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Peginterferon and platelets
I started taking peginterferon 45 mg in November 2023 with a platelet count of 860. Since then, my bloods have been checked monthly, and my dose gradually increased. On Monday I will start 180 mg, alternating the dose weekly with 135 mg for a month, as my platelet count is now 665 and my Haematologist
I started taking peginterferon 45 mg in November 2023 with a platelet count of 860. Since then, my bloods have been checked monthly, and my dose gradually increased. On Monday I will start 180 mg, alternating the dose weekly with 135 mg for a month, as my platelet count is now 665 and my Haematologist
Lyndjs
in
MPN Voice
15 days ago
Muscle Damage
Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last couple of months or so, it seems like I’m having an increasingly difficult time injecting my thighs. The injection itself seems to go really well
Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last couple of months or so, it seems like I’m having an increasingly difficult time injecting my thighs. The injection itself seems to go really well
Cobalt1312
in
Pernicious Anaemia Society
15 days ago
A long shot…
Hi, I’m usually posting to the pernicious anaemia forum but I’m also hypo. I have downloaded the list containing NHS endocrinologists and I was wandering? I’m on a journey to discover, on behalf of my GP, whom he can write to in the NHS (a consultant) who is sympathetically knowledgeable concerning B12D
Hi, I’m usually posting to the pernicious anaemia forum but I’m also hypo. I have downloaded the list containing NHS endocrinologists and I was wandering? I’m on a journey to discover, on behalf of my GP, whom he can write to in the NHS (a consultant) who is sympathetically knowledgeable concerning B12D
B12again
in
Thyroid UK
17 days ago
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some advice needed please
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Windyway
in
Pernicious Anaemia Society
17 days ago
Help please to understand blood test results a month after c vaccine
Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come back today with high MCH and MCV has climbed. I had a c vaccine a mth ago and every thing flared up exhaustion neuropathy etcblurred vision
Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come back today with high MCH and MCV has climbed. I had a c vaccine a mth ago and every thing flared up exhaustion neuropathy etcblurred vision
brenanddave
in
Pernicious Anaemia Society
17 days ago
Methyl or Hydro B12 injections - is it safe to switch between both each month?
Is it safe to switch between different types of B12 injections? For example, one month I take the hydroxocobalamin injection and the next month i take the methylcobalamin injection? I feel better with methylcobalamin , but I’m only prescribed the hydroxocobalamin but I’m thinking to take methylcobalamin
Is it safe to switch between different types of B12 injections? For example, one month I take the hydroxocobalamin injection and the next month i take the methylcobalamin injection? I feel better with methylcobalamin , but I’m only prescribed the hydroxocobalamin but I’m thinking to take methylcobalamin
LaraPA
in
Pernicious Anaemia Society
17 days ago
Buprenorphine transition from patch to tablets
Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch does not last 7 days, 5 if you are lucky. Consequently, I change it every 5 days and have had pretty good results. Initially, I would have moderate
Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch does not last 7 days, 5 if you are lucky. Consequently, I change it every 5 days and have had pretty good results. Initially, I would have moderate
RiversW
in
Restless Legs Syndrome
18 days ago
Accessing Iron Infusion
hey folks Wondering if anyone can help or has experience with the situation I am in. I would be really grateful for some advice. I have had RLS since my mid 20s and it has slowly gotten worse. I am now 35 and have tried a number of different medications one being ropinirole which I have successfully
hey folks Wondering if anyone can help or has experience with the situation I am in. I would be really grateful for some advice. I have had RLS since my mid 20s and it has slowly gotten worse. I am now 35 and have tried a number of different medications one being ropinirole which I have successfully
Xicara
in
Restless Legs Syndrome
19 days ago
high b12 high mch and mcv
Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 - 157) What does this mean? I am not taking b12 supplements or injections. My GP said that I had a b12 deficiency (she didn't measure my b12),
Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 - 157) What does this mean? I am not taking b12 supplements or injections. My GP said that I had a b12 deficiency (she didn't measure my b12),
nyx19
in
Pernicious Anaemia Society
20 days ago
anemia
I have been on watch and wait for three years, I mostly had SLL, with alot of lymph node involvement. The last couple of months my hemoglobin and hematocrit are going down, has anyone else had this problem? What does this mean?
I have been on watch and wait for three years, I mostly had SLL, with alot of lymph node involvement. The last couple of months my hemoglobin and hematocrit are going down, has anyone else had this problem? What does this mean?
Gino23
in
CLL Support
21 days ago
Is carvedilol making you cold?
I recently had my Carvedilol increased to 6.25mg twice a day. Lately, I am freezing to the bone. I turn my heating up and up and am still cold when everyone else says its like a sauna. I just wondered if anyone else has this? It could also be my recent addition of diabetes medication, Sitagliptin. Never
I recently had my Carvedilol increased to 6.25mg twice a day. Lately, I am freezing to the bone. I turn my heating up and up and am still cold when everyone else says its like a sauna. I just wondered if anyone else has this? It could also be my recent addition of diabetes medication, Sitagliptin. Never
Erish
in
British Liver Trust
21 days ago
Just having a bad day
April hasn't been a good month for me and synotoms. Been on only 50mcg levo since end of September. Only JUST this week got an increase to 75 thanks to the private bloods I did due to recommendations on this site. First I caught a sinus cold at the start of Easter break, which triggered a flare up
April hasn't been a good month for me and synotoms. Been on only 50mcg levo since end of September. Only JUST this week got an increase to 75 thanks to the private bloods I did due to recommendations on this site. First I caught a sinus cold at the start of Easter break, which triggered a flare up
Obsdian
in
Thyroid UK
21 days ago
Haematologist’s unsupportive B12 response
In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m low in ferritin (40) I’m not yet needing an iron infusion just yet. My white cell count was seemingly low also and she suggested that I should get
In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m low in ferritin (40) I’m not yet needing an iron infusion just yet. My white cell count was seemingly low also and she suggested that I should get
GoneWithTheWind1972
in
Pernicious Anaemia Society
22 days ago
Increased my ferritin levels
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Pippins2
in
Restless Legs Syndrome
23 days ago
Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
24 days ago
A victory with my NHS GP! 🥳
I just wanted to share my joy that I've won my battle with my local surgery to get my EOD B12 injections on NHS prescription! After complaining in a persistent and factual manner about their handling of my health issues, I asked for them to provide injectable B12 over a pill that my stomach can't absorb
I just wanted to share my joy that I've won my battle with my local surgery to get my EOD B12 injections on NHS prescription! After complaining in a persistent and factual manner about their handling of my health issues, I asked for them to provide injectable B12 over a pill that my stomach can't absorb
ClaireWF1346
in
Pernicious Anaemia Society
24 days ago
UPDATE on Iron and Vitamin D
I just talked to my Doctor and he is putting me on 50,000 1 tablet a week vitamin D and has put me in for Iron infusion. I was surprised he said that I was iron deficient (not Anemic) but this is going in the wrong direction and is getting out of control and I need my iron to be closer to 100 (shocked
I just talked to my Doctor and he is putting me on 50,000 1 tablet a week vitamin D and has put me in for Iron infusion. I was surprised he said that I was iron deficient (not Anemic) but this is going in the wrong direction and is getting out of control and I need my iron to be closer to 100 (shocked
Batty1
in
Thyroid UK
24 days ago
Iron Supplement
Hello, I recently started taking iron supplements as my level was 90 and it's advised should be over 100. I have now had black diarrhea for three weeks and the worst stomach acid. I have now stopped the iron supplements. Does anyone have any advice on what my next step should be. I have not spoken to
Hello, I recently started taking iron supplements as my level was 90 and it's advised should be over 100. I have now had black diarrhea for three weeks and the worst stomach acid. I have now stopped the iron supplements. Does anyone have any advice on what my next step should be. I have not spoken to
Thebarber
in
Restless Legs Syndrome
25 days ago
Elevated liver enzymes
Hi, my daughter has Graves and her latest blood test shows elevated liver enzymes, is this because she's on carbimazole. Prior to taking carbimazole her liver function was normal.
Hi, my daughter has Graves and her latest blood test shows elevated liver enzymes, is this because she's on carbimazole. Prior to taking carbimazole her liver function was normal.
AngelicUpstart
in
Thyroid UK
25 days ago
Advice needed on iron/ferritin levels please
I'd be really grateful if anyone could advise on whether I need to be concerned about my iron/ferritin levels. I'm seeing a neurologist tomorrow and want to be well informed. I have results from my last three blood tests so hopefully that might help. Serum iron level: October 2023 - 7.7 umol/L; January
I'd be really grateful if anyone could advise on whether I need to be concerned about my iron/ferritin levels. I'm seeing a neurologist tomorrow and want to be well informed. I have results from my last three blood tests so hopefully that might help. Serum iron level: October 2023 - 7.7 umol/L; January
Claire_lc
in
Restless Legs Syndrome
25 days ago
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