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Ovacome clinical update day 18 May 2024 London
Hello All You are warmly invited to join us for our annual clinical update day on Saturday 18 May from 9:30am to 4:30pm. This event is for anyone affected by ovarian cancer including family and friends and is being held at the Ovacome office in London. The day will be a combination of talks from clinicians
Hello All You are warmly invited to join us for our annual clinical update day on Saturday 18 May from 9:30am to 4:30pm. This event is for anyone affected by ovarian cancer including family and friends and is being held at the Ovacome office in London. The day will be a combination of talks from clinicians
OvacomeSupport
My Ovacome Team
in
My Ovacome
26 days ago
Pacific Northwest
Hi! We’re beginning to research facilities for second opinions, next step guidance to supplement what we’re learning from our local doctor. My husband is BRCA2 positive, had a prostatectomy, salvage radiation and now his PSA is starting to creep back up. I know it’s too early to take additional treatment
Hi! We’re beginning to research facilities for second opinions, next step guidance to supplement what we’re learning from our local doctor. My husband is BRCA2 positive, had a prostatectomy, salvage radiation and now his PSA is starting to creep back up. I know it’s too early to take additional treatment
Silverlings
in
Advanced Prostate Cancer
27 days ago
stage 4 Gleason 8/9
I lake low volume Metastatic PCA. Found in 4 lymph nodes / couple spots on pelvic bones . I m on 1m mgs Abby 5 mgs Pred, had a shot of Fermigon and start Lupron next week , Radiation starting end of month . let me know if any suggestions other than a positive attitude? Right now I exercise regularly
I lake low volume Metastatic PCA. Found in 4 lymph nodes / couple spots on pelvic bones . I m on 1m mgs Abby 5 mgs Pred, had a shot of Fermigon and start Lupron next week , Radiation starting end of month . let me know if any suggestions other than a positive attitude? Right now I exercise regularly
Pjford
in
Advanced Prostate Cancer
27 days ago
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Be Interviewed and Help Everyone with your story
Based on the outstanding response to yesterday's video with Don (the retired Canadian Mountie), I will be happy to record more interviews with the guys in our prostate cancer community. Your experience could help others navigate their paths and provide invaluable insights into the everyday realities
Based on the outstanding response to yesterday's video with Don (the retired Canadian Mountie), I will be happy to record more interviews with the guys in our prostate cancer community. Your experience could help others navigate their paths and provide invaluable insights into the everyday realities
Darryl
Partner
in
Prostate Cancer Network
27 days ago
Neuroendocrine Prostate cancer (NEPC) questions.
I’ve had some very concerning symptoms lately so I started looking up more about NEPC. I have some of the listed symptoms. I’ve been under enormous stress lately, caring for my mom who’s in her 90s. The stress may have cause my cancer to mutate. Last year I remember reading something on this site
I’ve had some very concerning symptoms lately so I started looking up more about NEPC. I have some of the listed symptoms. I’ve been under enormous stress lately, caring for my mom who’s in her 90s. The stress may have cause my cancer to mutate. Last year I remember reading something on this site
GeorgeGlass
in
Advanced Prostate Cancer
27 days ago
Making a Case for Intermittent ADT in Metastatic Hormone Sensitive Prostate Cancer
FPC'ers, Many times, we hear people claim that you should only stop ADT if you can't tolerate it any longer, and that it will not slow castrate resistance; that it increases risk for stroke, and heart attack; that it will likely take years for your testosterone to recover; that it increases mortality
FPC'ers, Many times, we hear people claim that you should only stop ADT if you can't tolerate it any longer, and that it will not slow castrate resistance; that it increases risk for stroke, and heart attack; that it will likely take years for your testosterone to recover; that it increases mortality
NPfisherman
in
Fight Prostate Cancer
27 days ago
Any guidance appreciated!
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
LDC2024
in
Advanced Prostate Cancer
27 days ago
In the UK Olaparib only seems to be available for those testing positive for BRCA. Is this a cost issue that it is not widely available?
Beej59• A few seconds ago•0 Replies My partner has advanced PC with tumours in ribs, spine and iliac. He has been stable on Zoladex for 8 years but this may now be changing. We insisted on a BRCA test which has come back negative but from what I understand Olaparib is only being made available
Beej59• A few seconds ago•0 Replies My partner has advanced PC with tumours in ribs, spine and iliac. He has been stable on Zoladex for 8 years but this may now be changing. We insisted on a BRCA test which has come back negative but from what I understand Olaparib is only being made available
Beej59
in
Prostate Cancer Network
27 days ago
In the UK Olaparib only seems to be available for those testing positive for BRCA. Is this a cost issue that it is not widely available?
My partner has advanced PC with tumours in ribs, spine and iliac. He has been stable on Zoladex for 8 years but this may now be changing. We insisted on a BRCA test which has come back negative but from what I understand Olaparib is only being made available to patients in the UK for those who test
My partner has advanced PC with tumours in ribs, spine and iliac. He has been stable on Zoladex for 8 years but this may now be changing. We insisted on a BRCA test which has come back negative but from what I understand Olaparib is only being made available to patients in the UK for those who test
Beej59
in
Advanced Prostate Cancer
27 days ago
treatment for rectal bleeding/hemorrhoids?
It’s now May 2024 and I’ve had a total of two colonoscopies and one sigmoidoscopy since 2020 and they have found the following: hypertrophic anal papillae(basically a benign fibrous polyp that many gi doctors regard as a skin tag), internal hemorrhoids and one external friable hemorrhoid, small divericula
It’s now May 2024 and I’ve had a total of two colonoscopies and one sigmoidoscopy since 2020 and they have found the following: hypertrophic anal papillae(basically a benign fibrous polyp that many gi doctors regard as a skin tag), internal hemorrhoids and one external friable hemorrhoid, small divericula
digar
in
Colon Cancer Connected
28 days ago
Record more interviews with the guys in our prostate cancer community.
Based on the outstanding response to yesterday's video with Don (the retired Canadian Mountie), I will be happy to record more interviews with the guys in our prostate cancer community. Your experience could help others navigate their paths and provide invaluable insights into the everyday realities
Based on the outstanding response to yesterday's video with Don (the retired Canadian Mountie), I will be happy to record more interviews with the guys in our prostate cancer community. Your experience could help others navigate their paths and provide invaluable insights into the everyday realities
Darryl
Partner
in
Advanced Prostate Cancer
28 days ago
Next step after completed Oligometastatic prostate cancer treatment..
In 2022 I completed six weeks of RT to three periaortic metastatic lymph notes and two lesions on ribs and started Lupron and Erleada in April 2022 till now. Because numerus SEs including progressing spine arthritis I'd like to stop HT and watch my PSA. For now PSA <0.02. Any advise greatly appreciated
In 2022 I completed six weeks of RT to three periaortic metastatic lymph notes and two lesions on ribs and started Lupron and Erleada in April 2022 till now. Because numerus SEs including progressing spine arthritis I'd like to stop HT and watch my PSA. For now PSA <0.02. Any advise greatly appreciated
Maxi54
in
Advanced Prostate Cancer
28 days ago
No woman Left Behind
Hi ladies, today 8th May is "World Ovarian cancer day "so I am thinking of you all today . We all show remarkable courage & strength as we deal with this dreadful disease. We are all here to help each other in different ways & I think we can all spread awareness to other women who might have symptoms
Hi ladies, today 8th May is "World Ovarian cancer day "so I am thinking of you all today . We all show remarkable courage & strength as we deal with this dreadful disease. We are all here to help each other in different ways & I think we can all spread awareness to other women who might have symptoms
Tulips66
in
My Ovacome
28 days ago
Ct scan of abdomen and pelvis and full body bone scan?
Hello, I have been advised to get a ct scan of abdomen and pelvis with and without contrast, along with a full body bone scan prior to my next appointment with my urologist. PSA has been undetectable since completion 9/9/20 of image guided radiation to the prostate bed and lymph nodes with a 6 month
Hello, I have been advised to get a ct scan of abdomen and pelvis with and without contrast, along with a full body bone scan prior to my next appointment with my urologist. PSA has been undetectable since completion 9/9/20 of image guided radiation to the prostate bed and lymph nodes with a 6 month
realtorjohn42
in
Advanced Prostate Cancer
29 days ago
54 Year Old Retired Canadian Mountie with Advanced Prostate Cancer
Consider subscribing for more prostate cancer videos. Click on the link below. https://www.youtube.com/c/malecare?sub_confirmation=1 https://youtu.be/VQW-yyTzi44
Consider subscribing for more prostate cancer videos. Click on the link below. https://www.youtube.com/c/malecare?sub_confirmation=1 https://youtu.be/VQW-yyTzi44
Darryl
Partner
in
Advanced Prostate Cancer
29 days ago
asking for a friend (really) oncologist referral Chicago or Mayo Rochester
I am an open book for people newly diagnosed with prostate cancer and often hear from friends of friends. Looking back on my journey, I feel that I too quickly went the surgery route after consulting with a very good urologist/surgeon/oncologist and I erred not consulting with a Medical Oncologist first
I am an open book for people newly diagnosed with prostate cancer and often hear from friends of friends. Looking back on my journey, I feel that I too quickly went the surgery route after consulting with a very good urologist/surgeon/oncologist and I erred not consulting with a Medical Oncologist first
darlingdb
in
Advanced Prostate Cancer
29 days ago
Prednisone taper plan.
OK, I had my first and pretty bad 41 hour AFib last Friday, Im stopping Abiraterone for at least 8 weeks, the Onco will reassess then. Im now taking Metoprolol which Abiraterone increases the effects of it. Still taking Prednisone, will start wean tomorrow. What's your favorite taper/wean plan.
OK, I had my first and pretty bad 41 hour AFib last Friday, Im stopping Abiraterone for at least 8 weeks, the Onco will reassess then. Im now taking Metoprolol which Abiraterone increases the effects of it. Still taking Prednisone, will start wean tomorrow. What's your favorite taper/wean plan.
Still_in_shock
in
Advanced Prostate Cancer
30 days ago
Is pluvicto helping?
I started pluvicto on Jan 24, 2024. I’m on zoladex quarterly as well. I currently feel good compared to when i began pluvicto. My labwork are all normal, no abnormalities. My last scans show reduced mets in lymph nodes but still in bones and no progression. Would you say things are looking good with
I started pluvicto on Jan 24, 2024. I’m on zoladex quarterly as well. I currently feel good compared to when i began pluvicto. My labwork are all normal, no abnormalities. My last scans show reduced mets in lymph nodes but still in bones and no progression. Would you say things are looking good with
setho
in
Advanced Prostate Cancer
30 days ago
My PCa history
After rising PSA from 6.92 in March 2012 to 9.98 in April 2013 Uro performed Prostate Biopsy in April 2013. 12 samples were taken: worst sample 4+3 (30% involvement) and four samples 3+4 (5% involvement). Scheduled for robotic prostatectomy, but before it Uro gave me four shots of Fermagon. Uro
After rising PSA from 6.92 in March 2012 to 9.98 in April 2013 Uro performed Prostate Biopsy in April 2013. 12 samples were taken: worst sample 4+3 (30% involvement) and four samples 3+4 (5% involvement). Scheduled for robotic prostatectomy, but before it Uro gave me four shots of Fermagon. Uro
Maxi54
in
Advanced Prostate Cancer
30 days ago
Not great news for hubby today. What is next?
Just updated my husband's profile so you can see his journey from 2016. Oncologist today said to continue the Abiraterone for another month and see where we are at with PSA results. Was up again today. He did have 6 rounds of targeted radiation last month, so would that cause PSA to go up. We were hoping
Just updated my husband's profile so you can see his journey from 2016. Oncologist today said to continue the Abiraterone for another month and see where we are at with PSA results. Was up again today. He did have 6 rounds of targeted radiation last month, so would that cause PSA to go up. We were hoping
Docker53
in
Advanced Prostate Cancer
30 days ago
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