDOMEN/PELVIS LYMPH NODES: There is an interval increase of the abnormal radiotracer involving the left-sided internal iliac lymph node at CT image 239 and previously visualized at CT image 245 (current SUVmax 10.6). There is also new mild abnormal radiotracer involving the left-sided external iliac
Dixiechopper
in
Advanced Prostate Cancer
1 year ago
downgraded thyroid nodule at fna appointment
I have a u3 nodule (1.9x1.8) and have at least 4 more (solid over 1cm) that was classified as U2 on US although had. Vascularity and hyperexhoic. The U3 nodule is a cyst but, thickening and had calcifications was referred for 2WW us and fna, however the radiologist doing the scan downgraded to a U2 and
I have a u3 nodule (1.9x1.8) and have at least 4 more (solid over 1cm) that was classified as U2 on US although had. Vascularity and hyperexhoic. The U3 nodule is a cyst but, thickening and had calcifications was referred for 2WW us and fna, however the radiologist doing the scan downgraded to a U2 and
UndiagnosedR
in
Thyroid UK
1 year ago
Exon20 mutation and Mobocertinib
Hi , after the usual ‘standard’ chemo and immunotherapy ( which seriously impacted on my kidney function and had to be stopped ) I have now been diagnosed with Exon20 mutation and offered Mobocertinib . This is exactly a year after my initial diagnosis . My stage 4 adenocarcinoma and bony secondaries
Hi , after the usual ‘standard’ chemo and immunotherapy ( which seriously impacted on my kidney function and had to be stopped ) I have now been diagnosed with Exon20 mutation and offered Mobocertinib . This is exactly a year after my initial diagnosis . My stage 4 adenocarcinoma and bony secondaries
WoolleySunshine
in
The Roy Castle Lung Cancer Foundation
1 year ago
Results are in (Update 2/17/23)
So recurrent after radiation and 2 years ADT. PSA pretty close to 3 by now. Bone and CT scan done because my cheap insurance company denied the Pylarify until after the other 2. I don't mind the extra contrasts, barium or whatever hell else they gave me. I keep asking is it nuclear. Only the bone scan
So recurrent after radiation and 2 years ADT. PSA pretty close to 3 by now. Bone and CT scan done because my cheap insurance company denied the Pylarify until after the other 2. I don't mind the extra contrasts, barium or whatever hell else they gave me. I keep asking is it nuclear. Only the bone scan
treedown
in
Advanced Prostate Cancer
1 year ago
PSMA PET/CT scan: 18F vs. 68Ga
My post-RP BCR has creeped up to 0.56, so after discussing this with my oncologist, I decided to get a PSMA PET/CT scan before deciding on a treatment plan. My local radiology center uses the Pylarify (18F PSMA-DCFPyL) tracer, but I'm thinking I might get a better result with the newer Illuccix (68Ga
My post-RP BCR has creeped up to 0.56, so after discussing this with my oncologist, I decided to get a PSMA PET/CT scan before deciding on a treatment plan. My local radiology center uses the Pylarify (18F PSMA-DCFPyL) tracer, but I'm thinking I might get a better result with the newer Illuccix (68Ga
KeyboardGuy
in
Advanced Prostate Cancer
1 year ago
xeloda or nothing?
My most recent scans showed progression. Neither of my oncologists are optimistic. I've exhausted all the IV chemotherapies. Oh, and I'm stage IV TNBC and have been for 11 years. It's been a long road. I thought I'd post to get some feedback. I've chosen not to do Piqray because of side effects. The
My most recent scans showed progression. Neither of my oncologists are optimistic. I've exhausted all the IV chemotherapies. Oh, and I'm stage IV TNBC and have been for 11 years. It's been a long road. I thought I'd post to get some feedback. I've chosen not to do Piqray because of side effects. The
lynnhbtb
in
SHARE Metastatic Breast Cancer
1 year ago
rise in ca125
hi I had surgery 4 years ago to remove everything including my cervix, 2 years ago I started bleeding which turned out to be 2 Lgc in surgery the found another tumour on my uretha which the had to cut part of this way, after which I had chemo carcinoma and taxol. now my issue is in October my ca125
hi I had surgery 4 years ago to remove everything including my cervix, 2 years ago I started bleeding which turned out to be 2 Lgc in surgery the found another tumour on my uretha which the had to cut part of this way, after which I had chemo carcinoma and taxol. now my issue is in October my ca125
Heidi1965
in
My Ovacome
1 year ago
length of time for biopsy results
Hi, had a partial lung lobectomy and lymph node removal, was told biopsy results would be back in 7-10 days. It’s now been 41 days and I’ve heard nothing. When I contact various people I’m just being told this length of timeframe is not uncommon.. this does not sound right to me… Anyone else had to wait
Hi, had a partial lung lobectomy and lymph node removal, was told biopsy results would be back in 7-10 days. It’s now been 41 days and I’ve heard nothing. When I contact various people I’m just being told this length of timeframe is not uncommon.. this does not sound right to me… Anyone else had to wait
Hidden
in
Lung Conditions Community Forum
1 year ago
Lynch’s syndrome
Hi, my name is Mags and I have serous grade ovarian cancer stage 3 c (could be stage 4 now) since 2016. With three surgeries since (last one not so successful) and three rounds of chemotherapy, presently on maintenance Avastin. Does anybody know anything about Lynch’s syndrome. I tested positive
Hi, my name is Mags and I have serous grade ovarian cancer stage 3 c (could be stage 4 now) since 2016. With three surgeries since (last one not so successful) and three rounds of chemotherapy, presently on maintenance Avastin. Does anybody know anything about Lynch’s syndrome. I tested positive
2016Mags
in
My Ovacome
1 year ago
Hi all I’ve not been here for nearly 3 months time has disappeared recently. Last time here was the night before my surgery.
Surgery was ok ( In hindsight ! ). total hysterectomy bilateral salpingoophrectomy .., they took my appendix and also omentum. Histology came back as Stage 1c2 mucinous adenocarcinoma . Was suspected ( as most mucinous are ) that it was a secondary tumour from GI origin ( stomach / bowel) I’ve had
Surgery was ok ( In hindsight ! ). total hysterectomy bilateral salpingoophrectomy .., they took my appendix and also omentum. Histology came back as Stage 1c2 mucinous adenocarcinoma . Was suspected ( as most mucinous are ) that it was a secondary tumour from GI origin ( stomach / bowel) I’ve had
Deli44
in
My Ovacome
1 year ago
Lymph node spread
My husband was recently told he had a mass on lungs and so far we’ve had CT, MRI and are awaiting PET. Specialist nurse has told us CT showed no evidence of spread and I think she said that included no spread to lymph nodes, can CT confirm that or could PET still pick up spread to lymph nodes?
My husband was recently told he had a mass on lungs and so far we’ve had CT, MRI and are awaiting PET. Specialist nurse has told us CT showed no evidence of spread and I think she said that included no spread to lymph nodes, can CT confirm that or could PET still pick up spread to lymph nodes?
Hopeful51
in
The Roy Castle Lung Cancer Foundation
1 year ago
Color Genetic Test
Hi all: I am on AS and was advised to get the color genetic test, which tests genes corresponding to three dimensions: cancer, heart, and medication response. [1] No mutations identified for genes corresponding to cancer and heart disease. [2] Genes corresponding to medication response. What should
Hi all: I am on AS and was advised to get the color genetic test, which tests genes corresponding to three dimensions: cancer, heart, and medication response. [1] No mutations identified for genes corresponding to cancer and heart disease. [2] Genes corresponding to medication response. What should
witantric
in
Prostate Cancer Network
1 year ago
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