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Vagal Nerve Stimulation (tVNS) Research Summary
Some definitions for clarity. Neuromodulation, stimulating nerves (usually with electricity) to change (hopefully improve) or control their function. Deep Brain Stimulation (DBS) is a form of neuromodulation. Neuromodulation can be invasive, requiring surgery (like DBS) or noninvasive which provides
Some definitions for clarity. Neuromodulation, stimulating nerves (usually with electricity) to change (hopefully improve) or control their function. Deep Brain Stimulation (DBS) is a form of neuromodulation. Neuromodulation can be invasive, requiring surgery (like DBS) or noninvasive which provides
House2
in
Cure Parkinson's
1 year ago
A LOW BUDGET DIY VIBROTACTILE STIMULATOR FOR EXPERIMENTAL CRS
Modern techniques of Coordinated Reset Stimulation (CRS), which is usually administered with invasive deep brain stimulation, can have a miraculous effect on those suffering from Parkinson’s disease. However, the CRS technique can also apparently be administered via so-called vibrotactile CRS (vCRS)
Modern techniques of Coordinated Reset Stimulation (CRS), which is usually administered with invasive deep brain stimulation, can have a miraculous effect on those suffering from Parkinson’s disease. However, the CRS technique can also apparently be administered via so-called vibrotactile CRS (vCRS)
Farooqji
in
Cure Parkinson's
1 year ago
Ruined Life
Hi I hope you are all fine I'm sorry my English is not good but I will tryI was diagnosed with OCD 6 years ago since then my life has been completely changed my family made it worse when they had tried to help me and it ended up leaving the house and my mother was my only friend now she is the most person
Hi I hope you are all fine I'm sorry my English is not good but I will tryI was diagnosed with OCD 6 years ago since then my life has been completely changed my family made it worse when they had tried to help me and it ended up leaving the house and my mother was my only friend now she is the most person
Hidden
in
My OCD Community
1 year ago
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pmr and now shingles
hi- I’m on day 6 of aciclovir for shingles. I cannot believe how bad I feel. The electric shock like pains up the side of my head 😱. And the general aches. Any advice? I’m down to 4 mg pred and was doing ok after the initial fatigue when I dropped down . Should I stay in bed? I really can’t believe
hi- I’m on day 6 of aciclovir for shingles. I cannot believe how bad I feel. The electric shock like pains up the side of my head 😱. And the general aches. Any advice? I’m down to 4 mg pred and was doing ok after the initial fatigue when I dropped down . Should I stay in bed? I really can’t believe
Fiddlemum
in
PMRGCAuk
1 year ago
chatGPT's opinion on PD - Simple and wise
Unfortunately, there is no cure for Parkinson's disease, but there are several treatments available that can help manage the symptoms and improve quality of life. Here are some of the most common approaches to treating Parkinson's disease: Medications: There are several types of medications that
Unfortunately, there is no cure for Parkinson's disease, but there are several treatments available that can help manage the symptoms and improve quality of life. Here are some of the most common approaches to treating Parkinson's disease: Medications: There are several types of medications that
Xenos
in
Cure Parkinson's
1 year ago
Shingles after GCA
I was dx with GCA in March/19, tapered off pred in Dec/20. July21 dx with vitiligo, yer another autoimmune. Dec/22 dx with shingles, which affected my left eye. Now I am pretty much over the shingles, but having terrible headaches esp overnight. Blood pressure which has always been low (100/60
I was dx with GCA in March/19, tapered off pred in Dec/20. July21 dx with vitiligo, yer another autoimmune. Dec/22 dx with shingles, which affected my left eye. Now I am pretty much over the shingles, but having terrible headaches esp overnight. Blood pressure which has always been low (100/60
pugrescue
in
PMRGCAuk
1 year ago
Off meds because of Shingles, but maybe answers to other concerns…..
So about 18 months ago I started feeling nauseous occasionally. Moved taking my mtx tablets to the evening, and upped folic acid from 1 a week to 3, then 5. Not making much difference so moved to mtx injections. Still feeling nauseous but RA team reluctant to pin on Mtx as nauseous is generally after
So about 18 months ago I started feeling nauseous occasionally. Moved taking my mtx tablets to the evening, and upped folic acid from 1 a week to 3, then 5. Not making much difference so moved to mtx injections. Still feeling nauseous but RA team reluctant to pin on Mtx as nauseous is generally after
Hollyhock123
in
NRAS
1 year ago
Life after a brain haemorrhage
I'm just wondering for myself really could his outbursts, frustration and lack of get up and go be a long lasting side affect of the
brain
haemorrhage
he had? It was like over the last two years since he had it he was a changed man.
I'm just wondering for myself really could his outbursts, frustration and lack of get up and go be a long lasting side affect of the
brain
haemorrhage
he had? It was like over the last two years since he had it he was a changed man.
lollyx789
in
Headway
2 years ago
Health update
Hello everyone, not sure if this helps... I went through genetic testing and they found my KMT2B gene activated. This is odd due to my age and how aggresive it is. My Dr has never seen this happen before. In actuality, there is nothing in written human history (as far as I know) that shows late stage
Hello everyone, not sure if this helps... I went through genetic testing and they found my KMT2B gene activated. This is odd due to my age and how aggresive it is. My Dr has never seen this happen before. In actuality, there is nothing in written human history (as far as I know) that shows late stage
Hidden
in
Functional Neurological Disorder - FND Hope
1 year ago
PREPARING FOR DBS SURGERY. VERY WORRIED ABOUT THE INEVITABLE SIDE EFFECTS.
Hi every Parkies on this forum. If you are a PIGD non tremor dominant, young onset PD person, and have done Deep brain stimulation, please respond to my questions, How was your experience with the Neuropsychologist? What was the computer test like? Please share the negatives, if any post surgery.
Hi every Parkies on this forum. If you are a PIGD non tremor dominant, young onset PD person, and have done Deep brain stimulation, please respond to my questions, How was your experience with the Neuropsychologist? What was the computer test like? Please share the negatives, if any post surgery.
OREOLU
in
Cure Parkinson's
1 year ago
I despise to the stigma of mental illness
I have been doing a lot of promotion lately to help pulverize the stigma of mental illness. I strongly believe the stigma plays a very direct and prominent role in people dying. Specifcally for MDD, as that is my main diagnosis. I have uncovered a lot of insights about the stigma along my journey.
I have been doing a lot of promotion lately to help pulverize the stigma of mental illness. I strongly believe the stigma plays a very direct and prominent role in people dying. Specifcally for MDD, as that is my main diagnosis. I have uncovered a lot of insights about the stigma along my journey.
jnelson66
in
Major Depressive Disorder (MDD) Support
1 year ago
Shingles vaccine
Shingles vaccination. I’ve been offered this vaccination but as this is a live vaccine, is it a wise move ?
Shingles vaccination. I’ve been offered this vaccination but as this is a live vaccine, is it a wise move ?
61Annie
in
LUPUS UK
1 year ago
Treatment Resistant Major Depressive Disorder: I am proof that there is hope.
I have been horrifically plagued by MDD for over a decade. In my journey I have tried literally every therapy and intervention possible including multiple medications, every psychotherapy possible, residential treatment programs, partial hospitalization plans, intensive outreach programs, TMS, ECT, ketamine
I have been horrifically plagued by MDD for over a decade. In my journey I have tried literally every therapy and intervention possible including multiple medications, every psychotherapy possible, residential treatment programs, partial hospitalization plans, intensive outreach programs, TMS, ECT, ketamine
jnelson66
in
Major Depressive Disorder (MDD) Support
1 year ago
blood sugar levels
I read that levodopa carbadopa increases your blood level of glucose does anyone take any non-dopamine therapy that works when I take levadopa I can’t stand up. And all of my te tendons, get weak and burn. I also have Lyme disease I’ll read that to her and dopamine enhance Lyme disease.
I read that levodopa carbadopa increases your blood level of glucose does anyone take any non-dopamine therapy that works when I take levadopa I can’t stand up. And all of my te tendons, get weak and burn. I also have Lyme disease I’ll read that to her and dopamine enhance Lyme disease.
Marcia123
in
Cure Parkinson's
1 year ago
Emilia Clark..Queen on Game of Thrones and her Brain Haemorrhages and recovery
SAME YOU…. about recovery from
brain
haemorrhage
.
SAME YOU…. about recovery from
brain
haemorrhage
.
Charente
in
Headway
2 years ago
Update
They wanted to discuss it with him over the phone but I pointed out he has major
brain
injuries as a result of
brain
haemorrhage
and strokes and he won't cope on the phone. We have an appointment for Friday 5th August late morning. Referral to Haematologist being done today.
They wanted to discuss it with him over the phone but I pointed out he has major
brain
injuries as a result of
brain
haemorrhage
and strokes and he won't cope on the phone. We have an appointment for Friday 5th August late morning. Referral to Haematologist being done today.
CelticCrow68
in
MPN Voice
2 years ago
Advice on switching from lamotragine due to side affects
I had a
brain
haemorrhage
in August 2020. I've made a good recovery and back in full time work. I was put on kepra for 12 months after the operation and I couldn't wait to get off it as it caused severe gastric problems. Then Dec 2021 I had a seizure, totally out of the blue.
I had a
brain
haemorrhage
in August 2020. I've made a good recovery and back in full time work. I was put on kepra for 12 months after the operation and I couldn't wait to get off it as it caused severe gastric problems. Then Dec 2021 I had a seizure, totally out of the blue.
Owl32
in
Epilepsy Action
2 years ago
Information Packs
Our Information Pack is full of useful knowledge, from practical advice, to tips on where to find the best support. It includes information about tumour types and treatments, what to ask your medical team and important things to consider. While packs may be particularly useful for those who have recently
Our Information Pack is full of useful knowledge, from practical advice, to tips on where to find the best support. It includes information about tumour types and treatments, what to ask your medical team and important things to consider. While packs may be particularly useful for those who have recently
Zhaleh_TBTC
Administrator
in
Acoustic Neuroma Support
2 years ago
PLEASE REPLY IF YOU ARE A NON TREMOR DOMINANT PARKISON'S PATIENT WHO HAD DEEP BRAIN STIMULATION DONE.
MY QUESTIONS ARE : DID YOU HAVE BALANCE AND GAIT PROBLEMS BEFORE HAVING DBS SURGERY? iF YES,DID DBS HELP WITH IMPROVING YOUR GAIIT AND BALANCE? 2)WHAT ARE THE BENEFITS THAT YOU GAIN FROM DBS? 3) WHEN WAS YOU DBS DONE? 4) WILL YOU DO IT AGAI N?
MY QUESTIONS ARE : DID YOU HAVE BALANCE AND GAIT PROBLEMS BEFORE HAVING DBS SURGERY? iF YES,DID DBS HELP WITH IMPROVING YOUR GAIIT AND BALANCE? 2)WHAT ARE THE BENEFITS THAT YOU GAIN FROM DBS? 3) WHEN WAS YOU DBS DONE? 4) WILL YOU DO IT AGAI N?
OREOLU
in
Cure Parkinson's
1 year ago
Non aneurism Subarachnoid brain haemorrhage at 42, this was a complete shock as I keep good health.
It was a non aneurism
brain
haemorrhage
I had. Anyone please share your recovery.
It was a non aneurism
brain
haemorrhage
I had. Anyone please share your recovery.
Vonny1979
in
Headway
2 years ago
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