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Hello
I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with reconstructive surgery followed by chemo and radiation. Following that I was put on Tamoxifen Arimidex and Taxol. After being off for 5 years last year in 2022 I was diagnosed in the other breast with cancer. I had surgery
I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with reconstructive surgery followed by chemo and radiation. Following that I was put on Tamoxifen Arimidex and Taxol. After being off for 5 years last year in 2022 I was diagnosed in the other breast with cancer. I had surgery
chancemiracle12
in
SHARE Metastatic Breast Cancer
7 months ago
Feeling low. Wind out of my sails
Update - Saw doc this morning and I was hoping that the Enhertu would be working after the 4th cycle, but markers went up +289. Now I am at 2130 (15.3) and the general tumor markers are up almost 4 pts to 56. He said I could do another round of Enhertu and I just said, look, just over a year now and
Update - Saw doc this morning and I was hoping that the Enhertu would be working after the 4th cycle, but markers went up +289. Now I am at 2130 (15.3) and the general tumor markers are up almost 4 pts to 56. He said I could do another round of Enhertu and I just said, look, just over a year now and
Hopeful4Cure
in
SHARE Metastatic Breast Cancer
7 months ago
best treatment after Xeloda?
I was diagnosed with MBC in Feb 2022 with bone mets. I am HER2 low ER positive. I have been on kisquali, Ibrance, Faslodex, and lastly 4 rounds of Xeloda. Nothing seems to stop my progression, Kisquali sent my liver enzymes sky high. Ibrance/Faslodex progression was slow and markers rose. Xeloda
I was diagnosed with MBC in Feb 2022 with bone mets. I am HER2 low ER positive. I have been on kisquali, Ibrance, Faslodex, and lastly 4 rounds of Xeloda. Nothing seems to stop my progression, Kisquali sent my liver enzymes sky high. Ibrance/Faslodex progression was slow and markers rose. Xeloda
Breege_M
in
SHARE Metastatic Breast Cancer
7 months ago
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sickness
I am fighting
metastatic
breast
cancer
and multiple myeloma plus cardiac amyloidosis so it is a big gulp for me. It is onward on though. Prayers for all of you too fighting. Oh and now I have a floater in my eye it is driving me crazy too.
I am fighting
metastatic
breast
cancer
and multiple myeloma plus cardiac amyloidosis so it is a big gulp for me. It is onward on though. Prayers for all of you too fighting. Oh and now I have a floater in my eye it is driving me crazy too.
TeenaUSA
in
Myeloma America Support
23 days ago
Indapamide with levothyroxine?
I have been prescribed Indapamide for high blood pressure. I also have Ramipril which I take in the evening. The Indapamide pack says to take in the morning. Can I take it with my thyroxine? I couldn’t see any contraindications for it but is it going to impede the thyroxine? ShouldI take it at night
I have been prescribed Indapamide for high blood pressure. I also have Ramipril which I take in the evening. The Indapamide pack says to take in the morning. Can I take it with my thyroxine? I couldn’t see any contraindications for it but is it going to impede the thyroxine? ShouldI take it at night
AnotherEmma
in
Thyroid UK
9 months ago
What is role of hormonal therapy drug when taken with targeted therapy, eg Piqray or Ibrance?
I’ve been curious about this and wondering if anyone can explain. I want to better understand the role of the hormone therapy eg Faslodex when taken with targeted therapy such as Ibrance. Does it just reduce the amount of estrogen available to the cell and “lightens the load” on the targeted therapy?
I’ve been curious about this and wondering if anyone can explain. I want to better understand the role of the hormone therapy eg Faslodex when taken with targeted therapy such as Ibrance. Does it just reduce the amount of estrogen available to the cell and “lightens the load” on the targeted therapy?
HelenWi
in
SHARE Metastatic Breast Cancer
8 months ago
Breast Cancer
Hi everyone I have been told I have invasive lobular carcinoma. I am a 56-year-old woman. I will be having a lumpectomy on August 28, 2023. followed by radiation and then hormone blockers. providing it's not in my lymph nodes. I was shocked to get this diagnosis after a call back from my routine mammogram
Hi everyone I have been told I have invasive lobular carcinoma. I am a 56-year-old woman. I will be having a lumpectomy on August 28, 2023. followed by radiation and then hormone blockers. providing it's not in my lymph nodes. I was shocked to get this diagnosis after a call back from my routine mammogram
Granica4818
in
SHARE Breast Cancer Support
9 months ago
thoughts 🙏
hi everyone, my dad has had MBC since June of 2022. He has been on Ibrance, letrozole, lupron, and xjeva. His Mets were to bone and then he was NED for a year from June 2022 to June 2023. In July he took a PET scan and it showed a slight uptake of activity to his chest wall. Plan was to keep him on
hi everyone, my dad has had MBC since June of 2022. He has been on Ibrance, letrozole, lupron, and xjeva. His Mets were to bone and then he was NED for a year from June 2022 to June 2023. In July he took a PET scan and it showed a slight uptake of activity to his chest wall. Plan was to keep him on
Jenniferp2122
in
SHARE Metastatic Breast Cancer
8 months ago
Capecitabine / Xeloda
Stage 4 Breast Cancer I just started have had three rounds I feel so much better I was in horrible pain with this one. My second time around in two years . I hope they keep experimenting and have some positive news for triple negative. I had some fatigue but nothing I couldn’t handle sleep has returned
Stage 4 Breast Cancer I just started have had three rounds I feel so much better I was in horrible pain with this one. My second time around in two years . I hope they keep experimenting and have some positive news for triple negative. I had some fatigue but nothing I couldn’t handle sleep has returned
Lightwinds
in
SHARE Metastatic Breast Cancer
8 months ago
Kazza
Hi all. Hope your all doing well. In Jan 2023 I had bilateral tumours each being 7mm. Was tested for braca2 came up positive (history of bc in family rife!). Lymph nodes clear. Opted for double mastectomy and oomphaloompha surgery (removal of ovaries and tubes). Its not really called that but close
Hi all. Hope your all doing well. In Jan 2023 I had bilateral tumours each being 7mm. Was tested for braca2 came up positive (history of bc in family rife!). Lymph nodes clear. Opted for double mastectomy and oomphaloompha surgery (removal of ovaries and tubes). Its not really called that but close
Karenborg
in
SHARE Metastatic Breast Cancer
10 months ago
Stopping Levothyroxine temporarily
I found out I had an underactive thyroid when had a routine blood test after breast cancer diagnosis. I had no symptoms, but was put on Levothyroxine (50) by GP at the time. I was also on Letrozole to stop estrogen. I was on Letrozole for 7 years, but since stopping it, I've had tummy problems...bloating
I found out I had an underactive thyroid when had a routine blood test after breast cancer diagnosis. I had no symptoms, but was put on Levothyroxine (50) by GP at the time. I was also on Letrozole to stop estrogen. I was on Letrozole for 7 years, but since stopping it, I've had tummy problems...bloating
LilacGran
in
Thyroid UK
10 months ago
stage 4
hi, Im new to this forum although I have been reading your posts over recent days, which have been very encouraging, and given me some hope. I wasn’t expecting to read such positivity and positive outcomes. There is a but however . My diagnosis couldn’t be any worse. I’m stage 4 advanced, high grade
hi, Im new to this forum although I have been reading your posts over recent days, which have been very encouraging, and given me some hope. I wasn’t expecting to read such positivity and positive outcomes. There is a but however . My diagnosis couldn’t be any worse. I’m stage 4 advanced, high grade
Beaver54
in
My Ovacome
10 months ago
New primary plus first progression
Hi everyone, I was diagnosed de novo ductal carcinoma ER/PR+ and HER2 - June 2021 with bone Mets spine and hip. I had a mastectomy and axillary clearance left side and then palbociclib, letrezole, monthly goserelin and denusamab. I have just found out I have my first progression spine and possible
Hi everyone, I was diagnosed de novo ductal carcinoma ER/PR+ and HER2 - June 2021 with bone Mets spine and hip. I had a mastectomy and axillary clearance left side and then palbociclib, letrezole, monthly goserelin and denusamab. I have just found out I have my first progression spine and possible
RachH20
in
SHARE Metastatic Breast Cancer
8 months ago
OC scans and breast screening
My CT scans will include chest from now on due to lymph node involvement of OC. Just wondering if that negates the need for breast screening mammogram. Would a chest CT pick up breast changes anyway? I am under age 50 with strong family history of breast and ovarian cancers. Not currently in regular
My CT scans will include chest from now on due to lymph node involvement of OC. Just wondering if that negates the need for breast screening mammogram. Would a chest CT pick up breast changes anyway? I am under age 50 with strong family history of breast and ovarian cancers. Not currently in regular
koffeekat99
in
My Ovacome
10 months ago
Long Story then Question: Ibrance or Pikray?
The liver biopsy of my
metastatic
breast
cancer
indicates Pikray as the one. I know that Pikray is bad for the liver but it seems to go with Fulvestrant which is what I am on and what has finally become ineffective. Ibrance seems to go with Letrozol.
The liver biopsy of my
metastatic
breast
cancer
indicates Pikray as the one. I know that Pikray is bad for the liver but it seems to go with Fulvestrant which is what I am on and what has finally become ineffective. Ibrance seems to go with Letrozol.
jersey-jazz
in
SHARE Metastatic Breast Cancer
1 year ago
Low haematocrit/ibrance/breast cancer metastatic
dear frds, I hope you are well Mom has a
breast
cancer
metastatic
(bone and stomach) atypic case. We were doing blood transfusion from April till June and then everything went well, due to Hemax injection. Now Her onco informed me that she needs one unit of blood. Does it happen to anyone of u?
dear frds, I hope you are well Mom has a
breast
cancer
metastatic
(bone and stomach) atypic case. We were doing blood transfusion from April till June and then everything went well, due to Hemax injection. Now Her onco informed me that she needs one unit of blood. Does it happen to anyone of u?
Ramona-1973
in
SHARE Metastatic Breast Cancer
1 year ago
Tamoxifen
I have been on Tamoxifen for 5yrs I have been.having trouble with incontinence and a burning constant sensation in my vagina I.have had numerous urine tests always come back negative This went on for months with constant visits to the doctors with no.satisfaction In the end I paid to see a neurologist
I have been on Tamoxifen for 5yrs I have been.having trouble with incontinence and a burning constant sensation in my vagina I.have had numerous urine tests always come back negative This went on for months with constant visits to the doctors with no.satisfaction In the end I paid to see a neurologist
galgo
in
My Breast Cancer Community
10 months ago
Is this normal?
Hi there🥰. Its been awhile since I’ve written but I’m always thankful for the information in this group. After 5 years on exemestane, I received the following report after my last scans. Progression…and I’m scared. Today my MO put me on tamoxifen with scans scheduled in 2-3 months. Is this a normal
Hi there🥰. Its been awhile since I’ve written but I’m always thankful for the information in this group. After 5 years on exemestane, I received the following report after my last scans. Progression…and I’m scared. Today my MO put me on tamoxifen with scans scheduled in 2-3 months. Is this a normal
Staceyness
in
SHARE Metastatic Breast Cancer
10 months ago
4yrs post first diagnosis
I was diagnosed and treated for breast cancer in the fall of 2019- had a lumpectomy and have been on Tamoxifen since then. I am scheduled for my yearly diagnostic mammogram on Thursday but today I noticed a peculiar change in my other breast- redness in one distinct area- the same place as my last
I was diagnosed and treated for breast cancer in the fall of 2019- had a lumpectomy and have been on Tamoxifen since then. I am scheduled for my yearly diagnostic mammogram on Thursday but today I noticed a peculiar change in my other breast- redness in one distinct area- the same place as my last
Traveller66
in
SHARE Breast Cancer Support
10 months ago
has anyone had a lumpectomy with MBC?
Hi all- I love this site and the camaraderie that you all give me. Always feel less alone when I read your posts. And have learned so much! I was diagnosed in May 2020 , HER2 positive stage 4 found Mets in lymph nodes and trachea area. Treatment has worked great, Ibramce and exemastane (way better
Hi all- I love this site and the camaraderie that you all give me. Always feel less alone when I read your posts. And have learned so much! I was diagnosed in May 2020 , HER2 positive stage 4 found Mets in lymph nodes and trachea area. Treatment has worked great, Ibramce and exemastane (way better
Georgelila
in
SHARE Metastatic Breast Cancer
8 months ago
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