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Poem 5Have had 3 procedures of DBS and awaiting programming
Remote control programming ( Turn me on) Just turn me on, For goodness sake, Turn me on I say, I’m not sure that I can wait very long; probably not another day. My head is throbbing from electrodes in my brain bouncing to and fro. And my chest muscles feel like I had a Boob Job with
Remote control programming ( Turn me on) Just turn me on, For goodness sake, Turn me on I say, I’m not sure that I can wait very long; probably not another day. My head is throbbing from electrodes in my brain bouncing to and fro. And my chest muscles feel like I had a Boob Job with
FifteenyearsPD
in
Cure Parkinson's
12 years ago
I was dx 9 years ago, had DBS last year. Recently all toes and fingers feel ridged and sometimes lose my grip. Is this a PD progression?
Pelley
in
Cure Parkinson's
12 years ago
Poem 4 - DBS - 1 procedure down and 2 to go
Poem 4 The day began before dawn but it wasn’t too bad, I want all to know. I can report - That’s one procedure down but still two more to go. By 9:00 AM I had a few extra holes in the top of my almost bald head. And by Noon, I was home comfy under the covers in my very own bed. The second
Poem 4 The day began before dawn but it wasn’t too bad, I want all to know. I can report - That’s one procedure down but still two more to go. By 9:00 AM I had a few extra holes in the top of my almost bald head. And by Noon, I was home comfy under the covers in my very own bed. The second
FifteenyearsPD
in
Cure Parkinson's
12 years ago
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HI DOES ANY ONE GET VERY BAD PAIN IN THE FACE ???
HI could any one tel me, who has had bad pain in the face. Face swollen My GP can see my face HAS ANY ONE WHO HAS A DBS HAD BAD PAIN WHICH THEY PUT DOWN TO THE DBS. CAN DBS GIVE YOU PAIN ??? PS Sorry about the grammar yours EXPORT.
HI could any one tel me, who has had bad pain in the face. Face swollen My GP can see my face HAS ANY ONE WHO HAS A DBS HAD BAD PAIN WHICH THEY PUT DOWN TO THE DBS. CAN DBS GIVE YOU PAIN ??? PS Sorry about the grammar yours EXPORT.
export
in
Cure Parkinson's
12 years ago
When all you have is luck... but then you loose hope for luck
I am one of the lucky ones amongst us ... PWP... but I am stuck in a rut of depression I can't shake. Dx'd (diagnosed) when I was 30, married with 2 kids. At the time I was traveling the world and racing ahead in my career. I thought all was well. In 2003 I ran a marathon by 2006 and
I am one of the lucky ones amongst us ... PWP... but I am stuck in a rut of depression I can't shake. Dx'd (diagnosed) when I was 30, married with 2 kids. At the time I was traveling the world and racing ahead in my career. I thought all was well. In 2003 I ran a marathon by 2006 and
NoSringsAussie
in
Cure Parkinson's
12 years ago
A little bit down
I've been feeling quite sad, but not depressed, the last week. I suppose part of it is feeling sorry for myself, but I have been sad that my Mum can't visit at the moment because her Menieres disease has started playing up again. I usually see her every second Monday but that won't happen any more until
I've been feeling quite sad, but not depressed, the last week. I suppose part of it is feeling sorry for myself, but I have been sad that my Mum can't visit at the moment because her Menieres disease has started playing up again. I usually see her every second Monday but that won't happen any more until
LittleClapham
in
Tourettes Action
12 years ago
Just a quick update
I thought I had done this a couple weeks ago but I can't seem to find my post anywhere... I had the visit to the rheumy and many other visits with other specialists. Seems all is good so far with a few suprises. My ANA was positive at 1:80 and speckeled pattern. I also tested positive for Lyme
I thought I had done this a couple weeks ago but I can't seem to find my post anywhere... I had the visit to the rheumy and many other visits with other specialists. Seems all is good so far with a few suprises. My ANA was positive at 1:80 and speckeled pattern. I also tested positive for Lyme
Hidden
in
Hughes Syndrome APS Forum
13 years ago
Do my symptoms sound like it could be APLS? Just sent bloodwork in. Trying to figure out what has been wrong with me for over 3 years!
My arms turn purple and get tight, cold and weak when I do physical activities or stand. I'm always lightheaded and have trouble with thinking and memory. I have not had a stroke or major hospitalization from a blood clot. Is it possible to have "small" blood clots that cause cumulative damage but
My arms turn purple and get tight, cold and weak when I do physical activities or stand. I'm always lightheaded and have trouble with thinking and memory. I have not had a stroke or major hospitalization from a blood clot. Is it possible to have "small" blood clots that cause cumulative damage but
Tighidden
in
Hughes Syndrome APS Forum
13 years ago
Poem No. 3
Yes, you’d be nervous too if holes were going to be drilled into your head But I‘ve assured all who have asked , that I am not anxious nor do I feel any dread. The bottom line is simply this – I have done everything that I can possibly do, So Deep Brain Stimulation for Parkinson’s
Yes, you’d be nervous too if holes were going to be drilled into your head But I‘ve assured all who have asked , that I am not anxious nor do I feel any dread. The bottom line is simply this – I have done everything that I can possibly do, So Deep Brain Stimulation for Parkinson’s
FifteenyearsPD
in
Cure Parkinson's
12 years ago
My Experience With Deep Brain Stimulation
I have not spent a lot of time discussing Deep Brain Stimulation, or how it has affected my lifestyle. The reason for this is simple. I'm not quite sure I am qualified. Yes, I was the one that endured the hours of surgery, and yes, I was the one who dealt with all the unknowns that brain surgery brings
I have not spent a lot of time discussing Deep Brain Stimulation, or how it has affected my lifestyle. The reason for this is simple. I'm not quite sure I am qualified. Yes, I was the one that endured the hours of surgery, and yes, I was the one who dealt with all the unknowns that brain surgery brings
jeffjennings
in
Cure Parkinson's
12 years ago
Has anyone had DBS, deep brain surgery?
Hidden
in
Cure Parkinson's
13 years ago
RE: On being Affaid
While i was having my dbs surgery i got a staff infection in my brain with gave me grand mal seizure in my garage I don't want to scare anyone but i wrote about my experience If you read my stories you know me pretty well by now. However I did leave a year out. During September 2009 though March of
While i was having my dbs surgery i got a staff infection in my brain with gave me grand mal seizure in my garage I don't want to scare anyone but i wrote about my experience If you read my stories you know me pretty well by now. However I did leave a year out. During September 2009 though March of
Captsteve
in
Cure Parkinson's
13 years ago
Something new
Daniel had an appointment with his neuro Monday morning. Commented to her that I thought he had and a sezure Wednesday night before Thanksgiving. Had an eeg and sure enough during the 2 hour procedure there were plenty of tiny sezures going on. It's happening on the left side. the side he's complain
Daniel had an appointment with his neuro Monday morning. Commented to her that I thought he had and a sezure Wednesday night before Thanksgiving. Had an eeg and sure enough during the 2 hour procedure there were plenty of tiny sezures going on. It's happening on the left side. the side he's complain
DANIEL
in
Cure Parkinson's
13 years ago
Is it really a disease?
I have never thought much about healthcare, medication, research and definitely not about Parkinson’s disease. Well, here I am, 48 years old, cursing myself because I may have forgotten my meds at home and I have hundreds of questions and views on research, medication and healthcare organization. I went
I have never thought much about healthcare, medication, research and definitely not about Parkinson’s disease. Well, here I am, 48 years old, cursing myself because I may have forgotten my meds at home and I have hundreds of questions and views on research, medication and healthcare organization. I went
dalo
in
Cure Parkinson's
13 years ago
When to decide to get DBS ?
Hidden
in
Cure Parkinson's
12 years ago
Parkinson's and Quality of Life - a patient's perspective
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
CPT_Tom
in
Cure Parkinson's
13 years ago
Finally joining the fight, a brief history of my life with parkinson's dbs before during and after
Well I was told I had Parknsons about the year 2000 I was 30 years old .I had to retire from law enforcement in 2005 . This was total hell and I became seriously depressed .So I started doing a lot of fishing. Then social security took away my monthly benefits b/c I was getting better . No stupids
Well I was told I had Parknsons about the year 2000 I was 30 years old .I had to retire from law enforcement in 2005 . This was total hell and I became seriously depressed .So I started doing a lot of fishing. Then social security took away my monthly benefits b/c I was getting better . No stupids
Captsteve
in
Cure Parkinson's
13 years ago
Can PD symptoms remain on one side of the body?
I was diagnosed 8 years ago, and my left side has gotten really bad but I still have no symptoms on my right side. Very strange since everything I have read says that PD always starts on one side of the body and then spreads to the other. My left side got SO bad (dystonia, arm muscle cramps, stiffness
I was diagnosed 8 years ago, and my left side has gotten really bad but I still have no symptoms on my right side. Very strange since everything I have read says that PD always starts on one side of the body and then spreads to the other. My left side got SO bad (dystonia, arm muscle cramps, stiffness
jazzfan53
in
Cure Parkinson's
13 years ago
DBS
IF I HAVE THE BRAIN STIMULATION WIRES IVE BEEN TOLD I CANNOT BE NEAR ANYTHING WITH MAGNETS. AM I GOING TO BECOME A PRISONER OF A SURGERY THAT IS SUPPOSE TO HELP ME . I DON'T WANT TO BECOME A HERMIT..AND ALMOST EVERYTHING HAS MAGNETS
IF I HAVE THE BRAIN STIMULATION WIRES IVE BEEN TOLD I CANNOT BE NEAR ANYTHING WITH MAGNETS. AM I GOING TO BECOME A PRISONER OF A SURGERY THAT IS SUPPOSE TO HELP ME . I DON'T WANT TO BECOME A HERMIT..AND ALMOST EVERYTHING HAS MAGNETS
paloma
in
Cure Parkinson's
12 years ago
DBS I WOULD LIKE TO HERE FROM ANY ONE WHO HAS ONE.
Hi would like to here from any one who has a DBS and know,s how many volts . Since you have had the DBS Has any one had the volt,s move . I would like to here about it, how ever small . yours EXPORT.
Hi would like to here from any one who has a DBS and know,s how many volts . Since you have had the DBS Has any one had the volt,s move . I would like to here about it, how ever small . yours EXPORT.
export
in
Cure Parkinson's
12 years ago
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