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Has somebody "steped back" to a former drug?
I asked some days ago for a drug that takes effect on liver. Trovelvy seems to be a good possibility - THANKS for this information :) On Friday my good friend(*) will have a talk with her Oncologist and she has the follwoing idea/question: (*) MBC since Okt 21: HER2 +, mets in bones, lymph nodes
I asked some days ago for a drug that takes effect on liver. Trovelvy seems to be a good possibility - THANKS for this information :) On Friday my good friend(*) will have a talk with her Oncologist and she has the follwoing idea/question: (*) MBC since Okt 21: HER2 +, mets in bones, lymph nodes
deHans
in
SHARE Metastatic Breast Cancer
8 months ago
Atrioesophageal fistula (AEF)
Heads up to those undergoing cardiac ablation for Afib…had my ablation 12/6/23. Everything went great! Been in normal rhythm ever since! No bleeding, no hematoma, no real discomfort. However I woke up to abdominal pain, pain between shoulder blades and sore throat. 3 nights post op woke up to a burning
Heads up to those undergoing cardiac ablation for Afib…had my ablation 12/6/23. Everything went great! Been in normal rhythm ever since! No bleeding, no hematoma, no real discomfort. However I woke up to abdominal pain, pain between shoulder blades and sore throat. 3 nights post op woke up to a burning
Acheybreakeyheart
in
Atrial Fibrillation Support
6 months ago
Psa doubled in less than a month
I had 10 infusions of Doxytaxel. I started reading about the consequences of CDK12 and was concerned that since I have this mutation doxy was not a treatment of choice. After giving time for the PSA to settle I had a test which showed that it doubled in close to 3 months. In preparation for a CT and
I had 10 infusions of Doxytaxel. I started reading about the consequences of CDK12 and was concerned that since I have this mutation doxy was not a treatment of choice. After giving time for the PSA to settle I had a test which showed that it doubled in close to 3 months. In preparation for a CT and
spencoid2
in
Advanced Prostate Cancer
8 months ago
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Gemcitibane/intravenous zoledronic acid
I was diagnosed stage 4b in January 2018, had debulking surgery, no adjuvant chemo, then two rounds of carboplatin about 18 months apart followed by Niraparib for 8 months, but no further treatment for the last 18 months.Then 3 weeks ago I needed treatment for hypercalcemia (which I didn't know I
I was diagnosed stage 4b in January 2018, had debulking surgery, no adjuvant chemo, then two rounds of carboplatin about 18 months apart followed by Niraparib for 8 months, but no further treatment for the last 18 months.Then 3 weeks ago I needed treatment for hypercalcemia (which I didn't know I
bamboo89
in
My Ovacome
8 months ago
Anxiety Flair
I have loved with anxiety but have had it under control for quite some time now. Then out of no where I had a panic attack because my husband went out of town. Ever since my body has stayed amped up and my anxiety is out of control. My dr just switched me to Zoloft from celexa noting I had been on it
I have loved with anxiety but have had it under control for quite some time now. Then out of no where I had a panic attack because my husband went out of town. Ever since my body has stayed amped up and my anxiety is out of control. My dr just switched me to Zoloft from celexa noting I had been on it
Purplebird1212
in
Anxiety and Depression Support
3 months ago
Foraminotomy
has anybody had a posterior endoscopic foraminotomy? In particular for bone spurs. I could be looking at this surgery once injections have been exhausted. Would be interested in hearing from people about how they found it, did it work, and crucially what was your post op experience like, pain levels,
has anybody had a posterior endoscopic foraminotomy? In particular for bone spurs. I could be looking at this surgery once injections have been exhausted. Would be interested in hearing from people about how they found it, did it work, and crucially what was your post op experience like, pain levels,
yorkshirelad1
in
Pain Concern
6 months ago
Just had My Monthly Injection of Firmagon Monthly Labs PSA is Up <0.06 to 0.09
That’s pretty modest. I’m assuming I will wait till next month to see if it goes down. Kind of stressed with this new diverticulitis and blood bowel thing AND Moving. Got results of psa after I saw My Medical Oncologist so haven’t discussed modest jump. Even with bleeding from rectum the gastroenterologist
That’s pretty modest. I’m assuming I will wait till next month to see if it goes down. Kind of stressed with this new diverticulitis and blood bowel thing AND Moving. Got results of psa after I saw My Medical Oncologist so haven’t discussed modest jump. Even with bleeding from rectum the gastroenterologist
Shorehousejam
in
Advanced Prostate Cancer
8 months ago
Xmas worries?
Yet another one fast approaching as normal I am not full of festive cheer IBD/Diverticular Disease is my main problem just as well it's only myself and husband here 2 cater 4 thank you but that is bad enough!!! So I am just doing a chicken this year and my safe(ish) veg that I think that I will be
Yet another one fast approaching as normal I am not full of festive cheer IBD/Diverticular Disease is my main problem just as well it's only myself and husband here 2 cater 4 thank you but that is bad enough!!! So I am just doing a chicken this year and my safe(ish) veg that I think that I will be
bungi1961
in
Bowel Disease Support
6 months ago
Wednesday Words
[u][i]
CHOLESTASIS
[/i][/u] - This word refers to a state of impaired bile production and/or its bile flow and its consequences. This term does not refer to the mechanism responsible for this happening. This[u][i]
cholestatic
[/i][/u]state can result in itching, very common in PBC, or
[u][i]
CHOLESTASIS
[/i][/u] - This word refers to a state of impaired bile production and/or its bile flow and its consequences. This term does not refer to the mechanism responsible for this happening. This[u][i]
cholestatic
[/i][/u]state can result in itching, very common in PBC, or
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Meridian Viewray is toast. Can Cyberkife machines use MRI the same way?
Just was unenrolled in a Phase I clinical trial using the Meridian Viewray machine at Dana Farber. Meridian went belly-up in the summer, and the hospital (Brigham and Women’s in Boston) will cease using that machine in October 25th. Looking for substitutes. Thinking that Cyberknife machines can also
Just was unenrolled in a Phase I clinical trial using the Meridian Viewray machine at Dana Farber. Meridian went belly-up in the summer, and the hospital (Brigham and Women’s in Boston) will cease using that machine in October 25th. Looking for substitutes. Thinking that Cyberknife machines can also
Cancer2x
in
Advanced Prostate Cancer
8 months ago
My Cancer Reality Check
I am having one of those “I can’t believe I have cancer and I am having to go through all of this” moments!!!! Feeling a bit low with all of this chemotherapy stuff, more doctor visits, side effects, up and down 🎢 emotions!! You guys get me. Right? Sometimes it is hard to be strong and positive!
I am having one of those “I can’t believe I have cancer and I am having to go through all of this” moments!!!! Feeling a bit low with all of this chemotherapy stuff, more doctor visits, side effects, up and down 🎢 emotions!! You guys get me. Right? Sometimes it is hard to be strong and positive!
Hotlantaphatz
in
SHARE Metastatic Breast Cancer
8 months ago
First SI, the pain, ouch!
Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I did my first IM injection into the thigh following a video by a UK GP. It hurt much less than the one I had done in the arm at a clinic 2 weeks ago (to check no allergic reaction) so I thought great, this is the way to go
Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I did my first IM injection into the thigh following a video by a UK GP. It hurt much less than the one I had done in the arm at a clinic 2 weeks ago (to check no allergic reaction) so I thought great, this is the way to go
Bertiepuss
in
Pernicious Anaemia Society
6 months ago
📢 Saturday October 14th Free Live HCC Workshop📢
Dive deep into critical healthcare topics with leading experts in the field! 🌟 Spotlight on Dr. Daneng Li: Spearheading the Liver Cancer Collaborative Program within the Department of Medical Oncology & Therapeutics Research at the City of Hope Comprehensive Cancer Center, Dr. Li's tireless efforts
Dive deep into critical healthcare topics with leading experts in the field! 🌟 Spotlight on Dr. Daneng Li: Spearheading the Liver Cancer Collaborative Program within the Department of Medical Oncology & Therapeutics Research at the City of Hope Comprehensive Cancer Center, Dr. Li's tireless efforts
MichelleL_BlueFaery
Editor
in
Blue Faery Liver Cancer
8 months ago
Movicol
Hi everyone I've recently been prescribed this medication due to severe constipation as a side effect of chemotherapy and all the associated drugs that go with it. I already suffer with chronic constipation so I take prucalopride , which now isn't effective alone 😔 my question is how many sachets do
Hi everyone I've recently been prescribed this medication due to severe constipation as a side effect of chemotherapy and all the associated drugs that go with it. I already suffer with chronic constipation so I take prucalopride , which now isn't effective alone 😔 my question is how many sachets do
Kazzacrazy
in
IBS Network
7 months ago
CT scan
I started on Ibrance and Anastrozole roughly in June 2023. Took it for 2 months and had to go off Ibrance for 5 weeks for surgery. Back on it for a month. Has a CT scan which showed more bone Mets and increased size. A node in lungs which was not seen on previous scan 6 months ago. Discouraged to think
I started on Ibrance and Anastrozole roughly in June 2023. Took it for 2 months and had to go off Ibrance for 5 weeks for surgery. Back on it for a month. Has a CT scan which showed more bone Mets and increased size. A node in lungs which was not seen on previous scan 6 months ago. Discouraged to think
mkrienke55
in
SHARE Metastatic Breast Cancer
8 months ago
horror surgery
so I’m 5 days past what was meant to be a “simple” hysterectomy. Oh no, 6 1:2 hrs and emergency surgery later to fit a stoma here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!? I can’t get my head round dealing with the stoma bag cleaning and
so I’m 5 days past what was meant to be a “simple” hysterectomy. Oh no, 6 1:2 hrs and emergency surgery later to fit a stoma here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!? I can’t get my head round dealing with the stoma bag cleaning and
MrsPaddingtonBear
in
Endometriosis UK
8 months ago
weird mouth symptoms on Sulfasalazine
Has anyone experienced anything like the following? I’ve been on Sulf for 7 weeks, max dose from 4 weeks. In the last 3 days I’ve had a sore tongue which has now settled but I’ve completely lost my sense of taste. I’ve tested and am negative for covid. I can’t think what else it could be!
Has anyone experienced anything like the following? I’ve been on Sulf for 7 weeks, max dose from 4 weeks. In the last 3 days I’ve had a sore tongue which has now settled but I’ve completely lost my sense of taste. I’ve tested and am negative for covid. I can’t think what else it could be!
Charlongo79
in
NRAS
6 months ago
Movicol/colonoscopy prep for IBS relief
Hi all, I have predominantly IBS-D but occasionally I have bouts of horrific IBS-C (I can go up to a week without any bowel movements). This is accompanied by horrific bloating/acid reflux and uncontrollable eggy gas. It can go from a few days to months. I’ve had to be signed off work before because
Hi all, I have predominantly IBS-D but occasionally I have bouts of horrific IBS-C (I can go up to a week without any bowel movements). This is accompanied by horrific bloating/acid reflux and uncontrollable eggy gas. It can go from a few days to months. I’ve had to be signed off work before because
Book_Worm5
in
IBS Network
6 months ago
Going round in circles
Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MODERATE CHRONIC INFLAMMATION. THERE IS MULTIFOCAL INTESTINAL METAPLASIA THROUGHOUT THESE BIOPSIES. THERE IS ALSO SEVERE GLANDULAR ATROPHY WITH NEUROENDOCRINE HYPERPLASIA. NO MUCOSAL ULCERATION OR ACTIVE INFAMMATION SEEN.
Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MODERATE CHRONIC INFLAMMATION. THERE IS MULTIFOCAL INTESTINAL METAPLASIA THROUGHOUT THESE BIOPSIES. THERE IS ALSO SEVERE GLANDULAR ATROPHY WITH NEUROENDOCRINE HYPERPLASIA. NO MUCOSAL ULCERATION OR ACTIVE INFAMMATION SEEN.
Helliborous
in
Pernicious Anaemia Society
6 months ago
Supplement Guidance
Hello all So after years of a tummy that reacted to certain foods, being diagnosed as gluten intolerant in 2016, really suffering in 2021 and 2022, following a FODMAP diet recommended by my doctor (don’t recommend) and getting to a point where I only ate the same plain things everyday, I finally paid
Hello all So after years of a tummy that reacted to certain foods, being diagnosed as gluten intolerant in 2016, really suffering in 2021 and 2022, following a FODMAP diet recommended by my doctor (don’t recommend) and getting to a point where I only ate the same plain things everyday, I finally paid
Kimsy17
in
IBS Network
6 months ago
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