Search
Search
About
Log in
Join
Experiences with
Appendix cancer
Posts
Communities
30,317 public posts
Filter results
Stay positive
Diagnosed march 2021. Debunking surgery 12 rounds chemo. Then onto Zedula . All good until November 2022 more chemo for recurrence then Avastin . My Ca125 stable but just crept up to 36 so need scan and if any signs perhaps more chemo.I have coped really well no real side effects just inally lost
Diagnosed march 2021. Debunking surgery 12 rounds chemo. Then onto Zedula . All good until November 2022 more chemo for recurrence then Avastin . My Ca125 stable but just crept up to 36 so need scan and if any signs perhaps more chemo.I have coped really well no real side effects just inally lost
Guenivere
in
My Ovacome
6 months ago
Neurofibroma
Not thyroid related, but has anyone experienced under skin neurofibroma? Trying to figure out whether to have it removed or not. No pain, but wondering if it shall get bigger in size.
Not thyroid related, but has anyone experienced under skin neurofibroma? Trying to figure out whether to have it removed or not. No pain, but wondering if it shall get bigger in size.
Huskyy
in
Thyroid UK
2 months ago
Switching to Lupron?
I've been on Firmagon for two years. PSA undetectable (<.064), all scans negative. Will switching to a six month Lupron shot cause testosterone flare?
I've been on Firmagon for two years. PSA undetectable (<.064), all scans negative. Will switching to a six month Lupron shot cause testosterone flare?
epfj3333
in
Advanced Prostate Cancer
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
BCG - intravesical immunotherapy - Update.
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Ern007
in
Lung Conditions Community Forum
6 months ago
worried and anxious
My lung cancer growth is small and operable. I just feel so worried and anxious it’s spread. As well as the operation to remove the growth with lower lung they are going to take lymph node sampling. I wondered if this is usual and would love to hear from anyone who has had this done. I’m planning to
My lung cancer growth is small and operable. I just feel so worried and anxious it’s spread. As well as the operation to remove the growth with lower lung they are going to take lymph node sampling. I wondered if this is usual and would love to hear from anyone who has had this done. I’m planning to
Sally789
in
The Roy Castle Lung Cancer Foundation
6 months ago
Need help understanding Enzalutamide
I’m a wife of a PCa fella, 75 yrs old…married 53 yrs. I do all the research, then give info to him. He decides what he (we) will do with treatments. His history…diagnosed with biopsy in 2009…1 of 12 core samples with small amount of cancer. 3+3 with a PSA of 8. He decided to watch and wait. Reality
I’m a wife of a PCa fella, 75 yrs old…married 53 yrs. I do all the research, then give info to him. He decides what he (we) will do with treatments. His history…diagnosed with biopsy in 2009…1 of 12 core samples with small amount of cancer. 3+3 with a PSA of 8. He decided to watch and wait. Reality
Hidden
in
Advanced Prostate Cancer
9 months ago
Afinitor +ESR1 mutation for the hive mind.
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on Orserdu. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective? I will
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on Orserdu. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective? I will
Pbsoup
in
SHARE Metastatic Breast Cancer
6 months ago
Could Morphine accelerate prostate cancer progression?
Is anyone of the opinion that Morphine can accelerate breast, prostate or other cancer progression? I was looking up wether morphine can activate mast cells and found the following: “We demonstrate that morphine does not influence cancer initiation, but it stimulates the progression of spontaneously
Is anyone of the opinion that Morphine can accelerate breast, prostate or other cancer progression? I was looking up wether morphine can activate mast cells and found the following: “We demonstrate that morphine does not influence cancer initiation, but it stimulates the progression of spontaneously
markrichardson
in
Advanced Prostate Cancer
7 months ago
Actinic Keratosis
Good morning from the US of A, Yesterday I received notification from a scalp biopsy I had done last week that the sore on the top of my head is Actinic Keratosis. In researching it I found it is due to ultra violet ray exposure and it is pre cancerous. I mentioned to the Dermatologist that I have been
Good morning from the US of A, Yesterday I received notification from a scalp biopsy I had done last week that the sore on the top of my head is Actinic Keratosis. In researching it I found it is due to ultra violet ray exposure and it is pre cancerous. I mentioned to the Dermatologist that I have been
mbr8076
in
MPN Voice
2 months ago
Post Rheumatology Appointment
Thank you to everyone who gave me advice for my Rheumatologist appointment yesterday......it was my first one and I thought I'd give an update on my experience at Benenden Hospital. I have posted this as a response in my original thread too but thought I'd start a new post to see if people found it useful
Thank you to everyone who gave me advice for my Rheumatologist appointment yesterday......it was my first one and I thought I'd give an update on my experience at Benenden Hospital. I have posted this as a response in my original thread too but thought I'd start a new post to see if people found it useful
Paulx222
in
PMRGCAuk
6 months ago
Firmagon vs. Lupron
PSA undetectable, all scans negative. On Firmagon every 28 days. The last two shots I've had bad reactions. Chills and no sleep the day of the shot and flu like symptons for a week or so. My question is this: Would it be risky to switch to a six month Lupron shot instead of monthly Firmagon shots? The
PSA undetectable, all scans negative. On Firmagon every 28 days. The last two shots I've had bad reactions. Chills and no sleep the day of the shot and flu like symptons for a week or so. My question is this: Would it be risky to switch to a six month Lupron shot instead of monthly Firmagon shots? The
epfj3333
in
Prostate Cancer Network
9 months ago
How high must the PSA levels be before cancer can be seen in a CT scan?
Following the end of my treatment (radiation, lupron, Zytiga, prednisone) with curative intent back in May, my PSA has risen from undetectable to 0.09. As discussed on another thread this is not alarming at this stage since I still have a prostate as I never had surgery to remove it. However I am
Following the end of my treatment (radiation, lupron, Zytiga, prednisone) with curative intent back in May, my PSA has risen from undetectable to 0.09. As discussed on another thread this is not alarming at this stage since I still have a prostate as I never had surgery to remove it. However I am
Mascouche
in
Advanced Prostate Cancer
9 months ago
NON SURGICAL OPTIONS?
Has any gone through successful or unsuccessful [u]
non-surgical treatments
[/u] with their breast cancer? [u]
Off-label drugs, diet change, hormone therapy, metabolic oncology
[/u], etc? Please share your story. This is all so sudden and shocking (as with most people's experience I'm
Has any gone through successful or unsuccessful [u]
non-surgical treatments
[/u] with their breast cancer? [u]
Off-label drugs, diet change, hormone therapy, metabolic oncology
[/u], etc? Please share your story. This is all so sudden and shocking (as with most people's experience I'm
jawsbar75
in
SHARE Breast Cancer Support
9 months ago
PSA 4.5, 9% free PSA, 65 yo
65 yo, in good health, active. I've had BPH and mild cessation incontinence ~2yrs. Semiannual PSA tests have been 2.2-3.8, very weak upward trend. MRI last April was neg. Latest reading was 4.5 ng/ml, free PSA 9%. First time urologist has mentioned free PSA. He recommends another MRI in April '24. Consensus
65 yo, in good health, active. I've had BPH and mild cessation incontinence ~2yrs. Semiannual PSA tests have been 2.2-3.8, very weak upward trend. MRI last April was neg. Latest reading was 4.5 ng/ml, free PSA 9%. First time urologist has mentioned free PSA. He recommends another MRI in April '24. Consensus
ElLayhiker
in
Prostate Cancer Network
9 months ago
Blood on toilet paper
hey everyone, So for a while I have been seeing blood on my toilet paper. It doesn’t happen all the time, but it does happen frequent enough that I’m a bit concerned. It usually takes for me to wipe twice to actually see the blood. It’s not much and it is bright red. For what I can tell I don’t think
hey everyone, So for a while I have been seeing blood on my toilet paper. It doesn’t happen all the time, but it does happen frequent enough that I’m a bit concerned. It usually takes for me to wipe twice to actually see the blood. It’s not much and it is bright red. For what I can tell I don’t think
Gyshuo
in
Colon Cancer Connected
9 months ago
secondary cancers
Hello I recently read an abstract on 6 year follow up of Ven + Obin. About 20% developed secondary cancers, half of these succumbed to these. The abstract did not address what types of cancers nor recommend specific screening. Does anyone have any DATA on 1. How this 20% compares to CLL patients
Hello I recently read an abstract on 6 year follow up of Ven + Obin. About 20% developed secondary cancers, half of these succumbed to these. The abstract did not address what types of cancers nor recommend specific screening. Does anyone have any DATA on 1. How this 20% compares to CLL patients
skipro
in
CLL Support
6 months ago
new MBC drug for PIK3CA mutation in Hr+HER- breast cancer survivors
On Nov 16, 2023, the FDA approved another drug for those who have developed the PIK3CA. Mutation after first line treatment for the HR+HER- type. It’s another drug in the same vein as PIQRAY which also has to be used with Fulvestrant. This one is from AstraZeneca but it seems to have all the same side
On Nov 16, 2023, the FDA approved another drug for those who have developed the PIK3CA. Mutation after first line treatment for the HR+HER- type. It’s another drug in the same vein as PIQRAY which also has to be used with Fulvestrant. This one is from AstraZeneca but it seems to have all the same side
Dragonfly2
in
SHARE Metastatic Breast Cancer
6 months ago
Does anyone have CtDna blood test added In their monitoring routine?
Hi! Kim 43 MBC since 3/2021. I do alot of reading of clinical trials and medical journals. I found this CtDna blood test that SUPPOSEDLY detects cancer cells in the blood up to 10 months sooner than a Petscan. My Oncologist didn't know about this testing so after fielding out all the companies that do
Hi! Kim 43 MBC since 3/2021. I do alot of reading of clinical trials and medical journals. I found this CtDna blood test that SUPPOSEDLY detects cancer cells in the blood up to 10 months sooner than a Petscan. My Oncologist didn't know about this testing so after fielding out all the companies that do
KimberlyB40
in
SHARE Metastatic Breast Cancer
6 months ago
Tumour marker
I have been in Ibrance, Letrozole and six monthly Denusomab shots for 3 years and 9 months with NEADs from the first Pet scan. C15.3 and CEA have fluctuated within the normal range since. PET scan in Sep 23 also showed NEADs. Recent bloods in Thursday showed c15.3 rise to above the normal range
I have been in Ibrance, Letrozole and six monthly Denusomab shots for 3 years and 9 months with NEADs from the first Pet scan. C15.3 and CEA have fluctuated within the normal range since. PET scan in Sep 23 also showed NEADs. Recent bloods in Thursday showed c15.3 rise to above the normal range
Gramat
in
SHARE Metastatic Breast Cancer
6 months ago
Gazyva and Ventalox
I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. Now some lymph nodes are appearing on my neck. My Doc stopped the treatment and called for a Pet scan and a biopsy of lymphnode. Anybody been in my situation and what was the plan, diagnosis, options etc.?? Very Nervous, Rob
I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. Now some lymph nodes are appearing on my neck. My Doc stopped the treatment and called for a Pet scan and a biopsy of lymphnode. Anybody been in my situation and what was the plan, diagnosis, options etc.?? Very Nervous, Rob
CityL
in
CLL Support
6 months ago
1
...
99
100
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
11977 results
My Ovacome
3516 results
SHARE Metastatic Breast Cancer
2157 results
View top 10 communities
Sort by
Most Relevant
Newest