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We The People Who Have Liver Disease...#OCAadcom2020
Dealing with agencies like the FDA can make you a little crazy. Lawyers and laws have turned life and death decision making into our version of the wailing wall. We come as supplicants to leave our prayers and we are told to stand silently while our fates are debated in secret. Sorry, this is long
Dealing with agencies like the FDA can make you a little crazy. Lawyers and laws have turned life and death decision making into our version of the wailing wall. We come as supplicants to leave our prayers and we are told to stand silently while our fates are debated in secret. Sorry, this is long
nash2
Partner
in
Living with Fatty Liver and NASH
4 years ago
AA or not?
I recently had a dexa scan and the results show I now have osteoporosis, after having osteopenia for some years. I have had pmrgca for five years and been taking predisolone reducing down now to 4mg pd. A few years ago I was prescribed alendronic acid, which I found difficult to take and also read that
I recently had a dexa scan and the results show I now have osteoporosis, after having osteopenia for some years. I have had pmrgca for five years and been taking predisolone reducing down now to 4mg pd. A few years ago I was prescribed alendronic acid, which I found difficult to take and also read that
DDKRM
in
PMRGCAuk
4 years ago
2 months of RLS and Alpha Lipoic Acid worked last night
I have been suffering for at least 2 months of restless leg. RLS has been something I have experienced off and on for the last 5-6 years but only a day or two. In the past, potassium and iron pills seemed to make it "go away" for awhile. Recently my RLS has been super bad. I think it is because I am
I have been suffering for at least 2 months of restless leg. RLS has been something I have experienced off and on for the last 5-6 years but only a day or two. In the past, potassium and iron pills seemed to make it "go away" for awhile. Recently my RLS has been super bad. I think it is because I am
beachgirl617
in
Restless Legs Syndrome
4 years ago
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Caprylic Acid - coconut oil.
New study below [1]. Caprylic Acid is one of the three 'goat' fatty acids (caproic, caprylic & capric, ). It is a saturated fat with an 8-carbon chain & is found in coconut oil at ~7% (the predominant fatty acid being lauric acid (~48%)). It is sold as a supplement for candida. It is also used as
New study below [1]. Caprylic Acid is one of the three 'goat' fatty acids (caproic, caprylic & capric, ). It is a saturated fat with an 8-carbon chain & is found in coconut oil at ~7% (the predominant fatty acid being lauric acid (~48%)). It is sold as a supplement for candida. It is also used as
pjoshea13
in
Advanced Prostate Cancer
4 years ago
How to cope?
My symptoms began truly way back at 8 year old, my first period landed me in hospital. I suffered massive traumas, abuses at the hands of several pervert men, abuses from parents, bullied etc... how i made it this far is beyond me. Edit: These abuses were in childhood and are for context that i suffered
My symptoms began truly way back at 8 year old, my first period landed me in hospital. I suffered massive traumas, abuses at the hands of several pervert men, abuses from parents, bullied etc... how i made it this far is beyond me. Edit: These abuses were in childhood and are for context that i suffered
Hidden
in
Endometriosis UK
4 years ago
In Pursuit Of Restful Sleep And Help For Nocturia
One topic that seems to come up regularly on this forum is the issue of poor sleep or insomnia and it seems very common in PWP so I thought I would try another experiment to see if I could improve on my current sleep regimen and if I could, I wanted to share that information here on the forum. On that
One topic that seems to come up regularly on this forum is the issue of poor sleep or insomnia and it seems very common in PWP so I thought I would try another experiment to see if I could improve on my current sleep regimen and if I could, I wanted to share that information here on the forum. On that
chartist
in
Cure Parkinson's
4 years ago
Does taking Urso cause some liver pain?
Liver specialist says I have PBC or Autoimmune Hepatitis. I am now on 1,000 mg of Ursodiol. My liver enzymes are very high but my liver had not been hurting for a while. Now that I am taking Urso I am feeling things in my liver. Is this normal? My hope is that the urso is working and my liver is adjusting
Liver specialist says I have PBC or Autoimmune Hepatitis. I am now on 1,000 mg of Ursodiol. My liver enzymes are very high but my liver had not been hurting for a while. Now that I am taking Urso I am feeling things in my liver. Is this normal? My hope is that the urso is working and my liver is adjusting
Basil707
in
PBC Foundation
4 years ago
Alendronic Acid and Adcal
Can we stop these at 5 mg if pred?
Can we stop these at 5 mg if pred?
Daffodilia
in
PMRGCAuk
4 years ago
Alendronic Acid?
I'm new here but not on the PMR forum! Yesterday I had the result of my first ever Dexa scan: -3.6 so Osteoporosis it is☹️. Shock, horror! I have all the risk factors: 1 year on Prednisolone (now on 5mg), female age 72, always lowish body weight ( now 58 kgs), but never had a fracture, lots of exercise
I'm new here but not on the PMR forum! Yesterday I had the result of my first ever Dexa scan: -3.6 so Osteoporosis it is☹️. Shock, horror! I have all the risk factors: 1 year on Prednisolone (now on 5mg), female age 72, always lowish body weight ( now 58 kgs), but never had a fracture, lots of exercise
Portobello
in
Bone Health and Osteoporosis UK
4 years ago
DEXA Scan results
I just had my third DEXA Scan results and I am delighted, after 4 years of Prednisalone for PMR and a recent high dose for GCA. The results are described as very encouraging and above average for my age! I had thought that Alendronic Acid would be inevitable this time! I urge everyone to seek a bone
I just had my third DEXA Scan results and I am delighted, after 4 years of Prednisalone for PMR and a recent high dose for GCA. The results are described as very encouraging and above average for my age! I had thought that Alendronic Acid would be inevitable this time! I urge everyone to seek a bone
SheffieldJane
in
PMRGCAuk
4 years ago
Time gap between Pneumonia & Influenza vaccines and Denosumab Injection. Is Denosumab & Zoledronic acid do harm to dental implantation.
Can my mother take Pneumonia vaccine (Pneumovax 23) and Influenza vaccine (Influgen 0.5 ml) seven days before taking Denosumab (Olimab - product of India) injection. She is taking this injection twice in a year i.e on 1st March and 1st September every year. My second question is should my mother go
Can my mother take Pneumonia vaccine (Pneumovax 23) and Influenza vaccine (Influgen 0.5 ml) seven days before taking Denosumab (Olimab - product of India) injection. She is taking this injection twice in a year i.e on 1st March and 1st September every year. My second question is should my mother go
smtkrgsl
in
Osteoporosis Support
4 years ago
Time gap between Pneumonia & Influenza vaccines and Denosumab Injection. Is Denosumab & Zoledronic acid do harm to dental implantation.
Can my mother take Pneumonia vaccine (Pneumovax 23) and Influenza vaccine (Influgen 0.5 ml) seven days before taking Denosumab (Olimab - product of India) injection. She is taking this injection twice in a year i.e on 1st March and 1st September every year. My second question is should my mother go
Can my mother take Pneumonia vaccine (Pneumovax 23) and Influenza vaccine (Influgen 0.5 ml) seven days before taking Denosumab (Olimab - product of India) injection. She is taking this injection twice in a year i.e on 1st March and 1st September every year. My second question is should my mother go
smtkrgsl
in
Bone Health and Osteoporosis UK
4 years ago
No sleep
Hi, I haven’t been on here for a while I suppose because I have been sleeping well and my anxiety has been ok, I’ve had a lot of problems at work and also family issues, this has triggered my anxiety to come back, so I’m reading the posts on here and trying to figure out how to settle my mind. To some
Hi, I haven’t been on here for a while I suppose because I have been sleeping well and my anxiety has been ok, I’ve had a lot of problems at work and also family issues, this has triggered my anxiety to come back, so I’m reading the posts on here and trying to figure out how to settle my mind. To some
ukpete
in
Anxiety and Depression Support
4 years ago
Fracture liason nurses.
Hi, a few members have mentioned speaking with their fracture liason nurses. I live in the UK and attend a bone clinic but have never been told of or heard of this kind of nurse. In the last week I have had yet another fracture this is my second in 9 weeks. I now have 6 in total, not on any treatment
Hi, a few members have mentioned speaking with their fracture liason nurses. I live in the UK and attend a bone clinic but have never been told of or heard of this kind of nurse. In the last week I have had yet another fracture this is my second in 9 weeks. I now have 6 in total, not on any treatment
Sunseaandsand
in
Bone Health and Osteoporosis UK
4 years ago
Help for Information on Terrosa
Hi Just had VC appt with Rheumatologist, I'm 56 have OP of spine unable to tolerate Zoledronic Acid or Tablets so have been given info on Terrosa with the follow up medication after 18mths of Prolia for some years after then that is it, so basically when I am 68yrs old no further treatment which even
Hi Just had VC appt with Rheumatologist, I'm 56 have OP of spine unable to tolerate Zoledronic Acid or Tablets so have been given info on Terrosa with the follow up medication after 18mths of Prolia for some years after then that is it, so basically when I am 68yrs old no further treatment which even
Charlie50
in
Bone Health and Osteoporosis UK
4 years ago
Its started again.....
Hello my lovely ladies, it's me again, .....so my last post was about 10 weeks ago, quick update, had vaginal bleeding last year due to Tamoxifen...., in January 2020 had hysteroscopy and womb biopsies done( all clear), thank god! Polyp was found 4cm, surgery was booked for February, cancelled because
Hello my lovely ladies, it's me again, .....so my last post was about 10 weeks ago, quick update, had vaginal bleeding last year due to Tamoxifen...., in January 2020 had hysteroscopy and womb biopsies done( all clear), thank god! Polyp was found 4cm, surgery was booked for February, cancelled because
Vgrady76
in
My Breast Cancer Community
4 years ago
Vertebral fractures
Hello everyone. I'm new here and am exploring help and advice for my 88 year old mum. Mum was diagnosed with RA about 6 years ago and has been taking Methotrexate for this. Mum was never able to come of prednisolone completely which she had to start when she was newly diagnosed and though her dose is
Hello everyone. I'm new here and am exploring help and advice for my 88 year old mum. Mum was diagnosed with RA about 6 years ago and has been taking Methotrexate for this. Mum was never able to come of prednisolone completely which she had to start when she was newly diagnosed and though her dose is
PaulaE
in
Bone Health and Osteoporosis UK
4 years ago
Is this too many drugs?! Prostap, Tibilone, Norethisterone, Tranexamic Acid, Mirena Coil
I'm so worried. I had a mirena coil fit in March, to help stop heavy periods. I have bled every single day since. The GP wouldn't remove it, as I hadn't given it enough time. Instead I ended up taking 9 Norethisterone a day (usually you take 3). Then I ended up in hospital because I couldn't handle the
I'm so worried. I had a mirena coil fit in March, to help stop heavy periods. I have bled every single day since. The GP wouldn't remove it, as I hadn't given it enough time. Instead I ended up taking 9 Norethisterone a day (usually you take 3). Then I ended up in hospital because I couldn't handle the
Mrsb1987
in
Endometriosis UK
4 years ago
Niacinamide?
I have b12 deficiency and possibly epi (no diagnoses have been made) and I ordered some multi minerals and vits for daily use along with oregano oil to take with caprylic acid for a three week treatment that may help with fungal or other infections - i also ordered niacinamide but for the life of me
I have b12 deficiency and possibly epi (no diagnoses have been made) and I ordered some multi minerals and vits for daily use along with oregano oil to take with caprylic acid for a three week treatment that may help with fungal or other infections - i also ordered niacinamide but for the life of me
Luac
in
Pernicious Anaemia Society
4 years ago
Strange Development
Good morning all, it's a lovely day on Englands south coast and the sun is shining. Getting to my question, I need advice please. Newly diagnosed in early May with PMR. Put on Pred 15mg all symptoms and pain disappeared the following day. Felt great and after 3 weeks tapered to 12.5mg. No issues. Further
Good morning all, it's a lovely day on Englands south coast and the sun is shining. Getting to my question, I need advice please. Newly diagnosed in early May with PMR. Put on Pred 15mg all symptoms and pain disappeared the following day. Felt great and after 3 weeks tapered to 12.5mg. No issues. Further
Gunflash
in
PMRGCAuk
4 years ago
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