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19 public communities
High Blood Pressure Support
5,416 members
We are a peer support community for people living with Hypertension and High Blood Pressure. Join to ask questions, blog about living with HBP and connect with others like you.
Partners for Behcet's
524 members
We are a community dedicated to supporting those with Behcet’s Syndrome, which is a rare disease that sees the blood vessels become inflamed.
Action on Pre-eclampsia
708 members
Action on Pre-eclampsia (also known as APEC) aims to raise awareness of pre-eclampsia - which is a pregnancy disorder characterized by high blood pressure and protein in the urine.
Hughes Syndrome APS Forum
10,356 members
Hughes Syndrome - APS Support is a Forum that helps support people with Hughes/Antiphospholipid Syndrome and Sero-negative Hughes/APS (SN-APS), also referred to at times as STICKY BLOOD or Sludge Blood. We help people from the UK and globally. We also enhance education, awareness and research into Hughes Syndrome. Some of our members are writing books, and some already have, this does help raise awareness both with the public and medical staff. Please share your experiences, gather useful information, learn from others and don’t be afraid to ask for help if you need it. Above all please enjoy this site!
Leukaemia CARE
1,278 members
This community brings together patients, carers, advocates and health professionals to share knowledge, experience and guidance to aid each other to cope with a blood cancer diagnosis. Leukaemia Care are committed to making sure that patients, their loved ones and their friends have the right information, support and advice at the point of diagnosis and beyond. Leukaemia Care supports this community with a range of support services to patients and their carers including: a Nurse-led helpline, nurse advisers available every weekday to answer you questions, nationwide support groups, patient and carer conferences, one-to-one Buddy Support, an extensive website, blood cancer information in PDF and booklets, campaigning and advocacy.
Anticoagulation Support
3,803 members
The Anticoagulation Support community is for anyone impacted by a health condition such as atrial fibrillation, stroke, deep vein thrombosis (DVT) and pulmonary embolism (PE), aortic heart valve replacement, antiphospholipid syndrome and thrombotic disorders. These conditions can increase the risk of blood clots or thrombosis and may require anticoagulation therapy to treat or prevent blood clots from happening. Anticoagulant therapy is sometimes described as a blood thinner and can be given for a short period of time (to prevent clots after hip and knee replacement surgery) or long term for people with thrombotic disorders to prevent recurrence of clotting episodes. Some people may be offered anticoagulation medication when they are being treated for cancer. Anyone requiring anticoagulation therapy should discuss medication options with a health care provider and be given adequate information around the duration and monitoring of the treatment provided. In the UK, there are several oral anticoagulant medications available - Apixaban, Dabigatran, Edoxaban, Rivaroxaban and Warfarin. Heparin is given by injection. Anticoagulation Support aims to help individuals engage with people who have lived experience of living with a condition and being treated with anticoagulants. The site is moderated by HealthUnlocked with input from an anticoagulation patient expert and an anticoagulation healthcare professional. For information about anticoagulation therapy and related conditions visit.... NHS website - https://www.nhs.uk/ National Institute of Health and Care Excellence(NICE) - https://www.nice.org.uk
LIVErNORTH
417 members
We are a adult liver patient support group based at the Freeman Hospital in Newcastle upon Tyne, England. Whatever kind of liver disease you may have, we are here to support you. Whilst we will endeavour to assist you with any queries relating to liver disease it would be inappropraite for us to comment on liver function blood test as there are too many variables involved to generalise. Your hepatologist is the appropriate person to ask for advice in this instance.
MPN Voice
10,445 members
MPN Voice provides information and emotional support to patients with Myeloproliferative neoplasms. MPNs are chronic diseases affecting the levels of blood cells in the body, the three main types are Essential Thrombocythaemia (ET), Polycythaemia Vera (PV) and Myelofibrosis (MF). People affected by MPNs often feel isolated and need support and accurate information about their MPN, MPN Voice provides this support and information via the website, patient forums and this online forum at HealthUnlocked which gives people with a MPN a place to ask questions and discuss their condition, symptoms, medication and other related concerns with fellow patients.
Cavernoma Alliance UK
438 members
We are a community that supports those affected by cavernoma, otherwise known as cerebral cavernous malformations or cavernous angioma. What is a cavernoma? A cavernoma looks like a raspberry and are also known as cavernous angioma, cavernous haemangioma or cerebral cavernous malformation (CCM). A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord. Cavernomas can measure from a few millimetres to several centimetres. A cavernoma can get bigger, but this growth is not cancerous, and it does not spread to other parts of the body. Frequency 1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people – enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma.
Unsalted Heart
524 members
Being heart healthy is more than just watching Saturated and Trans fats. If you have too much sodium/salt in your diet, it can continue to put you at risk for heart disease. Join the conversation to learn more!
Circulation Foundation
574 members
We are an online peer support community for everyone affected by circulatory disorders. Join us to share your experience, ask questions and support one another! This community is run by the Circulation Foundation.
British Heart Foundation
50,164 members
We are the British Heart Foundation (BHF), the largest independent funder of cardiovascular research. We fund research into life saving cures to beat heart disease, stroke and vascular dementia, and stop conditions like diabetes from causing them, to help people and families live longer, better lives. Over the years, our pioneering research has helped to transform the lives of people living with heart and circulatory conditions. As well funding ground-breaking research, we’re here to support people affected by heart and circulatory diseases and their risk factors. So whether you're living with a heart or circulatory disease, or just want to find out more about them, this is the place to be. If you have any questions or concerns, and would like to speak with one of our cardiac nurses, please do contact our Heart Helpline team on 0300 330 3311 Mon-Fri 9-5pm or email hearthelpline@bhf.org.uk This community is moderated by HU_Moderator
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