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How does one find the best DBS programmers?
Programmers hold the key to successful DBS, yet so little known about who they are and where to find them. Does anyone have advice about a directory or "Angie's List" that includes DBS programmers? How about when one is traveling-- where are they?
Programmers hold the key to successful DBS, yet so little known about who they are and where to find them. Does anyone have advice about a directory or "Angie's List" that includes DBS programmers? How about when one is traveling-- where are they?
Jash
in
Cure Parkinson's
12 years ago
waiting......
Chilling while waiting for my drilling is killing my patience and fueling my anxiety:PP (yeah I know, punning at this time too...proves I am a nutso:PP))) (Still waiting for my appt with the DBS surgeon)
Chilling while waiting for my drilling is killing my patience and fueling my anxiety:PP (yeah I know, punning at this time too...proves I am a nutso:PP))) (Still waiting for my appt with the DBS surgeon)
SuKas
in
Cure Parkinson's
12 years ago
Viral Meningitis, no it wasn't it was meningioencephilitis apparently - anyone else been told this by Neurologist?
Anyone else been lead to believe for almost a year that they'd suffered from severe Viral Meningitis, only to be told by Neurologist that is was infact Encephilitis or to be more precise Meningoencephilitis (Meningitis and encephilitis together)?
Anyone else been lead to believe for almost a year that they'd suffered from severe Viral Meningitis, only to be told by Neurologist that is was infact Encephilitis or to be more precise Meningoencephilitis (Meningitis and encephilitis together)?
SummerJ
in
Meningitis Now
12 years ago
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How long did it take to start feeling like yourself again after having viral meningitis?
Ranny
in
Meningitis Now
12 years ago
Post DBS - physical symptoms of Anxiety. Anyone? Anyone?
DBS done in Feb 2012 - had numbness in toes soon after it was turned on. Have had the DBS steadily for 3 months now. Prescribing meds for anxiety? I never had these physical manifestations of anxiety before. Could lead/contact be the cause? Docs say no. I certainly don't feel depressed - I'm on disabiity
DBS done in Feb 2012 - had numbness in toes soon after it was turned on. Have had the DBS steadily for 3 months now. Prescribing meds for anxiety? I never had these physical manifestations of anxiety before. Could lead/contact be the cause? Docs say no. I certainly don't feel depressed - I'm on disabiity
cepd
in
Cure Parkinson's
12 years ago
For those wondering what happens during DBS surgery, a great video to educate you.
http://www.youtube.com/watch?v=Flov7Q6pQNk&feature=youtube_gdata_player
http://www.youtube.com/watch?v=Flov7Q6pQNk&feature=youtube_gdata_player
WayneP
in
Cure Parkinson's
12 years ago
Headaches after meningitis? New guidelines could help.
Headaches after meningitis? New guidelines could help. Find out more in our special blog and let us know what you think. http://www.meningitis-trust.org/about-us/news/support-for-nurses/headaches-after-meningitis-new-guidelines-could-help/
Headaches after meningitis? New guidelines could help. Find out more in our special blog and let us know what you think. http://www.meningitis-trust.org/about-us/news/support-for-nurses/headaches-after-meningitis-new-guidelines-could-help/
ThomasMN
in
Meningitis Now
12 years ago
I qualify for the DBS surgery (which scares me to death) & wonder if the Neupro patch could delay the surgery. Am on 4mg. so far.
wynn7
in
Cure Parkinson's
12 years ago
Egg free vaccine update
I have found out that an egg free vaccine (albumen ) is available at no cost to doctors, If any one else has this problem.. It is called OPTAFLU and is produced by Novartis. I have to speak to the practice nurse tomorrow,, also the pneumonia jab is egg free. Twenty years ago I had a very
I have found out that an egg free vaccine (albumen ) is available at no cost to doctors, If any one else has this problem.. It is called OPTAFLU and is produced by Novartis. I have to speak to the practice nurse tomorrow,, also the pneumonia jab is egg free. Twenty years ago I had a very
Hidden
in
Lung Conditions Community Forum
12 years ago
So I had my DBS evaluations
September 10th bright and early I left for the clinic, which is about an hour and a half away..My appt was at 9.30 and I had to miss my 5 am and 8 am dosage...the last dosage I had was the previous nite at 7.15 pm..so I was way off.... Then I was checked during off, then had one dose, waited for about
September 10th bright and early I left for the clinic, which is about an hour and a half away..My appt was at 9.30 and I had to miss my 5 am and 8 am dosage...the last dosage I had was the previous nite at 7.15 pm..so I was way off.... Then I was checked during off, then had one dose, waited for about
SuKas
in
Cure Parkinson's
12 years ago
Topotecan
I started 3rd line chemo last week - Topotecan this time after carboplatin/taxol for lst and 2nd line. I had my second chemo yesterday and so far practically no side effects at all. A little nausea which is soon sorted out with the anti-sickness pills. The usual sleeplessness with the steroids and
I started 3rd line chemo last week - Topotecan this time after carboplatin/taxol for lst and 2nd line. I had my second chemo yesterday and so far practically no side effects at all. A little nausea which is soon sorted out with the anti-sickness pills. The usual sleeplessness with the steroids and
cathysal
in
My Ovacome
12 years ago
Interesting Rheumy Appointment
Hi there, I had my second Rheumy appointment today. It would be an exaggeration to say I prepared for it like a job interview - I stopped short of a powerpoint presentation - but it felt a little bit like that: much at stake and they don't come around very often. I did go over and over the key things
Hi there, I had my second Rheumy appointment today. It would be an exaggeration to say I prepared for it like a job interview - I stopped short of a powerpoint presentation - but it felt a little bit like that: much at stake and they don't come around very often. I did go over and over the key things
Hidden
in
NRAS
12 years ago
who has had problems with not being able to go to the bathroom both ways? Did the drs know what was wrong or did it become a big mystery?
My poor husband had this happen to him. It was after he was put under general anesthisia for the MRI that they need for the DBS. He was completely put under with the intibation tube in his throat so he'd be perfectly still. When he woke they had him pee and eat and then let him go home. Once he got home
My poor husband had this happen to him. It was after he was put under general anesthisia for the MRI that they need for the DBS. He was completely put under with the intibation tube in his throat so he'd be perfectly still. When he woke they had him pee and eat and then let him go home. Once he got home
lmbanni
in
Cure Parkinson's
12 years ago
Hi EXPORT again in the uk .I keep getting fob off about my DBS not working . Just seen my GP PHONED WALTON CENTER WHAT NEXT ?
GOOD OLD N-H-S any one know what my next step should be . As i have run out number . NO ONE IS AT HOME THE LIGHT ARE ON BUT NOT LISTENING BLESS . YOURS EXPORT . PS PISS 'T OFF
GOOD OLD N-H-S any one know what my next step should be . As i have run out number . NO ONE IS AT HOME THE LIGHT ARE ON BUT NOT LISTENING BLESS . YOURS EXPORT . PS PISS 'T OFF
export
in
Cure Parkinson's
12 years ago
Information needed on theophylline / Phyllocontin.
Information needed on theophylline / Phyllocontin. Does it interact with other drugs.? It is often mentioned as "tell your Dr if you are taking ...." on drug information leaflets. Is it compatible with clarithromycin?
Information needed on theophylline / Phyllocontin. Does it interact with other drugs.? It is often mentioned as "tell your Dr if you are taking ...." on drug information leaflets. Is it compatible with clarithromycin?
BelleBea
in
Lung Conditions Community Forum
12 years ago
We have a question about DBS. Hi all! My husband is considering getting DBS. We are concerened with a situation that Export had yesterday.
First we didn't know some DBS didn't come without a control for the person it is in. We didn't know that the issue of the battery going dead was that complitated. We thought it would give advance notice somehow. 1.) How old is your DBS Export? We were told they are using a differant model now.
First we didn't know some DBS didn't come without a control for the person it is in. We didn't know that the issue of the battery going dead was that complitated. We thought it would give advance notice somehow. 1.) How old is your DBS Export? We were told they are using a differant model now.
lmbanni
in
Cure Parkinson's
12 years ago
DBS Evaluations......
on September 10th...where I will be evaluated for physcal, that is being ON n OFF meds and memory test...as for psych, as I am already under treatment for depression, i a=don't need that....will let u guys know how that went...still a couple of weeks away...
on September 10th...where I will be evaluated for physcal, that is being ON n OFF meds and memory test...as for psych, as I am already under treatment for depression, i a=don't need that....will let u guys know how that went...still a couple of weeks away...
SuKas
in
Cure Parkinson's
12 years ago
Has anyone had vision problems due to PD and then had a DBS operation and then found that has helped improve their vision?
Pete-1
in
Cure Parkinson's
12 years ago
DBS HOW CAN I TELL IF ITS NOT WORKING. ANY ONE WHO'S HAS HAD A DBS STOP'T WORKINGPLEASE TELL ME ABOUT IT .
EXPORT HERE CAN HARDLY MOVE BEEN LIKE THIS FOR 36 HOURS .AND I DON'T KNOW WHY . I AM VERY WEEK IT WOULD HAPPEN ON A BANK HOLIDAY I LIVE ON MY OWN AND WOULD LIKE SOME IDEAS OF WHAT IT COULD BE YOURS EXPORT.
EXPORT HERE CAN HARDLY MOVE BEEN LIKE THIS FOR 36 HOURS .AND I DON'T KNOW WHY . I AM VERY WEEK IT WOULD HAPPEN ON A BANK HOLIDAY I LIVE ON MY OWN AND WOULD LIKE SOME IDEAS OF WHAT IT COULD BE YOURS EXPORT.
export
in
Cure Parkinson's
12 years ago
Drinking Alcohol after Bacterial Meningitis
Hi there I had bacterial meningitis at the beginning of July this year. I am definately on the road to recover, but still have some side effects such as memory loss, confusion, headaches and pressure in my head and ears. On Friday I went to a friends wedding reception and only have 4 alcoholic
Hi there I had bacterial meningitis at the beginning of July this year. I am definately on the road to recover, but still have some side effects such as memory loss, confusion, headaches and pressure in my head and ears. On Friday I went to a friends wedding reception and only have 4 alcoholic
Vickybell
in
Meningitis Now
12 years ago
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