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Online discussion opportunity about Patient Initiated Follow Up (PIFU)
NRAS is collaborating with and supporting a team at Oxford who are looking at Patient Initiated Follow-up as it is being rolled out by NHSE and who are proposing to conduct a clinical trial which will include the development of resources for both patients and health professionals. Please see the notice
NRAS is collaborating with and supporting a team at Oxford who are looking at Patient Initiated Follow-up as it is being rolled out by NHSE and who are proposing to conduct a clinical trial which will include the development of resources for both patients and health professionals. Please see the notice
Aribah-NRAS
NRAS
in
NRAS
8 months ago
Xtandi vs Orgovyx
Husband is currently undergoing treatment for recurrence of Prostate cancer with metastasis in spine and right shoulder blade. He's been taking Casadex since mid June and also just completed 5 radiation treatments on his spine. He is also scheduled to begin radiation tratment on his shoulder blade
Husband is currently undergoing treatment for recurrence of Prostate cancer with metastasis in spine and right shoulder blade. He's been taking Casadex since mid June and also just completed 5 radiation treatments on his spine. He is also scheduled to begin radiation tratment on his shoulder blade
Captj440
in
Advanced Prostate Cancer
8 months ago
September 17 2023 11:20 AM EST
That was the time and place that Wizard6787 first published the hypothesis that those with a diagnosis of B12 deficiency may benefit from more frequent injections rather than higher amounts only. I came up with that after reading clinical trials, protocols used, and many papers, books, case studies
That was the time and place that Wizard6787 first published the hypothesis that those with a diagnosis of B12 deficiency may benefit from more frequent injections rather than higher amounts only. I came up with that after reading clinical trials, protocols used, and many papers, books, case studies
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
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ERX-41
Hi, You may have read of heard about this new treatment for solid cancerous tumors? Well if not, it's well worth while having a read about it. There are at present paid for clinical trials, as I understand in the UK offering those of a certain age a reward of a little over £7000. Posted this because
Hi, You may have read of heard about this new treatment for solid cancerous tumors? Well if not, it's well worth while having a read about it. There are at present paid for clinical trials, as I understand in the UK offering those of a certain age a reward of a little over £7000. Posted this because
Hidden
in
My Ovacome
8 months ago
During Af
Today I think I had an Af episode. I have paroxysmal Af, and have had 3 severe attacks in the past 12 or so years, each requiring evacuation to hospital for 24/48 hours, once by helicopter, oooh! I don't tend to usually get significant episode outside the big ones. My last was horrible, about 2am I
Today I think I had an Af episode. I have paroxysmal Af, and have had 3 severe attacks in the past 12 or so years, each requiring evacuation to hospital for 24/48 hours, once by helicopter, oooh! I don't tend to usually get significant episode outside the big ones. My last was horrible, about 2am I
lacolyn
in
AF Association
1 year ago
Hypotension
After several years with reduced afib after a relatively successful ablation, I have now developed some sort of hypotension which sees me landing flat on the floor on numerous occasions. Fortunately I slump quite gracefully so no further damage yet! I thought I had it under control........ getting up
After several years with reduced afib after a relatively successful ablation, I have now developed some sort of hypotension which sees me landing flat on the floor on numerous occasions. Fortunately I slump quite gracefully so no further damage yet! I thought I had it under control........ getting up
Lizty
in
AF Association
1 year ago
conversion pause
Has anyone experienced a conversion pause when coming out of AF- like a brief second or two of syncope with a visual disturbance & a strange quite frightening feeling This has started after having to come of Flecainide as it was causing other arrhythmias.
Has anyone experienced a conversion pause when coming out of AF- like a brief second or two of syncope with a visual disturbance & a strange quite frightening feeling This has started after having to come of Flecainide as it was causing other arrhythmias.
Bidart17
in
AF Association
1 year ago
New ED Gell FDA Approved
From the Harvard Health Newsletter; Men will soon have a new option for treating erectile dysfunction (ED) that supposedly works faster than regular ED medication — and is available without a prescription. In June, the FDA approved the over-the-counter sale of MED3000 (Eroxon), a topical gel treatment
From the Harvard Health Newsletter; Men will soon have a new option for treating erectile dysfunction (ED) that supposedly works faster than regular ED medication — and is available without a prescription. In June, the FDA approved the over-the-counter sale of MED3000 (Eroxon), a topical gel treatment
Cancer2x
in
Advanced Prostate Cancer
8 months ago
Decision Time Very Soon
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
rsgdmd
in
Advanced Prostate Cancer
8 months ago
Adenomyosis
Back when I had my initial scans ahead of IVF treatment one of the Dr's diagnosed me with adenomyosis. This surprised me as no one had ever spotted this before and I thought you couldn't diagnose it from a transvaginal ultra sound. When I said "Are you sure??" she said "You definitely have adenomyosis
Back when I had my initial scans ahead of IVF treatment one of the Dr's diagnosed me with adenomyosis. This surprised me as no one had ever spotted this before and I thought you couldn't diagnose it from a transvaginal ultra sound. When I said "Are you sure??" she said "You definitely have adenomyosis
Here4ivfinfo
in
Fertility Network UK
8 months ago
Clinical trial results on 17p & tp53 variants in treatment naïve & relapsed patients by Dr. Furman - Oct 2022 to medical professionals
This link: https://hmpeducation.com/content/access-webcast-133 will connect to a talk by Dr. Richard Furman presented to medical professionals on the clinical data available from multiple studies on 17p deletion & tp53 deletions / mutations. - The terminology includes moderate Med-Speak, and registration
This link: https://hmpeducation.com/content/access-webcast-133 will connect to a talk by Dr. Richard Furman presented to medical professionals on the clinical data available from multiple studies on 17p deletion & tp53 deletions / mutations. - The terminology includes moderate Med-Speak, and registration
lankisterguy
Volunteer
in
CLL Support
8 months ago
cyroablation yesterday...
(79 year healthy male, no medications) a little history: discovered afib two weeks after Covid booster Nov2021, cardioversion Dec2021, all good and normal until a ski trip to Utah in March 2023, notice more shortness of breath than usual at altitude, skied for 5 days. When I got home grabbed my Kardia
(79 year healthy male, no medications) a little history: discovered afib two weeks after Covid booster Nov2021, cardioversion Dec2021, all good and normal until a ski trip to Utah in March 2023, notice more shortness of breath than usual at altitude, skied for 5 days. When I got home grabbed my Kardia
cloudster
in
Atrial Fibrillation Support
1 year ago
Feeling sore and tired
I am a 51-year-old that is closing in on five years dealing with this.. a quick history, I was diagnosed October 2018, Gleason nine and had four spots showing in the scans and my bones. I have been on Lupron since the beginning, I had radiation to my prostate as well as the other four spots back in
I am a 51-year-old that is closing in on five years dealing with this.. a quick history, I was diagnosed October 2018, Gleason nine and had four spots showing in the scans and my bones. I have been on Lupron since the beginning, I had radiation to my prostate as well as the other four spots back in
Oct18
in
Advanced Prostate Cancer
8 months ago
💔 I have lost to many people recently to RLS Let their deaths not be in-vain.I’ve have a plan to bring more exposure. Will u help me X
No I’m not asking for your money Just your truths. https://instagram.com/rls_stories?igshid=NzZlODBkYWE4Ng== 202O I did a YouTube video of me going to the drug clinic to get Buprenorphine . I also set up an RLS page on Instagram that I have not used . So although you don’t always see me on here most
No I’m not asking for your money Just your truths. https://instagram.com/rls_stories?igshid=NzZlODBkYWE4Ng== 202O I did a YouTube video of me going to the drug clinic to get Buprenorphine . I also set up an RLS page on Instagram that I have not used . So although you don’t always see me on here most
Shumbah
in
Restless Legs Syndrome
8 months ago
AF Blood Pressure
Hi good morning just replying to blood pressure 173/ 93 ! Depending on age in my humble Non Medical view I would not worry long term in a Rise to this Level. Additionally in my Experience ( 83 years now) You should try taking Blood Pressure 3 Times a Day Morning is normally higher and you would
Hi good morning just replying to blood pressure 173/ 93 ! Depending on age in my humble Non Medical view I would not worry long term in a Rise to this Level. Additionally in my Experience ( 83 years now) You should try taking Blood Pressure 3 Times a Day Morning is normally higher and you would
Seventy9
in
AF Association
1 year ago
Low TSH
Hi just a quick question. I’ve posted before but not managed to fill in my profile yet. I had a partial Thyroidectomy in 1995. I’ve been on Thyroxine since then & been stable for years on 75mcgs. Briefly I saw Endocrine last year & was informed I had been undermedicated for several years.I had a dose
Hi just a quick question. I’ve posted before but not managed to fill in my profile yet. I had a partial Thyroidectomy in 1995. I’ve been on Thyroxine since then & been stable for years on 75mcgs. Briefly I saw Endocrine last year & was informed I had been undermedicated for several years.I had a dose
Otto11
in
Thyroid UK
8 months ago
Digoxin verdict ?
hi all so when I’m Af my heart goes up and down from 70. to 140bpm They have now told me to take 10mg of bisop and 125mg of Digoxin I’m used to taking 10mg of bisop but the Digoxin is new to me . I’ve just gone back into AF after 2 weeks of NSR my heart rate is fluctuating but I’m nervous to
hi all so when I’m Af my heart goes up and down from 70. to 140bpm They have now told me to take 10mg of bisop and 125mg of Digoxin I’m used to taking 10mg of bisop but the Digoxin is new to me . I’ve just gone back into AF after 2 weeks of NSR my heart rate is fluctuating but I’m nervous to
mjm1971
in
AF Association
1 year ago
SGLT-2 Inhibitors to (partially) “Starve” Glucose Dependent Cancers
There has been many theories proposed about how to “starve cancer”. And many have gone down rabbit holes chasing unproven theories about how to do so. Unfortunately, IMO, they simply do not work. Cancers are very metabolically flexible. They will take what they need to survive and grow and adapt to whatever
There has been many theories proposed about how to “starve cancer”. And many have gone down rabbit holes chasing unproven theories about how to do so. Unfortunately, IMO, they simply do not work. Cancers are very metabolically flexible. They will take what they need to survive and grow and adapt to whatever
MateoBeach
in
Fight Prostate Cancer
8 months ago
when to take tablets
I have had my thyroid problem since 1992 and when I was just taking my thyroxine , when to take it was not a problem. Now I have atrial fibrillation and have to take 1/2 tablet of Apocard with a blood thinner 12 hours apart with food. I also have to take a beta blocker with food but not with the Apocard
I have had my thyroid problem since 1992 and when I was just taking my thyroxine , when to take it was not a problem. Now I have atrial fibrillation and have to take 1/2 tablet of Apocard with a blood thinner 12 hours apart with food. I also have to take a beta blocker with food but not with the Apocard
Sam1411
in
Thyroid UK
1 year ago
Return to AFIB after 4 years
Had 2 cardioversions and 2 ablations four years ago. The second ablation had everything working great for the last four years. Have to take a lot of HBP medication, but all was manageable until about a month ago when AFIB reared its ugly head again. Got scheduled for and had another cardioversion.
Had 2 cardioversions and 2 ablations four years ago. The second ablation had everything working great for the last four years. Have to take a lot of HBP medication, but all was manageable until about a month ago when AFIB reared its ugly head again. Got scheduled for and had another cardioversion.
bigking
in
AF Association
1 year ago
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