Search
Search
About
Log in
Join
Experiences with
Breast cancer metastatic
Posts
Communities
30,731 public posts
Filter results
What's on at Ovacome next week? (week commencing 25 September 2023)
Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week.
Monday 25 September
- Hereford ovarian cancer support group between 11:00am – 12:30pm: https://www.ovacome.org.uk/event/herefordshire-ovarian-cancer-support-group
Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week.
Monday 25 September
- Hereford ovarian cancer support group between 11:00am – 12:30pm: https://www.ovacome.org.uk/event/herefordshire-ovarian-cancer-support-group
OvacomeSupport
My Ovacome Team
in
My Ovacome
8 months ago
PSA up to 150 on Olaprib, any insight on what’s next?
Hi all, my dads history is mostly in my profile but in short he started on Zytiga a year ago. Zytiga worked well but had major side effects and lead to a switch to Erleada. Erleada failed at the time shown in the picture with the orange circle and he switched to Olaprib by the time he got the PSA results
Hi all, my dads history is mostly in my profile but in short he started on Zytiga a year ago. Zytiga worked well but had major side effects and lead to a switch to Erleada. Erleada failed at the time shown in the picture with the orange circle and he switched to Olaprib by the time he got the PSA results
StayingSTRNG
in
Advanced Prostate Cancer
8 months ago
Update
Well this is a long story,Mick started loosing weight In February. We then went too the GP in March,who did a blood, when I rang up they said it was normal.Mick continued to loose weight so went back to the GP on April 9th,who then said his blood test showed dangerously high blood sugars,this is the
Well this is a long story,Mick started loosing weight In February. We then went too the GP in March,who did a blood, when I rang up they said it was normal.Mick continued to loose weight so went back to the GP on April 9th,who then said his blood test showed dangerously high blood sugars,this is the
very
in
CLL Support
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Airing Pain 141: Living with Childhood and Young Adult Cancer
Pain Concern is delighted to announce that the second edition of our mini-series on the lasting impact of childhood pain is OUT NOW
Airing Pain 141: Living with Childhood and Young Adult Cancer
This edition of Airing Pain sheds light on the unique challenges of living with cancer as a child
Pain Concern is delighted to announce that the second edition of our mini-series on the lasting impact of childhood pain is OUT NOW
Airing Pain 141: Living with Childhood and Young Adult Cancer
This edition of Airing Pain sheds light on the unique challenges of living with cancer as a child
PainConcernProjects
Pain Concern
in
Pain Concern
5 months ago
Options when Docetaxel stops working
Hi everyone- My brother was diagnosed with stage 4 prostate cancer in April of 2021. His PSA was 52 at the time of his diagnosis. He went on Lupron and Abiraterone which took his PSA to .03 and kept it low until Oct 2022. It went to 8.9 and his doctor put him on Docetaxel chemo. His PSA has continued
Hi everyone- My brother was diagnosed with stage 4 prostate cancer in April of 2021. His PSA was 52 at the time of his diagnosis. He went on Lupron and Abiraterone which took his PSA to .03 and kept it low until Oct 2022. It went to 8.9 and his doctor put him on Docetaxel chemo. His PSA has continued
TerryR123
in
Advanced Prostate Cancer
8 months ago
Haven’t posted for a while 😊
Well I have a a hard time these past couple of months I had my mother in law in and out of hospital she got cancer on one of her kidneys and had removed them in her bladder got that removed and now we are gonna start some type of therapy! As for my mom she has been ok we’re still with a low dose of
Well I have a a hard time these past couple of months I had my mother in law in and out of hospital she got cancer on one of her kidneys and had removed them in her bladder got that removed and now we are gonna start some type of therapy! As for my mom she has been ok we’re still with a low dose of
Eirinik
in
CLL Support
5 months ago
Worries
Some months ago my wife was diagnosed with a brain tumor and stage 4 lung cancer. What now, what does the future hold. Be positive, we have been together since we left school, so 30+ yrs. She got through breast cancer 13 yrs ago, and now this!. 😢. Its manageable they say, but what time do we have left
Some months ago my wife was diagnosed with a brain tumor and stage 4 lung cancer. What now, what does the future hold. Be positive, we have been together since we left school, so 30+ yrs. She got through breast cancer 13 yrs ago, and now this!. 😢. Its manageable they say, but what time do we have left
Burnster17
in
The Roy Castle Lung Cancer Foundation
5 months ago
BC Update with GP.
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
Ern007
in
Lung Conditions Community Forum
5 months ago
Remember or move on ?
My husband had a fall in 2010 and it resulted in a TBI It was bad and I was told he would never be “ him “ again but they didn’t know him like I do ! We had enormous amounts of help from Headway and over the years we got used to the new lovely John He was a loud …larger than life Hairy Biker and
My husband had a fall in 2010 and it resulted in a TBI It was bad and I was told he would never be “ him “ again but they didn’t know him like I do ! We had enormous amounts of help from Headway and over the years we got used to the new lovely John He was a loud …larger than life Hairy Biker and
Katie55
in
Headway
5 months ago
GP cancelled my free prescriptions as doesn't classify ET as a blood cancer, and even if it was, I'm not recieving ongoing treatment!?
Well Folks, I've got a personal battle to fight with my GP.... Having recently recieved a letter from the NHS Business Services Authority informing me that my NHS Medical exemption certificate is about to expire - the one I was allocated when originally diagnosed with ET - the letter requested that
Well Folks, I've got a personal battle to fight with my GP.... Having recently recieved a letter from the NHS Business Services Authority informing me that my NHS Medical exemption certificate is about to expire - the one I was allocated when originally diagnosed with ET - the letter requested that
anewpath
in
MPN Voice
5 months ago
Prostate Cancer Costs More than your Life
https://youtu.be/dM95DmzZ1Us Tanya Dorff, MD City of Hope
https://youtu.be/dM95DmzZ1Us Tanya Dorff, MD City of Hope
Darryl
Partner
in
Advanced Prostate Cancer
8 months ago
Not about advanced PCa, but might be useful: curcumin and BPH
The nano-micellar curcumin improves International Prostate Symptoms Score (IPSS) in patients with benign prostatic hyperplasia: a randomized clinical trial https://pubmed.ncbi.nlm.nih.gov/37458774/
The nano-micellar curcumin improves International Prostate Symptoms Score (IPSS) in patients with benign prostatic hyperplasia: a randomized clinical trial https://pubmed.ncbi.nlm.nih.gov/37458774/
Maxone73
in
Advanced Prostate Cancer
5 months ago
Decision Xtandi or radiation
Many posts proceed this one and I am now at a crossroad. Scans since 7/21 showed uptake in either/or illiac, acetabulum and the ischium. After 2/23 scan I had 35 gys radiation to acetabulum. PSA dropped then started rising, 9/23 scan showed SUV uptake 28.4 at ischium. PSA 4.2 Local radiologist is
Many posts proceed this one and I am now at a crossroad. Scans since 7/21 showed uptake in either/or illiac, acetabulum and the ischium. After 2/23 scan I had 35 gys radiation to acetabulum. PSA dropped then started rising, 9/23 scan showed SUV uptake 28.4 at ischium. PSA 4.2 Local radiologist is
alperk
in
Advanced Prostate Cancer
8 months ago
Oesophageal Sphincter
Hello. My wife had gastro-oesophageal cancer 12 years ago and had surgery to remove the cancer. Thankfully all was successful and she leads a very normal life. As one knows, post surgery one cannot lie down flat as the oesophageal sphincter has been removed thus causing acid to come up from the stomach
Hello. My wife had gastro-oesophageal cancer 12 years ago and had surgery to remove the cancer. Thankfully all was successful and she leads a very normal life. As one knows, post surgery one cannot lie down flat as the oesophageal sphincter has been removed thus causing acid to come up from the stomach
CarlF
in
Oesophageal & Gastric Cancer
5 months ago
SIB/Flame Protocol
The RO recommends Simultaneous Integrated Boost (SIB) as part of my treatment. PSA was 19.76 (4/2023), then 21.78 (5/2023 to confirm initial PSA). He is concerned that the PSA does not match the Gleason score (4+3, grade 3) as PSA has surpassed 20. Multiplanar MRI and PSMA PET indicated no metastasis
The RO recommends Simultaneous Integrated Boost (SIB) as part of my treatment. PSA was 19.76 (4/2023), then 21.78 (5/2023 to confirm initial PSA). He is concerned that the PSA does not match the Gleason score (4+3, grade 3) as PSA has surpassed 20. Multiplanar MRI and PSMA PET indicated no metastasis
805guy
in
Prostate Cancer Network
8 months ago
Ovarian cancer recurrence
Firstly, hi to anyone who may stumble across my post. Long story short, I was diagnosed with stage 4 ovarian cancer back in 2020. I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via olaparib. I had a CT scan back in August which highlighted
Firstly, hi to anyone who may stumble across my post. Long story short, I was diagnosed with stage 4 ovarian cancer back in 2020. I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via olaparib. I had a CT scan back in August which highlighted
Guitarplayinghobbit
in
My Ovacome
5 months ago
protein supplements: yes or no?
Since I just finished Viewray Tx at UCLA, I’m moving on to the diet & exercise research zone. I’d like input on what the latest research, if any, is RE protein supplements. Whey isolate vs. vegan protein supp? Does either one promote or suppress PCa after Tx? Also, what’s the latest on eggs? It seems
Since I just finished Viewray Tx at UCLA, I’m moving on to the diet & exercise research zone. I’d like input on what the latest research, if any, is RE protein supplements. Whey isolate vs. vegan protein supp? Does either one promote or suppress PCa after Tx? Also, what’s the latest on eggs? It seems
BL2023
in
Advanced Prostate Cancer
8 months ago
Not about PCa, but worth checking...CRISPR in oncology phase 1-2
"A clinical trial to assess the safety and efficacy of genetically-engineered, neoantigen-specific Tumor Infiltrating Lymphocytes (TIL) in which the intracellular immune checkpoint CISH has been inhibited using CRISPR gene editing for the treatment of Gastro-Intestinal (GI) Cancer." https://www.clinicaltrials.gov
"A clinical trial to assess the safety and efficacy of genetically-engineered, neoantigen-specific Tumor Infiltrating Lymphocytes (TIL) in which the intracellular immune checkpoint CISH has been inhibited using CRISPR gene editing for the treatment of Gastro-Intestinal (GI) Cancer." https://www.clinicaltrials.gov
Maxone73
in
Advanced Prostate Cancer
5 months ago
Any ladies had cytoreductive surgery for recurrence?
lovely ladies, Can anyone help me with decision between radical 10 hour surgery to remove Spleen and near by tumour also Liver scrap or just put my faith in Chemotherapy this time with Carly? A year ago my cancer came back after over 4 years NED. I understood the CT scan had caught it early and went
lovely ladies, Can anyone help me with decision between radical 10 hour surgery to remove Spleen and near by tumour also Liver scrap or just put my faith in Chemotherapy this time with Carly? A year ago my cancer came back after over 4 years NED. I understood the CT scan had caught it early and went
Towergirl
in
My Ovacome
5 months ago
Xtandi vs Orgovyx
Husband is currently undergoing treatment for recurrence of Prostate cancer with metastasis in spine and right shoulder blade. He's been taking Casadex since mid June and also just completed 5 radiation treatments on his spine. He is also scheduled to begin radiation tratment on his shoulder blade
Husband is currently undergoing treatment for recurrence of Prostate cancer with metastasis in spine and right shoulder blade. He's been taking Casadex since mid June and also just completed 5 radiation treatments on his spine. He is also scheduled to begin radiation tratment on his shoulder blade
Captj440
in
Advanced Prostate Cancer
8 months ago
1
...
99
100
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
11943 results
My Ovacome
3513 results
SHARE Metastatic Breast Cancer
2233 results
View top 10 communities
Sort by
Most Relevant
Newest