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I am very fortunate that I can pop down to P.A. Society Head Quarters to lend a hand. I did this morning. There are 4 volunteers helping the small amount of staff run the organisation . The person there today was inundated when I rocked up. As they are everyday. We could talk for weeks but I said, ‘No
I am very fortunate that I can pop down to P.A. Society Head Quarters to lend a hand. I did this morning. There are 4 volunteers helping the small amount of staff run the organisation . The person there today was inundated when I rocked up. As they are everyday. We could talk for weeks but I said, ‘No
Narwhal10
in
Pernicious Anaemia Society
8 months ago
Does the pill have the same effect as the injection?
I am from Argentina. My son has been struggling with depression and anxiety for years. 2 years ago we found out he had high homocysteine, low B12 and he has MTHFR. He is being treated with B12 pills (Jarrow) his values have improved but his symptoms persist. I saw your information in PERNICIOUS
I am from Argentina. My son has been struggling with depression and anxiety for years. 2 years ago we found out he had high homocysteine, low B12 and he has MTHFR. He is being treated with B12 pills (Jarrow) his values have improved but his symptoms persist. I saw your information in PERNICIOUS
MarianaCD
in
Pernicious Anaemia Society
11 months ago
Wake up very cold around 230 to 330 am . Any suggestions?
Wake up very cold and was wondering if any supplements might help this. Taking iron pills and b12 injections currently.
Wake up very cold and was wondering if any supplements might help this. Taking iron pills and b12 injections currently.
84withb12d
in
Pernicious Anaemia Society
11 months ago
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Iron Infusion Attempt
This week I saw Dr Robin Fackrell privately at Bath Sulis Hospital to discuss whether an iron infusion would be an appropriate way forward for me and if so how I could progress this. The outcome of the session is that Dr Fackrell will write back to my GP recommending this course of action for my RLS
This week I saw Dr Robin Fackrell privately at Bath Sulis Hospital to discuss whether an iron infusion would be an appropriate way forward for me and if so how I could progress this. The outcome of the session is that Dr Fackrell will write back to my GP recommending this course of action for my RLS
Munroist
in
Restless Legs Syndrome
11 months ago
How likely is it I have PA
Hello, I would appreciate some feedback on your own experiences of diagnosis. - 3 months ago I had a B12 level of <142 and a range of related symptoms - Full Blood count did not show an abnormalities but I was also deficient in ferritin. - I am 37 and have been diagnosed with hashimotos since I
Hello, I would appreciate some feedback on your own experiences of diagnosis. - 3 months ago I had a B12 level of <142 and a range of related symptoms - Full Blood count did not show an abnormalities but I was also deficient in ferritin. - I am 37 and have been diagnosed with hashimotos since I
Sparkleros
in
Pernicious Anaemia Society
6 months ago
thought I’d do a new post
I wrote last week about iron results, and was asked if I had more results so I’m giving them now I was on 150 thyroxine/12/1/2 t3 , haemoglobin level. 141g/l. ( 115-165g/l White blood 7.3. ( 4.10- 11/10g/l Platelet count 208. (135-450g/l Red cell count 4.9 (3.8-4.8 Heamatocrit 0.429 (0.37-
I wrote last week about iron results, and was asked if I had more results so I’m giving them now I was on 150 thyroxine/12/1/2 t3 , haemoglobin level. 141g/l. ( 115-165g/l White blood 7.3. ( 4.10- 11/10g/l Platelet count 208. (135-450g/l Red cell count 4.9 (3.8-4.8 Heamatocrit 0.429 (0.37-
Kowbie
in
Thyroid UK
11 months ago
B12 problems?
I don't know what your symptoms are but I was vitamin b12 deficient with a similar reading and I had the symptoms of tingling and wierd dizziness among others. Despite this I was told it was fine as within normal limits. It is a large range and stands to reason that that reading can be low for some
I don't know what your symptoms are but I was vitamin b12 deficient with a similar reading and I had the symptoms of tingling and wierd dizziness among others. Despite this I was told it was fine as within normal limits. It is a large range and stands to reason that that reading can be low for some
trisha7
in
Thyroid UK
11 months ago
Besremi working well- 150 mcg every month instead of bi-weekly
So, my WBC, RBC, HCT, and hemoglobin went down below the range for a couple of months. Instead of lowering the dose, the haematologist advised me to keep the 150 mcg dose but inject it every month instead of bi-weekly. My latest CBC and CMP show that all blood counts/parameters except hemoglobin were
So, my WBC, RBC, HCT, and hemoglobin went down below the range for a couple of months. Instead of lowering the dose, the haematologist advised me to keep the 150 mcg dose but inject it every month instead of bi-weekly. My latest CBC and CMP show that all blood counts/parameters except hemoglobin were
Pat032018
in
MPN Voice
11 months ago
⁸Low Haemoglobin
My latest blood test showed low haemoglobin so my GP ordered a whole raft of additional tests to check B12, thyroid, etc as well as a stool test to check for internal bleeding. Stool test negative. Other test results outstanding. Could end up having the up AND down camera tests! Been reading all I can
My latest blood test showed low haemoglobin so my GP ordered a whole raft of additional tests to check B12, thyroid, etc as well as a stool test to check for internal bleeding. Stool test negative. Other test results outstanding. Could end up having the up AND down camera tests! Been reading all I can
Queenie1901
in
PMRGCAuk
11 months ago
Iron could help B12 levels
Hi everyone, I’ve never post before… but I came across some useful information that could help you all. In my own personal experience I developed a b12 deficiency for no particular reason, I’ve been tested for pernicious anemia and that came back negative, I put it down to a mixture of a restricted
Hi everyone, I’ve never post before… but I came across some useful information that could help you all. In my own personal experience I developed a b12 deficiency for no particular reason, I’ve been tested for pernicious anemia and that came back negative, I put it down to a mixture of a restricted
MarvelDC
in
Pernicious Anaemia Society
6 months ago
New papers on PA
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
jade_s
in
Pernicious Anaemia Society
9 months ago
High Eosinophils
I'd be interested to hear if others that have been diagnosed with autoimmune gastritis/PA and/or Hashimoto's Thyroiditis have consistently higher than normal Eosinophils in their blood test results. Just curious. Rexz
I'd be interested to hear if others that have been diagnosed with autoimmune gastritis/PA and/or Hashimoto's Thyroiditis have consistently higher than normal Eosinophils in their blood test results. Just curious. Rexz
Rexz
in
Pernicious Anaemia Society
11 months ago
Boron, an interesting article about supplement for T3 increase
Found this article which I found interesting as a possible supplement to assist with T3 may consider after next blood test if no improvement. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/?fbclid=IwAR3dMJ-9rLLZ47g1qBU4LbMViJROk8gIbRNhijGMMW3giwHjVbsY06Huppk
Found this article which I found interesting as a possible supplement to assist with T3 may consider after next blood test if no improvement. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/?fbclid=IwAR3dMJ-9rLLZ47g1qBU4LbMViJROk8gIbRNhijGMMW3giwHjVbsY06Huppk
Humphre
in
Thyroid UK
6 months ago
SC in Australia
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
greenscarf
in
Pernicious Anaemia Society
11 months ago
Starting to struggle
Hi I've been diagnosed for a couple of years now although I've struggled on medication, I'm waiting to go on adalimumab injection. I feel like even though I've felt rough on other meds waiting to start this I've felt as if I've crashed and burnt with Ra. I feel so bad joint wise and feel so down which
Hi I've been diagnosed for a couple of years now although I've struggled on medication, I'm waiting to go on adalimumab injection. I feel like even though I've felt rough on other meds waiting to start this I've felt as if I've crashed and burnt with Ra. I feel so bad joint wise and feel so down which
Penelopepitstoq1uk
in
NRAS
11 months ago
Advice on latest test results
Hi, I got diagnosed with underactive thyroid in September 2023. I was put on 50g of Levothyroxine and iron tablets as I had low ferritin and anemic. My latest results show I'm no longer anemic but my ferritin is still relativity low despite having been on iron tablets for 2 months. Dr seems to be
Hi, I got diagnosed with underactive thyroid in September 2023. I was put on 50g of Levothyroxine and iron tablets as I had low ferritin and anemic. My latest results show I'm no longer anemic but my ferritin is still relativity low despite having been on iron tablets for 2 months. Dr seems to be
Shoesy99
in
Thyroid UK
6 months ago
Late covid
My health centre is the same one that my parents used and took me and my siblings to. I am 76 years old. The building and street locations have changed and of course the doctors too but we in our town have always considered the present building to be our local, first port of call when we or our own
My health centre is the same one that my parents used and took me and my siblings to. I am 76 years old. The building and street locations have changed and of course the doctors too but we in our town have always considered the present building to be our local, first port of call when we or our own
3rdNettydoon
in
Pernicious Anaemia Society
9 months ago
Folate deficiency
Not had blood tests since before the pandemic. Just recieved my April 23 blood test results. My Serum Folate is 3.6 ug/L Deficient being <3.9 ug/L My B12 level tested at 661 ng/L (normal range 197-771) I take an oral methyl /adenosyn B12 supplement as never could get the GP to see that
Not had blood tests since before the pandemic. Just recieved my April 23 blood test results. My Serum Folate is 3.6 ug/L Deficient being <3.9 ug/L My B12 level tested at 661 ng/L (normal range 197-771) I take an oral methyl /adenosyn B12 supplement as never could get the GP to see that
LynneG
in
Pernicious Anaemia Society
11 months ago
Conjecture
I use conjecture as part of my creative process. Thing is I do not pretend it is anything but conjecture. Using those who share their experience on this forum it seems to me that of the three forms readily commercially available Methylcobalamin has the most profound effect. As a person who is not
I use conjecture as part of my creative process. Thing is I do not pretend it is anything but conjecture. Using those who share their experience on this forum it seems to me that of the three forms readily commercially available Methylcobalamin has the most profound effect. As a person who is not
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
Brighton Marathon 2024
We have secured three places for Brighton Marathon Sunday 7th April 2024 in the name of The Pernicious Anaemia Society. We are looking for runners who want to help us raise awareness and raise money for the Pernicious Anaemia Society. I'm not suggesting that anyone here struggling with PA or B12
We have secured three places for Brighton Marathon Sunday 7th April 2024 in the name of The Pernicious Anaemia Society. We are looking for runners who want to help us raise awareness and raise money for the Pernicious Anaemia Society. I'm not suggesting that anyone here struggling with PA or B12
PAScomms
in
Pernicious Anaemia Society
9 months ago
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