Search
Search
About
Log in
Join
Experiences with
Argon plasma coagulation
Posts
Communities
110 public posts
Filter results
Plasma exchange
Hi has anyone had plasma exchange for itchy skin (PBC) Thanks Roz X
Hi has anyone had plasma exchange for itchy skin (PBC) Thanks Roz X
Rozm2004
in
PBC Foundation
5 years ago
Had kidney transparent with high risk
Happy to inform all i had a kidney transparent on 26th of june and discharged after one week. Surgery day my chest xray was bad and surgeon refused to do the surgery. That time i was under gone give days of plasma exchange my nephrenology doctor explained to me the risk side of the surgery I said i
Happy to inform all i had a kidney transparent on 26th of june and discharged after one week. Surgery day my chest xray was bad and surgeon refused to do the surgery. That time i was under gone give days of plasma exchange my nephrenology doctor explained to me the risk side of the surgery I said i
Shami
in
Kidney Dialysis
5 years ago
CAPS or Primary APS with Alveolar Hemorrhage
Anyone have CAPS or Primary APS with Alveolar Hemorrhage? Looking for treatment options .... we have done Plasmapheresis, Rituxan, Steroids, Plaquenil, Azathioprine and the Rheumy is now talking of doing IVIG if tomorrows blood work doesn't show an improvement in platelets. Anyone have any experience
Anyone have CAPS or Primary APS with Alveolar Hemorrhage? Looking for treatment options .... we have done Plasmapheresis, Rituxan, Steroids, Plaquenil, Azathioprine and the Rheumy is now talking of doing IVIG if tomorrows blood work doesn't show an improvement in platelets. Anyone have any experience
kiminabmw
in
Hughes Syndrome APS Forum
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
No Diagnosis
My friend has had symptoms of PSP for at least a year - falling backwards, gaze issues, incontinence, speech, etc. Neurologists have tried plasma exchange, ivig, and given all MRI's CT scans etc. No one seems to be motioning in the direction of PSP other than the first neurologist who asked for second
My friend has had symptoms of PSP for at least a year - falling backwards, gaze issues, incontinence, speech, etc. Neurologists have tried plasma exchange, ivig, and given all MRI's CT scans etc. No one seems to be motioning in the direction of PSP other than the first neurologist who asked for second
Mybeautifulfriend
in
PSP Association
5 years ago
New Treatment Guidelines for Blood Clotting Disorder
Whitney J. Palmer June 13, 2019 EULAR has issued new treatment guidelines for antiphospholipid syndrome, a disorder of the immune system that causes blood clots. Among the recommendations, high risk individuals who carry the antiphospholipid antibody should take low-dose aspirin, even if they are asymptomatic
Whitney J. Palmer June 13, 2019 EULAR has issued new treatment guidelines for antiphospholipid syndrome, a disorder of the immune system that causes blood clots. Among the recommendations, high risk individuals who carry the antiphospholipid antibody should take low-dose aspirin, even if they are asymptomatic
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
5 years ago
New Treatment Guidelines for Blood Clotting Disorder
Whitney J. Palmer June 13, 2019 EULAR has issued new treatment guidelines for antiphospholipid syndrome, a disorder of the immune system that causes blood clots. Among the recommendations, high risk individuals who carry the antiphospholipid antibody should take low-dose aspirin, even if they are asymptomatic
Whitney J. Palmer June 13, 2019 EULAR has issued new treatment guidelines for antiphospholipid syndrome, a disorder of the immune system that causes blood clots. Among the recommendations, high risk individuals who carry the antiphospholipid antibody should take low-dose aspirin, even if they are asymptomatic
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Anti gbm disease and cortical thinning.
Hi, my name is keran and my daughter was diagnosed with good patrures syndrome otherwise known has anti gbm disease 2 years ago, when she was 2 years old. She received plasma exchange and chemotherapy and is currently in remission. Recently had a scan and the left kidney has cortical thinning of the
Hi, my name is keran and my daughter was diagnosed with good patrures syndrome otherwise known has anti gbm disease 2 years ago, when she was 2 years old. She received plasma exchange and chemotherapy and is currently in remission. Recently had a scan and the left kidney has cortical thinning of the
Keranb
in
Parents of Children with Kidney Disease
5 years ago
My story ... journey to a diagnosis
My problems start in January 2008 following the birth of my first child. Over the next 10 years I suffered from pain in joints, pins and needles in my feet and hands and a skin infection every 6 - 9 months. Each time the GP would give me various diagnoses and prescribe me something to get me through
My problems start in January 2008 following the birth of my first child. Over the next 10 years I suffered from pain in joints, pins and needles in my feet and hands and a skin infection every 6 - 9 months. Each time the GP would give me various diagnoses and prescribe me something to get me through
356bubbles
in
Vasculitis UK
5 years ago
Plasma Exchange
Hello everybody ,has anyone had 'Plasma Exchange ' therapy ?
Hello everybody ,has anyone had 'Plasma Exchange ' therapy ?
manitou
in
Behçet's UK
5 years ago
cost of Plasmapheresis in India?
Hi All, I'm facing mild rejection. Does anyone know the cost of single session of Plasmapheresis in India? Also the cost of IVIG and Rituximab? Thanks
Hi All, I'm facing mild rejection. Does anyone know the cost of single session of Plasmapheresis in India? Also the cost of IVIG and Rituximab? Thanks
Balap
in
Kidney Transplant
5 years ago
Transplant Failure due to Tacrolimus
I got my transplant 3 yrs ago from my father with 50 percentage match. Creatinine started rising after an yr and reached 2.2, then biopsy was done which revealed side effect of tacrolimus. Doctor reduced tacrolimus but creatinine continued to rise and reached 18 when I started plasmapheresis and dialysis
I got my transplant 3 yrs ago from my father with 50 percentage match. Creatinine started rising after an yr and reached 2.2, then biopsy was done which revealed side effect of tacrolimus. Doctor reduced tacrolimus but creatinine continued to rise and reached 18 when I started plasmapheresis and dialysis
ashok5085
in
Kidney Transplant
5 years ago
Early treatment
Hi there, I haven't yet been diagnosed with scleroderma, but at this point with the symptoms I'm fairly confident that it's going to be. My first rheumatologist appointment is in a few weeks. I'm 29 and male and here's a quick summary of the symptoms which these began 7 months ago: - Close family history
Hi there, I haven't yet been diagnosed with scleroderma, but at this point with the symptoms I'm fairly confident that it's going to be. My first rheumatologist appointment is in a few weeks. I'm 29 and male and here's a quick summary of the symptoms which these began 7 months ago: - Close family history
Cullimorer
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Plasmapheresis (Plasma Exchange)
Has anyone done a plasma exchange? My doctor is recomending I undergo a plasma exchange as my flare up did not respond to the 3-day steroid treatment. I was wondering if anyone has under gone this and what was the result?
Has anyone done a plasma exchange? My doctor is recomending I undergo a plasma exchange as my flare up did not respond to the 3-day steroid treatment. I was wondering if anyone has under gone this and what was the result?
lmstunned
in
My MSAA Community
5 years ago
Treatments for C3G
There are no medicines that specifically treat C3G. Instead, current treatments aim to keep blood pressure, proteinuria (protein in the urine) and blood cholesterol levels low, and to control the immune system (the body’s defense against infections). The term C3G includes two conditions - dense deposit
There are no medicines that specifically treat C3G. Instead, current treatments aim to keep blood pressure, proteinuria (protein in the urine) and blood cholesterol levels low, and to control the immune system (the body’s defense against infections). The term C3G includes two conditions - dense deposit
DavidF_NKF
Administrator
in
C3 Glomerulopathy
5 years ago
Antiphospholipid Syndrome: The Risk of Travel at High Altitudes
Antiphospholipid Syndrome: The Risk of Travel at High Altitudes August 16, 2018 • By Vaneet Kaur Sandhu, MD, & Kathleen Teves, MD Antiphospholipid syndrome (APS) is an autoimmune clotting disorder that may present catastrophically with multiple thromboses over a short period of time. In this article
Antiphospholipid Syndrome: The Risk of Travel at High Altitudes August 16, 2018 • By Vaneet Kaur Sandhu, MD, & Kathleen Teves, MD Antiphospholipid syndrome (APS) is an autoimmune clotting disorder that may present catastrophically with multiple thromboses over a short period of time. In this article
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Worried about my mum
Hello, My mum is 59 years old and for the last 2 years has been in and out of hospital having various tests with neurologists etc because her balance and speech has been affected. It took forever to get any kind of diagnosis, at first they said it is late onset cerebellum syndrome because in a scan
Hello, My mum is 59 years old and for the last 2 years has been in and out of hospital having various tests with neurologists etc because her balance and speech has been affected. It took forever to get any kind of diagnosis, at first they said it is late onset cerebellum syndrome because in a scan
Murphy89
in
Ataxia UK
6 years ago
Has anyone here ever had plasma exchange for a relapse? Wonder why this was never presented to me as an option since IV steroids raise my
https://www.verywellhealth.com/plasma-exchange-ms-treatment-2440905 Has anyone here ever had plasma exchange for a relapse? Wonder why this was never presented to me as an option since IV steroids raise my blood sugars so high and didn't really help me at all other than getting my speech back both times
https://www.verywellhealth.com/plasma-exchange-ms-treatment-2440905 Has anyone here ever had plasma exchange for a relapse? Wonder why this was never presented to me as an option since IV steroids raise my blood sugars so high and didn't really help me at all other than getting my speech back both times
dogdaddy
in
My MSAA Community
6 years ago
IVIG
I just wanted to mention this for patients who may have GI and/or neurological involvement, that we’ve been doing IVIG and it’s been helping me improve amazingly. I was without for 8 weeks and drastically deteriorated. I’m just curious if anyone else has done this, and/or plasmapheresis. When I started
I just wanted to mention this for patients who may have GI and/or neurological involvement, that we’ve been doing IVIG and it’s been helping me improve amazingly. I was without for 8 weeks and drastically deteriorated. I’m just curious if anyone else has done this, and/or plasmapheresis. When I started
NerdyChristina
in
Behçet's UK
6 years ago
Purple striae/stretchmarks?
Hi, sorry for the disturbing photo. Does anyone have stretchmarks on the belly and hips? They started appearing after a very bad flare last year which required plasmapheresis, cyclophosphamide and 60mg predisolone. I have two long symmetrical ones on the side of my hips (that I suspect were probably
Hi, sorry for the disturbing photo. Does anyone have stretchmarks on the belly and hips? They started appearing after a very bad flare last year which required plasmapheresis, cyclophosphamide and 60mg predisolone. I have two long symmetrical ones on the side of my hips (that I suspect were probably
ellejay46
in
LUPUS UK
6 years ago
Need advice on the disease
Hello it's my 3rd month I'm on immunosuppression drugs ,,I have got red colour marks in stomach n legs ,,is it due to drugs or due to the disease which m having ,,n will these marks LL remain forever m having diffuse avelour heammorage it's a kind of vasculitis the doctor said I have got plasma exchange
Hello it's my 3rd month I'm on immunosuppression drugs ,,I have got red colour marks in stomach n legs ,,is it due to drugs or due to the disease which m having ,,n will these marks LL remain forever m having diffuse avelour heammorage it's a kind of vasculitis the doctor said I have got plasma exchange
Dineshbothra123
in
Vasculitis UK
6 years ago
1
2
3
4
...
6
Next page
Filter results
Clear filters
Posted in
All communities
Vasculitis UK
27 results
Hughes Syndrome APS Forum
12 results
PBC Foundation
8 results
View top 10 communities
Sort by
Most Relevant
Newest