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Autologous stem cell transplant
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Emotional support?
Hi I’m a living donor for my mother for a kidney transplant which is scheduled in five weeks. I am really struggling with methods of support and understanding. It has been an extremely isolating experience for me and I would love to also be able to help others who are having emotional struggles throughout
Hi I’m a living donor for my mother for a kidney transplant which is scheduled in five weeks. I am really struggling with methods of support and understanding. It has been an extremely isolating experience for me and I would love to also be able to help others who are having emotional struggles throughout
1879sandyhook
in
Kidney Donation
5 years ago
Be Well Be Strong Be Positive
Hi all. I had my first Ablation back in May 2018 unfortunately didn't work. Back in June 2018. Had AF since 1998. Unfortunately it's back, heading for my 3 pacemaker in 8 years. Getter closer to a Heart Transplant every month. My favourite saying is I can't die yet, I haven't annoyed enough people
Hi all. I had my first Ablation back in May 2018 unfortunately didn't work. Back in June 2018. Had AF since 1998. Unfortunately it's back, heading for my 3 pacemaker in 8 years. Getter closer to a Heart Transplant every month. My favourite saying is I can't die yet, I haven't annoyed enough people
Tassiebeef
in
AF Association
5 years ago
Enzalutamide [Xtandi] & altered sense of Taste
New study below [1]. We herein report two cases of enzalutamide-induced dysgeusia successfully treated by changing the timing of drug intake from morning intake to just before sleep. -Patrick [1] https://www.ncbi.nlm.nih.gov/pubmed/31543773 Case Rep Oncol. 2019 Aug 6;12(2):589-594. doi: 10.1159/000502054
New study below [1]. We herein report two cases of enzalutamide-induced dysgeusia successfully treated by changing the timing of drug intake from morning intake to just before sleep. -Patrick [1] https://www.ncbi.nlm.nih.gov/pubmed/31543773 Case Rep Oncol. 2019 Aug 6;12(2):589-594. doi: 10.1159/000502054
pjoshea13
in
Advanced Prostate Cancer
5 years ago
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2 months post kidney transplant
Hello everyone! I am a new member here and was really happy to found this group. I am 27 years old and of my kidneys failed due to HSP (Henoch Schonlein Purpura) April of last year. I was on hemodialysis for a over year and I am super blessed to received a call from my Transplant Center back in July
Hello everyone! I am a new member here and was really happy to found this group. I am 27 years old and of my kidneys failed due to HSP (Henoch Schonlein Purpura) April of last year. I was on hemodialysis for a over year and I am super blessed to received a call from my Transplant Center back in July
Trouper
in
Kidney Transplant Patient Support
5 years ago
Go appointment for liver damage
Well got my husband to have a blood test and he got a phone call for an immediate doctors appointment. He has advanced cirrhosis and ascites but will not give up drinking and does not want a liver transplant. What can I get his doctor to do for him? He has an appointment already next week with the consultant
Well got my husband to have a blood test and he got a phone call for an immediate doctors appointment. He has advanced cirrhosis and ascites but will not give up drinking and does not want a liver transplant. What can I get his doctor to do for him? He has an appointment already next week with the consultant
Dizzie14
in
British Liver Trust
5 years ago
Kidney transplant patient
Hi I just received my blood test results. All good but I notice my platelet count is down from 250 to 180. Still within safe levels. Should I be concerned Normal levels are 150 to 450
Hi I just received my blood test results. All good but I notice my platelet count is down from 250 to 180. Still within safe levels. Should I be concerned Normal levels are 150 to 450
Roadrunner1954
in
Kidney Transplant Patient Support
5 years ago
Troponin levels elevated
Hi all. I am new here and might need guidance where to post. My back ground is... diagnosed with leukaemia last year, had aggressive chemo and a stem cell transplant. Today I saw a cardiology doctor... which Is why I am now posting here. My heart has aged due to my treatment. Echo heart test was ok
Hi all. I am new here and might need guidance where to post. My back ground is... diagnosed with leukaemia last year, had aggressive chemo and a stem cell transplant. Today I saw a cardiology doctor... which Is why I am now posting here. My heart has aged due to my treatment. Echo heart test was ok
Jalola
in
British Heart Foundation
5 years ago
And so it begins!
Well here we go I am just beginning the tests to qualify for a Liver transplant under the VA system. It does not guarantee you a liver and you must still wait till you are at or near the top of the list, But it does determine if the VA will consider you for a transplant.
Well here we go I am just beginning the tests to qualify for a Liver transplant under the VA system. It does not guarantee you a liver and you must still wait till you are at or near the top of the list, But it does determine if the VA will consider you for a transplant.
utep99
in
Living with Fatty Liver and NASH
5 years ago
Bone Marrow Transplant.
Hello fam! Im looking for info from anyone who has had a bone marrow transplant! Provided I have a viable doner I’m in line to get one. Not going to lie I’ve got all types of mixed emotions! The tough part is being told this procedure will take 3 months to complete. I will have to travel to Boston
Hello fam! Im looking for info from anyone who has had a bone marrow transplant! Provided I have a viable doner I’m in line to get one. Not going to lie I’ve got all types of mixed emotions! The tough part is being told this procedure will take 3 months to complete. I will have to travel to Boston
Seifert_09
in
AMN EASIER
5 years ago
Parents Advisory Board
bluebird bio plans to host a caregiver advisory board on November 7th in advance of the ALD Connect meeting in Waltham, MA. bluebird is looking for 6-8 caregivers of boys with ALD who have received allogeneic hematopoietic stem cell transplant (allo-HSCT) to gain insight and better understanding into
bluebird bio plans to host a caregiver advisory board on November 7th in advance of the ALD Connect meeting in Waltham, MA. bluebird is looking for 6-8 caregivers of boys with ALD who have received allogeneic hematopoietic stem cell transplant (allo-HSCT) to gain insight and better understanding into
fightald
Administrator
in
Parents of ALD Newborns
5 years ago
Post liver transplant NASH ???
Hi new person - husband has had liver transplant 2014 - now been diagnosed with F4 fibrosis ??? NASH/NAFLD - we cant seem to get a proper diagnosis - liver bloods ok but fibroscan was 16kpa and had liver biopsy shower no graft rejection but FVR??? 4 and something else I can’t remember - doesn’t drink
Hi new person - husband has had liver transplant 2014 - now been diagnosed with F4 fibrosis ??? NASH/NAFLD - we cant seem to get a proper diagnosis - liver bloods ok but fibroscan was 16kpa and had liver biopsy shower no graft rejection but FVR??? 4 and something else I can’t remember - doesn’t drink
cherrygirl13
in
Living with Fatty Liver and NASH
5 years ago
What are the-major-findings-of-the-united-kingdom-prospective-Diabetes-study-ukpds??
UKPDS has been conducting studies on Diabetes since 1977 and during last 42 years they have generated 93 original research papers based upon their trial studies on large number of Diabetes. It is a Bible on diabetes .. giving below few links.....the first link gives the brief summary ... and the second
UKPDS has been conducting studies on Diabetes since 1977 and during last 42 years they have generated 93 original research papers based upon their trial studies on large number of Diabetes. It is a Bible on diabetes .. giving below few links.....the first link gives the brief summary ... and the second
namaha
Administrator
in
Diabetes India
5 years ago
A little change on the forums
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
Realfoodieclub
Marathon
in
Fun Beyond 10K & Race Support
5 years ago
A little change on the forums
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
Realfoodieclub
Graduate
in
Couch to 5K
5 years ago
A little change in the forums
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
Realfoodieclub
Graduate10
in
Bridge to 10K
5 years ago
A little change on the forums
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
Realfoodieclub
in
Strength & Flex
5 years ago
A little change to the forum.
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
Realfoodieclub
in
Active 10
5 years ago
stage 4 ckd and decompensated end stage cirrhosis with ascites
Hi I'm Sharon/60/Massachusetts USA I was dx'd with end stage cirrhosis 2 years ago and have since been diagnosed with stage 4 chronic kidney disease, I also have primary fibromyalgia with rheumatoid arthritis and hyperparathyroidism. I am getting close to having to make a decision about dialysis, I
Hi I'm Sharon/60/Massachusetts USA I was dx'd with end stage cirrhosis 2 years ago and have since been diagnosed with stage 4 chronic kidney disease, I also have primary fibromyalgia with rheumatoid arthritis and hyperparathyroidism. I am getting close to having to make a decision about dialysis, I
Cape_Cod_Sharon
in
Kidney Disease
5 years ago
Post Kidney Transplant patient
Hi I'm a post transplant kidney paitent. Just attempted the 1st run...anyone out there with tips really struggling!
Hi I'm a post transplant kidney paitent. Just attempted the 1st run...anyone out there with tips really struggling!
rkoking
in
Couch to 5K
5 years ago
New Here!
Even though I joined in May, it appears as though I didn’t introduce myself. I just turned 67 and found out I had something going on with my liver via a CT scan. I am a heart patient, in heart failure (with an artificial mitral valve, pacemaker and defibrillator). Diagnosed with heart problem when I
Even though I joined in May, it appears as though I didn’t introduce myself. I just turned 67 and found out I had something going on with my liver via a CT scan. I am a heart patient, in heart failure (with an artificial mitral valve, pacemaker and defibrillator). Diagnosed with heart problem when I
Bluegirl52
in
Living with Fatty Liver and NASH
5 years ago
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