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Argon plasma coagulation
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Off-loaded by my consultant, or, perhaps not.
I was diagnosed with GPA [Wegener's] back in April 2002. Diagnosis came after I was hospitalised due to an intra-cranial haemorrhage as a result of the vasculitis, and after many weeks of GP appointments trying to discover what was wrong with me and who were treating me for sinusitis. Although being
I was diagnosed with GPA [Wegener's] back in April 2002. Diagnosis came after I was hospitalised due to an intra-cranial haemorrhage as a result of the vasculitis, and after many weeks of GP appointments trying to discover what was wrong with me and who were treating me for sinusitis. Although being
shanat19
in
Vasculitis UK
8 years ago
Hi everyone I'm new here I need your help
I will start at the beginning... Nov 2013 I was 67 yr old diagnosed with GPA I was admitted into hospital with a kidney function of 9 !! After asking for a blood test After several visits to my GP over a period of 3 months with varying symptoms blocked ears , cough , eye problems, fatigue finally
I will start at the beginning... Nov 2013 I was 67 yr old diagnosed with GPA I was admitted into hospital with a kidney function of 9 !! After asking for a blood test After several visits to my GP over a period of 3 months with varying symptoms blocked ears , cough , eye problems, fatigue finally
102637
in
Vasculitis UK
8 years ago
Trying to make a difference
Thanks for visiting my page. My name is Neil and I turned 46 while on life support. I have Vasculitis. Some of you will know me and some of you may even know my story; for those who don’t, please read and let’s get the word out there. I have deliberately described my early symptoms at length as this
Thanks for visiting my page. My name is Neil and I turned 46 while on life support. I have Vasculitis. Some of you will know me and some of you may even know my story; for those who don’t, please read and let’s get the word out there. I have deliberately described my early symptoms at length as this
Neildougherty
in
Vasculitis UK
8 years ago
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pANCA positive, GPA and Anti-GBM (Goodpasture Syndrome)
Hello - my mother has pANCA positive, GPA and she has Anti-GBM disease which is named as Good pasture Syndrome. This has impacted her Kidney and she is on dailysis (twice in a week). The damaged has been very quick for her, RPGN. Plasmapheresis 5 shots were done. Endoxon 5 times (15 days) have been
Hello - my mother has pANCA positive, GPA and she has Anti-GBM disease which is named as Good pasture Syndrome. This has impacted her Kidney and she is on dailysis (twice in a week). The damaged has been very quick for her, RPGN. Plasmapheresis 5 shots were done. Endoxon 5 times (15 days) have been
gouravjazz
in
Vasculitis UK
8 years ago
Any advice on being around anti-vaccinationers??
Hello, My wife has been experiencing "atypical" rejection since Oct 2015. She had her tx in Dec 2014 for acute liver failure (seronegative, e.g. unknown cause). After pulsed steroids, the rejection came back again in March 2016. She was then given ATG (severe immunosuppression) and is now on many types
Hello, My wife has been experiencing "atypical" rejection since Oct 2015. She had her tx in Dec 2014 for acute liver failure (seronegative, e.g. unknown cause). After pulsed steroids, the rejection came back again in March 2016. She was then given ATG (severe immunosuppression) and is now on many types
strangecarr
in
British Liver Trust
8 years ago
plasma exchange
I am having another plasma exchange for cryoglobunmia. Has anybody else had this before any other type of treatment has been tried? cheers a
I am having another plasma exchange for cryoglobunmia. Has anybody else had this before any other type of treatment has been tried? cheers a
Alvess123
in
Vasculitis UK
8 years ago
Hair Fall!!!
I am an sle patient,lupus nephritis,19yrs. I was diagnosed with it last year. Ever since then I have been on medication's like mycophelene mofetil,hydroxychloroquine,steroids..steroids was tapered from 70 mg to currently 12.5 mg. I was also under 6 cycles of cyclophosmide. It's been 6 months after the
I am an sle patient,lupus nephritis,19yrs. I was diagnosed with it last year. Ever since then I have been on medication's like mycophelene mofetil,hydroxychloroquine,steroids..steroids was tapered from 70 mg to currently 12.5 mg. I was also under 6 cycles of cyclophosmide. It's been 6 months after the
rose_butterfly
in
LUpus Patients Understanding and Support
9 years ago
My wife has been diagnosed with TTP 4 months back
My wife recently got affected with TTP. Brief background - My wife was pregnant 2 yrs back. She had developted Thyrod durring pregnancy and thyrod was normal after pregency. However, since last 45 days , she was feeling very weak. On 28th Jan 15 morning, she felt stiffness on her left hand and head
My wife recently got affected with TTP. Brief background - My wife was pregnant 2 yrs back. She had developted Thyrod durring pregnancy and thyrod was normal after pregency. However, since last 45 days , she was feeling very weak. On 28th Jan 15 morning, she felt stiffness on her left hand and head
ManishTTP
in
ITP Support Association
9 years ago
concerns for the future with wegeners
Hi i am 44 years old in early 2014 after initial chest problems after many years in the stone trade i was diagnosed with silicosis a lung problem the consultant also said i had tested positive for vasculitis which meant nothing at all to me after many tests for silicosis nothing was mentioned about
Hi i am 44 years old in early 2014 after initial chest problems after many years in the stone trade i was diagnosed with silicosis a lung problem the consultant also said i had tested positive for vasculitis which meant nothing at all to me after many tests for silicosis nothing was mentioned about
morgan33
in
Vasculitis UK
9 years ago
TTP
Greetings from India to all the ITP supporters in this group ! This is Manish Sanghavi from Mumbai , India. My wife recently got affected with TTP. Pls find below a brief background: Brief background - My wife was pregnant 2 yrs back. She had developted Thyrod durring pregnancy and thyrod was normal
Greetings from India to all the ITP supporters in this group ! This is Manish Sanghavi from Mumbai , India. My wife recently got affected with TTP. Pls find below a brief background: Brief background - My wife was pregnant 2 yrs back. She had developted Thyrod durring pregnancy and thyrod was normal
ManishTTP
in
ITP Support Association
9 years ago
I got suddenly 10 times more my anti bodies cardiolipine.
I am very worry, i did my regular aps test, and my surprise my antibody was 10times more,,, i ask to my doctor and he says not worry, it is normal, it doesnt means high level of antibodies high probability of clots,,, but i don t trust to him, someone can be give me more information. Even now i am having
I am very worry, i did my regular aps test, and my surprise my antibody was 10times more,,, i ask to my doctor and he says not worry, it is normal, it doesnt means high level of antibodies high probability of clots,,, but i don t trust to him, someone can be give me more information. Even now i am having
salva76
in
Hughes Syndrome APS Forum
10 years ago
A cure (possibly temporary) for the dreaded itch
Hi, I am 45 and diagnosed with PBC ten years ago! Last summer I was signed off my work as I couldn't cope any longer - I had tried every medication possible for the itch, Naltrexone had worked for a year but suddenly stopped. I was referred to the Liver Transplant Unit and it was suggested I try Plasma
Hi, I am 45 and diagnosed with PBC ten years ago! Last summer I was signed off my work as I couldn't cope any longer - I had tried every medication possible for the itch, Naltrexone had worked for a year but suddenly stopped. I was referred to the Liver Transplant Unit and it was suggested I try Plasma
Jill68
in
PBC Foundation
10 years ago
Plasmapheresis treatment
I heard that there is a treatment that looks to kill aps antibodies, called plasmapheresis treatment, that cleans the blood with adding donants plasma.it looks work, is anybody had treated with plasmapheresis? Any private hospital where does thia treatment?
I heard that there is a treatment that looks to kill aps antibodies, called plasmapheresis treatment, that cleans the blood with adding donants plasma.it looks work, is anybody had treated with plasmapheresis? Any private hospital where does thia treatment?
salva76
in
Hughes Syndrome APS Forum
10 years ago
I have been asked to share my story. Make yourself comfy and I will begin .......
In 1988 I went to my G.P. with joint pains which fluctuated around my body. When I booked the appointment I had pain in my neck and shoulders, by the time I saw him it was in my knees and wrists! The pain was put down to my being pregnant (with my second child), hormones etc. - advice, take pain killers
In 1988 I went to my G.P. with joint pains which fluctuated around my body. When I booked the appointment I had pain in my neck and shoulders, by the time I saw him it was in my knees and wrists! The pain was put down to my being pregnant (with my second child), hormones etc. - advice, take pain killers
Moley1
in
Vasculitis UK
11 years ago
Has anybody had 1gram of Rituximab in 2 doses with an interval of 2 weeks between please?
I was diagnosed with WG over 14 years ago and for the past 3 years I have been receiving Rituximab every 6 months and it's been my ' wonder drug ' but after my last infusion in June it did not improve my fatigue and joint pains. It appears I have developed antibodies. I have been informed today by Dr
I was diagnosed with WG over 14 years ago and for the past 3 years I have been receiving Rituximab every 6 months and it's been my ' wonder drug ' but after my last infusion in June it did not improve my fatigue and joint pains. It appears I have developed antibodies. I have been informed today by Dr
Essex-jill
in
Vasculitis UK
11 years ago
Some positive new's i'd thought that I would share!
Hi All, It's been a long time since I posted, due to one thing all another, but I thought I would post some GOOD NEW'S at last. Since being diagnosed with Lupus SLE ( I have also SS and other auto immune disorders) too many to mention! - in Oct 2010. After being very ill and admitted into ITU -
Hi All, It's been a long time since I posted, due to one thing all another, but I thought I would post some GOOD NEW'S at last. Since being diagnosed with Lupus SLE ( I have also SS and other auto immune disorders) too many to mention! - in Oct 2010. After being very ill and admitted into ITU -
Lulabelle
in
LUPUS UK
11 years ago
Has anyone has plasmapheresis for an intractable itch?
Jill68
in
PBC Foundation
11 years ago
Had enough now
I was diagnosed with PBC 7yrs ago, although I had had the symptoms for 8 yrs prior to diagnosis (I was told I had irritable bowel syndrome)! I have battled the itch for 6yrs now and I have finally had enough! I take urso, naltrexone, questran, rifampicin, antihistamines and clonazepam, I have lost my
I was diagnosed with PBC 7yrs ago, although I had had the symptoms for 8 yrs prior to diagnosis (I was told I had irritable bowel syndrome)! I have battled the itch for 6yrs now and I have finally had enough! I take urso, naltrexone, questran, rifampicin, antihistamines and clonazepam, I have lost my
Jill68
in
PBC Foundation
11 years ago
i was wondering if anybody has been treated with a plasma exchange and if it was successful in avoiding dialysis
seggiehill
in
Vasculitis UK
11 years ago
Need Help for a 19 year old girl
I have a friend who lives in Poland she is 19 years old at this moment she is constantly in and out of hospital. the doctors have given up on treating her. The confirmed illness is autoimmune Systemic Vasculitis. We are trying to find a doctor here in uk who maybe could have a look at her case and see
I have a friend who lives in Poland she is 19 years old at this moment she is constantly in and out of hospital. the doctors have given up on treating her. The confirmed illness is autoimmune Systemic Vasculitis. We are trying to find a doctor here in uk who maybe could have a look at her case and see
kate_halas
in
Vasculitis UK
11 years ago
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