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Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
1 month ago
Eligard and loss of taste
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
7OaksTom
in
Advanced Prostate Cancer
1 month ago
Anyone have side effects from omenectomy?
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hailun
in
My Ovacome
1 month ago
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International Lung Cancer Livingroom 1400 GMT. 16th November.
Save the date- the Roy Castle Foundation and Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Copy and pasted) -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov
Save the date- the Roy Castle Foundation and Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Copy and pasted) -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov
Denzie
in
The Roy Castle Lung Cancer Foundation
6 months ago
Special time for an International Lung Cancer Livingroom. Accessible to many countries. November 16 at 12:00 eastern.
Save the date- Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Coped and pasted from email). -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov. 16* during Lung
Save the date- Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Coped and pasted from email). -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov. 16* during Lung
Denzie
Volunteer
in
Lung Cancer Support
6 months ago
News: not about prostate cancer but interesting
CRISPR CAS9 starts to be recognized as something that can really help in many circumstances. It takes a while to shift to a broader view of technology (e.g “I don’t agree, you are playing with DNA” as if pollution, smoking, some food additives etc etc didn’t do the same). This is something that could
CRISPR CAS9 starts to be recognized as something that can really help in many circumstances. It takes a while to shift to a broader view of technology (e.g “I don’t agree, you are playing with DNA” as if pollution, smoking, some food additives etc etc didn’t do the same). This is something that could
Maxone73
in
Advanced Prostate Cancer
6 months ago
Ascites coming back,primary peritoneal
Hi everyone. I was hoping I could ask for some information. For a bit of background, I am supporting my Mum (76) who was diagnosed with primary peritoneal cancer almost two years ago after ascites discovered and drain needed. Initially thought was stage 3c and as it had affected a lymph node it was then
Hi everyone. I was hoping I could ask for some information. For a bit of background, I am supporting my Mum (76) who was diagnosed with primary peritoneal cancer almost two years ago after ascites discovered and drain needed. Initially thought was stage 3c and as it had affected a lymph node it was then
SupportingmyMum
in
My Ovacome
1 month ago
Blood Test
I had a blood test done 2/3 weeks ago it was supposed to be about the Anastrazole tablets 1mg levels that I take one a day following B/Cancer 2018 that following that I had to shield 4 the year of 2020 as I was at high risk E.T.C of getting the stuff with me having to watch what I was eating with that
I had a blood test done 2/3 weeks ago it was supposed to be about the Anastrazole tablets 1mg levels that I take one a day following B/Cancer 2018 that following that I had to shield 4 the year of 2020 as I was at high risk E.T.C of getting the stuff with me having to watch what I was eating with that
bungi1961
in
IBS Network
1 month ago
CR Advanced Prostrate Ca, and start of chemotherapy after PSMA
Dear All, I am posting my message with a hope to have better insight into my father's condition of Castrate resistant Advanced Prostrate Cancer and also seek the help of your experience.My father has had his cadaveric liver transplantation from Mayo Clinic, Jacksonville, Fl in 2001. We went from India
Dear All, I am posting my message with a hope to have better insight into my father's condition of Castrate resistant Advanced Prostrate Cancer and also seek the help of your experience.My father has had his cadaveric liver transplantation from Mayo Clinic, Jacksonville, Fl in 2001. We went from India
Ij2023
in
Advanced Prostate Cancer
6 months ago
Vacation from Lupron/Zytiga - Temporary or Permanent!
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
groth12345
in
Advanced Prostate Cancer
6 months ago
Just been told…I have a Brain Tumour
So Im 56 and last week I was told by my Oncologist that after an 8mth horrific battle with T4 tonsil cancer ( which had spread into 7 lymph nodes base of tongue and activity in left tonsil )6that I had a clear MRI …..( PET scan in 2 weeks). Had a few tears of relief thinking about losing 8 teeth /
So Im 56 and last week I was told by my Oncologist that after an 8mth horrific battle with T4 tonsil cancer ( which had spread into 7 lymph nodes base of tongue and activity in left tonsil )6that I had a clear MRI …..( PET scan in 2 weeks). Had a few tears of relief thinking about losing 8 teeth /
EllieMay7
in
Acoustic Neuroma Support
1 month ago
My brother has advanced Prostate Cancer
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
rasher1
in
Advanced Prostate Cancer
6 months ago
Is anyone familiar with the GUN trial?
Hello, sorry for all the questions. My 59 year old husband was recently diagnosed and we have so much information coming at us, fast and furious. Yesterday he was offered an opportunity to participate in the GUN trial. So far the information we have about his cancer: CT scan inadvertently found the
Hello, sorry for all the questions. My 59 year old husband was recently diagnosed and we have so much information coming at us, fast and furious. Yesterday he was offered an opportunity to participate in the GUN trial. So far the information we have about his cancer: CT scan inadvertently found the
EvFC
in
Advanced Prostate Cancer
1 month ago
Advice
Good afternoon. Yesterday I visited my ancologist after a city scan, who showed a slight increase in metastases in the liver after 3 months of treatment with Ibrance and Fulvestran. The doctor referred me for a consultation with a radiologist-ancologist. Does anyone have experience with radiation to
Good afternoon. Yesterday I visited my ancologist after a city scan, who showed a slight increase in metastases in the liver after 3 months of treatment with Ibrance and Fulvestran. The doctor referred me for a consultation with a radiologist-ancologist. Does anyone have experience with radiation to
yevgeniakoretskaya
in
SHARE Metastatic Breast Cancer
1 month ago
Starting Abiraterone and predniSONE
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
dac500
in
Advanced Prostate Cancer
6 months ago
Not PCa but related. Imuno therapies keeps getting better.
On April 4, 2024, Candel Therapeutics, Inc. (the “Company”) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
On April 4, 2024, Candel Therapeutics, Inc. (the “Company”) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
Scout4answers
in
Advanced Prostate Cancer
1 month ago
Rise in WBC
Hello to all, My husband has CLL, he has also been treated for metastatic melanoma which from his latest CT scan is NED. He will receive his last immunotherapy infusion next week. We are beyond grateful. However his blood work taken yesterday showed and increase in his WBC from 14.5 last month to the
Hello to all, My husband has CLL, he has also been treated for metastatic melanoma which from his latest CT scan is NED. He will receive his last immunotherapy infusion next week. We are beyond grateful. However his blood work taken yesterday showed and increase in his WBC from 14.5 last month to the
313313
in
CLL Support
1 month ago
update
unfortunately the liver mets have returned to Martins liver. It is 6 months since chemo finished. There are multiple small mets. Martin is still feeling well. No fatigue, loss of appetite or pain. His MO said that this is very bad and gave a prognosis of 12 months. He is starting Martin on carboplatin
unfortunately the liver mets have returned to Martins liver. It is 6 months since chemo finished. There are multiple small mets. Martin is still feeling well. No fatigue, loss of appetite or pain. His MO said that this is very bad and gave a prognosis of 12 months. He is starting Martin on carboplatin
Believeit
in
Advanced Prostate Cancer
1 month ago
Lynparza - warning!
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
MyDad76
in
Advanced Prostate Cancer
1 month ago
here we are again
my husbands blood work did not come back good after being great for over 5 years on Imbruvica. Oncologist ordered a Pet Scan since he has never had one. Just CT scans. And more comprehensive blood work. To say I’m a mess is an understatement. We thought imbruvica was the answer to our prayers for it
my husbands blood work did not come back good after being great for over 5 years on Imbruvica. Oncologist ordered a Pet Scan since he has never had one. Just CT scans. And more comprehensive blood work. To say I’m a mess is an understatement. We thought imbruvica was the answer to our prayers for it
CLLWife
in
CLL Support
1 month ago
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