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Does ADT work for Gleason 9?
About to start ADT for Gleason 9 (5+4) for locally advanced prostate cancer, followed by IMRT in 1-2 months. (Plan to ask about HDR boost). PSMA Pet negative for spread but MO had another radiologist look at initial prostate MRI suggests extracapsular extension along neurovascular bundle with possible
About to start ADT for Gleason 9 (5+4) for locally advanced prostate cancer, followed by IMRT in 1-2 months. (Plan to ask about HDR boost). PSMA Pet negative for spread but MO had another radiologist look at initial prostate MRI suggests extracapsular extension along neurovascular bundle with possible
Hope49823
in
Advanced Prostate Cancer
6 months ago
Prostate cancer treatment and IBS
Dear Friends and Sufferers! I've been diagnosed with prostate cancer and have the option of removing the prostate or radiotherapy with or without hormone treatment. Can anyone out there who has experience of these offer advise on their impact on IBS and bowel function? At the moment, I've got IBS looseness
Dear Friends and Sufferers! I've been diagnosed with prostate cancer and have the option of removing the prostate or radiotherapy with or without hormone treatment. Can anyone out there who has experience of these offer advise on their impact on IBS and bowel function? At the moment, I've got IBS looseness
merve1
in
IBS Network
7 months ago
Soy concerns
Hi, I have been focusing on the nutrition posts to improve my diet as I have osteopenia. I am reading a lot of posts and articles saying to incorporate soy. I stay away from soy because of breast cancer risks. I don't have breast cancer but avoid any estrogen enhancing products/medication like hormone
Hi, I have been focusing on the nutrition posts to improve my diet as I have osteopenia. I am reading a lot of posts and articles saying to incorporate soy. I stay away from soy because of breast cancer risks. I don't have breast cancer but avoid any estrogen enhancing products/medication like hormone
Truth-seeker1951
in
Bone Health and Osteoporosis UK
7 months ago
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My treatment decisions
I want to thank this forum for men helping other men. I will list my experience in the hope it may help others. I especially want to thank Tall-Allen, whose advice and work on this forum is, to me, a truly meaningful endeavor, and when all is said and done, this is what life is about. I was diagnosed
I want to thank this forum for men helping other men. I will list my experience in the hope it may help others. I especially want to thank Tall-Allen, whose advice and work on this forum is, to me, a truly meaningful endeavor, and when all is said and done, this is what life is about. I was diagnosed
drzaius
in
Prostate Cancer Network
4 months ago
Oxygen therapy for migraines?
A friend, who was successfully treated with inhaled oxygen for debilitating cluster headaches, recommended I look into this. I have read that oxygen therapy can be helpful in the event of a migraine attack, but that the best quality, controlled studies demonstrate no benefit compared with placebo.
A friend, who was successfully treated with inhaled oxygen for debilitating cluster headaches, recommended I look into this. I have read that oxygen therapy can be helpful in the event of a migraine attack, but that the best quality, controlled studies demonstrate no benefit compared with placebo.
bennevisplace
in
National Migraine Centre
11 months ago
hypertension due to Lupron and Zytega
I was diagnosed in 2018 psa 87 Gleason 9 3 Mets low burden invasion to Vesicles Imrt radiation that caused calcification damage to bladder neck that has been resolved by hbot . I’m still have frequent urination at nigh due to thickening of bladder wall. I use top doctor vascular surgeon at penn
I was diagnosed in 2018 psa 87 Gleason 9 3 Mets low burden invasion to Vesicles Imrt radiation that caused calcification damage to bladder neck that has been resolved by hbot . I’m still have frequent urination at nigh due to thickening of bladder wall. I use top doctor vascular surgeon at penn
fredyworks
in
Advanced Prostate Cancer
4 months ago
Should I have a hysterectomy?
The short version is that I have adenomyosis, but it is well enough managed on zoladex/Tibolone that I'm not having any significant pain and not bleeding enough that it is a problem, but I do have lots of more minor issues and my consultant thinks a hysterectomy would be better. I've got the op booked
The short version is that I have adenomyosis, but it is well enough managed on zoladex/Tibolone that I'm not having any significant pain and not bleeding enough that it is a problem, but I do have lots of more minor issues and my consultant thinks a hysterectomy would be better. I've got the op booked
mavenmi
in
Menopause and Perimenopause Support
7 months ago
Targeted therapy drugs
I am interested in people who have taken Zanubrutinib. Did you half to go through a lot of hassle getting the drug? How many preliminary’s are involved before they say OK? I am interested in the stories of individuals that have taken the drug.
I am interested in people who have taken Zanubrutinib. Did you half to go through a lot of hassle getting the drug? How many preliminary’s are involved before they say OK? I am interested in the stories of individuals that have taken the drug.
Tupelomojo
in
CLL Support
11 months ago
The importance of training your legs (if you can, of course)
Engaging in fitness activities is considered a standard of care (SOC) for many cancer patients, not only because it enhances overall health but also due to the chemical interactions between muscles and cancer cells. Comprehensive body training is essential, with an emphasis on targeting the body's largest
Engaging in fitness activities is considered a standard of care (SOC) for many cancer patients, not only because it enhances overall health but also due to the chemical interactions between muscles and cancer cells. Comprehensive body training is essential, with an emphasis on targeting the body's largest
Maxone73
in
Advanced Prostate Cancer
7 months ago
subclinical - do I need levo?
I have been borderline Subclinical hypothyroidism for around 10 years. The GP put me on levothyroxine 2013, I took a low dose for a month or two but couldn’t tolerate it (palpitations), so I stopped. I was referred to Endo who did a check on my antibodies - was clear. Every year, my tsh was either just
I have been borderline Subclinical hypothyroidism for around 10 years. The GP put me on levothyroxine 2013, I took a low dose for a month or two but couldn’t tolerate it (palpitations), so I stopped. I was referred to Endo who did a check on my antibodies - was clear. Every year, my tsh was either just
Rambler16
in
Thyroid UK
7 months ago
Locally Advanced PC - should I accept offer of docetaxel?
Hi I'm UK based, new to Health Unlocked and just starting to get to grips with the chats. I was diagnosed August '23 with locally advanced PV. Spread has occurred to a seminal vesicle and, very slightly, to a pelvic lymph node (Oncologist called it 'subtle') Gleason of 4+5. I immediately embarked
Hi I'm UK based, new to Health Unlocked and just starting to get to grips with the chats. I was diagnosed August '23 with locally advanced PV. Spread has occurred to a seminal vesicle and, very slightly, to a pelvic lymph node (Oncologist called it 'subtle') Gleason of 4+5. I immediately embarked
TsarskoMomche
in
Advanced Prostate Cancer
7 months ago
restricted urinary flow
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
kainasar
in
Fight Prostate Cancer
6 months ago
Androstenedione & Frailty
New study from Spain [1]. For many years, I used a product that probably contained DES (diethylstilbestrol) - perhaps 1 mg? My QoL was very good. When I eventually migrated to 3 mg DES - plus a shot of testosterone cypionate every 3 months - I began to feel frail. The new study associates high
New study from Spain [1]. For many years, I used a product that probably contained DES (diethylstilbestrol) - perhaps 1 mg? My QoL was very good. When I eventually migrated to 3 mg DES - plus a shot of testosterone cypionate every 3 months - I began to feel frail. The new study associates high
pca2004
in
Fight Prostate Cancer
7 months ago
hormonnes .. are they ok or not
have been unwel for over 4 years now I have fibromyalgia since 2014 which I managed fine until 4/5 years ago became increased unwel daily .. have had to leave my job now due to ill health … recently had health check to see if could help as GP kept saying all in my head … results for Hormonnes were as
have been unwel for over 4 years now I have fibromyalgia since 2014 which I managed fine until 4/5 years ago became increased unwel daily .. have had to leave my job now due to ill health … recently had health check to see if could help as GP kept saying all in my head … results for Hormonnes were as
kes2008
in
Menopause and Perimenopause Support
7 months ago
Speechless by my GP’s response
I messaged my GP surgery and requested a full thyroid blood test (not just TSH which is all I’ve been able to get since COVID) as well as iron, vits B and D tests. I’ve been feeling really rotten, and want to look at every potential reason. Now, bear in mind I have been on HRT (prescribed by them) for
I messaged my GP surgery and requested a full thyroid blood test (not just TSH which is all I’ve been able to get since COVID) as well as iron, vits B and D tests. I’ve been feeling really rotten, and want to look at every potential reason. Now, bear in mind I have been on HRT (prescribed by them) for
Partiallythere
in
Thyroid UK
7 months ago
Where do I go for alternative to continuous ADT?
I am 63 yrs old and was diagnosed in March '23 with mHSPC, w/ multiple mets in lungs, bones and lymph glands. Began triplet therapy in April: Eligard shot every 3 months, Nubequa daily, and 6 rounds of docetaxel. SE's have been mild. I want to an alternative to continuous ADT, whether its IADT, BAT
I am 63 yrs old and was diagnosed in March '23 with mHSPC, w/ multiple mets in lungs, bones and lymph glands. Began triplet therapy in April: Eligard shot every 3 months, Nubequa daily, and 6 rounds of docetaxel. SE's have been mild. I want to an alternative to continuous ADT, whether its IADT, BAT
Forest1160
in
Fight Prostate Cancer
7 months ago
Does HRT cause weight gain?
Did you gain any weight when you talk HRT? I'm very concerned about this as I've read several reviews of people saying that they did and I haven't eaten disorder so that kind of thing terrifies me.
Did you gain any weight when you talk HRT? I'm very concerned about this as I've read several reviews of people saying that they did and I haven't eaten disorder so that kind of thing terrifies me.
Hidden
in
Women's Health
7 months ago
Does HRT cause weight gain?
Did you gain weight on your HRT? I'm worried about this and have read reviews of many people that gained a lot of weight on it so I'm very scared yes I haven't eating disorder say that kind of thing scares me.
Did you gain weight on your HRT? I'm worried about this and have read reviews of many people that gained a lot of weight on it so I'm very scared yes I haven't eating disorder say that kind of thing scares me.
Hidden
in
Menopause and Perimenopause Support
7 months ago
If feel a bit daft asking this here - but a very high DEXA score?
I had an ankle scan years ago as part of a work "well woman clinic" and was told I was borderline oestopenia Then as I had my ovaries out because of cysts I had a private dexa scan as a baseline for making decisions about hrt etc My results seemed a bit 'off' but everyone says oh it's fine (it probably
I had an ankle scan years ago as part of a work "well woman clinic" and was told I was borderline oestopenia Then as I had my ovaries out because of cysts I had a private dexa scan as a baseline for making decisions about hrt etc My results seemed a bit 'off' but everyone says oh it's fine (it probably
KatyMac68
in
Bone Health and Osteoporosis UK
7 months ago
HRT for ibs
Hi keep suffering with emergency toilet problems in morning sometimes comes on so quickly don't make it so fed up ruling life think it could be perimenopause as 53 now got worse over last year feeling like carnt cope much more trying to hold down job and my horses and feeling like giving up everything
Hi keep suffering with emergency toilet problems in morning sometimes comes on so quickly don't make it so fed up ruling life think it could be perimenopause as 53 now got worse over last year feeling like carnt cope much more trying to hold down job and my horses and feeling like giving up everything
Star_1
in
IBS Network
7 months ago
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