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Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
3 months ago
Is a Liquid biopsy of ctDNA with PSA = 6 and 4 bone mets, useful?
Hello friends I have to pay upfront the costs but I don't know if nothing will be found in a liquid biopsy with PSA of 6.5 What is your experience with liquid biopsy? And did anyone have a bone metastatic solid biopsy ? Thank you 🤗🙌
Hello friends I have to pay upfront the costs but I don't know if nothing will be found in a liquid biopsy with PSA of 6.5 What is your experience with liquid biopsy? And did anyone have a bone metastatic solid biopsy ? Thank you 🤗🙌
Manilo
in
Advanced Prostate Cancer
3 months ago
PSA rising, rapidly
Well, it looks like my honeymoons of ADT are over. I was (and still am) on a tripple therapy along the lines of the ARASENS trial (Docetaxel, Lupron and NUBEQA) for about 2 years. My PSA started rising six months ago, at first slowly, but now very rapidly. It went from 0.04 to 0.05 then 0.17 (in three
Well, it looks like my honeymoons of ADT are over. I was (and still am) on a tripple therapy along the lines of the ARASENS trial (Docetaxel, Lupron and NUBEQA) for about 2 years. My PSA started rising six months ago, at first slowly, but now very rapidly. It went from 0.04 to 0.05 then 0.17 (in three
Oldie68
in
Advanced Prostate Cancer
3 months ago
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Coming off Ibrance and fulvestrant. Not feeling great.
Hello. So I am changing meds since I had a progression while on Ibrance and Fulvestrant. I am currently on a med break. I guess to get everything out of my system. It’s been a week since last dose of ibrance and a month since my last shot of Fulvestrant. I started off feeling like I had a cold
Hello. So I am changing meds since I had a progression while on Ibrance and Fulvestrant. I am currently on a med break. I guess to get everything out of my system. It’s been a week since last dose of ibrance and a month since my last shot of Fulvestrant. I started off feeling like I had a cold
Ticket123
in
SHARE Metastatic Breast Cancer
1 year ago
Zytiga , prednesone , Options ?
Hello All , I just hit the 2 yr. mark of Eligard , Zytiga and pred. Im Stage 4 N1 , Had SBRT to prostate 2015 , then 7 yrs later PSMA-Pet saw 1 tumor in my pelvic lymph node Had SBRT on that . I have a heart doctor for heart murmur . The question is according to a study , per Tall Allen , Stampede
Hello All , I just hit the 2 yr. mark of Eligard , Zytiga and pred. Im Stage 4 N1 , Had SBRT to prostate 2015 , then 7 yrs later PSMA-Pet saw 1 tumor in my pelvic lymph node Had SBRT on that . I have a heart doctor for heart murmur . The question is according to a study , per Tall Allen , Stampede
reconjj
in
Advanced Prostate Cancer
3 months ago
Macrogol (Dulcoease)
Hi, has anyone else found that laxative treatments containing Macrogol increases their pain and bloating considerably? I have just been put on this and Mebeverine, but am still in a lot of pain, which seems worse when I take Macrogol. Thanks
Hi, has anyone else found that laxative treatments containing Macrogol increases their pain and bloating considerably? I have just been put on this and Mebeverine, but am still in a lot of pain, which seems worse when I take Macrogol. Thanks
Gardener
in
IBS Network
3 months ago
Successful Pluvicto Treatment
I completed six Pluvicto treatments in December 2023 and returned to Mayo in Rochester on January 31, 2024 for a Choline Pet scan to see if it would reveal any non-PSMA PCa. My doctor reviewed the report and scans and informed me that my cancer appears to be in complete remission. The findings of the
I completed six Pluvicto treatments in December 2023 and returned to Mayo in Rochester on January 31, 2024 for a Choline Pet scan to see if it would reveal any non-PSMA PCa. My doctor reviewed the report and scans and informed me that my cancer appears to be in complete remission. The findings of the
Skifanatic
in
Advanced Prostate Cancer
3 months ago
PSMA-Addition Trial can give access to Pluvicto for DeNovo or mHSPC
The range of access to Pluvicto (Lu177-PSMA-617) radionuclide treatment is expanding. Great news. The PSMA-Fore trial recently showed that it iis very beneficial before docetaxel chemotherapy in mCRPC. Now a worldwide trial is exploring it in metastatic hormone sensitive PC, including de novo metastatic
The range of access to Pluvicto (Lu177-PSMA-617) radionuclide treatment is expanding. Great news. The PSMA-Fore trial recently showed that it iis very beneficial before docetaxel chemotherapy in mCRPC. Now a worldwide trial is exploring it in metastatic hormone sensitive PC, including de novo metastatic
MateoBeach
in
Advanced Prostate Cancer
3 months ago
Possible NHS misdiagnosis saying clear for HPV when private home test says positive with variant 16 (the test and smear were 14 days apart)
I have tested HPV positive for 2 smears a year apart, the last one was Oct 2023. So I went for my third on 18 Jan this year and have just been given the all clear and told it will repeated in 5 years (which I doubt as I will be 71 then). HOWEVER, I had already done a home test with Medicines Online
I have tested HPV positive for 2 smears a year apart, the last one was Oct 2023. So I went for my third on 18 Jan this year and have just been given the all clear and told it will repeated in 5 years (which I doubt as I will be 71 then). HOWEVER, I had already done a home test with Medicines Online
destiny234
in
Gynae Cancer Support
3 months ago
Treatment for low-PSA mHSPCa
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Does anyone have a clue for treatment of low-PSA metastatic PCa? For neuroendocrine PCa? The only study I can find on treatment for low-PSA: "Mortality Risk for Docetaxel-Treated, High-Grade Prostate Cancer With Low PSA Levels: A Meta-Analysis | Oncology | JAMA Network Open" | indicates that
Purple-Bike
in
Advanced Prostate Cancer
3 months ago
Mets to lungs and lymph nodes need some advice
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along
Niso
in
Advanced Prostate Cancer
3 months ago
Triplet Therapy for HSPC
This article came over on the Prostate Cancer Newletter. https://www.onclive.com/view/dr-sharma-on-questions-regarding-the-optimal-use-of-triplet-therapies-in-hspc?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter I am unsure based on lack of detail and to a smaller extent a comment by
This article came over on the Prostate Cancer Newletter. https://www.onclive.com/view/dr-sharma-on-questions-regarding-the-optimal-use-of-triplet-therapies-in-hspc?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter I am unsure based on lack of detail and to a smaller extent a comment by
treedown
in
Advanced Prostate Cancer
3 months ago
Scared and Feeling Helpless
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Cafu6
in
Advanced Prostate Cancer
3 months ago
Testosterone too high?
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
JPnSD
in
Advanced Prostate Cancer
3 months ago
*NEW online session - 6th February* Our stories: having a hereditary increased risk of ovarian cancer
Good morning all, On the 6th February at 2:00pm, Ovacome will be hosting the next in the 'Our stories' series, where we are joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis. This session will feature Ovacome members Hilary and Sue, who will
Good morning all, On the 6th February at 2:00pm, Ovacome will be hosting the next in the 'Our stories' series, where we are joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis. This session will feature Ovacome members Hilary and Sue, who will
OvacomeSupport
My Ovacome Team
in
My Ovacome
3 months ago
Niraparib Time Line?
Hi ladies I am a bit confused re the length of time you are kept on PARP treatment and what happens when you stop. I have been on Niraparib for over two years now, my oncologist said they will review after three years. I haven’t any problems, my bloods and CA 125 have always been good. I read so many
Hi ladies I am a bit confused re the length of time you are kept on PARP treatment and what happens when you stop. I have been on Niraparib for over two years now, my oncologist said they will review after three years. I haven’t any problems, my bloods and CA 125 have always been good. I read so many
Jingles6
in
My Ovacome
3 months ago
ADT Holiday?
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
RunnerBiker
in
Advanced Prostate Cancer
3 months ago
Chemo Failed
My dad finished Docetaxel in November. He went to oncologist today. His PSA went from 0.58 to 2.3. Things he tried: Lupron (on for years before failed) Zytiga (worked for 18 months) Orchidectomy Then the chemo. He is not a candidate for radiation because of a previous cancer. He is going to
My dad finished Docetaxel in November. He went to oncologist today. His PSA went from 0.58 to 2.3. Things he tried: Lupron (on for years before failed) Zytiga (worked for 18 months) Orchidectomy Then the chemo. He is not a candidate for radiation because of a previous cancer. He is going to
Jshaw916
in
Advanced Prostate Cancer
3 months ago
Failing ADT
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
jfoesq
in
Advanced Prostate Cancer
3 months ago
Personal update
Ok, first blood work, 3 weeks after the last chemo of ARASENS protocol PSA is 0.39, it was 70 at diagnosis and 15 after 4-5 weeks (when I have started ARASENS) Testosterone 0.33 nmol/L well, that's it!
Ok, first blood work, 3 weeks after the last chemo of ARASENS protocol PSA is 0.39, it was 70 at diagnosis and 15 after 4-5 weeks (when I have started ARASENS) Testosterone 0.33 nmol/L well, that's it!
Maxone73
in
Advanced Prostate Cancer
3 months ago
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