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Next NoSilverBullet Zoom Webinar on 13 May: Live interview of Dr M Okun on "Practical strategies for living a happier life with Parkinson's"
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7pm London time on Monday, the 13th of May. I will have the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7pm London time on Monday, the 13th of May. I will have the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide
Michel0220
in
Cure Parkinson's
2 months ago
Collagen for Hair Growth?
Hello everyone. My hair has got worse (thinning and brittle) since being on T3/T4 combination therapy so I've been looking at what makes hair healthy and collagen keeps popping up as good nutritional support. I've also discovered another reason could be that I've been taking too much selenium and perhaps
Hello everyone. My hair has got worse (thinning and brittle) since being on T3/T4 combination therapy so I've been looking at what makes hair healthy and collagen keeps popping up as good nutritional support. I've also discovered another reason could be that I've been taking too much selenium and perhaps
Piglet1956
in
Thyroid UK
1 year ago
Very interesting video on controversial issues regarding managing Parkinson’s at different stages (from 2 guys that seem smart).
Controversies in the Use of Medications, Herbs, and Early DBS for Parkinson's April 2024:
https://youtu.be/RhaUZFczGmc?si=R0Nb5tfh3jFnvZdg Movement Disorders Foundation of Arizona: Movement disorders neurologists Dr. Paarth Shah and Dr. Virgilio Gerald Evidente will be discussing in a panel discussion
Controversies in the Use of Medications, Herbs, and Early DBS for Parkinson's April 2024:
https://youtu.be/RhaUZFczGmc?si=R0Nb5tfh3jFnvZdg Movement Disorders Foundation of Arizona: Movement disorders neurologists Dr. Paarth Shah and Dr. Virgilio Gerald Evidente will be discussing in a panel discussion
Bolt_Upright
in
Cure Parkinson's
2 months ago
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Niacin
Hi there I had a Niacin flush on Jarrow b right vit bs so thought it might help if I swapped to Vitablossom hoping that might be better! But had flush again last night! Would anyone have a recommendation for good B vit’s without the Niacin.
Hi there I had a Niacin flush on Jarrow b right vit bs so thought it might help if I swapped to Vitablossom hoping that might be better! But had flush again last night! Would anyone have a recommendation for good B vit’s without the Niacin.
Doris11
in
Thyroid UK
1 year ago
apomorphine, anyone on this?
Hi all, was offered apomorphine with pump not injection. is anyone using this and has it made a difference i know everyone is different just trying to get a bit of perspective before i start it? been having issues with oral forms of medication either dyskinetic on or cant move off not much in the middle
Hi all, was offered apomorphine with pump not injection. is anyone using this and has it made a difference i know everyone is different just trying to get a bit of perspective before i start it? been having issues with oral forms of medication either dyskinetic on or cant move off not much in the middle
Todd-pw
in
Cure Parkinson's
2 months ago
Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
Severancered9
in
LUPUS UK
2 months ago
Meds not working well again
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
PDsux_10
in
Cure Parkinson's
2 months ago
New results confused
So following on from my previous post I now have my test results. TSH 1.64 Range 0.27-4.2 FT4 17.5 Range 12-22 FT 3.91 Range 3.1-6.8 T4 101 Range 59-154 TPOAb 109 Range Below 34 TgAB 420 Range Below 115 Folate 16.9 Range 8.83-45 My Creatinine is still high at 108 My eGFR is still low at
So following on from my previous post I now have my test results. TSH 1.64 Range 0.27-4.2 FT4 17.5 Range 12-22 FT 3.91 Range 3.1-6.8 T4 101 Range 59-154 TPOAb 109 Range Below 34 TgAB 420 Range Below 115 Folate 16.9 Range 8.83-45 My Creatinine is still high at 108 My eGFR is still low at
Cade83
in
Thyroid UK
1 year ago
Annual Medication Review
I would be very grateful if any of you lovely people can give me some advice. I have received a text from my GP surgery to book my annual medication review appointment, I can stretch this out for about 5/6 weeks if I need to. I was started on 50 mcg of Levothyroxine in December 2022 and had it increased
I would be very grateful if any of you lovely people can give me some advice. I have received a text from my GP surgery to book my annual medication review appointment, I can stretch this out for about 5/6 weeks if I need to. I was started on 50 mcg of Levothyroxine in December 2022 and had it increased
Karen234
in
Thyroid UK
1 year ago
Shingles jab refused, ( immune suppressed )
I was 64 ( Oct 2023 ) i inquired about the shingles jab, but was refused ???
I was 64 ( Oct 2023 ) i inquired about the shingles jab, but was refused ???
alast1959
in
NRAS
2 months ago
AFib after 2nd Shingles jab
I only occasionally get Afib now following an ablation in 2020, but I had my 2nd shingles jab 3 days ago and it seems to have kicked off my afib again albeit not constantly. I just wondered if anyone else has had the same effect from the 2nd jab (as it is supposedly worse than the 1st) or is it just
I only occasionally get Afib now following an ablation in 2020, but I had my 2nd shingles jab 3 days ago and it seems to have kicked off my afib again albeit not constantly. I just wondered if anyone else has had the same effect from the 2nd jab (as it is supposedly worse than the 1st) or is it just
destiny234
in
Atrial Fibrillation Support
2 months ago
deep brain stimulation
I am considering DBS. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
I am considering DBS. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
DonnaMc1968
in
Cure Parkinson's
2 months ago
Oh dear 😤
I’ve spent an annoying few weeks feeling dizzy, falling over, being sick and slurring my speech, feeling confused. No fuel in tank at all. BP spiking inexplicably. Still trying to get this sorted out at Primary Care Level as waiting list in secondary care in NW England is longer than my life expectancy
I’ve spent an annoying few weeks feeling dizzy, falling over, being sick and slurring my speech, feeling confused. No fuel in tank at all. BP spiking inexplicably. Still trying to get this sorted out at Primary Care Level as waiting list in secondary care in NW England is longer than my life expectancy
Hidden
in
Thyroid UK
1 year ago
Stopping meds before blood test
I'm just wondering what the latest info is regarding stopping meds? I normally take 1/2 my T3 12 hours prior and then I take my T4 and the other half of T3 after the test but I seem to recall someone on here telling me this was wrong? Also, how long to you need to be free of Biotin for? Thanks a lot
I'm just wondering what the latest info is regarding stopping meds? I normally take 1/2 my T3 12 hours prior and then I take my T4 and the other half of T3 after the test but I seem to recall someone on here telling me this was wrong? Also, how long to you need to be free of Biotin for? Thanks a lot
infomaniac
in
Thyroid UK
1 year ago
filgotinib and shingles,
hi everyone Just getting over last 2 weeks of awful shingles ,my god painful or what!! As I am on filgotinib and it lists side effect can be reactivation of shingles virus,I can only assume it is that.Has anyone else had shingles while on any of the JAK meds? Pharmacist prescribed antivirals within
hi everyone Just getting over last 2 weeks of awful shingles ,my god painful or what!! As I am on filgotinib and it lists side effect can be reactivation of shingles virus,I can only assume it is that.Has anyone else had shingles while on any of the JAK meds? Pharmacist prescribed antivirals within
Doodlereggie
in
NRAS
2 months ago
Biotin and FT4/FT3 testing
We have seen discussions about the effect of biotin on thyroid tests (TSH, FT4 and FT3). This paper has the singular advantage of concentrating on the results for a single person in particular circumstances. That means, we see the specific effects of the biotin on one assay but not on another. Very
We have seen discussions about the effect of biotin on thyroid tests (TSH, FT4 and FT3). This paper has the singular advantage of concentrating on the results for a single person in particular circumstances. That means, we see the specific effects of the biotin on one assay but not on another. Very
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Tingling
HiI have had three lots of brain surgery, the latest being a cranioplasty and clipping of an aneurysm. I am suffering with extreme tingling especialy down one side of my body. Has anybody else experienced this
HiI have had three lots of brain surgery, the latest being a cranioplasty and clipping of an aneurysm. I am suffering with extreme tingling especialy down one side of my body. Has anybody else experienced this
EHJF
in
Headway
9 months ago
Tremor Assessment
Has anyone had a tremor assessment prior to deep brain stimulation?
Has anyone had a tremor assessment prior to deep brain stimulation?
Ostap
in
Ataxia UK
3 months ago
DBS: Medtronic question re. voice
Hi everyone. As many of you know I had DBS last August. Didn’t reverse my symptoms 5 years as was touted by my neuro but patched me up to fight another couple of rounds. When I was switched on, after a day or so I noticed that it was much harder to speak: volume and articulacy were much harder to produce
Hi everyone. As many of you know I had DBS last August. Didn’t reverse my symptoms 5 years as was touted by my neuro but patched me up to fight another couple of rounds. When I was switched on, after a day or so I noticed that it was much harder to speak: volume and articulacy were much harder to produce
jeeves19
in
Cure Parkinson's
3 months ago
Feeling woefully undermedicated……
Hi everyone, A friendly nurse practitioner agreed to run some blood tests for me this week. I remain undiagnosed. I’ve been using Metavive since January and have been trying to switch over to Thyroid S for a couple of months. I’m finding it very difficult to increase my dose (unpleasant side effects
Hi everyone, A friendly nurse practitioner agreed to run some blood tests for me this week. I remain undiagnosed. I’ve been using Metavive since January and have been trying to switch over to Thyroid S for a couple of months. I’m finding it very difficult to increase my dose (unpleasant side effects
J972
in
Thyroid UK
1 year ago
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