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What Helps Me With Hypochondria
Like many of you, my OCD often takes the form of hypochondria. I can't tell you the number of times I thought I was dying or the number of times I went to see a doctor because of some minor symptom. I've developed some coping strategies which helped me. I thought I'd share them here. 1. No checking
Like many of you, my OCD often takes the form of hypochondria. I can't tell you the number of times I thought I was dying or the number of times I went to see a doctor because of some minor symptom. I've developed some coping strategies which helped me. I thought I'd share them here. 1. No checking
Worrier1960
in
Anxiety and Depression Support
3 months ago
Targeting Mets w SBRT- what’s your experience?
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
Have any of you guys had any luck targeting distant metastases with SBRT after your mets remained small or dormant while on ADT but after PSMA scans had showed more in number than olago (more than five mets)? My PSMA scan in January 2022 showed 10 scattered small mets so our area SBRT (Cyberknife) radiation
SeattleDan
in
Advanced Prostate Cancer
3 months ago
4th line palliative systemic options?
Oncologist phone call today was not the news we were hoping for.PSA had been at 20 past 4 months and hubby was diagnosed as stable. Monthly PSA blood work is done and this month PSA jumped to 29. Oncologist is sending hubby for another Bone and CT scan. She has suggested either abiraterone, clinical
Oncologist phone call today was not the news we were hoping for.PSA had been at 20 past 4 months and hubby was diagnosed as stable. Monthly PSA blood work is done and this month PSA jumped to 29. Oncologist is sending hubby for another Bone and CT scan. She has suggested either abiraterone, clinical
Docker53
in
Advanced Prostate Cancer
3 months ago
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What category of Intermediate Risk Am I?
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
Nordman
in
Advanced Prostate Cancer
3 months ago
fast-rising PSA
I’m in the control group for the new Lutetium-177–PSMA-617 study re: use of Lutetium in the early stages of treatment for metastatic disease, pre-chemo. I was diagnosed 3/23 - high volume/high risk, and have been on Firmagon and Abiraterone plus pred. In Sept my PSA started to rise, with testosterone
I’m in the control group for the new Lutetium-177–PSMA-617 study re: use of Lutetium in the early stages of treatment for metastatic disease, pre-chemo. I was diagnosed 3/23 - high volume/high risk, and have been on Firmagon and Abiraterone plus pred. In Sept my PSA started to rise, with testosterone
NewGame
in
Advanced Prostate Cancer
3 months ago
how long typically does it take from diagnosis to treatment?
Hello, my father was just diagnosed with advanced aggressive prostate cancer Gleason 9-10 (TBC). Bone scan and CT scan are next to check for spread (please God it hasn’t), but the scans are not for another 2.5 weeks! Then follow-up to discuss results a full week after that. Which seems insane that we
Hello, my father was just diagnosed with advanced aggressive prostate cancer Gleason 9-10 (TBC). Bone scan and CT scan are next to check for spread (please God it hasn’t), but the scans are not for another 2.5 weeks! Then follow-up to discuss results a full week after that. Which seems insane that we
LDC2024
in
Advanced Prostate Cancer
3 months ago
Psa is back
Well I made it to 27 months of upsa testing after my surgery and went from <0.01 to my first detectable of 0.01. Don’t know what this means but I guess the next few upsa tests will be telling. Maybe a lab variation maybe not.
Well I made it to 27 months of upsa testing after my surgery and went from <0.01 to my first detectable of 0.01. Don’t know what this means but I guess the next few upsa tests will be telling. Maybe a lab variation maybe not.
Blackholes
in
Advanced Prostate Cancer
3 months ago
My initial MRI and wait time for biopsy
Just got my MRI. PSA rising slowly for 3 years from 4.0 to 5.1. The MRI indicates a pi-Rad level 4 lesion 10 ml, well defined with no infiltration. Either base peripheral zone 11 to 12 o clock or transitional mid gland zone 11 to 12 o clock. Will get the location cleared up. I have an MRI fusion
Just got my MRI. PSA rising slowly for 3 years from 4.0 to 5.1. The MRI indicates a pi-Rad level 4 lesion 10 ml, well defined with no infiltration. Either base peripheral zone 11 to 12 o clock or transitional mid gland zone 11 to 12 o clock. Will get the location cleared up. I have an MRI fusion
jethrotullag
in
Prostate Cancer Network
3 months ago
IS THIS A PATTERN???? Thoughts and helpful ideas to guide a path
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Mrtroxely
in
Advanced Prostate Cancer
3 months ago
Switch from Lupron/abi to Orgovyx/abi?
As I approaching my third 3 month shot of Lupron I wonder if Orgo might push out my time fence to MCRP more than Lupron, but I don't see anything on it. Lupron/abi dropped my PSA and TT very quickly so that is not an advantage, but the side effects are considered to be less - though my side effects
As I approaching my third 3 month shot of Lupron I wonder if Orgo might push out my time fence to MCRP more than Lupron, but I don't see anything on it. Lupron/abi dropped my PSA and TT very quickly so that is not an advantage, but the side effects are considered to be less - though my side effects
jackwfrench
in
Prostate Cancer Network
3 months ago
18F-flotufolastat PET alters treatment approach for nearly 90% of patients with recurrent prostate cancer
"18F-flotufolastat is approved by the FDA for use in patients with suspected prostate cancer metastasis who are potentially curable by definitive surgery or radiation, and patients with suspected prostate cancer recurrence based on elevated PSA levels." https://www.urologytimes.com/view/18f-flotufolastat-pet-alters-treatment-approach-for-nearly
"18F-flotufolastat is approved by the FDA for use in patients with suspected prostate cancer metastasis who are potentially curable by definitive surgery or radiation, and patients with suspected prostate cancer recurrence based on elevated PSA levels." https://www.urologytimes.com/view/18f-flotufolastat-pet-alters-treatment-approach-for-nearly
Maxone73
in
Advanced Prostate Cancer
3 months ago
PSMA PET Looks Good But PSA Rising
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
FaithOverFear104
in
Advanced Prostate Cancer
3 months ago
Failed RP & SRT; Negative PSMA PET
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
dans_journey
in
Advanced Prostate Cancer
3 months ago
Treatment decision made
Decided to go the treatment route, took me a while but AS is no good mentally, PSA has crept up from 4.2 to 5.1 in 18 months, awaiting appt date with oncologist.Presumably SBRT as per discussion when diagnosed in autumn '22, will be at Christies Manchester. Will keep folk posted. Removal of the offending
Decided to go the treatment route, took me a while but AS is no good mentally, PSA has crept up from 4.2 to 5.1 in 18 months, awaiting appt date with oncologist.Presumably SBRT as per discussion when diagnosed in autumn '22, will be at Christies Manchester. Will keep folk posted. Removal of the offending
pd63
in
Prostate Cancer Network
3 months ago
hypertension due to Lupron and Zytega
I was diagnosed in 2018 psa 87 Gleason 9 3 Mets low burden invasion to Vesicles Imrt radiation that caused calcification damage to bladder neck that has been resolved by hbot . I’m still have frequent urination at nigh due to thickening of bladder wall. I use top doctor vascular surgeon at penn
I was diagnosed in 2018 psa 87 Gleason 9 3 Mets low burden invasion to Vesicles Imrt radiation that caused calcification damage to bladder neck that has been resolved by hbot . I’m still have frequent urination at nigh due to thickening of bladder wall. I use top doctor vascular surgeon at penn
fredyworks
in
Advanced Prostate Cancer
3 months ago
Unexpected early end to ADT
I have been on Orgovyx for 14 months. Intended to complete 18 months and then stop. When I re-applied to the Orgovyx Patient Assistance Program for the 2024 year, I provided my 2022 tax return. The reviewer would not accept it and asked for my 2023 tax return, which, being self employed, will not be
I have been on Orgovyx for 14 months. Intended to complete 18 months and then stop. When I re-applied to the Orgovyx Patient Assistance Program for the 2024 year, I provided my 2022 tax return. The reviewer would not accept it and asked for my 2023 tax return, which, being self employed, will not be
Prostateless2020
in
Prostate Cancer Network
3 months ago
Can we trust AI analysis?
Like many of you I was faced with two major decisions when I was diagnosed with Intermediate high risk prostate cancer. Surgery vs Radiation and ADT short term vs long term. In short I chose radiation and short term ADT - 2 months prior to radiation and 4 months post. In addition I chose to have my
Like many of you I was faced with two major decisions when I was diagnosed with Intermediate high risk prostate cancer. Surgery vs Radiation and ADT short term vs long term. In short I chose radiation and short term ADT - 2 months prior to radiation and 4 months post. In addition I chose to have my
Mgtd
in
Prostate Cancer Network
3 months ago
Info about docetaxel
I have been at Stage 4 for 7 1/2 years. and a succession of Xtandi, Nubequa, and Zytega along with Lupron has kept my PSA under two although each has eventually failed (PSA quickly rising above 1.0). My recent blood draw resulted in a jump from 0.78 to 1.29 while I was on the Aberaterone/prednisone protocol
I have been at Stage 4 for 7 1/2 years. and a succession of Xtandi, Nubequa, and Zytega along with Lupron has kept my PSA under two although each has eventually failed (PSA quickly rising above 1.0). My recent blood draw resulted in a jump from 0.78 to 1.29 while I was on the Aberaterone/prednisone protocol
33947
in
Advanced Prostate Cancer
3 months ago
Long Journey
Hey Guys, I don’t post on here often and I’m afraid this will be a long post. I have had PCa over 18 years. Started with casodex, Lupron. A few months later, brachytherapy then 42 sessions of EBRT. Over the years PSA would rise, and I would be put on Lupron for 18-24 months. In 2017, PSA started rising
Hey Guys, I don’t post on here often and I’m afraid this will be a long post. I have had PCa over 18 years. Started with casodex, Lupron. A few months later, brachytherapy then 42 sessions of EBRT. Over the years PSA would rise, and I would be put on Lupron for 18-24 months. In 2017, PSA started rising
MJCA
in
Prostate Cancer And Gay Men
3 months ago
Dalidoman
Newly diagnosed stage 4 prostate cancer, age 77, PSA in low 20 range. PSMA (type of PET scan) revealed metastasis to 7 bone sites, with intermittent hip pain alleviated with Tylenol. Occasionally short of breath because, I think, below normal hemoglobin, platelet and iron levels consistent with bone
Newly diagnosed stage 4 prostate cancer, age 77, PSA in low 20 range. PSMA (type of PET scan) revealed metastasis to 7 bone sites, with intermittent hip pain alleviated with Tylenol. Occasionally short of breath because, I think, below normal hemoglobin, platelet and iron levels consistent with bone
DAR1890
in
Advanced Prostate Cancer
3 months ago
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