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Advice please
Advice please now getting sores on scalp Tsh 1.42 range 0.27 to 4.2 FT4 is 21.5 rsnge 12 to 22 Ft3 is 3.9 range 3.1 to 6.8 Have been told my Vitamin d is too high at 120nmol calcuim is 2.26 ps not supplementing atm either also have no thyroid cfs and fibromyalgia and Gerd and sinutitis29/12/2022
Advice please now getting sores on scalp Tsh 1.42 range 0.27 to 4.2 FT4 is 21.5 rsnge 12 to 22 Ft3 is 3.9 range 3.1 to 6.8 Have been told my Vitamin d is too high at 120nmol calcuim is 2.26 ps not supplementing atm either also have no thyroid cfs and fibromyalgia and Gerd and sinutitis29/12/2022
Pen1966
in
Pernicious Anaemia Society
1 year ago
Restless Legs Syndrome
I have had RLS for a long time I get very little sleep and I am fairly lucky I can survive for most days without a lot of sleep I tried pregabalin which hasn't helped I had major surgery in January 2023 Since then my RLS Symptoms have increased dramatically I have moved to sheltered accommodation to
I have had RLS for a long time I get very little sleep and I am fairly lucky I can survive for most days without a lot of sleep I tried pregabalin which hasn't helped I had major surgery in January 2023 Since then my RLS Symptoms have increased dramatically I have moved to sheltered accommodation to
williamghenry
in
Restless Legs Syndrome
1 year ago
when will I start feeling better?
hi all. Have been injecting daily with methylcobalamin for 2 months as well as taking liquid iron. I’ve heard people say it takes “a while “ to start feeling better, just wondering how long we are talking. I need my daily dizziness to go away or know if it’s not being caused by anemia. Thanks!
hi all. Have been injecting daily with methylcobalamin for 2 months as well as taking liquid iron. I’ve heard people say it takes “a while “ to start feeling better, just wondering how long we are talking. I need my daily dizziness to go away or know if it’s not being caused by anemia. Thanks!
Bloggin
in
Pernicious Anaemia Society
1 year ago
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8Advice
Tsh 1.42 range 0.27 to 4.2 FT4 is 21.5 rsnge 12 to 22 Ft3 is 3.9 range 3.1 to 6.8 Have been told my Vitamin d is too high at 120nmol calcuim is 2.26 ps not supplementing atm either also have no thyroid cfs and fibromyalgia and Gerd and sinutitis29/12/2022 You have a low level of haemoglobin which is
Tsh 1.42 range 0.27 to 4.2 FT4 is 21.5 rsnge 12 to 22 Ft3 is 3.9 range 3.1 to 6.8 Have been told my Vitamin d is too high at 120nmol calcuim is 2.26 ps not supplementing atm either also have no thyroid cfs and fibromyalgia and Gerd and sinutitis29/12/2022 You have a low level of haemoglobin which is
Pen1966
in
Thyroid UK
1 year ago
Co-morbidities with B12D/PA
Did anyone get any strange or unusual comorbidities around the time of their B12 deficiency or PA diagnosis? I just spoke with the hospital concerning a check-up on my parotid gland - a pleomorphic adenoma I had removed in 2020 along with a co-occurring thyroid nodule removal. They state that they
Did anyone get any strange or unusual comorbidities around the time of their B12 deficiency or PA diagnosis? I just spoke with the hospital concerning a check-up on my parotid gland - a pleomorphic adenoma I had removed in 2020 along with a co-occurring thyroid nodule removal. They state that they
Pickle500
in
Pernicious Anaemia Society
1 year ago
CLL Staging
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Rocky0181
in
CLL Support
1 year ago
Iron test results - advice please
CRP HS X 6.45 mg/L (Range: 0 - 5) - I believe this was high because of infection, as I went down with a temperature the following day. Iron 10.0 umol/L (Range: 5.8 - 34.5) - down from 18.4 six months ago TIBC 43.2 umol/L (Range: 45 - 81) - down from 46.3 six months ago UIBC 33.2 umol/L (Range: 24.2
CRP HS X 6.45 mg/L (Range: 0 - 5) - I believe this was high because of infection, as I went down with a temperature the following day. Iron 10.0 umol/L (Range: 5.8 - 34.5) - down from 18.4 six months ago TIBC 43.2 umol/L (Range: 45 - 81) - down from 46.3 six months ago UIBC 33.2 umol/L (Range: 24.2
Molly161018
in
Thyroid UK
1 year ago
Need some reassurance pls
Hi,I just received my first (Hyrimoz) Adalimumab Injection Kit, I'm really nervous to start 😬 Does anyone have any good experiences with this medication that can help ease my anxiety?
Hi,I just received my first (Hyrimoz) Adalimumab Injection Kit, I'm really nervous to start 😬 Does anyone have any good experiences with this medication that can help ease my anxiety?
Grate4ul
in
NRAS
1 year ago
success with Threearrows - for anyone struggling with LOW IRON/FERRITIN
After 6 months I am finally seeing some progress with my iron panel! I spent 3 months on 4 ferrous gluconate tablets a day and my ferritin, saturation and iron barely budged. In fact, my serum iron actually decreased. I felt completely miserable with the prospect that I wouldn’t be able to optimise
After 6 months I am finally seeing some progress with my iron panel! I spent 3 months on 4 ferrous gluconate tablets a day and my ferritin, saturation and iron barely budged. In fact, my serum iron actually decreased. I felt completely miserable with the prospect that I wouldn’t be able to optimise
Beau55
in
Thyroid UK
1 year ago
Stiff feet up to ankles
I have b12 injections every 3 months for pernicious anaemia which I was diagnosed with a couple of years ago. I had breathlessness issues and gastic issues. However my feet have felt stiff and tight before that. I also get more clumsy when my injection is due. However the feet issue never goes away
I have b12 injections every 3 months for pernicious anaemia which I was diagnosed with a couple of years ago. I had breathlessness issues and gastic issues. However my feet have felt stiff and tight before that. I also get more clumsy when my injection is due. However the feet issue never goes away
Kangarooiom
in
Pernicious Anaemia Society
1 year ago
Iron and B12 deficiency
Had a massive realisation after getting a diagnosis of ME and not feeling like it fit/refusing to accept it. As we all are, I'm just trying to piece together this puzzle as GPS dont seem to bother Now realise I have chronically low FERRITIN. Doctors only look at the serum iron (similar to how they
Had a massive realisation after getting a diagnosis of ME and not feeling like it fit/refusing to accept it. As we all are, I'm just trying to piece together this puzzle as GPS dont seem to bother Now realise I have chronically low FERRITIN. Doctors only look at the serum iron (similar to how they
Hidden
in
Pernicious Anaemia Society
1 year ago
Husband's last O Infusion rescheduled due to low Neutrophils and WBC
UPDATE: After a week off of all meds, Absolute Neutrofils have gone DOWN to .60, Absolute Eosinophils down to 0. He will start on GCSF Infusions tomorrow for 4 days. His Specialist is confident that his numbers will go up for FINAL infusion next week. At that point dosage of Venetoclax will be reduced
UPDATE: After a week off of all meds, Absolute Neutrofils have gone DOWN to .60, Absolute Eosinophils down to 0. He will start on GCSF Infusions tomorrow for 4 days. His Specialist is confident that his numbers will go up for FINAL infusion next week. At that point dosage of Venetoclax will be reduced
lisakc1
in
CLL Support
1 year ago
body heat and buprenorphine
Hi, I have been using Buprenorphine patches for 4 weeks and was wondering whether body heat releases more opioids into the system. When I’m really warm I feel spacey and drowsy. Has anyone else experienced this?
Hi, I have been using Buprenorphine patches for 4 weeks and was wondering whether body heat releases more opioids into the system. When I’m really warm I feel spacey and drowsy. Has anyone else experienced this?
Navy20
in
Restless Legs Syndrome
1 year ago
Zanabrutinib
Happy New year, everyone! I was treated with Ibrutinib for about 2 years, and taken off after a grade 3 event (SVT Tachycardia). It was decided I would stay off treatment until progression. Although I should get somewhere between one and three years in remission, my consultant has already started to
Happy New year, everyone! I was treated with Ibrutinib for about 2 years, and taken off after a grade 3 event (SVT Tachycardia). It was decided I would stay off treatment until progression. Although I should get somewhere between one and three years in remission, my consultant has already started to
MovingForward4423
in
CLL Support
1 year ago
Statins
Apologies, this is a very long post! Statins are known by members of this forum to trigger/exacerbate RLS, although the NHS doesn’t formally recognise this. Statins are the most prescribed drug in the world, recommended for the reduction of cholesterol. Many doctors will say that they are essential,
Apologies, this is a very long post! Statins are known by members of this forum to trigger/exacerbate RLS, although the NHS doesn’t formally recognise this. Statins are the most prescribed drug in the world, recommended for the reduction of cholesterol. Many doctors will say that they are essential,
ChrisColumbus
in
Restless Legs Syndrome
1 year ago
Protein and B12
The information in this article on protein deficiency seemed interesting to me. It seems like some of the symptoms I was attributing to B12 deficiency symptoms might be due in part to insufficient protein. The entire article is available at no charge. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4439950
The information in this article on protein deficiency seemed interesting to me. It seems like some of the symptoms I was attributing to B12 deficiency symptoms might be due in part to insufficient protein. The entire article is available at no charge. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4439950
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Fibro & Severe Stiffness.
Hello all. So it's been a while since I posted last. Many of you were so incredibly helpful and knowledgeable on many questions about fibro. I had never realised or put the two together when it came down to severe stiffness that some people experienced this as a symptom of fibro. Can anybody explain
Hello all. So it's been a while since I posted last. Many of you were so incredibly helpful and knowledgeable on many questions about fibro. I had never realised or put the two together when it came down to severe stiffness that some people experienced this as a symptom of fibro. Can anybody explain
catcalling
in
Fibromyalgia Action UK
1 year ago
Protein deficiency and B12?
I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. After bouncing around in treatment that I later learned was appropriate for hematologic symptoms, in August of 2021 I began injecting cyanocobalamin daily, and have continued since. Some symptoms improved, others did not,
I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. After bouncing around in treatment that I later learned was appropriate for hematologic symptoms, in August of 2021 I began injecting cyanocobalamin daily, and have continued since. Some symptoms improved, others did not,
WiscGuy
in
Pernicious Anaemia Society
1 year ago
13 days on +5mg but still not completely sorted. Link to covid jab? Also dex scan disappointing.
After chat on here with PMRpro and others I added 5mg. I had gone through an awful fatigue etc very slow drop from 6.5mg to 6mg. It took me about 5 weeks and was feeling good after 2 weeks on 6 every day but stiffness started at week3. Now had 13 days on higher dose...11/12mg.It was better some days
After chat on here with PMRpro and others I added 5mg. I had gone through an awful fatigue etc very slow drop from 6.5mg to 6mg. It took me about 5 weeks and was feeling good after 2 weeks on 6 every day but stiffness started at week3. Now had 13 days on higher dose...11/12mg.It was better some days
Ebiker
in
PMRGCAuk
1 year ago
Aplastic anaemia? Managing stress and uncertainty- free online course, starts Aug 18
" - Feedback from Lesley's previous
aplastic
anaemia
support sessions.
" - Feedback from Lesley's previous
aplastic
anaemia
support sessions.
DC_motheranddaughter
Partner
in
DC Action
2 years ago
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