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Afib and PE
Hi I have already felt supported and informed by this group and wanted to share my experience in the hope I can continue to learn about my recent diagnoses. I am 67 and other than having COPD was in reasonable health even though I am a bit overweight and probably drink more wine than is good for me
Hi I have already felt supported and informed by this group and wanted to share my experience in the hope I can continue to learn about my recent diagnoses. I am 67 and other than having COPD was in reasonable health even though I am a bit overweight and probably drink more wine than is good for me
RockingRoxy
in
Atrial Fibrillation Support
1 month ago
Parkinson's wife
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
veronicacoath
in
Cure Parkinson's
6 months ago
PBC - liver transplant donors and blood group questions
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Cascade35
in
PBC Foundation
6 months ago
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Elevated LDH
Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago. He has been in watch and wait. We just met with his oncologist. His other blood counts are relatively stable, just increasing at a low rate. But his LDH has steadily increased the last 3 tests and is elevated. His oncologist
Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago. He has been in watch and wait. We just met with his oncologist. His other blood counts are relatively stable, just increasing at a low rate. But his LDH has steadily increased the last 3 tests and is elevated. His oncologist
leahleah
in
CLL Support
6 months ago
Home Oxygen Therapy
I don't recall seeing this mentioned on here but was wondering if anyone had experiences of being discharged home with Oxygen after an ICU stay. I'm a month out of hospital (after a total stay of 8 months). I was discharged with a CPAP machine for OSA and prescribed 1l of oxygen at night whilst in the
I don't recall seeing this mentioned on here but was wondering if anyone had experiences of being discharged home with Oxygen after an ICU stay. I'm a month out of hospital (after a total stay of 8 months). I was discharged with a CPAP machine for OSA and prescribed 1l of oxygen at night whilst in the
CCXLI
in
ICUsteps
1 month ago
Treatment Update IMRT with ADT 18 months later
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Mischa1111111
in
Advanced Prostate Cancer
6 months ago
Apple watch and Kardia questions
I saw my cardiologist yesterday and we have agree although no AF yet (maybe A flutter) on 24hr ECG getting a watch and maybe a kardia is a good idea. I am planning to buy the watch and the local apple shop ( Edinburgh UK) and wanted to ask a few questions before hand. Ive read some on what the watch
I saw my cardiologist yesterday and we have agree although no AF yet (maybe A flutter) on 24hr ECG getting a watch and maybe a kardia is a good idea. I am planning to buy the watch and the local apple shop ( Edinburgh UK) and wanted to ask a few questions before hand. Ive read some on what the watch
ainslie
in
Atrial Fibrillation Support
1 month ago
cardioversion
hi, I had my first Cardioversion at St Richards Chichester on 11th March. (First diagnosed early January but probably been in AF since Sept) It worked initially but reverted to AF very shortly after. Since watching the very helpful video interview on this site with Prof Gupta, now realise that most revert
hi, I had my first Cardioversion at St Richards Chichester on 11th March. (First diagnosed early January but probably been in AF since Sept) It worked initially but reverted to AF very shortly after. Since watching the very helpful video interview on this site with Prof Gupta, now realise that most revert
Ongreendolphinstreet
in
Atrial Fibrillation Support
1 month ago
Heart problems
Has anybody else experienced heart problems with an MPN?I have been having heart palpitations and more severe breathlessness than usual for about 6 months. An x-ray showed an enlarged heart and I've been awaiting the results of an echocardiogram since January, but repeated calls to the hospital and
Has anybody else experienced heart problems with an MPN?I have been having heart palpitations and more severe breathlessness than usual for about 6 months. An x-ray showed an enlarged heart and I've been awaiting the results of an echocardiogram since January, but repeated calls to the hospital and
JP1952
in
MPN Voice
1 month ago
Vacation from Lupron/Zytiga - Temporary or Permanent!
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
groth12345
in
Advanced Prostate Cancer
6 months ago
COVID
I just tested positive for COVID for the first time. I am 67 with Afib/flutter, Inappropriate SinnTschycardia,, I take 25 mg of Metoprolol and -25 mg of klonopin for anxiety. I take 81 mg of aspirin. I have the Atriclip that occluded my left atrial appendage, as I had a near fatal hemorrhage with Eliquis
I just tested positive for COVID for the first time. I am 67 with Afib/flutter, Inappropriate SinnTschycardia,, I take 25 mg of Metoprolol and -25 mg of klonopin for anxiety. I take 81 mg of aspirin. I have the Atriclip that occluded my left atrial appendage, as I had a near fatal hemorrhage with Eliquis
KatzFib
in
Atrial Fibrillation Support
1 month ago
Looking for feedback regarding Asymptomatic Afib
I'm fairly new to this forum and I already feel at home. It's very refreshing to find an online community whose members are so kind, understanding and generous. By way of introduction, I'm a 69-year-old male living in Connecticut. My Afib history is as follows: Diagnosed with Afib by PCP - 8/9/
I'm fairly new to this forum and I already feel at home. It's very refreshing to find an online community whose members are so kind, understanding and generous. By way of introduction, I'm a 69-year-old male living in Connecticut. My Afib history is as follows: Diagnosed with Afib by PCP - 8/9/
DrBook
in
Atrial Fibrillation Support
1 month ago
My brother has advanced Prostate Cancer
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
rasher1
in
Advanced Prostate Cancer
6 months ago
Starting Abiraterone and predniSONE
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
dac500
in
Advanced Prostate Cancer
6 months ago
weight loss wehovy and AF medication
Started to post and it’s got very long and I mentioned this in that post but I thought I’d make a separate post. I am in atrial fibrillation in the other post. I talk about my age of my weight but this is a specific thing I’m back in atrial fibrillation after 12 weeks of being in normal rhythm. After
Started to post and it’s got very long and I mentioned this in that post but I thought I’d make a separate post. I am in atrial fibrillation in the other post. I talk about my age of my weight but this is a specific thing I’m back in atrial fibrillation after 12 weeks of being in normal rhythm. After
Mightnot
in
Atrial Fibrillation Support
2 months ago
Legal Advice?
Hi All, Although this post is not MS-related, I wanted to reach out to my MSAA Community for their input. Perhaps someone here can point me in the right direction, as I don't really have the money to hire an attorney. Unfortunately, this situation doesn't lend itself to any "free advice and/or attorneys
Hi All, Although this post is not MS-related, I wanted to reach out to my MSAA Community for their input. Perhaps someone here can point me in the right direction, as I don't really have the money to hire an attorney. Unfortunately, this situation doesn't lend itself to any "free advice and/or attorneys
DM0329
in
My MSAA Community
6 months ago
Lopressor
After unsuccessful Cardioversion to convert back into NSR was diagnosed with permanent afib taken off of Multaq. Lopressor increased from 25 to 100 am and 50 pm. Also on Eliquis. Vision is blurred and very unsteady gait. Hr around 100-115 (was 60 when in NSR) Can I cut back on Lopressor and see
After unsuccessful Cardioversion to convert back into NSR was diagnosed with permanent afib taken off of Multaq. Lopressor increased from 25 to 100 am and 50 pm. Also on Eliquis. Vision is blurred and very unsteady gait. Hr around 100-115 (was 60 when in NSR) Can I cut back on Lopressor and see
farewelltoarms
in
Atrial Fibrillation Support
2 months ago
Research Lounge FREE Online Event: Does knowledge of liver scarring affect drinking behaviour?
Does knowing the effects of alcohol on your liver change your drinking?
Researchers have been looking at how people's drinking behaviours may change when they know that alcohol is damaging their liver. They have some interesting and thought-provoking results to share with you on:
Wednesday
Does knowing the effects of alcohol on your liver change your drinking?
Researchers have been looking at how people's drinking behaviours may change when they know that alcohol is damaging their liver. They have some interesting and thought-provoking results to share with you on:
Wednesday
BritishLiverTrust1
Partner
in
British Liver Trust
6 months ago
Multiple mechanisms to clear a-synuclein with natural substances (in mice).
For informational purposes only Alpha Synuclein 1. INTRODUCTION: There are no effective treatments nor drugs available to modify disease progression
For informational purposes only Alpha Synuclein 1. INTRODUCTION: There are no effective treatments nor drugs available to modify disease progression
House2
in
Cure Parkinson's
6 months ago
Scientists have discovered a new cause of Parkinsons disease
https://scitechdaily.com/scientists-have-discovered-a-new-cause-of-parkinsons-disease/ A major discovery sheds light on the underlying mechanisms of Parkinson’s disease, opening the door for novel therapeutic approaches down the line. Until recently, our understanding of Parkinson’s disease has been
https://scitechdaily.com/scientists-have-discovered-a-new-cause-of-parkinsons-disease/ A major discovery sheds light on the underlying mechanisms of Parkinson’s disease, opening the door for novel therapeutic approaches down the line. Until recently, our understanding of Parkinson’s disease has been
NextStage
in
Cure Parkinson's
6 months ago
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