Search
Search
About
Log in
Join
Experiences with
Appendix cancer
Posts
Communities
30,172 public posts
Filter results
Dealing with NED in this stage 4 appendix cancer journey
Hello - I’m new to this site and hoping to get information and awareness from others who are on the same journey. I’ve been NED since HIPEC in May 2022 having previously had debulking surgery followed by Folfiri and immunotherapy. I understand there’s a strong prospect I will have a recurrence so I
Hello - I’m new to this site and hoping to get information and awareness from others who are on the same journey. I’ve been NED since HIPEC in May 2022 having previously had debulking surgery followed by Folfiri and immunotherapy. I understand there’s a strong prospect I will have a recurrence so I
Hidden
in
Pseudomyxoma Survivor
8 months ago
Asking for my sister: appendix adenocarcinoma w/KRAS G12V mutation
I am reaching out here because my sister had a very rare adenocarcinoma of the
appendix
. Her
cancer
is mutated with the dreadful KRAS G12V mutation. The
cancer
was found in the distal portion of the now-removed
appendix
during what was first thought to be appendicitis.
I am reaching out here because my sister had a very rare adenocarcinoma of the
appendix
. Her
cancer
is mutated with the dreadful KRAS G12V mutation. The
cancer
was found in the distal portion of the now-removed
appendix
during what was first thought to be appendicitis.
Celestialbeing
in
Pseudomyxoma Survivor
9 months ago
Clinical trial news
Has anyone been 'volunteered ' for this new trial from Astra Zanaca? Saruparib (AZD5305) vs Placebo in Men with Metastatic Castration-Sensitive Prostate Cancer Receiving Physician's Choice New Hormonal Agents - EvoPAR-PR01 This is looking at whether adding a new drug on top of taking an Androgen Receptor
Has anyone been 'volunteered ' for this new trial from Astra Zanaca? Saruparib (AZD5305) vs Placebo in Men with Metastatic Castration-Sensitive Prostate Cancer Receiving Physician's Choice New Hormonal Agents - EvoPAR-PR01 This is looking at whether adding a new drug on top of taking an Androgen Receptor
Max24
in
Advanced Prostate Cancer
1 hour ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Blood
Well after tests on low red cells turned out to be a polyp which was removed and a large tumour in the bowel which was positive I am 3 weeks into recovery from bowel resection just waiting for preventative chemotherapy all is good first post in a while due to surgery etc
Well after tests on low red cells turned out to be a polyp which was removed and a large tumour in the bowel which was positive I am 3 weeks into recovery from bowel resection just waiting for preventative chemotherapy all is good first post in a while due to surgery etc
ChillyAsh34
in
MPN Voice
49 minutes ago
Hay fever medicines
I continue to have badly blocked ears and a runny nose for several weeks. I’ve only managed to see paramedics rather than a GP about it. I haven’t used any nasal sprays (other than saline) but would like to try anti-allergy medication such as antihistamine. Yet I’ve read that “A few common stimulating
I continue to have badly blocked ears and a runny nose for several weeks. I’ve only managed to see paramedics rather than a GP about it. I haven’t used any nasal sprays (other than saline) but would like to try anti-allergy medication such as antihistamine. Yet I’ve read that “A few common stimulating
Samazeuilh2
in
Atrial Fibrillation Support
3 hours ago
CRISPR news: protein arginine methyltransferase 7 as a novel essential gene in prostate cancer metastasis (in vitro)
Now, tell me how to deal with it! https://pubmed.ncbi.nlm.nih.gov/38432581/
Now, tell me how to deal with it! https://pubmed.ncbi.nlm.nih.gov/38432581/
Maxone73
in
Advanced Prostate Cancer
7 hours ago
CAR-T: new phase 1 trial will soon start to enroll
P-PSMA-101 CAR-T Cells in the Treatment of Subjects With Metastatic Castration-Resistant Prostate Cancer (mCRPC) and Advanced Salivary Gland Cancers (SGC) Promising preclinical tests, but it's a phase 1 trial https://clinicaltrials.gov/study/NCT04249947
P-PSMA-101 CAR-T Cells in the Treatment of Subjects With Metastatic Castration-Resistant Prostate Cancer (mCRPC) and Advanced Salivary Gland Cancers (SGC) Promising preclinical tests, but it's a phase 1 trial https://clinicaltrials.gov/study/NCT04249947
Maxone73
in
Advanced Prostate Cancer
8 hours ago
Surgery or radiation, looking for some advices
Hi everyone, I’m looking for some advices for my father. He was recently diagnosed with prostate cancer. He probably already had it for a long time. Quite high PSA (way over 20), and spread to multiple lymph nodes. The surgeon said surgery is still doable, followed by radiation. Radiation oncologist
Hi everyone, I’m looking for some advices for my father. He was recently diagnosed with prostate cancer. He probably already had it for a long time. Quite high PSA (way over 20), and spread to multiple lymph nodes. The surgeon said surgery is still doable, followed by radiation. Radiation oncologist
Healing1826
in
Advanced Prostate Cancer
11 hours ago
Free Download - Prostate Cancer Comic Book about stage IV
Our wonderful community member James Burns has created a full-length comic book about his experiences with stage IV prostate cancer. Get your free download here: https://malecare.org/prostate-cancer-comic-book
Our wonderful community member James Burns has created a full-length comic book about his experiences with stage IV prostate cancer. Get your free download here: https://malecare.org/prostate-cancer-comic-book
Darryl
Partner
in
Advanced Prostate Cancer
23 hours ago
Xofigo anyone?
So my PSA is rising after Chemo, Lupron and NUBEQA (Darolutamide). It rose from 0.04 in June 2023 to 0.84 at the end on April 2024 with latest time of doubling about 5 weeks, 2.3 years after diagnosis. I don't have organ on lymph node metastasis yet. My oncologists team suggests Xofigo/Ra-223 as a next
So my PSA is rising after Chemo, Lupron and NUBEQA (Darolutamide). It rose from 0.04 in June 2023 to 0.84 at the end on April 2024 with latest time of doubling about 5 weeks, 2.3 years after diagnosis. I don't have organ on lymph node metastasis yet. My oncologists team suggests Xofigo/Ra-223 as a next
Oldie68
in
Advanced Prostate Cancer
2 days ago
PSA down with Enzalutamide 160 and Wysolone 5 mg
My father has had a relapse of long controlled PSA in 2022 and his PSA levels went upto 10.58; abieraterone didn't work ; he was also put on Docetaxal, he could tolerate one dose of it only and was stopped on this...he is on Enzalutamide 160 along with Wysolone 5 mg for the last 4 months...with his
My father has had a relapse of long controlled PSA in 2022 and his PSA levels went upto 10.58; abieraterone didn't work ; he was also put on Docetaxal, he could tolerate one dose of it only and was stopped on this...he is on Enzalutamide 160 along with Wysolone 5 mg for the last 4 months...with his
Ij2023
in
Advanced Prostate Cancer
2 days ago
Prolia shots
After 4+ years of Actonel is Prolia a good choice for continued treatment of osteoporosis? I will be asking my rheumatologist the same question next time I see her. I am due for another bone scan so she will most likely want to see that first but based on the first 2 tests I am going downhill bone-wise
After 4+ years of Actonel is Prolia a good choice for continued treatment of osteoporosis? I will be asking my rheumatologist the same question next time I see her. I am due for another bone scan so she will most likely want to see that first but based on the first 2 tests I am going downhill bone-wise
Alebeau
in
PMRGCAuk
2 days ago
What next? re maintenance for HGS recurrence
Would love to know if any ladies who has also been unsuccessful with Olaparib, what has been a successful maintenance for you? I’ve just got 2 cycles more of Carbo/Caelyx, min scan showed slight reduction not as good as hoped for. Only maintenance mentioned by oncologist is to go on Letrozole. I
Would love to know if any ladies who has also been unsuccessful with Olaparib, what has been a successful maintenance for you? I’ve just got 2 cycles more of Carbo/Caelyx, min scan showed slight reduction not as good as hoped for. Only maintenance mentioned by oncologist is to go on Letrozole. I
Towergirl
in
My Ovacome
2 days ago
Almost 3 years on ADT + Erleada
I am almost 3 years on ADT I was diagnosed as stage 4 with a bone biopsy on a lesion.My MO started me with monthly firmagon injections and zytiga in 2021 july then switched to lupron and Erleada after a few months since I had a reaction to Abi after a couple of months .Erleada also gave me rash in
I am almost 3 years on ADT I was diagnosed as stage 4 with a bone biopsy on a lesion.My MO started me with monthly firmagon injections and zytiga in 2021 july then switched to lupron and Erleada after a few months since I had a reaction to Abi after a couple of months .Erleada also gave me rash in
mynacho
in
Advanced Prostate Cancer
2 days ago
Brachyboost and PSA progression free survival question
We just received our appointment summary from the radiation oncologist and there is a comment in it that is confusing me. It’s not how I remember the conversation, so I am wondering if someone can clarify ( Tall_Allen ?). ”We can proceed with EBRT followed by LDR brachytherapy boost and minimum 6 months
We just received our appointment summary from the radiation oncologist and there is a comment in it that is confusing me. It’s not how I remember the conversation, so I am wondering if someone can clarify ( Tall_Allen ?). ”We can proceed with EBRT followed by LDR brachytherapy boost and minimum 6 months
EvFC
in
Advanced Prostate Cancer
2 days ago
Pet Scan Below, Does Non Avid PSMA Liver Lesions mean possible Neuroendocrine Cancer
EXAM: PET-CT SKULL BASE TO MID-THIGH CLINICAL HISTORY: Metastatic prostate cancer, rising PSA TECHNIQUE: PET/CT skull base to thigh-subsequent treatment strategy F18 PYL dose: 10.00 millicuries Injection site: L AC Time of injection: 17:00 Time of emission scan: 18:06 Oral Contrast
EXAM: PET-CT SKULL BASE TO MID-THIGH CLINICAL HISTORY: Metastatic prostate cancer, rising PSA TECHNIQUE: PET/CT skull base to thigh-subsequent treatment strategy F18 PYL dose: 10.00 millicuries Injection site: L AC Time of injection: 17:00 Time of emission scan: 18:06 Oral Contrast
Shorehousejam
in
Advanced Prostate Cancer
3 days ago
Gasoline?
A question for anyone who has found an answer... From 2018, when diagnosed, I have been told by doctors, urologists and oncologists that; "Testosterone, in prostate cancer, is like gasoline on a fire!" When I first heard this it seemed dubious since what I "knew" about PCa was that young men with
A question for anyone who has found an answer... From 2018, when diagnosed, I have been told by doctors, urologists and oncologists that; "Testosterone, in prostate cancer, is like gasoline on a fire!" When I first heard this it seemed dubious since what I "knew" about PCa was that young men with
VoxHope
in
Advanced Prostate Cancer
3 days ago
Clarity Update: Complete response in first patient ever treated with 2 doses of Cu-67 SAR-bisPSMA at 8GBq
Highlights A complete response, based on Response Evaluation Criteria In Solid Tumours (RECIST v1.1) assessment, has been reported from the first patient with metastatic castrate-resistant prostate cancer (mCRPC) to ever receive two cycles of Clarity’s 67Cu-SAR-bisPSMA at the 8GBq dose level. The patient
Highlights A complete response, based on Response Evaluation Criteria In Solid Tumours (RECIST v1.1) assessment, has been reported from the first patient with metastatic castrate-resistant prostate cancer (mCRPC) to ever receive two cycles of Clarity’s 67Cu-SAR-bisPSMA at the 8GBq dose level. The patient
God_Loves_Me
in
Advanced Prostate Cancer
3 days ago
Should go into the OMAHA2a ODM-208 (MK-5684-004): phase 3 trial?
I had my 3 monthly OC visit last week. Blood test is showing 0.3 up from 0.15 six weeks ago. MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if PSA rises above 1.0. PSA of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment
I had my 3 monthly OC visit last week. Blood test is showing 0.3 up from 0.15 six weeks ago. MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if PSA rises above 1.0. PSA of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment
LakeT
in
Advanced Prostate Cancer
4 days ago
Had Pet Scan, PSA rising 0.77 Found Liver Metastases, Am I a dead man? What can I do?
Going for MRI and Biopsy What can I do?
Going for MRI and Biopsy What can I do?
Shorehousejam
in
Advanced Prostate Cancer
4 days ago
1
2
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
11893 results
My Ovacome
3506 results
SHARE Metastatic Breast Cancer
2146 results
View top 10 communities
Sort by
Most Relevant
Newest