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Brain arteriovenous malformation (AVM)
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DBS lottery
Whilst I’ve read dozens of posters extolling the virtues of DBS here on the site and have witnessed many stories on YouTube similarly telling of good things, the PWP that I know personally who’ve had it haven’t been so encouraging. 😕 Guy 1 was hoping to reduce his meds but has ended up taking the
Whilst I’ve read dozens of posters extolling the virtues of DBS here on the site and have witnessed many stories on YouTube similarly telling of good things, the PWP that I know personally who’ve had it haven’t been so encouraging. 😕 Guy 1 was hoping to reduce his meds but has ended up taking the
jeeves19
in
Cure Parkinson's
3 years ago
Stress triggering meningitis
What are your thoughts on stress being a trigger for a viral infection and triggering viral meningitis and M.E? Do you think stress plays a contributing factor?
What are your thoughts on stress being a trigger for a viral infection and triggering viral meningitis and M.E? Do you think stress plays a contributing factor?
Sunny308
in
Meningitis Now
3 years ago
Hydrocephalus post Cranioplasty
Hi, my daughter had a brain injury last year. She had a craniectomy and had a cranioplasty in October. For the last month or so, she has woken with a severe headache several times. Twice in the last week. Plus in the last month she’s started with balance problems. She looses her balance when walking
Hi, my daughter had a brain injury last year. She had a craniectomy and had a cranioplasty in October. For the last month or so, she has woken with a severe headache several times. Twice in the last week. Plus in the last month she’s started with balance problems. She looses her balance when walking
Kezza72
in
Headway
3 years ago
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My story of trying to find a get the right treatment
My name is lanelle Hardwick and I live with a pineal cyst and a bilobed cyst on my brain. It is so frustrating trying to get across to the health department of this expertise, I am currently in the public system of neurological wait list as catergory 2 and I am constantly suffering symptoms of headaches
My name is lanelle Hardwick and I live with a pineal cyst and a bilobed cyst on my brain. It is so frustrating trying to get across to the health department of this expertise, I am currently in the public system of neurological wait list as catergory 2 and I am constantly suffering symptoms of headaches
lannelle
in
Headway
3 years ago
Chronic Shingles & Hashi/Hypo
Anyone else get Shingles everytime their TSH rises due to Hashi’s & it’s time for an increase in Levo.mg’s? This has been my pattern for a year now. First round was face/neck second was armpits. Both times bilateral. Shingles vaccine has not been an option for me because I can’t go long enough in between
Anyone else get Shingles everytime their TSH rises due to Hashi’s & it’s time for an increase in Levo.mg’s? This has been my pattern for a year now. First round was face/neck second was armpits. Both times bilateral. Shingles vaccine has not been an option for me because I can’t go long enough in between
badgenes
in
Thyroid UK
3 years ago
DBS, good or bad thing?
I've decided to take the plunge on dbs, the meds don't work much anymore and side effects are kicking my butt. it's been 7 yrs since diagnoses, unbelievable suffering everyday. Your thought's, pros and cons, warnings, tips , suggestions, secrets ect. .thank you greatly
I've decided to take the plunge on dbs, the meds don't work much anymore and side effects are kicking my butt. it's been 7 yrs since diagnoses, unbelievable suffering everyday. Your thought's, pros and cons, warnings, tips , suggestions, secrets ect. .thank you greatly
Hidden
in
Anxiety and Depression Support
3 years ago
Links to some articles comparing FUS to DBS for Essential Tremors
For the time being, there's more research and development in the ET field than the PD field as it relates to tremor dominant Parkinson's. Here's a few links that compares the two. https://www.neurologyreviews-digital.com/neurologyreviews/nr_march_2019_/MobilePagedArticle.action?articleId=1470923
For the time being, there's more research and development in the ET field than the PD field as it relates to tremor dominant Parkinson's. Here's a few links that compares the two. https://www.neurologyreviews-digital.com/neurologyreviews/nr_march_2019_/MobilePagedArticle.action?articleId=1470923
pdpatient
in
Cure Parkinson's
3 years ago
DBS - yes or no?
How to decide on a DBS placement I'm gonna take the plunge. I just cant do the meds anymore, they don't work like they used to and I'm beyond miserable. Any thoughts or suggestions?
How to decide on a DBS placement I'm gonna take the plunge. I just cant do the meds anymore, they don't work like they used to and I'm beyond miserable. Any thoughts or suggestions?
Hidden
in
Anxiety and Depression Support
3 years ago
Please make it stop
I am new to this level of anxiety. It has completely debilitated me. I need help but can't afford anything, even with insurance. On the surface, it looks irrational but I can't control it no matter what I do. I meditate, breath, exercise and try to take care of myself. I have new medications that
I am new to this level of anxiety. It has completely debilitated me. I need help but can't afford anything, even with insurance. On the surface, it looks irrational but I can't control it no matter what I do. I meditate, breath, exercise and try to take care of myself. I have new medications that
needhelp2z
in
Anxiety Support
3 years ago
Anxious
Feeling a bit nervous today, I’ve an appointment for a MRI scan , I’ve got a meningioma ( a benign tumour on the lining of the brain near the pituitary ) I’ve had it since childhood and it’s caused a few problems. I had a scan last year and it’s grown so they want to do another to see if it’s grown anymore
Feeling a bit nervous today, I’ve an appointment for a MRI scan , I’ve got a meningioma ( a benign tumour on the lining of the brain near the pituitary ) I’ve had it since childhood and it’s caused a few problems. I had a scan last year and it’s grown so they want to do another to see if it’s grown anymore
CELAT06
in
Lung Conditions Community Forum
3 years ago
New to the forum
My wife suffers from PD. Interested in any ways of alleviateing dyskinesia via. Medication or DBS
My wife suffers from PD. Interested in any ways of alleviateing dyskinesia via. Medication or DBS
thfc1961
in
Cure Parkinson's
3 years ago
Deep Brain Stimulation
Can those who have had DBS please share their experiences
Can those who have had DBS please share their experiences
thfc1961
in
Cure Parkinson's
3 years ago
Pros and Cons of Four Different Brain Surgeries For Parkinson’s Diseases
An excellent article by Ben, where he discusses the pros and cons of 4 available interventions for PD patients with advanced stage. He discusses the following 4 procedures available currently: Deep Brain Stimulation (DBS) Cell Replacement Therapy (CRT) Focused Ultrasound (FUS) Gene Therapy (GT) https
An excellent article by Ben, where he discusses the pros and cons of 4 available interventions for PD patients with advanced stage. He discusses the following 4 procedures available currently: Deep Brain Stimulation (DBS) Cell Replacement Therapy (CRT) Focused Ultrasound (FUS) Gene Therapy (GT) https
Farooqji
in
Cure Parkinson's
3 years ago
PTT trials for 50 participants at 8 locations* in the US. Out of nowhere. Bilateral will be offered if you qualify. (*Thank you Rebtar.)
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
MBAnderson
in
Cure Parkinson's
3 years ago
Latent shingles and high BP
Has anyone had shingles lately and increase in BP...contracted shingles couple of weeks ago, felt very hot but not high temp and only few spots on left arm/bra line and left shoulder/back....phoned GP and mentioned headache and light headedness and sent photos..went to pick up script at pharmacy and
Has anyone had shingles lately and increase in BP...contracted shingles couple of weeks ago, felt very hot but not high temp and only few spots on left arm/bra line and left shoulder/back....phoned GP and mentioned headache and light headedness and sent photos..went to pick up script at pharmacy and
Bea61
in
Pain Concern
3 years ago
Help please anyone
I have for 9 months now been suffering with post nasal drip vertigo and vision issues has anyone had this and can any one pls advice best course of action ent said I need turbinate surgery nasal surgery and sinuses to be unblocked but what can I do whilst I wait for surgery mirgraines to
I have for 9 months now been suffering with post nasal drip vertigo and vision issues has anyone had this and can any one pls advice best course of action ent said I need turbinate surgery nasal surgery and sinuses to be unblocked but what can I do whilst I wait for surgery mirgraines to
Claire2985
in
Pain Concern
3 years ago
Any DBS prep advice?
Hi! My dad is rigidity dominant. He experiences freezing when his meds are wearing off. He didn't qualify for FUS at Sonimodul, but my dad finally has his 2nd meeting with a surgeon, Dr. Munhoz, at Toronto Western Hospital here in Toronto. We have watched Dr. Mischely's PD School on DBS, and have come
Hi! My dad is rigidity dominant. He experiences freezing when his meds are wearing off. He didn't qualify for FUS at Sonimodul, but my dad finally has his 2nd meeting with a surgeon, Dr. Munhoz, at Toronto Western Hospital here in Toronto. We have watched Dr. Mischely's PD School on DBS, and have come
pdkid
in
Cure Parkinson's
3 years ago
Parkinsons, DBS and Thyroid
Anyone with thyroid issues also have Parkinson’s ? I have both and have just had DBS (deep Brain stimulation) in an effort to eliminate my tremor on the Parkinson’s side. The issue currently seems to be that my neurosurgeon sets my pulse generator to eliminate the tremor checks my balance/ gait and
Anyone with thyroid issues also have Parkinson’s ? I have both and have just had DBS (deep Brain stimulation) in an effort to eliminate my tremor on the Parkinson’s side. The issue currently seems to be that my neurosurgeon sets my pulse generator to eliminate the tremor checks my balance/ gait and
Lr_defender
in
Thyroid UK
3 years ago
Viral meningitis do's & dont's
My daughter (5) was discharged from hospital 2 days ago with VM. Question may seem silly but can i wash her hair as normal? Im asking because of the headaches and because i wouldn't want to unintentionally hurt her.
My daughter (5) was discharged from hospital 2 days ago with VM. Question may seem silly but can i wash her hair as normal? Im asking because of the headaches and because i wouldn't want to unintentionally hurt her.
Sounsure
in
Meningitis Now
3 years ago
Back again with another question about spouse's DBS results
Hey folks, was on here back in Nov. - Dec. concerning my husband's DBS results. I am happy to report after much trial and error, he no longer has any noticeable Tremors!!! However, I do think it has affected his Personality, he just doesn't seem the same. I cannot say it is entirely due to the DBS,
Hey folks, was on here back in Nov. - Dec. concerning my husband's DBS results. I am happy to report after much trial and error, he no longer has any noticeable Tremors!!! However, I do think it has affected his Personality, he just doesn't seem the same. I cannot say it is entirely due to the DBS,
dhill
in
Cure Parkinson's
3 years ago
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