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Lived Health Parkinson's
This channel on [i]YouTube.com [/i]has some up to date info, such as this video below featuring Roger Barker talking about stem cell treatment and when we might expect some results from the current batch of clinical trials happening world wide. https://www.youtube.com/watch?v=n20yPPRheSw https://www.youtube.com
This channel on [i]YouTube.com [/i]has some up to date info, such as this video below featuring Roger Barker talking about stem cell treatment and when we might expect some results from the current batch of clinical trials happening world wide. https://www.youtube.com/watch?v=n20yPPRheSw https://www.youtube.com
Zardoz
in
Cure Parkinson's
1 year ago
Heart Quiver
I have had Arterial Fibrillation since October 2021, was taken ill and had really high infection markers. On medication, had a Cardioversion in August last year, when I woke up was told back in rhythm, however, step outside the hospital, and it came back with a vengeance, (seems never happened that quickly
I have had Arterial Fibrillation since October 2021, was taken ill and had really high infection markers. On medication, had a Cardioversion in August last year, when I woke up was told back in rhythm, however, step outside the hospital, and it came back with a vengeance, (seems never happened that quickly
BHFK967
in
Atrial Fibrillation Support
1 year ago
Why continue taking Orgovyx while also on Zytiga? I just started a clinical trial with LU–177 I&T.
I had my first of up to four treatments last week in the Eclipse clinical trial for LU 177 I&T and I’m wondering why I should continue taking Orgovyx . I’ve heard that production of testosterone is even more efficiently reduced on Zytiga. The less meds, the better for me. Every time we add a new substance
I had my first of up to four treatments last week in the Eclipse clinical trial for LU 177 I&T and I’m wondering why I should continue taking Orgovyx . I’ve heard that production of testosterone is even more efficiently reduced on Zytiga. The less meds, the better for me. Every time we add a new substance
SViking
in
Advanced Prostate Cancer
1 year ago
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hope is the thing…
from another cancer blog…another potential cancer drug is in the works and going to clinical trials . https://www.etirarx.com/ Fingers crossed, people. There needs to be a breakthrough for this cancer terror. I’ve lost too many friends and feel like I’m swimming up stream.
from another cancer blog…another potential cancer drug is in the works and going to clinical trials . https://www.etirarx.com/ Fingers crossed, people. There needs to be a breakthrough for this cancer terror. I’ve lost too many friends and feel like I’m swimming up stream.
Dragonfly2
in
SHARE Metastatic Breast Cancer
1 year ago
Slow pulse after ablation
My normal sinus pulse is 55 to 60 resting. Digoxin and flecanide have sent it even lower.Also meds are giving me all sorts of different rhythms and pauses. My cardiologist will do an ablation but says I may need a pacemaker after. Anyone with experience of bradycardia from drugs ?
My normal sinus pulse is 55 to 60 resting. Digoxin and flecanide have sent it even lower.Also meds are giving me all sorts of different rhythms and pauses. My cardiologist will do an ablation but says I may need a pacemaker after. Anyone with experience of bradycardia from drugs ?
Cassag
in
AF Association
1 year ago
New Member
Hello everyone. I just joined and was asked to introduce myself so I am simply pasting the bio I wrote when joining. It pretty much describes my story. I will read more of the existing posts before I start asking a lot of questions. I look forward to being part of the group! Bio: I began having episodes
Hello everyone. I just joined and was asked to introduce myself so I am simply pasting the bio I wrote when joining. It pretty much describes my story. I will read more of the existing posts before I start asking a lot of questions. I look forward to being part of the group! Bio: I began having episodes
SJP123
in
AF Association
1 year ago
questioning plan of care
My AFib usually starts with a few ectopics and the an irregular HR but usually low 60/80 I’m running out of triggers !! Mostly it just happens randomly , I’m seeing my ep cardiologist on Friday and I’m going to ask if there is a plan of care or do I just carry on till it gets worse . I am on apixaban
My AFib usually starts with a few ectopics and the an irregular HR but usually low 60/80 I’m running out of triggers !! Mostly it just happens randomly , I’m seeing my ep cardiologist on Friday and I’m going to ask if there is a plan of care or do I just carry on till it gets worse . I am on apixaban
Linesteps
in
AF Association
1 year ago
afib/svt
I had ablation for svt around 7 years ago and then cryoablation for afib 6 years ago. I am taking both a blood thinner and a small dose of beta blocker While I have felt an occasional off beat it wasn’t until Friday that I entered tachycardia of around 109. I had not taken the beta blocker the night
I had ablation for svt around 7 years ago and then cryoablation for afib 6 years ago. I am taking both a blood thinner and a small dose of beta blocker While I have felt an occasional off beat it wasn’t until Friday that I entered tachycardia of around 109. I had not taken the beta blocker the night
Kmwh
in
AF Association
1 year ago
Immunology clinical trial vs. Radiation?
Surgery in 2009, biochemical recurrence beginning 2017, and my slow-rising PSA is now up to 0.63, although my overall doubling time has remained pretty consistently over 2 years on average. My MO has a clinical trial in Phase I using a Listeria monocytogenes based vaccine, which supposedly seeks out
Surgery in 2009, biochemical recurrence beginning 2017, and my slow-rising PSA is now up to 0.63, although my overall doubling time has remained pretty consistently over 2 years on average. My MO has a clinical trial in Phase I using a Listeria monocytogenes based vaccine, which supposedly seeks out
KeyboardGuy
in
Advanced Prostate Cancer
1 year ago
Webinar: Pegcetacoplan for Dry AMD
The first-ever treatment for dry age-related macular degeneration (AMD) will be the topic of our next My Macular and Me webinar. Pegcetacoplan, which will be known as Syfovre, was approved for use in the US in February to treat patients with late-stage dry AMD – often referred to as geographic atrophy
The first-ever treatment for dry age-related macular degeneration (AMD) will be the topic of our next My Macular and Me webinar. Pegcetacoplan, which will be known as Syfovre, was approved for use in the US in February to treat patients with late-stage dry AMD – often referred to as geographic atrophy
Carol_MacularSociety
Partner
in
Macular Society
1 year ago
Second Successful Ablation with Dr. Natale
I am now one week past my second ablation with Dr. Natale in Austin, Texas. The biggest miracle of all was that when I went off of Flecainide five days before surgery, nothing happened and I stayed in sinus rhythm. My first ablation was nearly five years ago, and I tried unsuccessfully to go off of Flecainide
I am now one week past my second ablation with Dr. Natale in Austin, Texas. The biggest miracle of all was that when I went off of Flecainide five days before surgery, nothing happened and I stayed in sinus rhythm. My first ablation was nearly five years ago, and I tried unsuccessfully to go off of Flecainide
barbly1
in
AF Association
1 year ago
huCART 19 -IL18 CLINICAL TRIAL
Hi, I just came across this video of Dr Svoboda from Penn Medicine discussing this new approch to CAR-T . This was from ASH 2022. Penn developed this off the shelf therapy in their labs and are the sponsor of the trial. I would welcome any thoughts or more info from our very knowledgeable members. I
Hi, I just came across this video of Dr Svoboda from Penn Medicine discussing this new approch to CAR-T . This was from ASH 2022. Penn developed this off the shelf therapy in their labs and are the sponsor of the trial. I would welcome any thoughts or more info from our very knowledgeable members. I
steve5441
in
CLL Support
1 year ago
Swelling soft tissue alongside joint pain and inflammation - Acalabrutinib & Venetoclax Clinical Trial
Is or Has Anyone experienced extreme swelling of soft tissue normally in one area but sometimes two that lasts for approximately 5-7 days before moving to another area normally on peripheral parts?? In March 2020, commenced clinical drug trial ACE-CL-311 Amplify with 14 Cycles of Acalabrutinib and Venetoclax
Is or Has Anyone experienced extreme swelling of soft tissue normally in one area but sometimes two that lasts for approximately 5-7 days before moving to another area normally on peripheral parts?? In March 2020, commenced clinical drug trial ACE-CL-311 Amplify with 14 Cycles of Acalabrutinib and Venetoclax
bloodcancer
in
CLL Support
1 year ago
Post Catheter Ablation Recovery
Hi all, i had my ablation 3 weeks ago now and still experiencing mild soreness/discomfort around the puncture site in my groin. I was told by LGI I would be up to near normal activity after a few days and be back swimming and light gym work after a couple of weeks yet it took me over a week to be able
Hi all, i had my ablation 3 weeks ago now and still experiencing mild soreness/discomfort around the puncture site in my groin. I was told by LGI I would be up to near normal activity after a few days and be back swimming and light gym work after a couple of weeks yet it took me over a week to be able
Flutterby100
in
AF Association
1 year ago
The human microbiome links to prostate cancer risk and treatment (Review)
New study below [1].
Abstract.
Prostate cancer (Pca) is the second most common cancer type worldwide. Microorganisms colonized in different body parts may affect the development/progression and treatment of Pca through direct or indirect interactions. The composition of microorganisms
New study below [1].
Abstract.
Prostate cancer (Pca) is the second most common cancer type worldwide. Microorganisms colonized in different body parts may affect the development/progression and treatment of Pca through direct or indirect interactions. The composition of microorganisms
pca2004
in
Fight Prostate Cancer
1 year ago
Tumor Lysis Syndrome: What ( CLL ) Patients Need to Know (Leukemia and Lymphoma Society podcast)
Many of us are aware of the risk of tumor lysis syndrome (TLS) when we commence treatment, particularly with venetoclax and that the purpose of the venetoclax ramp-up, is to reduce the risk of TLS occurring. TLS can also occur with other CLL treatments, especially when they are fast acting, rapidly killing
Many of us are aware of the risk of tumor lysis syndrome (TLS) when we commence treatment, particularly with venetoclax and that the purpose of the venetoclax ramp-up, is to reduce the risk of TLS occurring. TLS can also occur with other CLL treatments, especially when they are fast acting, rapidly killing
AussieNeil
Partner
in
CLL Support
1 year ago
Write me a afib poem please. Here's one! (Jean - I can't wait to read yours!)
Hi HU community. This post is a follow on from the thread by MarkS about AI. https://healthunlocked.com/afassociation/posts/149130289/af-and-ai?utm_campaign=afassociation&utm_medium=email&utm_source=notification&utm_term=new-daily+digest I thought it would be fun if some members wrote a funny poem
Hi HU community. This post is a follow on from the thread by MarkS about AI. https://healthunlocked.com/afassociation/posts/149130289/af-and-ai?utm_campaign=afassociation&utm_medium=email&utm_source=notification&utm_term=new-daily+digest I thought it would be fun if some members wrote a funny poem
Paulbounce
in
Atrial Fibrillation Support
1 year ago
They Do Not Believe You. Get a Kardia!
So I had a video appointment recently with an ep. Unfortunately, some of my medical records did not arrive at his office on time, so he only had partial records. He had some ekg's that showed flutter, but he couldn't find one with afib. I explained to him that I have a 40-year history of afib progressing
So I had a video appointment recently with an ep. Unfortunately, some of my medical records did not arrive at his office on time, so he only had partial records. He had some ekg's that showed flutter, but he couldn't find one with afib. I explained to him that I have a 40-year history of afib progressing
mjames1
in
Atrial Fibrillation Support
1 year ago
Norovirus and atrial fibrillation
Had an ablation back in May 2022 but not heard from the hospital since the procedure. Generally not been too bad apart from 1 week with ectopics, bigeminals and trigeminals. Still on apixaban and 200mg of sotalol though.... That is, until now. I picked up my mother from hospital on Friday and started
Had an ablation back in May 2022 but not heard from the hospital since the procedure. Generally not been too bad apart from 1 week with ectopics, bigeminals and trigeminals. Still on apixaban and 200mg of sotalol though.... That is, until now. I picked up my mother from hospital on Friday and started
UK_5010
in
AF Association
1 year ago
Off the AF meds, scared!
Has anybody got a similar experience of coming off the meds so soon, it just seems early days I spoke to my Cardiologist last week, after an ablation in September I was tachycardic and a cardio version was required in December. Sinus rhythm restored and February 7th he took me off both the beta blockers
Has anybody got a similar experience of coming off the meds so soon, it just seems early days I spoke to my Cardiologist last week, after an ablation in September I was tachycardic and a cardio version was required in December. Sinus rhythm restored and February 7th he took me off both the beta blockers
Moremy
in
Atrial Fibrillation Support
1 year ago
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