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2019: Will Medicare Cover Parkinson's ?
Here's where we stand as noted by Kirk Hall in his blog www.shakypawsgrampa.com. (Of course who knows what will happen over the next two years with the idiot in the Whitehouse backed by gutless members of the POT). Parkinson’s disease (PD) is a challenging condition as it is, but the fact that it is
Here's where we stand as noted by Kirk Hall in his blog www.shakypawsgrampa.com. (Of course who knows what will happen over the next two years with the idiot in the Whitehouse backed by gutless members of the POT). Parkinson’s disease (PD) is a challenging condition as it is, but the fact that it is
FMundo
in
Cure Parkinson's
5 years ago
DBS hybrid: Medtronic leads with Boston Scientific stimulator
I have had effective control of my motor complaints of dystonia and dyskinesia for 4 years with the standard Medtronic unit implanted in my globus pallidus internus. The battery life has been limited due to the high output of 2.7 &4.8. I managed to get 30 months out of the initial battery but at current
I have had effective control of my motor complaints of dystonia and dyskinesia for 4 years with the standard Medtronic unit implanted in my globus pallidus internus. The battery life has been limited due to the high output of 2.7 &4.8. I managed to get 30 months out of the initial battery but at current
etterus
in
Cure Parkinson's
5 years ago
Parkinsons and dental work
Has anyone had extensive dental work after having DBS. I am needing implants and am concerned about possible heeating of DBS lead, etc.
Has anyone had extensive dental work after having DBS. I am needing implants and am concerned about possible heeating of DBS lead, etc.
Cbauer
in
Cure Parkinson's
5 years ago
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140 mg imbruvica ,Lyme disease
Hello and merry Christmas to you all ! My wife is scheduled to start ibrutinib in January and really worried about side effects. Her health is pretty good. She’s 13q mutated 70 wbc and hemoglobin and paletets within normal range . What triggered treatment is the fact that lymph nodes in her neck are
Hello and merry Christmas to you all ! My wife is scheduled to start ibrutinib in January and really worried about side effects. Her health is pretty good. She’s 13q mutated 70 wbc and hemoglobin and paletets within normal range . What triggered treatment is the fact that lymph nodes in her neck are
Sergi
in
CLL Support
5 years ago
Are you still looking for help?
If you are wondering why you still can't get a diagnosis this may help you. Toxic Mold and Lyme Disease often go hand in hand and cause symptoms in all sorts of ways including those associated with thyroid problems. This may give you a few clues: https://toxicmoldproject.com/?idev_id=22&idev_username
If you are wondering why you still can't get a diagnosis this may help you. Toxic Mold and Lyme Disease often go hand in hand and cause symptoms in all sorts of ways including those associated with thyroid problems. This may give you a few clues: https://toxicmoldproject.com/?idev_id=22&idev_username
janeb15
in
Thyroid UK
5 years ago
Anyone with symptoms like mine?
It started with high fever, a recurring headache and red welts across my chest. I hate being ill - and hospitals - so begrudgingly went to the local hospital with my wife only to be told I had shingles and should be put in a ward immediately. However, that hospital did not a full-time skin doctor
It started with high fever, a recurring headache and red welts across my chest. I hate being ill - and hospitals - so begrudgingly went to the local hospital with my wife only to be told I had shingles and should be put in a ward immediately. However, that hospital did not a full-time skin doctor
Chopper201
in
Meningitis Now
5 years ago
Shingles vaccine
My GP is recommending I get the shingles vaccine. I thought I had read that PMR (which I have) can be a side effect of the vaccine. I am asking what you think.
My GP is recommending I get the shingles vaccine. I thought I had read that PMR (which I have) can be a side effect of the vaccine. I am asking what you think.
barbthy
in
PMRGCAuk
5 years ago
continuing dizziness after cranioplasty
hello everyone, first off thank you so much for this forum it has helped me and my family enormously My mom suffered TBI and craniectomy was performed (June 2018), and she just got a titanium mesh skull placed in for cranioplasty. (a month ago) she feels ok but she feels dizzy and the balance is still
hello everyone, first off thank you so much for this forum it has helped me and my family enormously My mom suffered TBI and craniectomy was performed (June 2018), and she just got a titanium mesh skull placed in for cranioplasty. (a month ago) she feels ok but she feels dizzy and the balance is still
LindsayJo
in
Headway
6 years ago
Gene Therapy: A possible future rival to DBS (and even stem-cell therapy)?
An interesting SoPD blog post from Simon, about an unexpected result from a gene-therapy trial. https://scienceofparkinsons.com/2018/12/08/gad/
An interesting SoPD blog post from Simon, about an unexpected result from a gene-therapy trial. https://scienceofparkinsons.com/2018/12/08/gad/
jeffreyn
in
Cure Parkinson's
6 years ago
Not coping well & it's just not like me......
I'm a fighter having come through breast cancer and a
brain
haemorrhage
without losing my humour, but I feel I'm alone with these horrible physical sensations and with no end in sight.
I'm a fighter having come through breast cancer and a
brain
haemorrhage
without losing my humour, but I feel I'm alone with these horrible physical sensations and with no end in sight.
cat3
in
Atrial Fibrillation Support
6 years ago
AVMs - scuba diving since brain haemorrhage?
Has anyone tried scuba diving since their
brain
hemorrhage? I had a
brain
haemorrhage
caused by a burst arterior venous malformation(AVM). I underwent 2 lots of Gamma Knife surgery and 6 years later got the all clear that my Brain was an AVM free zone!
Has anyone tried scuba diving since their
brain
hemorrhage? I had a
brain
haemorrhage
caused by a burst arterior venous malformation(AVM). I underwent 2 lots of Gamma Knife surgery and 6 years later got the all clear that my Brain was an AVM free zone!
Smilerdi
in
Headway
6 years ago
ANYONE HEARD ABOUT THE NEW 2 HR. DBS?
ANYONE TRIED THE NEW 2 HR. ASLEEP DBS BY DR. DAVID VANSICKLE?HE HAS BEEN PERFORMING THIS SURGERY FOR THE LAST TWO YEARS IN LITTLETON, COLORADO. IT SOUNDS BETTER THAN THE AWAKE DBS AS FAR AS ACCURACY AND TYPICAL 4-6 HR SURGERY TIME. HE USES THE ABBOTT SYSTEM THAT HAS 8 ELECTRODES INSTEAD OF 4. I LIVE
ANYONE TRIED THE NEW 2 HR. ASLEEP DBS BY DR. DAVID VANSICKLE?HE HAS BEEN PERFORMING THIS SURGERY FOR THE LAST TWO YEARS IN LITTLETON, COLORADO. IT SOUNDS BETTER THAN THE AWAKE DBS AS FAR AS ACCURACY AND TYPICAL 4-6 HR SURGERY TIME. HE USES THE ABBOTT SYSTEM THAT HAS 8 ELECTRODES INSTEAD OF 4. I LIVE
ktbate
in
Cure Parkinson's
6 years ago
Head pain in back of head after Gamma
I had gamma knife on Oct 22 and I have head pain in back of my head in the middle. Dr says too soon to be tumor...us this normal. I also have alot of balance issues and noies in one ear. I had a skull base tumor in cerebellum. It feels like pressure if some kind ..pain is different than before gamma
I had gamma knife on Oct 22 and I have head pain in back of my head in the middle. Dr says too soon to be tumor...us this normal. I also have alot of balance issues and noies in one ear. I had a skull base tumor in cerebellum. It feels like pressure if some kind ..pain is different than before gamma
Kit-kid
in
Headway
6 years ago
New here.
Hi all. Found this through a suggestion on DMRF. I am 33 year old female with cervical dystonia that started 11 years ago. Recently started developing Blepharospasm and hemifacial dystonia (also have spasms in both cheeks when smiling). Mother has severe blepharospasm and slight cervical dystonia. She
Hi all. Found this through a suggestion on DMRF. I am 33 year old female with cervical dystonia that started 11 years ago. Recently started developing Blepharospasm and hemifacial dystonia (also have spasms in both cheeks when smiling). Mother has severe blepharospasm and slight cervical dystonia. She
talynn
in
Dystonia Society
6 years ago
Thiamine dosage
This is my first post! Hello, I’m Gail. 58 years old, diagnosed at 50. Was doing pretty well up until about six months ago. Daily I take 9MG Ropinirole, 6 x 100/25 levodopa/carbidopa and 1 Rasagiline. My problem is dyskinesia, sometimes pretty bad.I am seriously considering DBS but would like to try
This is my first post! Hello, I’m Gail. 58 years old, diagnosed at 50. Was doing pretty well up until about six months ago. Daily I take 9MG Ropinirole, 6 x 100/25 levodopa/carbidopa and 1 Rasagiline. My problem is dyskinesia, sometimes pretty bad.I am seriously considering DBS but would like to try
Gailsnail
in
Cure Parkinson's
6 years ago
Flying after suffering a brain abscess
I suffered a left temporal brain abscess about 18 months ago. I've had set backs with my recovering but now feel fit enough to go on holiday. We've booked and will be going in a few days but it's a 5 hour flight and I'm worried about how it might effect me. Has anyone got any advise for me?
I suffered a left temporal brain abscess about 18 months ago. I've had set backs with my recovering but now feel fit enough to go on holiday. We've booked and will be going in a few days but it's a 5 hour flight and I'm worried about how it might effect me. Has anyone got any advise for me?
LittleDiddle
in
Headway
6 years ago
cymbalta and rivotril
I had insomnia for 2 days and then doc gave me xanor, then 1 week after insomnia again, went back to doc and prescribed me cymbalta and rivotril. it’s my 2nd night taking it cymbalta for lunch and rivotril at bedtime but I still gets 1-2 hr sleep and then stayed up all night. Anyone who had this before
I had insomnia for 2 days and then doc gave me xanor, then 1 week after insomnia again, went back to doc and prescribed me cymbalta and rivotril. it’s my 2nd night taking it cymbalta for lunch and rivotril at bedtime but I still gets 1-2 hr sleep and then stayed up all night. Anyone who had this before
Maryankyle
in
Anxiety Support
6 years ago
I am wondering if anyone had their DBS done in gainsville Florida by dr Foote and dr okum?
I am sceduled to have it done there in January. I’m starting to get very nervous as I will be awake. Just thought it would be good to hear from others who went through it. Thanks
I am sceduled to have it done there in January. I’m starting to get very nervous as I will be awake. Just thought it would be good to hear from others who went through it. Thanks
Lheinlel
in
Cure Parkinson's
6 years ago
DBS and head-aces
I had DBS surgery 5 month ago and since than I suffer from bad head-aces one or twice a week. Surgery went well and with connection with Parkinson symptoms it is great. but the haedaces are hard to endure. Any one has it too?
I had DBS surgery 5 month ago and since than I suffer from bad head-aces one or twice a week. Surgery went well and with connection with Parkinson symptoms it is great. but the haedaces are hard to endure. Any one has it too?
imani100
in
Cure Parkinson's
6 years ago
Higher the ANA more likely it’s Lupus?
I have gone from being treated for Lyme disease to being referred to a Rheumatologist because my ANA is 1:1280. When i’ve read up about Lupus it’s such a strong possibility. With a level this high is it more likely to be Lupus? Anyone else with ANA at this level i’d be interested in your stories. Thank
I have gone from being treated for Lyme disease to being referred to a Rheumatologist because my ANA is 1:1280. When i’ve read up about Lupus it’s such a strong possibility. With a level this high is it more likely to be Lupus? Anyone else with ANA at this level i’d be interested in your stories. Thank
Hursty77
in
LUPUS UK
6 years ago
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