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DBS does it help to stop progression
I'm considering DBS I'd like to know if it stops progression of PD does it help in all areas of PD and where can I find the success rate of this surgery Thanks
I'm considering DBS I'd like to know if it stops progression of PD does it help in all areas of PD and where can I find the success rate of this surgery Thanks
Yhae
in
Cure Parkinson's
5 years ago
Has anyone tried Nicotine to reduce Dyskinesia?
I am wondering if anyone has tried Nicotine to reduce severe episodes of dyskinesia brought on by levadopa. I watched some amazing videos by a girl named Jasmine Sturr. She has has early onset pediatric PD. She ended up doing DBS and then inventing her own levadopa pump with her feeding tube. She went
I am wondering if anyone has tried Nicotine to reduce severe episodes of dyskinesia brought on by levadopa. I watched some amazing videos by a girl named Jasmine Sturr. She has has early onset pediatric PD. She ended up doing DBS and then inventing her own levadopa pump with her feeding tube. She went
Leylaleyla
in
Cure Parkinson's
5 years ago
Seizures
Hi, had anyone else experienced seizures, I had 5 in one night,, and was admitted to hospital for 5 day’s. Home now but still having all the balance and memory issues, also so tired all the time. MRI showed 22mm vestibular tumour at the back, at the base of my skull .,,,, just so horrible. 2 more
Hi, had anyone else experienced seizures, I had 5 in one night,, and was admitted to hospital for 5 day’s. Home now but still having all the balance and memory issues, also so tired all the time. MRI showed 22mm vestibular tumour at the back, at the base of my skull .,,,, just so horrible. 2 more
Mrspepperpot1
in
Acoustic Neuroma Support
5 years ago
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Grapefruit
I hate this iPhone X it is the worst go for staying on sites I’m wth on Th the leaders wrote oa book forever ago but was rvomended for me to read Zhttps://www.amazon.co.uk/Parkinsons-Disease-Reducing-Symptoms-Nutrition/dp/0952605694 I’ve not read it because I leant mine to someone in my group in Horsham
I hate this iPhone X it is the worst go for staying on sites I’m wth on Th the leaders wrote oa book forever ago but was rvomended for me to read Zhttps://www.amazon.co.uk/Parkinsons-Disease-Reducing-Symptoms-Nutrition/dp/0952605694 I’ve not read it because I leant mine to someone in my group in Horsham
Lucyitswd
in
Cure Parkinson's
5 years ago
New App for Parkinson’s DBS from Medtronic/Samsung
https://venturebeat.com/2019/10/30/samsung-and-medtronic-use-app-for-parkinsons-disease-patient-therapy/
https://venturebeat.com/2019/10/30/samsung-and-medtronic-use-app-for-parkinsons-disease-patient-therapy/
Hidden
in
Cure Parkinson's
5 years ago
What are DBS machines available in market..., How the recharge is doing for battery.
kindly help on this.
kindly help on this.
Vishwa228
in
Cure Parkinson's
5 years ago
Need answers...Low body temperature
Hi everyone I have what my doctor considers borderline hypothyroidism. Lrvel was about 4.0. I was put on just 25 mg of thyroxine. lately my body temperature has been running 96.4 96.6 and I noticed when my temperature runs this low that I feel bad sometimes breaking out in cold sweats I have talked to
Hi everyone I have what my doctor considers borderline hypothyroidism. Lrvel was about 4.0. I was put on just 25 mg of thyroxine. lately my body temperature has been running 96.4 96.6 and I noticed when my temperature runs this low that I feel bad sometimes breaking out in cold sweats I have talked to
Hidden
in
Thyroid UK
5 years ago
Symptom Query
Hello all, I have heard that people with Lupus or autoimmune issues are more prone to chostocondritis or other types of chest discomfort, and also haemangiomas ( benign tumour made up of blood vessels). Was wondering if others have any experience of this or this has been part of getting their diagnosis
Hello all, I have heard that people with Lupus or autoimmune issues are more prone to chostocondritis or other types of chest discomfort, and also haemangiomas ( benign tumour made up of blood vessels). Was wondering if others have any experience of this or this has been part of getting their diagnosis
ScottishGirlGla
in
LUPUS UK
5 years ago
Umm anyone else
Has a headache everyday ontop of head i feel pressure in bothers my eyes i been light headed on and off and sometimes i get blurry vision my head feels heavy and i feel nauseous i google these symptoms and of course brain tumor does anyone else here have these symptoms i feel like pressure ontop of head
Has a headache everyday ontop of head i feel pressure in bothers my eyes i been light headed on and off and sometimes i get blurry vision my head feels heavy and i feel nauseous i google these symptoms and of course brain tumor does anyone else here have these symptoms i feel like pressure ontop of head
Meleinagarcia
in
Anxiety Support
5 years ago
Complications after cranioplasty
Complications after cranioplasty. Nearly six months after my operation and I still have CSF leaking into my scalp (sub galeal swelling). Wearing compression bandages and sleeping with head raised. Anyone else suffered this complication or had to have shunt operation to resolve similar issue? Feeling
Complications after cranioplasty. Nearly six months after my operation and I still have CSF leaking into my scalp (sub galeal swelling). Wearing compression bandages and sleeping with head raised. Anyone else suffered this complication or had to have shunt operation to resolve similar issue? Feeling
Allywally1974
in
Headway
5 years ago
Remission should be the holy grail
My wife is 13q mutated and started Ibrutinib as a first line treatment in January at 48 years old after 5 years of W&W This choice was made over chemo because she’s a high risk of other cancers The side effects were very painful and after a month, her hematologist decreased her dose to 2 pills a Day
My wife is 13q mutated and started Ibrutinib as a first line treatment in January at 48 years old after 5 years of W&W This choice was made over chemo because she’s a high risk of other cancers The side effects were very painful and after a month, her hematologist decreased her dose to 2 pills a Day
Sergi
in
CLL Support
5 years ago
DBS after 5 to 10years people experiences
anyone using DBS from past 10 Years, if Yes, how is the condition now.. is the PD stabilized or progressed?
anyone using DBS from past 10 Years, if Yes, how is the condition now.. is the PD stabilized or progressed?
Vishwa228
in
Cure Parkinson's
5 years ago
Shingles and watch and wait
I am 7 years into watch and wait- no symptoms other than steadily increasing wbc(. 200now) . Last week diagnosed with shingles and got antiviral medication , which is hopefully clearing it up. My question is , does getting shingles signal the need to start treatment? Should I let my consultant know,
I am 7 years into watch and wait- no symptoms other than steadily increasing wbc(. 200now) . Last week diagnosed with shingles and got antiviral medication , which is hopefully clearing it up. My question is , does getting shingles signal the need to start treatment? Should I let my consultant know,
Drayton1
in
CLL Support
5 years ago
Will this end
I have been dealing with hell the past few months. At this point just not sure if it will end. I worry every day all day and can’t sleep when I do wake up it’s all over again. I had been having awful headaches which lead to treacherous body aches after so many Er visits all test were negative. I started
I have been dealing with hell the past few months. At this point just not sure if it will end. I worry every day all day and can’t sleep when I do wake up it’s all over again. I had been having awful headaches which lead to treacherous body aches after so many Er visits all test were negative. I started
Silverlining101
in
Anxiety Support
5 years ago
Mind games.
I had ERS for my acoustic neuroma one year ago.I've been experiencing mood swings, slight depression, and i'm reacting to situations in an angry way.Has anyone had similar experiences?
I had ERS for my acoustic neuroma one year ago.I've been experiencing mood swings, slight depression, and i'm reacting to situations in an angry way.Has anyone had similar experiences?
JimBeckenham
in
Acoustic Neuroma Support
5 years ago
Remote DBS in China
Remote surgery will start to become popular with 5g networks. 5G is being used to perform remote surgery from thousands of miles away, and it could transform the healthcare industry https://www.businessinsider.com/5g-surgery-could-transform-healthcare-industry-2019-8?utmSource=twitter&utmContent=referral
Remote surgery will start to become popular with 5g networks. 5G is being used to perform remote surgery from thousands of miles away, and it could transform the healthcare industry https://www.businessinsider.com/5g-surgery-could-transform-healthcare-industry-2019-8?utmSource=twitter&utmContent=referral
Hidden
in
Cure Parkinson's
5 years ago
Does DBS improve sleep?
Has anyone who has had DBS found that it improved their non motor symptoms, especially sleep?
Has anyone who has had DBS found that it improved their non motor symptoms, especially sleep?
jackedmonston
in
Cure Parkinson's
5 years ago
DBS results please
Since I am beginniing to seriously consider DBS I would appreciate your comments regarding results, positive and negative,, and when and where was your surgery. Many thanks
Since I am beginniing to seriously consider DBS I would appreciate your comments regarding results, positive and negative,, and when and where was your surgery. Many thanks
jombi
in
Cure Parkinson's
5 years ago
Risk of getting chicken pox ?
Hello friends a question my husband has bad doze of shingles am I at risk I’ve had chicken pox as child and shingles as adult ... I’m currently on 14.5 mg 😏
Hello friends a question my husband has bad doze of shingles am I at risk I’ve had chicken pox as child and shingles as adult ... I’m currently on 14.5 mg 😏
CSMM
in
PMRGCAuk
5 years ago
10 Days Ago it was DBS
Always stated to my neurologists and physical therapist for over three years now to please tell me things straight up, so they did. A few weeks ago i had my 6 month check-up, doc said "Mark you might want to consider looking into DBS, because at 1250mg of c/l per day your pushing the max level for what
Always stated to my neurologists and physical therapist for over three years now to please tell me things straight up, so they did. A few weeks ago i had my 6 month check-up, doc said "Mark you might want to consider looking into DBS, because at 1250mg of c/l per day your pushing the max level for what
TheLordsWeapon
in
Cure Parkinson's
5 years ago
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