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Just wanted to share my Primary Myelofibrosis journey so far…….
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
LFCLove
in
MPN Voice
3 months ago
MRI scanning could lead to major cut in prostate cancer deaths, finds UK study
Snippits: “The UK prostate cancer mortality rate is twice as high as in countries like the US or Spain because our levels of testing are much lower than other countries". “The well-known limitations of the old PSA-based screening studies of overdiagnosis and linked overtreatment are increasingly
Snippits: “The UK prostate cancer mortality rate is twice as high as in countries like the US or Spain because our levels of testing are much lower than other countries". “The well-known limitations of the old PSA-based screening studies of overdiagnosis and linked overtreatment are increasingly
PSAed
in
Advanced Prostate Cancer
9 months ago
Weird Scan Results
So I had my CT Chest and Abdomen scans today along with NM Bone scans as I do every 4 months. Started almost 2 years ago with liver lymph nodes, lung lesion, liver mets and bone (left femur, spine) mets. Today: Chest clear,liver lymph nodes long ago resolved, Indexed liver mets continue to shrink and
So I had my CT Chest and Abdomen scans today along with NM Bone scans as I do every 4 months. Started almost 2 years ago with liver lymph nodes, lung lesion, liver mets and bone (left femur, spine) mets. Today: Chest clear,liver lymph nodes long ago resolved, Indexed liver mets continue to shrink and
Trissh
in
SHARE Metastatic Breast Cancer
9 months ago
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Overdue Update
Hello everyone. I am not sure when I last posted my health situation but think it was mentioning abdominal pains and querying whether Hydroxycarbamide could be affecting my colon. I’ll try and keep this short. From midJune I suffered constant symptoms like IBS(D) . I already had been diagnosed with Diverticulosis
Hello everyone. I am not sure when I last posted my health situation but think it was mentioning abdominal pains and querying whether Hydroxycarbamide could be affecting my colon. I’ll try and keep this short. From midJune I suffered constant symptoms like IBS(D) . I already had been diagnosed with Diverticulosis
azaelea
in
MPN Voice
8 months ago
What cold med with Zoloft
Can anyone give me advice on what cold meds they use while on Zoloft? I have sinusitis and am used to taking Sudafed but just read that it may cause seratonin syndrome with Zoloft. What cold meds can I take with Zoloft? Thank you.
Can anyone give me advice on what cold meds they use while on Zoloft? I have sinusitis and am used to taking Sudafed but just read that it may cause seratonin syndrome with Zoloft. What cold meds can I take with Zoloft? Thank you.
Ley97
in
Anxiety and Depression Support
6 months ago
current state of Immuno therapy , how we got here and where we are going - Peter Attia
https://peterattiamd.com/keithflaherty2/?utm_source=podcast-email&utm_medium=email&utm_campaign=230821-pod-keithflaherty2&utm_content=230821-pod-keithflaherty2-email-nonsubs&mc_cid=a76876ebc7&mc_eid=ee5f4da697 Some great info about cancer at the cell level Current state of treatments for metastatic
https://peterattiamd.com/keithflaherty2/?utm_source=podcast-email&utm_medium=email&utm_campaign=230821-pod-keithflaherty2&utm_content=230821-pod-keithflaherty2-email-nonsubs&mc_cid=a76876ebc7&mc_eid=ee5f4da697 Some great info about cancer at the cell level Current state of treatments for metastatic
Scout4answers
in
Advanced Prostate Cancer
10 months ago
Cancer at the cell level Peter Attia
https://peterattiamd.com/keithflaherty2/?utm_source=podcast-email&utm_medium=email&utm_campaign=230821-pod-keithflaherty2&utm_content=230821-pod-keithflaherty2-email-nonsubs&mc_cid=a76876ebc7&mc_eid=ee5f4da697 Some great info about how we got here and where we are going Current state of treatments
https://peterattiamd.com/keithflaherty2/?utm_source=podcast-email&utm_medium=email&utm_campaign=230821-pod-keithflaherty2&utm_content=230821-pod-keithflaherty2-email-nonsubs&mc_cid=a76876ebc7&mc_eid=ee5f4da697 Some great info about how we got here and where we are going Current state of treatments
Scout4answers
in
Fight Prostate Cancer
10 months ago
Need help with vit levels and iron please
Hello again, Im posting my results on a separate page as suggested and hope I write this clearly as I really need your insights. A bit of history - I have Hashimoto, and started with Thyroid-S October end last year. Prior to this, I was on 100 mcg levo for 11 years with t3 always being low and just
Hello again, Im posting my results on a separate page as suggested and hope I write this clearly as I really need your insights. A bit of history - I have Hashimoto, and started with Thyroid-S October end last year. Prior to this, I was on 100 mcg levo for 11 years with t3 always being low and just
MiaMam
in
Thyroid UK
8 months ago
A Kinda Update.
As things stand I have finished my BCG treatment which it seems has failed. I visited my GP and she asked how I was - gave me a script for to wet my mouth and some Folic Acid. I mentioned so pain I have in ribs - not very bad but there,. She prodded my ribs and yes there was some (not bad pain).
As things stand I have finished my BCG treatment which it seems has failed. I visited my GP and she asked how I was - gave me a script for to wet my mouth and some Folic Acid. I mentioned so pain I have in ribs - not very bad but there,. She prodded my ribs and yes there was some (not bad pain).
Ern007
in
Lung Conditions Community Forum
10 months ago
im new to this only joined this lung cancer rollercoaster ride on Friday...........
Hi like the title says im new to this, never thought id be sharing info nor asking questions but here i am im 44 and my amazing mum who at age of 68 was diagnosed on fri (18th aug 2023) with Lung cancer so please forgive the terminology as its all new to me and also please forgive my
Hi like the title says im new to this, never thought id be sharing info nor asking questions but here i am im 44 and my amazing mum who at age of 68 was diagnosed on fri (18th aug 2023) with Lung cancer so please forgive the terminology as its all new to me and also please forgive my
booboo79
in
Lung Cancer Support
10 months ago
Does anyone know about immunotherapy?
My partner has been diagnosed with terminal bowel cancer and has liver cirrhosis child b, doctors say it's inoperable and chemo not an option, my partner has also suffered from undiagnosed cdiff for 8 months so is weak and lost lot of muscle mass. But nobody has mentioned immunotherapy to us and I don't
My partner has been diagnosed with terminal bowel cancer and has liver cirrhosis child b, doctors say it's inoperable and chemo not an option, my partner has also suffered from undiagnosed cdiff for 8 months so is weak and lost lot of muscle mass. But nobody has mentioned immunotherapy to us and I don't
123toyouto
in
Colon Cancer Connected
10 months ago
Hyperplasia
I have been diagnosed with mild diffuse atrophic gastritis and and prominent foveolar hyperplasia. Returned to GP and no further follow up. GP prescribed Gaviscon , symptoms settled but 11 months later are back. Does anyone know if it is necessary to have follow up gastroscopies. I have had PA
I have been diagnosed with mild diffuse atrophic gastritis and and prominent foveolar hyperplasia. Returned to GP and no further follow up. GP prescribed Gaviscon , symptoms settled but 11 months later are back. Does anyone know if it is necessary to have follow up gastroscopies. I have had PA
Helliborous
in
Pernicious Anaemia Society
8 months ago
any tips
I have the worse anxiety/ panic disorder that has restarted up in the last two weeks and the most severe it’s ever been. Any suggestions on what to do. I was recently prescribed lexapro have read horrible reviews and I have pharmaphobia and agoraphobia. Can this eventually go away without meds
I have the worse anxiety/ panic disorder that has restarted up in the last two weeks and the most severe it’s ever been. Any suggestions on what to do. I was recently prescribed lexapro have read horrible reviews and I have pharmaphobia and agoraphobia. Can this eventually go away without meds
Brycenkenz
in
Anxiety and Depression Support
6 months ago
unfinished business
I have been having very painful farts today and had 2 keep going loo just in case !!!! I have suffered with IBS&Diverticular Disease 4 the last 3/4 years had 2 colonoscopies in a month 6/7 polyps removed 1st time and 3/4 more the 2nd time so my bowel and body didn't fully recover in between given a FODMAP
I have been having very painful farts today and had 2 keep going loo just in case !!!! I have suffered with IBS&Diverticular Disease 4 the last 3/4 years had 2 colonoscopies in a month 6/7 polyps removed 1st time and 3/4 more the 2nd time so my bowel and body didn't fully recover in between given a FODMAP
bungi1961
in
Bowel Disease Support
9 months ago
EMDR therapy what is it and dose it help
I'm curious about EMDR therapy and if it's a direction I should go in?
I'm curious about EMDR therapy and if it's a direction I should go in?
LostNormality
in
Anxiety and Depression Support
3 months ago
bile ducts
I had a blood test few weeks back result was Alp 177and Alt 50. GP repeated them and they came back Alt 30, Alp 139 BUT GGT 105 which wasn’t tested previously. I paid to have an ultrasound scan which showed intrahepatic bile duct dilation of 3.6mm. Everything else was ok in terms of liver gall bladder
I had a blood test few weeks back result was Alp 177and Alt 50. GP repeated them and they came back Alt 30, Alp 139 BUT GGT 105 which wasn’t tested previously. I paid to have an ultrasound scan which showed intrahepatic bile duct dilation of 3.6mm. Everything else was ok in terms of liver gall bladder
Watersk
in
British Liver Trust
6 months ago
Orchiectomy
Anyone in this foum had an actual Orchiectomy?I have been thinking about having this done. I'm 78 and I'm or hormone therapy which in chemical castration (Orchiectomy)so why not do the actual thing. I'm not going to have any more children at my age and I will probably be on hormone therapy for the next
Anyone in this foum had an actual Orchiectomy?I have been thinking about having this done. I'm 78 and I'm or hormone therapy which in chemical castration (Orchiectomy)so why not do the actual thing. I'm not going to have any more children at my age and I will probably be on hormone therapy for the next
woppaginny
in
Advanced Prostate Cancer
10 months ago
Anyone experienced horrible insomnia as a side effect of Buspar?
I’m taking 7.5 mg 3x a day along with 10 mg of Lexapro which I take in the morning. Ive taken Lexapro before without it effecting my sleep drastically. I am desperate to figure out why I am waking up anywhere from 2-4 am and tossing and turning. It has been happening for one month which coincides with
I’m taking 7.5 mg 3x a day along with 10 mg of Lexapro which I take in the morning. Ive taken Lexapro before without it effecting my sleep drastically. I am desperate to figure out why I am waking up anywhere from 2-4 am and tossing and turning. It has been happening for one month which coincides with
Melly4
in
Anxiety and Depression Support
6 months ago
Omeprazole/Lansoprazole on methotrexate
Hi,I'm on 20mg mtx and 200mg hydroxy. I've been having some difficulties swallowing tablets the last 6 months or so plus acid reflux/ dyspepsia discomfort at night so saw GP recently. I've had an endoscopy today and have got a telephone call with said GP on Tuesday, although I doubt he'll have any results
Hi,I'm on 20mg mtx and 200mg hydroxy. I've been having some difficulties swallowing tablets the last 6 months or so plus acid reflux/ dyspepsia discomfort at night so saw GP recently. I've had an endoscopy today and have got a telephone call with said GP on Tuesday, although I doubt he'll have any results
Circledancer
in
NRAS
8 months ago
seeing as it’s nearly Halloween, here’s a horror story
Hello all, I bumped into an old friend in the supermarket that I hadn’t seen for a while and passed pleasantries, told him he was looking well (much better than when I had last seen him 2yrs prior). We were both in a hurry though so went on our separate ways. Today my brother told me that he too had
Hello all, I bumped into an old friend in the supermarket that I hadn’t seen for a while and passed pleasantries, told him he was looking well (much better than when I had last seen him 2yrs prior). We were both in a hurry though so went on our separate ways. Today my brother told me that he too had
EyesWideNow
in
Pernicious Anaemia Society
8 months ago
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