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Personal Sleep PR
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
WideBody
in
Restless Legs Syndrome
8 months ago
Second Treatment -Feeling scared
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
Sanders9
in
CLL Support
23 days ago
Methotrexate and a head cold
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
pattypatchwork
in
LUPUS UK
23 days ago
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Hepatitis B
It started with yellow eyes and went south very quickly. I have had 2 weeks of hell and been very unwell. It was confirmed that I had Hep B and it really has turned my life upside down. It would be good to know others experiences.
It started with yellow eyes and went south very quickly. I have had 2 weeks of hell and been very unwell. It was confirmed that I had Hep B and it really has turned my life upside down. It would be good to know others experiences.
HepBHelp
in
British Liver Trust
8 months ago
My our Journey so far.
A BIG Hi to you all. I’d like to introduce myself. My nick name is Big H and my journey started in 2021 with a covid pneumonia. I was in a pub when we were allowed to go out, it’s the only place I had attended before contracting Covid Pneumonia. I just remember it was like having the worse flu and
A BIG Hi to you all. I’d like to introduce myself. My nick name is Big H and my journey started in 2021 with a covid pneumonia. I was in a pub when we were allowed to go out, it’s the only place I had attended before contracting Covid Pneumonia. I just remember it was like having the worse flu and
BigH63
in
ICUsteps
8 months ago
Taking Prolia with Rusolitinib (Jakafi)
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
Buggerbear
in
MPN Voice
24 days ago
Shingles vaccine
Just got a phone call from GP booking me in for my shingles vaccine as I fit the criteria.Has anyone had any experience of the jab. Do I need to ask Rheumatology about changing my tcz infusion times . Thanks , I not after medical advice just whether you personally had to adjust your drip timings. I
Just got a phone call from GP booking me in for my shingles vaccine as I fit the criteria.Has anyone had any experience of the jab. Do I need to ask Rheumatology about changing my tcz infusion times . Thanks , I not after medical advice just whether you personally had to adjust your drip timings. I
allanah
in
NRAS
25 days ago
My dad graduated from ICU today! Severe Pneumonia
Hello, Everyone: I have posted here about my dad who is in his late 70s. At the end of August, he was admitted to the hospital to remove a small benign cyst from his throat and two days after the surgery, he choked on water and yogurt that were served and developed aspirational pneumonia. Since it
Hello, Everyone: I have posted here about my dad who is in his late 70s. At the end of August, he was admitted to the hospital to remove a small benign cyst from his throat and two days after the surgery, he choked on water and yogurt that were served and developed aspirational pneumonia. Since it
ForMyPapa
in
Lung Conditions Community Forum
6 months ago
Spinal injection
Hi everyone wow look at all these replies tells me there is a grey area on this subject. I had an injection in 2014 I only got 2 weeks relief so they wouldnt give me another one. I've had guided steroid injections in my 2 shoulders and omg it worked instantly!!!!. I've suffered ever since I had surgery
Hi everyone wow look at all these replies tells me there is a grey area on this subject. I had an injection in 2014 I only got 2 weeks relief so they wouldnt give me another one. I've had guided steroid injections in my 2 shoulders and omg it worked instantly!!!!. I've suffered ever since I had surgery
Betsy50
in
Pain Concern
7 months ago
Stuck cough on the throat
Hi Everyone, My mum had her meal this evening and looks like the food went the wrong way, she has been coughing, she feels like there is cough around her throat that she can’t seem to cough, Has anyone experienced this?
Hi Everyone, My mum had her meal this evening and looks like the food went the wrong way, she has been coughing, she feels like there is cough around her throat that she can’t seem to cough, Has anyone experienced this?
Candor8
in
PSP Association
28 days ago
COVID vaccine side effects
I have been on 11 1/2 mg of Prednisone and have been holding my own. Last Thursday I had my 7 th Moderna COVID booster. Since then I have been in terrible pain all over my body. When I take a Tylenol it does help ( which is not usually the case for me, normally). I really do not like taking Tylenol
I have been on 11 1/2 mg of Prednisone and have been holding my own. Last Thursday I had my 7 th Moderna COVID booster. Since then I have been in terrible pain all over my body. When I take a Tylenol it does help ( which is not usually the case for me, normally). I really do not like taking Tylenol
Miacaro45
in
PMRGCAuk
7 months ago
I have been signed off from my care at hospital after 10 years of A fib and a stroke
I had a letter from my hospital that was dealing with my last ablation in 2019 , ECG ‘s etc . That they would no longer be looking after me - 2 weeks ago. I went back into A fib summer of 2020 during covid , I had to self assess my medication and my heart rate via my watch . I could see no one because
I had a letter from my hospital that was dealing with my last ablation in 2019 , ECG ‘s etc . That they would no longer be looking after me - 2 weeks ago. I went back into A fib summer of 2020 during covid , I had to self assess my medication and my heart rate via my watch . I could see no one because
01maxdog
in
AF Association
7 months ago
Cold Calling
I have suddenly started receiving calls from healthcare businesses. Two this week, I must have clicked on something.
I have suddenly started receiving calls from healthcare businesses. Two this week, I must have clicked on something.
Tykelady
in
Lung Conditions Community Forum
30 days ago
Cold weather trigger?
Does anyone else find that getting cold or being out in cold weather / air can cause problems?Cold air in the throat while out power walking, or simply realising I'm cold - it happened today - can combine to make me realise I'm going to become tachy and need warmth and to sit down (get a pip Bisoprolol
Does anyone else find that getting cold or being out in cold weather / air can cause problems?Cold air in the throat while out power walking, or simply realising I'm cold - it happened today - can combine to make me realise I'm going to become tachy and need warmth and to sit down (get a pip Bisoprolol
Garaidh
in
Atrial Fibrillation Support
1 month ago
Rituximab- cold- flu - covid
Good day everyone I’m 8 weeks into my Rtx infusion and was exposed to someone who had one of the above. I’m literally …. bricks. Any thoughts please? Thank you
Good day everyone I’m 8 weeks into my Rtx infusion and was exposed to someone who had one of the above. I’m literally …. bricks. Any thoughts please? Thank you
ks1966
in
NRAS
1 month ago
chest infection
I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking pred since February). I have had a productive cough and what I believe is a chest infection for 2 weeks. It is definitely better this week than last week and the guaifenesin I have taken has helped. I do not feel unwell
I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking pred since February). I have had a productive cough and what I believe is a chest infection for 2 weeks. It is definitely better this week than last week and the guaifenesin I have taken has helped. I do not feel unwell
kalgoorlie
in
PMRGCAuk
1 month ago
Hello Good People
Today I did a cystoscopy for my bladder and the Dr. wanted to see why it comes sometimes a Blod after Unirating. Before I bled a little after urinating on different occasions and Dr. urology decided to check with cystoscopy to check the bladder, but it was narrow to get inside the bladder and it
Today I did a cystoscopy for my bladder and the Dr. wanted to see why it comes sometimes a Blod after Unirating. Before I bled a little after urinating on different occasions and Dr. urology decided to check with cystoscopy to check the bladder, but it was narrow to get inside the bladder and it
NOCanceros
in
Advanced Prostate Cancer
11 months ago
mini pill to stop ovulation/ interstitial cystitis or Endo?
Hi all i am on the waiting list for Laparoscopy as I have all the symptoms, plus I have confirmed PCOS from scans- I am 44 so can’t take the combined pill but my mid cycle is horrendous! Bladder pain, rectal pain and bleeding, leg pain and severe pelvic pain more so on left hand side, painful sex, nausea
Hi all i am on the waiting list for Laparoscopy as I have all the symptoms, plus I have confirmed PCOS from scans- I am 44 so can’t take the combined pill but my mid cycle is horrendous! Bladder pain, rectal pain and bleeding, leg pain and severe pelvic pain more so on left hand side, painful sex, nausea
SJ0514
in
Endometriosis UK
11 months ago
covid booster
is anyone else worried about having a covid jab ? Is it better to risk the jab , or risk covid without ? can the jab cause problems ?
is anyone else worried about having a covid jab ? Is it better to risk the jab , or risk covid without ? can the jab cause problems ?
jhorsf
in
Lung Conditions Community Forum
7 months ago
Slapped Cheek Disease
My nine year old Grandaughter has Slapped Cheek Disease. I am on my final 3mg of Pred a day for PMR. Is it ok to be in contact with her. Thank you. Jenny
My nine year old Grandaughter has Slapped Cheek Disease. I am on my final 3mg of Pred a day for PMR. Is it ok to be in contact with her. Thank you. Jenny
Attic
in
PMRGCAuk
1 month ago
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