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60 DAYS IN, QUICK UPDATE ON TODAY'S DR VISIT huCAR-T 19 IL-18 4th GENERATION CLINICAL TRIAL
60 days have gone by since I received my new T- Cells. I have been neutropenic, average ANC of about 1.0 for the last 2 months and my Fibrinogen levels have been consistently low. I have had to do twice weekly blood checks at Penn Medicine, and most of those tests have resulted in a CRYO infusion
60 days have gone by since I received my new T- Cells. I have been neutropenic, average ANC of about 1.0 for the last 2 months and my Fibrinogen levels have been consistently low. I have had to do twice weekly blood checks at Penn Medicine, and most of those tests have resulted in a CRYO infusion
steve5441
in
CLL Support
7 months ago
What Helps You Stay Awake During Daytime
My husband has stage 4 CRPC and has a fib so he cannot drink caffeinated coffee so how does he stay awake during the day? This is especially embarrassing during church. Any suggestions that have worked for others are appreciated.
My husband has stage 4 CRPC and has a fib so he cannot drink caffeinated coffee so how does he stay awake during the day? This is especially embarrassing during church. Any suggestions that have worked for others are appreciated.
Corgi16
in
Advanced Prostate Cancer
11 months ago
Webinar:What role does our immune system play in the development of AMD?
Professor David Kavanagh from Newcastle University joins us for our next My Macular and Me webinar to discuss his three-year research project, which aims to find a treatment for age-related macular degeneration (AMD). Prof. Kavanagh’s research looks at a specific part of the immune system called the
Professor David Kavanagh from Newcastle University joins us for our next My Macular and Me webinar to discuss his three-year research project, which aims to find a treatment for age-related macular degeneration (AMD). Prof. Kavanagh’s research looks at a specific part of the immune system called the
Carol_MacularSociety
Partner
in
Macular Society
7 months ago
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Update on trametinib (Mekinist) for low grade serous ovarian cancer
Good morning everyone We are delighted that NHS England has recommended that the MEK-inhibitor trametinib (Mekinist) should be routinely available as an off-label treatment option for adults with recurrent or progressive low grade serous ovarian cancer (LGSOC). This is for people who have received
Good morning everyone We are delighted that NHS England has recommended that the MEK-inhibitor trametinib (Mekinist) should be routinely available as an off-label treatment option for adults with recurrent or progressive low grade serous ovarian cancer (LGSOC). This is for people who have received
OvacomeSupport
My Ovacome Team
in
My Ovacome
7 months ago
clinical trial vyd222 monoclonal AB against covid update science 37
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
bachplayer13
in
CLL Support
7 months ago
If you have a Chat GPT 4 account, please read
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
Darryl
Partner
in
Advanced Prostate Cancer
7 months ago
New clinical trial BNT152+153.
Hi, I'm about to enter into a new Phase 1 clinical trial at MD Anderson for solid tumors including new drugs from BioNtech called BNT152+153, which are based on Interluekin 2 & 7. Do any members have any knowledge or experience with these relatively new trial drugs? There is an NCT listing on the clinicaltrial.gov
Hi, I'm about to enter into a new Phase 1 clinical trial at MD Anderson for solid tumors including new drugs from BioNtech called BNT152+153, which are based on Interluekin 2 & 7. Do any members have any knowledge or experience with these relatively new trial drugs? There is an NCT listing on the clinicaltrial.gov
kklott01
in
Advanced Prostate Cancer
7 months ago
Guilty or not ???
Today, after a few days of increasing pain in my neck, started on left side on Wednesday this morning also right side, I have taken extra 5mg Pred without consulting my GP who has previously indicated he was happy for me to manage my medication. For about 4 weeks now I have managed with 6mg Pred, so
Today, after a few days of increasing pain in my neck, started on left side on Wednesday this morning also right side, I have taken extra 5mg Pred without consulting my GP who has previously indicated he was happy for me to manage my medication. For about 4 weeks now I have managed with 6mg Pred, so
Golf-1
in
PMRGCAuk
11 months ago
An update on new therapy clinical trial enrollment Phase I/II TheraPb clinical trial of ²¹²Pb-ADVC001 to treat PSMA-positive mCRPC
https://www.clinicaltrialsarena.com/news/advancell-prostate-cancer-trial/
https://www.clinicaltrialsarena.com/news/advancell-prostate-cancer-trial/
Maxone73
in
Advanced Prostate Cancer
7 months ago
My brother has advanced Prostate Cancer
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
rasher1
in
Advanced Prostate Cancer
7 months ago
A new kid on the block? Nemtabrutinib
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Varney
in
CLL Support
7 months ago
clinical trials and dropped off a cliff
Five years ago I joined the Astra Zeneca clinical trial of Olaparib with Zytiga, through my oncologist at Fox Chase in Philadelphia. Earlier this year A-Z ended the trial and applied for FDA approval of the combo, it does seem to help some of us. I learned that I had been taking the placebo, not the
Five years ago I joined the Astra Zeneca clinical trial of Olaparib with Zytiga, through my oncologist at Fox Chase in Philadelphia. Earlier this year A-Z ended the trial and applied for FDA approval of the combo, it does seem to help some of us. I learned that I had been taking the placebo, not the
Johnkelsey
in
Advanced Prostate Cancer
7 months ago
Do you live with advanced liver disease? Are you interested in attending an in-person workshop in Bristol or Liverpool this month?
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. Cases of liver disease are rising alarmingly and
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. Cases of liver disease are rising alarmingly and
BritishLiverTrust1
Partner
in
British Liver Trust
7 months ago
Post Ablation Diagnosis
I have been very fortunate and had my Afib ablation in Leicester in May. I had excellent treatment with very minimal side effects from the procedure and am back doing exercise and best of all, no episodes of Afib - so all very positive even though it is very early days. My follow up appointment is in
I have been very fortunate and had my Afib ablation in Leicester in May. I had excellent treatment with very minimal side effects from the procedure and am back doing exercise and best of all, no episodes of Afib - so all very positive even though it is very early days. My follow up appointment is in
Nakesero
in
Atrial Fibrillation Support
11 months ago
Metastic clear cell...
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
carrotmunch5
in
My Ovacome
7 months ago
Aspen Neuroscience Granted Fast Track Designation
FDA Grants Fast Track Designation to ANPD001, Autologous Investigational Cell Therapy for the Treatment of Parkinson’s Disease SAN DIEGO, Oct. 19, 2023 /PRNewswire/ — Aspen Neuroscience today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track Designation for ANPD001 for
FDA Grants Fast Track Designation to ANPD001, Autologous Investigational Cell Therapy for the Treatment of Parkinson’s Disease SAN DIEGO, Oct. 19, 2023 /PRNewswire/ — Aspen Neuroscience today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track Designation for ANPD001 for
redhawk1
in
Cure Parkinson's
7 months ago
drug holiday
I’m looking for some experiences please about taking an ibrutinib holiday. I see there have been some posts about clinical trials either stopping or reducing days it’s taken. I would really appreciate any feed back. My story is I’ve got really good bloods now and have been taking ibrutinib for 4 years
I’m looking for some experiences please about taking an ibrutinib holiday. I see there have been some posts about clinical trials either stopping or reducing days it’s taken. I would really appreciate any feed back. My story is I’ve got really good bloods now and have been taking ibrutinib for 4 years
Zoethedog
in
CLL Support
7 months ago
Bayer Investing in New Cell Therapy Facility
Bayer Opens First Cell Therapy Manufacturing Facility to Advance Regenerative Medicines on a Global Scale $250 million (USD) plant will help produce transformational cell and gene therapies on a global scale Creating readiness for first production runs of potential commercial launches, including bemdaneprocel
Bayer Opens First Cell Therapy Manufacturing Facility to Advance Regenerative Medicines on a Global Scale $250 million (USD) plant will help produce transformational cell and gene therapies on a global scale Creating readiness for first production runs of potential commercial launches, including bemdaneprocel
redhawk1
in
Cure Parkinson's
7 months ago
Depression, anxiety higher in lupus patients at risk of heart disease
Obesity, diabetes, hypertension among conditions raising a cardiovascular risk
by Marisa Wexler, MS | November 6, 2023 Depression and anxiety are more likely in people with systemic lupus erythematosus (SLE) who also are at a greater risk of heart disease, like those with obesity or high blood
Obesity, diabetes, hypertension among conditions raising a cardiovascular risk
by Marisa Wexler, MS | November 6, 2023 Depression and anxiety are more likely in people with systemic lupus erythematosus (SLE) who also are at a greater risk of heart disease, like those with obesity or high blood
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 months ago
Share Your Voice: Shaping the Future of Clinical Trial Searches
Dear Friends, Clinical trial search engines suck. Most are primitive and return hit-or-miss results. None consider your specific concerns, leaving you vulnerable to hours of phone calls and form-filling, only to be rejected or to find that the trial is different than what you first thought. Malecare's
Dear Friends, Clinical trial search engines suck. Most are primitive and return hit-or-miss results. None consider your specific concerns, leaving you vulnerable to hours of phone calls and form-filling, only to be rejected or to find that the trial is different than what you first thought. Malecare's
Darryl
Partner
in
Prostate Cancer Network
7 months ago
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