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Bechets support pip
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Tibz
in
Behçet's UK
28 days ago
Rash any advice?
I have noticed this rash over last 2 or 3 months. Its not itchy or raised. Any advice most welcome. Im taking 100mcg teva levo and 15mcg thybon henning. Vit d, magnesium glycinate. Any advice most welcome 🌸🌸🌸🌸🌸
I have noticed this rash over last 2 or 3 months. Its not itchy or raised. Any advice most welcome. Im taking 100mcg teva levo and 15mcg thybon henning. Vit d, magnesium glycinate. Any advice most welcome 🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
6 months ago
sjogens?
I have post PV Myelofibrosis. When I was dx with PV I took Pegasys from April 22 @ 45mg then 60mg then 90mg fortnightly. (On Jakavi since August 23) So took Pegasys for about 16 months After a couple of months on Pegasys I started to experience close vision problems which could not be corrected with
I have post PV Myelofibrosis. When I was dx with PV I took Pegasys from April 22 @ 45mg then 60mg then 90mg fortnightly. (On Jakavi since August 23) So took Pegasys for about 16 months After a couple of months on Pegasys I started to experience close vision problems which could not be corrected with
Yanico
in
MPN Voice
6 months ago
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shingles vaccine
Hi folks This is a brilliant site has keep me steady since my husband’s diagnosis of SLL now CLL. My Husband had been W&W for 6 years, now on acalabrutinib for two years with no side affect and doing well. He has been offered the shingles vaccine but he hasn’t had chickenpox’s, is it safe to get the
Hi folks This is a brilliant site has keep me steady since my husband’s diagnosis of SLL now CLL. My Husband had been W&W for 6 years, now on acalabrutinib for two years with no side affect and doing well. He has been offered the shingles vaccine but he hasn’t had chickenpox’s, is it safe to get the
Charles4
in
CLL Support
6 months ago
Pegasys Update 1.0
Finally getting around to sharing my experiences of starting Pegasys. First a little background. Diagnosed with ET JAK2+ in 2019 after a decade of scintillating scotomas with increasing frequency at almost weekly. Aspirin cut this to approx. 90 days! Over the next three years increasingly struggled with
Finally getting around to sharing my experiences of starting Pegasys. First a little background. Diagnosed with ET JAK2+ in 2019 after a decade of scintillating scotomas with increasing frequency at almost weekly. Aspirin cut this to approx. 90 days! Over the next three years increasingly struggled with
Crossefield
in
MPN Voice
4 months ago
D Mannose
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
RosaD
in
LUPUS UK
4 months ago
UK - Liver Resection
I'm having my liver resection on Friday 18th August to remove HCC and I'm just falling apart. I'm so scared and nervous. I feel sick, I'm bloated (from stress), I feel I have no desire to eat properly so I'm eating the wrong foods. I'm getting heart burn too. I'm convinced it's all anxiety related to
I'm having my liver resection on Friday 18th August to remove HCC and I'm just falling apart. I'm so scared and nervous. I feel sick, I'm bloated (from stress), I feel I have no desire to eat properly so I'm eating the wrong foods. I'm getting heart burn too. I'm convinced it's all anxiety related to
BumbleCat
in
British Liver Trust
10 months ago
Covid and Myelofibrosis
hi I’ve just tested positive for Covid, I have post pv Myelofibrosis. I’m waiting on 111 to see whether I need to have some treatment. What are your thoughts and is this necessary now? I think it’s going to be a long wait, so it might be tomorrow. Thank you Mal
hi I’ve just tested positive for Covid, I have post pv Myelofibrosis. I’m waiting on 111 to see whether I need to have some treatment. What are your thoughts and is this necessary now? I think it’s going to be a long wait, so it might be tomorrow. Thank you Mal
Mal42
in
MPN Voice
4 months ago
dont give up the fight against Afib
I have been a member of this forum for some years and learned a few things from its members but up until now i have never posted anything but i thought my story may give some of you people a bit of hope. I first went into afib in 2018 sudenly without any warning my heart rate was 222 and the top line
I have been a member of this forum for some years and learned a few things from its members but up until now i have never posted anything but i thought my story may give some of you people a bit of hope. I first went into afib in 2018 sudenly without any warning my heart rate was 222 and the top line
Dikytiker
in
AF Association
4 months ago
Covid and Party
👋 Party is this coming Sat . I feel OK with going now after people's advice , so thank you all. Got my N95 mask. Will have sanitiser on me all the time . However I am now facing difficulties, flare up in both knees and one hip in agony and lower back , getting in and out of bed , turning in bed
👋 Party is this coming Sat . I feel OK with going now after people's advice , so thank you all. Got my N95 mask. Will have sanitiser on me all the time . However I am now facing difficulties, flare up in both knees and one hip in agony and lower back , getting in and out of bed , turning in bed
Stavrou1
in
CLL Support
4 months ago
Buprenorphine patch and swimming
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
RiversW
in
Restless Legs Syndrome
1 month ago
latest results, confused, please advise!
My last results a month ago before treatment with 50 mcg were : Serum free t4 level. 10.2 pmo/L TSH level 7.28 IU/mL After a month of Levothyroxine my results are now:- serum free t4 level. 15.6 TSH 2.87 I asked for, and was told my T3 would be checked but I can’t see it on printout unless
My last results a month ago before treatment with 50 mcg were : Serum free t4 level. 10.2 pmo/L TSH level 7.28 IU/mL After a month of Levothyroxine my results are now:- serum free t4 level. 15.6 TSH 2.87 I asked for, and was told my T3 would be checked but I can’t see it on printout unless
Benjipuss
in
Thyroid UK
4 months ago
Will a COVID (or flu) vaccination affect my blood results?
If I have a blood test 3 or 7 days after a COVID (or flu) vaccination - will it affect my blood results? Should I perhaps make the vaccination after the blood test, so that there is no potential issue interpreting my blood results? If the vaccination affects blood results - how many days after the vaccination
If I have a blood test 3 or 7 days after a COVID (or flu) vaccination - will it affect my blood results? Should I perhaps make the vaccination after the blood test, so that there is no potential issue interpreting my blood results? If the vaccination affects blood results - how many days after the vaccination
mantana
in
CLL Support
4 months ago
B12 deficiency
I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 weeks. Not sure if the covid knocked my B12 down. I had first injection today. I woke up out of my sleep my body burning and dry month. I had that feeling first week of covid it went away. Now I'm not sure if the B12 is fighting
I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 weeks. Not sure if the covid knocked my B12 down. I had first injection today. I woke up out of my sleep my body burning and dry month. I had that feeling first week of covid it went away. Now I'm not sure if the B12 is fighting
Michbell45
in
Pernicious Anaemia Society
4 months ago
scabies won´t go away, help
Hello, have anybody scabies won´t go away? I have it for 2 years now and it is horrobil. I try everything (all chemicals / medicine, all natural things with vaseline and sulfur and with all ethereal oils, with enzyme, with borax, CDL, bleech and so on outside , mixed it in all ways. and inside with
Hello, have anybody scabies won´t go away? I have it for 2 years now and it is horrobil. I try everything (all chemicals / medicine, all natural things with vaseline and sulfur and with all ethereal oils, with enzyme, with borax, CDL, bleech and so on outside , mixed it in all ways. and inside with
Massio
in
BASHH
1 month ago
Current SUPERNOVA Clinical Trial for Reformulated EVUSHELD for preventing COVID-19 infection for immune-impaired individuals
A Phase II sub-study of SUPERNOVA clinical trial (2023) is currently operating to test the efficacy and safety of AZD3152 as a component of a reformulated version of EVUSHELD mAbs prophylaxis for immune-impaired individuals who cannot mount antibody responses to COVID-19 vaccines. Study Understanding
A Phase II sub-study of SUPERNOVA clinical trial (2023) is currently operating to test the efficacy and safety of AZD3152 as a component of a reformulated version of EVUSHELD mAbs prophylaxis for immune-impaired individuals who cannot mount antibody responses to COVID-19 vaccines. Study Understanding
Classicaljazz
in
CLL Support
4 months ago
Calcified tendonitis
Has anyone experienced calcified tendinitis? I have been diagnosed with this after 6 months of excruciating shoulder pain. GP kept just prescribing painkillers then I saw the physio who advised me to have an X-ray. I am now having a steroid injection in my shoulder followed by physio, and hopefully this
Has anyone experienced calcified tendinitis? I have been diagnosed with this after 6 months of excruciating shoulder pain. GP kept just prescribing painkillers then I saw the physio who advised me to have an X-ray. I am now having a steroid injection in my shoulder followed by physio, and hopefully this
FLS1
in
NRAS
4 months ago
Methotrexate and sinus/nasal issues
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
Gottarelax
in
NRAS
6 months ago
⭐️⭐️my COVID journey ⭐️⭐️
⭐️covid survivors let’s keep on fighting, let’s help each other & spread awareness of the real impact & life changing difficulties we face❤️❤️ Ladysurvivor1 profile image Ladysurvivor1 2 days ago•0 Replies 🧏🏽♀️My COVID Journey: A Tale of Resilience and Hope (Part 1) In the depths of January
⭐️covid survivors let’s keep on fighting, let’s help each other & spread awareness of the real impact & life changing difficulties we face❤️❤️ Ladysurvivor1 profile image Ladysurvivor1 2 days ago•0 Replies 🧏🏽♀️My COVID Journey: A Tale of Resilience and Hope (Part 1) In the depths of January
Ladysurvivor1
in
ICUsteps
4 months ago
Finally failed at side-stepping the “rona”
Well I guess sooner or later it had to happen. Four years of avoiding covid and now I caught it whilst traveling for work in the Far East. Started with a cold and a general malaise, then a few days later, last night, I had a slight temperature so I thought I’d check (had packed some tests just in
Well I guess sooner or later it had to happen. Four years of avoiding covid and now I caught it whilst traveling for work in the Far East. Started with a cold and a general malaise, then a few days later, last night, I had a slight temperature so I thought I’d check (had packed some tests just in
Aldebaran25
in
MPN Voice
4 months ago
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