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Was I wise
Currently on 3.5mg. Rheumatoid arthritis has shown itself in both hands and is very painful. GP said 'I could give you a steroid injection but I don't expect you want that'. I said not - the word 'steroid' frightened me as I am afraid it will be play havoc with the Pred. Was I right to reject his offer
Currently on 3.5mg. Rheumatoid arthritis has shown itself in both hands and is very painful. GP said 'I could give you a steroid injection but I don't expect you want that'. I said not - the word 'steroid' frightened me as I am afraid it will be play havoc with the Pred. Was I right to reject his offer
ChinaWuntoo
in
PMRGCAuk
1 year ago
Psoriatic Arthritis, Light bulb moment ๐ก or not?
Hi :) I have suffered with plaque Psoriasis since the age of 12 (onset = Trauma related due to being hit by a car at that age & fracturing my pelvis ) (im now 50 years old) My skin Psoriasis has very fortunately been under control for over a year now, since finding out I was vitD deficient & treatment
Hi :) I have suffered with plaque Psoriasis since the age of 12 (onset = Trauma related due to being hit by a car at that age & fracturing my pelvis ) (im now 50 years old) My skin Psoriasis has very fortunately been under control for over a year now, since finding out I was vitD deficient & treatment
Flora_Fauna
in
Beyond Psoriasis
1 year ago
Persistent headache
Hi, I was diagnosed with Temporal
Arteritis
in 2019 and have been on a reducing dose of Prednisolone since then. I've been on 2mg per day for the past 6 months.
Hi, I was diagnosed with Temporal
Arteritis
in 2019 and have been on a reducing dose of Prednisolone since then. I've been on 2mg per day for the past 6 months.
bakis
in
PMRGCAuk
1 year ago
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Polymyligia rheaumatica
Started with P MR in December started treatment with 30mgs of prednisalone January ,then dropped down to 20mg prednisalone, then 15mg, this is when I saw consultant who asked me to drop prednisalone by 2 and a half every three weeks tried this ,I couldn't to painful so I've dropped it by one ,I am now
Started with P MR in December started treatment with 30mgs of prednisalone January ,then dropped down to 20mg prednisalone, then 15mg, this is when I saw consultant who asked me to drop prednisalone by 2 and a half every three weeks tried this ,I couldn't to painful so I've dropped it by one ,I am now
Alice70
in
PMRGCAuk
1 year ago
Hot flashes?
Am having ever more hot flashes and sweating around my neck over last several months. Could it be the steroids? In the distant past, was relying on welbutrin for depression but got hot flashes and changed to escatolepram. In the last few years I started taking a small dose of welbutrin in addition
Am having ever more hot flashes and sweating around my neck over last several months. Could it be the steroids? In the distant past, was relying on welbutrin for depression but got hot flashes and changed to escatolepram. In the last few years I started taking a small dose of welbutrin in addition
Merryfield
in
PMRGCAuk
1 year ago
Can you 'demand' Tocilizumab for GCA?
I was diagnosed with PMR in January 23, responded well to steroids (15mg) but quickly developed GCA symptoms (severe headache pain, blurred vision and jaw claudication) when these were reduced to 12.5mg after 3 weeks and 'normal' CRP/ESR tests. I was referred to Ambulatory care but an ultrasound showed
I was diagnosed with PMR in January 23, responded well to steroids (15mg) but quickly developed GCA symptoms (severe headache pain, blurred vision and jaw claudication) when these were reduced to 12.5mg after 3 weeks and 'normal' CRP/ESR tests. I was referred to Ambulatory care but an ultrasound showed
tweety_pie
in
PMRGCAuk
1 year ago
5 talented performers with RA
As Award season comes to a close, we wanted to praise 5 amazing performers who have been transparent and open about their Rheumatoid Arthritis diagnosis๐ Read our latest blog post ๐ https://nras.org.uk/resource/5-talented-performers-with-ra/
As Award season comes to a close, we wanted to praise 5 amazing performers who have been transparent and open about their Rheumatoid Arthritis diagnosis๐ Read our latest blog post ๐ https://nras.org.uk/resource/5-talented-performers-with-ra/
Aribah-NRAS
NRAS
in
NRAS
1 year ago
Strange sensation.
I have various spinal problems including arthritis, spondylolisthesis and spinal stenosis. A few days ago I started experiencing a feeling like a heart beat in my lower back .This is becoming more frequent.Has anyone else experienced this and what was the cause?
I have various spinal problems including arthritis, spondylolisthesis and spinal stenosis. A few days ago I started experiencing a feeling like a heart beat in my lower back .This is becoming more frequent.Has anyone else experienced this and what was the cause?
stormcloud
in
Arthritis Action
1 year ago
Tocilizumab
Hi. Has anyone had Tocilizumab injections for pmr? I've been looking at recent research which seems to suggest favourable outcomes for pmr sufferers who have problems tapering prednisolone.
Hi. Has anyone had Tocilizumab injections for pmr? I've been looking at recent research which seems to suggest favourable outcomes for pmr sufferers who have problems tapering prednisolone.
BlueMozart
in
PMRGCAuk
1 year ago
Arthritis friendly carseat??
I'm in need of a car seat that I can unclip easily. I have zero strength or grip in my hands now and unclipping a car seat is difficult and I'm finding myself avoiding going out. My child is 2. Anyone know of any arthritis friendly car seats please?
I'm in need of a car seat that I can unclip easily. I have zero strength or grip in my hands now and unclipping a car seat is difficult and I'm finding myself avoiding going out. My child is 2. Anyone know of any arthritis friendly car seats please?
RAat13
in
NRAS
1 year ago
i am here to help arthritis end
i here have arthritis bad case can people give me advice tanku ๐๐๐๐๐คช๐คช๐๐๐๐ฎ๐๐๐ต๐ค ๐ฅณ๐๐๏ธ๐ ๐๏ธ๐ต๐ฑโโ๏ธ๐จโ๐ฆฒ๐ฉโ๐ฆฐ๐ฆธ๐ง๐ณโโ๏ธ๐ฆธโโ๏ธ๐งโโ๏ธ๐ง๐จโ๐ฆฏ๐งโโ๏ธ๐คนโโ๏ธ๐ฉโโค๏ธโ๐ฉ๐จโโค๏ธโ๐จ๐ช๐ฉโโค๏ธโ๐โ๐จ๐ตโโ๏ธ๐ฏ๏ธ๐ฏ๐๐๐๐ฆ๐๐๏ธ๐ ๐ฝ๐ฃ๐๐๐๐๐๐๏ธ๐๐งง๐งง๐พ๐ ๐ฆ๐ผ๐ฝ๐ฌ๐๏ธ๐งญ๐๐๐๐ ๐๐๐ฆฝ๐๐๐ช๐๐๐ ๐๐ฆผ๐๐๐ฃ๐ โ๏ธ๐๐๐ง๐๐ง๐ช๏ธ
i here have arthritis bad case can people give me advice tanku ๐๐๐๐๐คช๐คช๐๐๐๐ฎ๐๐๐ต๐ค ๐ฅณ๐๐๏ธ๐ ๐๏ธ๐ต๐ฑโโ๏ธ๐จโ๐ฆฒ๐ฉโ๐ฆฐ๐ฆธ๐ง๐ณโโ๏ธ๐ฆธโโ๏ธ๐งโโ๏ธ๐ง๐จโ๐ฆฏ๐งโโ๏ธ๐คนโโ๏ธ๐ฉโโค๏ธโ๐ฉ๐จโโค๏ธโ๐จ๐ช๐ฉโโค๏ธโ๐โ๐จ๐ตโโ๏ธ๐ฏ๏ธ๐ฏ๐๐๐๐ฆ๐๐๏ธ๐ ๐ฝ๐ฃ๐๐๐๐๐๐๏ธ๐๐งง๐งง๐พ๐ ๐ฆ๐ผ๐ฝ๐ฌ๐๏ธ๐งญ๐๐๐๐ ๐๐๐ฆฝ๐๐๐ช๐๐๐ ๐๐ฆผ๐๐๐ฃ๐ โ๏ธ๐๐๐ง๐๐ง๐ช๏ธ
laladays
in
Arthritis Action
1 year ago
Can I take naproxen short term while on low dose of methotrexate?
I have inflammatory arthritis. After a recent virus I have very painful hip joints.I am on 15mg methotrexate weekly Can I take naproxen short term to help with inflammation? My ESR reading is high
I have inflammatory arthritis. After a recent virus I have very painful hip joints.I am on 15mg methotrexate weekly Can I take naproxen short term to help with inflammation? My ESR reading is high
Argyle103
in
NRAS
1 year ago
Palindromic Rheumatoid Arthritis
Hi. New to the site. I am now of pension age and have had Palindromic Rheumatoid Arthritis for over 30 years and never come across anyone else with it. Is there anyone out there with the same condition Cheers 35395
Hi. New to the site. I am now of pension age and have had Palindromic Rheumatoid Arthritis for over 30 years and never come across anyone else with it. Is there anyone out there with the same condition Cheers 35395
35395
in
NRAS
1 year ago
Versus arthritis leaflet on steroids and PMR
I picked up a leaflet/booklet from Versus Arthritis about Steroid tablets in a hospital the other day and I think it would be useful particularly to those new to PMR/taking steroids. An updated new version is available free to download or you can order a free paper copy from them via their website.
I picked up a leaflet/booklet from Versus Arthritis about Steroid tablets in a hospital the other day and I think it would be useful particularly to those new to PMR/taking steroids. An updated new version is available free to download or you can order a free paper copy from them via their website.
tangocharlie
in
PMRGCAuk
1 year ago
Free webinar Mon 20th at 2pm - 3.30pm -Promise of Personalised Medicine for RA
Join a patient-focused online talk by Professor Costantino Pitzalis about the exciting new research at EMR! The New 3TR Trials - The Promise of Personalised Medicine for Rheumatoid Arthritis; Mon 20th Mar 2023 2-3.30pm (UK time) https://eventbrite.co.uk/.../the-new-3tr-trials-the... #PrecisionMedicine
Join a patient-focused online talk by Professor Costantino Pitzalis about the exciting new research at EMR! The New 3TR Trials - The Promise of Personalised Medicine for Rheumatoid Arthritis; Mon 20th Mar 2023 2-3.30pm (UK time) https://eventbrite.co.uk/.../the-new-3tr-trials-the... #PrecisionMedicine
Clare-NRAS
NRAS
in
NRAS
1 year ago
Numbness in feet
I have under function of thyroid glands and also osteoarthritis for a number of years. Since over a year I notice that the ball of my feet as well as the back of my toes feel 'numb', especially first thing in the morning when I wake up. Sometimes this sensation is also there during the night. Rather
I have under function of thyroid glands and also osteoarthritis for a number of years. Since over a year I notice that the ball of my feet as well as the back of my toes feel 'numb', especially first thing in the morning when I wake up. Sometimes this sensation is also there during the night. Rather
Lola2003
in
Thyroid UK
1 year ago
Psoriatic Arthritis
Does anyone have any experience with this? From my research from, yes, Dr. Google, on a Saturday night when I'm fed up and after my pedicurist suggested that the red scaly patches on both legs could be psorisis. Apparently psoriatic arthritis is very closely related to Lupus and you can have both.
Does anyone have any experience with this? From my research from, yes, Dr. Google, on a Saturday night when I'm fed up and after my pedicurist suggested that the red scaly patches on both legs could be psorisis. Apparently psoriatic arthritis is very closely related to Lupus and you can have both.
CavendishCool
in
LUPUS UK
1 year ago
X ray results
So I finally got a letter from the rheumatologist consultant today with my xray results. He said my lumbar spine was OK but both my hips are showing signs of osteoarthritis especially the left one and hip impingement again especially the left one. He said before he refers me to orthopaedic surgery he
So I finally got a letter from the rheumatologist consultant today with my xray results. He said my lumbar spine was OK but both my hips are showing signs of osteoarthritis especially the left one and hip impingement again especially the left one. He said before he refers me to orthopaedic surgery he
Brian1977
in
NRAS
1 year ago
Appetite and taste
Red meat......I cannot stand the taste of red meat/mince since \i was taking methotrexate for RA which I now do not have I have oesteo arthritis and shouldnt have been sent to RA clinic! It really annoys me that I was taking all those meds/blood tests etc to be told I didnt need them!!!I must
Red meat......I cannot stand the taste of red meat/mince since \i was taking methotrexate for RA which I now do not have I have oesteo arthritis and shouldnt have been sent to RA clinic! It really annoys me that I was taking all those meds/blood tests etc to be told I didnt need them!!!I must
mogs231
in
NRAS
1 year ago
Clopidogrel - Joint Pain
Clopidogrel. Would love to hear of people's experiences with Clopidogrel. I've been on it since September 2019 when I had my stroke (along with Atorvastatin and blood pressure tablets). My bloods were fine when checked, but I was put on the tablets just in case. Stroke was caused by an infarction
Clopidogrel. Would love to hear of people's experiences with Clopidogrel. I've been on it since September 2019 when I had my stroke (along with Atorvastatin and blood pressure tablets). My bloods were fine when checked, but I was put on the tablets just in case. Stroke was caused by an infarction
Lulu_Lollipop
in
Arthritis Action
1 year ago
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