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Appendix cancer
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Dealing with NED in this stage 4 appendix cancer journey
Hello - I’m new to this site and hoping to get information and awareness from others who are on the same journey. I’ve been NED since HIPEC in May 2022 having previously had debulking surgery followed by Folfiri and immunotherapy. I understand there’s a strong prospect I will have a recurrence so I
Hello - I’m new to this site and hoping to get information and awareness from others who are on the same journey. I’ve been NED since HIPEC in May 2022 having previously had debulking surgery followed by Folfiri and immunotherapy. I understand there’s a strong prospect I will have a recurrence so I
Hidden
in
Pseudomyxoma Survivor
9 months ago
Asking for my sister: appendix adenocarcinoma w/KRAS G12V mutation
I am reaching out here because my sister had a very rare adenocarcinoma of the
appendix
. Her
cancer
is mutated with the dreadful KRAS G12V mutation. The
cancer
was found in the distal portion of the now-removed
appendix
during what was first thought to be appendicitis.
I am reaching out here because my sister had a very rare adenocarcinoma of the
appendix
. Her
cancer
is mutated with the dreadful KRAS G12V mutation. The
cancer
was found in the distal portion of the now-removed
appendix
during what was first thought to be appendicitis.
Celestialbeing
in
Pseudomyxoma Survivor
10 months ago
1 Yr on pBAT Results
Hi fellow warriors. After one year of Orgovyx and Darolutamide and still hormone sensitive i decided to change to a testosterone propionate BAT protocol (Russ' Protocol) Here is a graph of my PSA numbers. all the peaks were taken after or during high T cycle. The Highest Peak is 2.46 and lowest 0.03
Hi fellow warriors. After one year of Orgovyx and Darolutamide and still hormone sensitive i decided to change to a testosterone propionate BAT protocol (Russ' Protocol) Here is a graph of my PSA numbers. all the peaks were taken after or during high T cycle. The Highest Peak is 2.46 and lowest 0.03
KocoPr
in
Fight Prostate Cancer
10 hours ago
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My first post concerning APC
Hello everyone. I have just found this site, so unfamiliar with posting protocol. Briefly. I was diagnosed with advanced metastatic prostate cancer (bones) in January, 2023 (thought I just needed to stock up on antacids). February, 2023 prescribed Apalutamide plus Trelstar. Ceased being effective April
Hello everyone. I have just found this site, so unfamiliar with posting protocol. Briefly. I was diagnosed with advanced metastatic prostate cancer (bones) in January, 2023 (thought I just needed to stock up on antacids). February, 2023 prescribed Apalutamide plus Trelstar. Ceased being effective April
VisorF9
in
Advanced Prostate Cancer
11 hours ago
Brief history and where I am now. My first post.
Diagnosed metastatic prostate cancer in January, 2023. Prescribed Apalutamide plus Trelstar in February, 2023. Ceased being effective in April, 2024. Recently began Radium223 (Xofigo) treatment. Not sure if I will continue with Xofigo.
Diagnosed metastatic prostate cancer in January, 2023. Prescribed Apalutamide plus Trelstar in February, 2023. Ceased being effective in April, 2024. Recently began Radium223 (Xofigo) treatment. Not sure if I will continue with Xofigo.
VisorF9
in
Advanced Prostate Cancer
12 hours ago
Fecal Calprotectin & CRC
Hey all, I am waiting on a colonoscopy I have scheduled for June 27th due to some symptoms and have a question for you all. Did any of you that got a CRC diagnosis have a really low fecal calprotectin score? I have been worried (as we all are) about what will be found on this colonoscopy, but I had a
Hey all, I am waiting on a colonoscopy I have scheduled for June 27th due to some symptoms and have a question for you all. Did any of you that got a CRC diagnosis have a really low fecal calprotectin score? I have been worried (as we all are) about what will be found on this colonoscopy, but I had a
nowayoutofthis1
in
Colon Cancer Connected
17 hours ago
BUYING DRUGS
Our cancer treatment centres are a disaster here. I need to purchase some drugs on my own if I am to survive. Would you please recommend someone you trust to buy from the following: 1. Zytiga. 500 mg. dosage or whatever is available, I need three months worth, taken twice daily 2. Prednisone 5 mg
Our cancer treatment centres are a disaster here. I need to purchase some drugs on my own if I am to survive. Would you please recommend someone you trust to buy from the following: 1. Zytiga. 500 mg. dosage or whatever is available, I need three months worth, taken twice daily 2. Prednisone 5 mg
billyboy3
in
Advanced Prostate Cancer
1 day ago
Enzalutamide Plus 5-Alpha Reductase Inhibitors for Castrate-Sensitive Prostate Cancer
Phase II trial exploring the combination of enzalutamide with five alpha-reductase inhibitors (ARIs) for castrate-sensitive prostate cancer. Driven by observations from geriatric oncology, the study seeks alternatives to androgen deprivation therapy (ADT) for older, frail men who struggle with its side
Phase II trial exploring the combination of enzalutamide with five alpha-reductase inhibitors (ARIs) for castrate-sensitive prostate cancer. Driven by observations from geriatric oncology, the study seeks alternatives to androgen deprivation therapy (ADT) for older, frail men who struggle with its side
God_Loves_Me
in
Advanced Prostate Cancer
2 days ago
Medicare- under 65
Good Morning Everyone, I am under 65 and will be eligible for Medicare in a few short months. I never thought I would get a Medicare card at the age of 51. Anyone out there under the age of 65 (taking Ibrance and Letrozole with Zolodex injections) that would be willing to share the supplemental coverage
Good Morning Everyone, I am under 65 and will be eligible for Medicare in a few short months. I never thought I would get a Medicare card at the age of 51. Anyone out there under the age of 65 (taking Ibrance and Letrozole with Zolodex injections) that would be willing to share the supplemental coverage
Ski2sea
in
SHARE Metastatic Breast Cancer
2 days ago
Feeling worried
I've been on this journey for over 4 years now. I was diagnosed in 2020 with stage 4 OC. Had chemo then radical debulking more chemo. Then olaparib for just 2 yrs then it stopped working. Ca125 started to creep up ( lymph nodes ) so back to chemo which seemed to work but 5 months later its back. Told
I've been on this journey for over 4 years now. I was diagnosed in 2020 with stage 4 OC. Had chemo then radical debulking more chemo. Then olaparib for just 2 yrs then it stopped working. Ca125 started to creep up ( lymph nodes ) so back to chemo which seemed to work but 5 months later its back. Told
Casamimosa
in
My Ovacome
2 days ago
Signifficant PSA LEVELS
I'm an 81 year old man who has had an enlarged prostate for several months. PSA tests levels 9.1 and 8.1 (several months apart). My Father died of prostate cancer, which had spread to other parts of his body. Follwing a Digital Anal test, my prostate was reported as "smoothly enlarged and sulcus palpable
I'm an 81 year old man who has had an enlarged prostate for several months. PSA tests levels 9.1 and 8.1 (several months apart). My Father died of prostate cancer, which had spread to other parts of his body. Follwing a Digital Anal test, my prostate was reported as "smoothly enlarged and sulcus palpable
apttony
in
Prostate Cancer Network
2 days ago
Nottingham health and well being event
Hello all, Our next Information Day is taking place at the Mercure hotel, Sherwood Forrest Nottingham on Tuesday 2nd July. The day will feature a range of speakers, stalls and an opportunity to share experiences with other people affected by lung cancer. The event will focus on health and wellbeing
Hello all, Our next Information Day is taking place at the Mercure hotel, Sherwood Forrest Nottingham on Tuesday 2nd July. The day will feature a range of speakers, stalls and an opportunity to share experiences with other people affected by lung cancer. The event will focus on health and wellbeing
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
2 days ago
Uro visit post bone scan
Hello everyone, having one foot into the club, After PSA 46 and MRI showing contained growth but not 100% sure, today bone scan is confirmed as negative.Uro still suspects APC, whether contained or not, wants a biopsy on Monday 17th. I started a strict vegan diet and extra gym days plus other diet interventions
Hello everyone, having one foot into the club, After PSA 46 and MRI showing contained growth but not 100% sure, today bone scan is confirmed as negative.Uro still suspects APC, whether contained or not, wants a biopsy on Monday 17th. I started a strict vegan diet and extra gym days plus other diet interventions
Hotoneii
in
Advanced Prostate Cancer
2 days ago
Xtandi/Orgovyx Combo & Heart Rate
My MO added Xtandi to my Orgovyx regimen in late January. I am oligometastatic - one lymph node - and PSA is 0.07 with testosterone at 9.63. I am not castrate resistant. I was wondering if anyone else has experienced slowing heart rate (bradycardia) on this combo. (I also take Myrbetriq which may
My MO added Xtandi to my Orgovyx regimen in late January. I am oligometastatic - one lymph node - and PSA is 0.07 with testosterone at 9.63. I am not castrate resistant. I was wondering if anyone else has experienced slowing heart rate (bradycardia) on this combo. (I also take Myrbetriq which may
Explorer08
in
Advanced Prostate Cancer
2 days ago
Docetaxal chemotherapy
I have had prostate cancer since 2017. First I had radiation and then Lupron for three years. When my PSA started to rise I took abiraterone and Lupron for 3 more years and was undetectable. It started to rise again to 1.78. Then I was put on Xtandi but after a week I developed a full body rash. When
I have had prostate cancer since 2017. First I had radiation and then Lupron for three years. When my PSA started to rise I took abiraterone and Lupron for 3 more years and was undetectable. It started to rise again to 1.78. Then I was put on Xtandi but after a week I developed a full body rash. When
Gern
in
Advanced Prostate Cancer
3 days ago
Younger man with prostate cancer
Hi there, Apparently, there has been an increase in prevalence in men under 50 being diagnosed with prostate cancer. I am a journalist investigating a piece on why this is happening for a national newspaper. I am looking for British clinicians who might want to comment on this, any interesting research
Hi there, Apparently, there has been an increase in prevalence in men under 50 being diagnosed with prostate cancer. I am a journalist investigating a piece on why this is happening for a national newspaper. I am looking for British clinicians who might want to comment on this, any interesting research
Lubel12
in
Prostate Cancer Network
3 days ago
PSA Rising
RP 2 years and four months ago. PSA went from <.02 to currently .27, Testosterone at about 600+ Since surgery, there has been no intervention. It looks like it is time to take action. Does the group have any suggestions?
RP 2 years and four months ago. PSA went from <.02 to currently .27, Testosterone at about 600+ Since surgery, there has been no intervention. It looks like it is time to take action. Does the group have any suggestions?
Gulfrider
in
Prostate Cancer Network
3 days ago
where to buy drugs
Ok, thanks boys, now please tell me the daily dosage of Xtandi and docetaxel and if anybody knows where I can buy these two drugs in the US and the cost please. I cannot even get into see a medical oncologist for months here and have already lost six months watching as my psa has skyrocketed~ You
Ok, thanks boys, now please tell me the daily dosage of Xtandi and docetaxel and if anybody knows where I can buy these two drugs in the US and the cost please. I cannot even get into see a medical oncologist for months here and have already lost six months watching as my psa has skyrocketed~ You
billyboy3
in
Advanced Prostate Cancer
3 days ago
CTscan due to high risk Prostate cancer
CTscan for newly found high risk Prostate cancer also came back with a SUV of 21.6 for Paritod gland and 21.8 for Prostate gland. Bones clear. Anyone have a high Paritod SUV on their scan and did it end up being cancer also?
CTscan for newly found high risk Prostate cancer also came back with a SUV of 21.6 for Paritod gland and 21.8 for Prostate gland. Bones clear. Anyone have a high Paritod SUV on their scan and did it end up being cancer also?
Grandpa79
in
Advanced Prostate Cancer
3 days ago
Interpreting blood tests
I've been on ADT for 4 months in preparation for RT and then HDR BT. I have localised G8 with an initial PSA of 8.1 Prior to commencing ADT, my PSA inexplicably dropped to 4.94 but then rose to 5.37 within 2 months. Anyway, here are my test results before starting ADT; These are Aussie measurements
I've been on ADT for 4 months in preparation for RT and then HDR BT. I have localised G8 with an initial PSA of 8.1 Prior to commencing ADT, my PSA inexplicably dropped to 4.94 but then rose to 5.37 within 2 months. Anyway, here are my test results before starting ADT; These are Aussie measurements
Mike58
in
Advanced Prostate Cancer
3 days ago
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