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I’m scheduled to have DBS surgery February 29 - if you have had DBS, is there anything you wish you‘d known beforehand?
I want to prepare mentally (and physically) for the surgery, and would appreciate any input from members of this community who have had the experience of DBS surgery. Thank you in advance. Wayne
I want to prepare mentally (and physically) for the surgery, and would appreciate any input from members of this community who have had the experience of DBS surgery. Thank you in advance. Wayne
Megafone
in
Cure Parkinson's
4 months ago
Kinder , Gentler and harmless Alternative of DBS
Seeking a kinder, gentler alternative, researchers from Korea's Yonsei University created minuscule magnets tagged with antibodies. The devices are known as nanoscale magnetic force actuators, or m-Torquers. These m-Torquers were injected into the subthalamic nucleus of mice with early- and late-stage
Seeking a kinder, gentler alternative, researchers from Korea's Yonsei University created minuscule magnets tagged with antibodies. The devices are known as nanoscale magnetic force actuators, or m-Torquers. These m-Torquers were injected into the subthalamic nucleus of mice with early- and late-stage
Farooqji
in
Cure Parkinson's
4 months ago
Next NoSilverBullet webinar on 12th of February: Dr Raul Martinez on “The role of Focused Ultrasound in the management of Parkinson's”
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 12th of February. Dr Raul Martinez Will be talking to us about “The role of Focused Ultrasound in the management of Parkinson's Disease”. Please use the Eventbrite link below
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 12th of February. Dr Raul Martinez Will be talking to us about “The role of Focused Ultrasound in the management of Parkinson's Disease”. Please use the Eventbrite link below
Michel0220
in
Cure Parkinson's
4 months ago
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Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory, a key cognitive process often impaired in PD. https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awad433/7513222?login=false
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory, a key cognitive process often impaired in PD. https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awad433/7513222?login=false
nednedned
in
Cure Parkinson's
5 months ago
Vagal Nerve stimulation (video)
... https://www.youtube.com/watch?v=5ba5zyMo9VY
... https://www.youtube.com/watch?v=5ba5zyMo9VY
House2
in
Cure Parkinson's
5 months ago
First post.
Warning, long post. 2 am and I have cleaned the kitchen now I can move, even folded the t towels neatly in their box. I could do more but don’t want to wake hubby. I have always loved my fitness, I was a runner and training for an Ironman when things started to go wrong. First joint replacement at
Warning, long post. 2 am and I have cleaned the kitchen now I can move, even folded the t towels neatly in their box. I could do more but don’t want to wake hubby. I have always loved my fitness, I was a runner and training for an Ironman when things started to go wrong. First joint replacement at
TiaPasha
in
PMRGCAuk
10 days ago
Is this bladder endo
Hi all. I'm wondering if anyone with bladder endo has experienced anything like this, I have not had bladder endo mentioned however DIE rectosigmoid/ovarian cysts etc awaiting lap to get a full picture. Yesterday I was sat curled up no reason just comfort, when I moved I had the most intense pain from
Hi all. I'm wondering if anyone with bladder endo has experienced anything like this, I have not had bladder endo mentioned however DIE rectosigmoid/ovarian cysts etc awaiting lap to get a full picture. Yesterday I was sat curled up no reason just comfort, when I moved I had the most intense pain from
Lornalost89
in
Endometriosis UK
17 days ago
Parkinson’s and vagal nerve stimulation, promising human studies.
RESULTS: PD patients showed instable gait with insufficient range of motion during usual walking. [u]
Active taVNS improved gait characteristics including step length, stride velocity, stride length, and step length variability compared with sham taVNS after completion of the 7-day therapy.
[/u]
RESULTS: PD patients showed instable gait with insufficient range of motion during usual walking. [u]
Active taVNS improved gait characteristics including step length, stride velocity, stride length, and step length variability compared with sham taVNS after completion of the 7-day therapy.
[/u]
House2
in
Cure Parkinson's
5 months ago
AAV-GAD Gene Therapy
Did anyone hear of AAV-GAD gene therapy? I have a chance to get into a phase 1/2 trial, but information is somewhat limited. The original developing company went bankrupt, and a new company bought the rights to the therapy. The trails are being held at reputable sites like Yale, Columbia , and Cornell
Did anyone hear of AAV-GAD gene therapy? I have a chance to get into a phase 1/2 trial, but information is somewhat limited. The original developing company went bankrupt, and a new company bought the rights to the therapy. The trails are being held at reputable sites like Yale, Columbia , and Cornell
JohnP65
in
Cure Parkinson's
5 months ago
Understanding listening time at certain Db?
Hi guys, So, I'm trying to understand how things work with noise levels and HOW LONG I can listen for. I do gigs for 1 hour at a time approximately 8 times per week. These are nearly all solo gigs in care homes. For many years I did this with amplified acoustic instruments and what I thought to
Hi guys, So, I'm trying to understand how things work with noise levels and HOW LONG I can listen for. I do gigs for 1 hour at a time approximately 8 times per week. These are nearly all solo gigs in care homes. For many years I did this with amplified acoustic instruments and what I thought to
Fulltimemuso
in
Tinnitus UK
5 months ago
HELLO POM POM SHAKERS: IT’S ANOTHER BIG WEEKEND!!!!
Having just digested the most recent post from the HU Glitterati who enjoyed the Monsal Trail last week (hopefully they have digested the Sunday Lunch and, for some, Bakewell Tart and Pudding!), the scene moves to Manchester. All of our HU A Listers who are turning out on Sunday are running the Manchester
Having just digested the most recent post from the HU Glitterati who enjoyed the Monsal Trail last week (hopefully they have digested the Sunday Lunch and, for some, Bakewell Tart and Pudding!), the scene moves to Manchester. All of our HU A Listers who are turning out on Sunday are running the Manchester
Beachcomber66
Half Marathon
in
Fun Beyond 10K & Race Support
2 months ago
W9R2 done
I didn't enjoy that at all. 73° and windy but more it was thar my legs felt heavy from start to finish. Think I had toxic tens from 0 -15 mins and 20 - 30 mins. Did consciously slow down once or twice when getting too puffed but I can confirm that having run for too long by accident last week has not
I didn't enjoy that at all. 73° and windy but more it was thar my legs felt heavy from start to finish. Think I had toxic tens from 0 -15 mins and 20 - 30 mins. Did consciously slow down once or twice when getting too puffed but I can confirm that having run for too long by accident last week has not
Gottamakechanges
in
Couch to 5K
2 months ago
Tens machine for intermittent claudication
Has any one used a Tens machine for intermittent claudication?
Has any one used a Tens machine for intermittent claudication?
Doggie123-UK
in
Pain Concern
2 months ago
TENS advice
Can those who have had success with TENS share where they put the pads? I know we are all different but I would benefit from some experience. I tried them on my feet for 15 minutes each foot last night without any success. Thanks.
Can those who have had success with TENS share where they put the pads? I know we are all different but I would benefit from some experience. I tried them on my feet for 15 minutes each foot last night without any success. Thanks.
wantokporo
in
Restless Legs Syndrome
2 months ago
Tens pain relief
Hi all I'm just looking for any information on the beurer em50. I've been looking everywhere for a storage case to make it better when carrying it round with me. Does anyone have any links or anything suitable if you use this too? I know this may not be the best forum but unsure where to ask. Thanks
Hi all I'm just looking for any information on the beurer em50. I've been looking everywhere for a storage case to make it better when carrying it round with me. Does anyone have any links or anything suitable if you use this too? I know this may not be the best forum but unsure where to ask. Thanks
Lornalost89
in
Endometriosis UK
2 months ago
I picked up a book and turned the page. My recovery had begun.
I was lucky, the author was later described as 'the woman who cracked the anxiety code'. She was nominated for a Nobel Prize for her major contribution to helping so many recover from anxiety disorder. She did this through her short books, consultations, newsletters and public appearances in person
I was lucky, the author was later described as 'the woman who cracked the anxiety code'. She was nominated for a Nobel Prize for her major contribution to helping so many recover from anxiety disorder. She did this through her short books, consultations, newsletters and public appearances in person
Jeff1943
in
Anxiety and Depression Support
2 months ago
Practice run
Decided to dip my toe in this afternoon and do a run post the lurgy. I still have a headache but knew my energy levels were better. I was due to start W7 but decided to do a 20 min run instead just to see. Def experienced the toxic tens but enjoyed it once through that. Also, interesting that I considered
Decided to dip my toe in this afternoon and do a run post the lurgy. I still have a headache but knew my energy levels were better. I was due to start W7 but decided to do a 20 min run instead just to see. Def experienced the toxic tens but enjoyed it once through that. Also, interesting that I considered
Gottamakechanges
in
Couch to 5K
2 months ago
Tens Comfytemp and rls
Hi all just putting this out there in case anyone not tried it Like most on here I have suffered from rls for several years though not as bad as some I am now on a regime of three pramipexole a day and the use of the Tens Comfytemp which i use every night at 9 pm at 15 minutes per leg and i sleep very
Hi all just putting this out there in case anyone not tried it Like most on here I have suffered from rls for several years though not as bad as some I am now on a regime of three pramipexole a day and the use of the Tens Comfytemp which i use every night at 9 pm at 15 minutes per leg and i sleep very
Nikon-
in
Restless Legs Syndrome
2 months ago
Pain relief
Hi anyone used a tens machine for pain relief, slipped on a grass slope walking my dog and I'm in agony, spent 15hr in A.E. they sent me away with a pair of crutches no pain relief, any other pain relief suggestions would be appreciated. Diagnosed with cirrhosis of the liver 6 Mt's ago with weight
Hi anyone used a tens machine for pain relief, slipped on a grass slope walking my dog and I'm in agony, spent 15hr in A.E. they sent me away with a pair of crutches no pain relief, any other pain relief suggestions would be appreciated. Diagnosed with cirrhosis of the liver 6 Mt's ago with weight
Tonbolt275
in
British Liver Trust
2 months ago
My periods are ruining my life.
Morning all. I know the title may sound a bit dramatic to some but my word I am beyond shattered with the lack of relief and support. Im nor here to twine I want to talk about what everyone does during their menstrual cycle OR their worst flares to get through? Especially with work/ parenting if these
Morning all. I know the title may sound a bit dramatic to some but my word I am beyond shattered with the lack of relief and support. Im nor here to twine I want to talk about what everyone does during their menstrual cycle OR their worst flares to get through? Especially with work/ parenting if these
Lornalost89
in
Endometriosis UK
2 months ago
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